메뉴 건너뛰기




Volumn 74, Issue 4, 2012, Pages 546-553

Being differently the same: The mediation of identity tensions in the sharing of illness experiences

Author keywords

Experiential knowledge; Identity tensions; Illness experiences; Metaphor; Motor neurone disease; Parkinson's disease; Secondary analysis; Support; United Kingdom

Indexed keywords

DISEASE PREVALENCE; HEALTH CARE; KNOWLEDGE;

EID: 84856367598     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2011.10.036     Document Type: Article
Times cited : (48)

References (58)
  • 1
    • 0001815110 scopus 로고    scopus 로고
    • Selective compliance with biomedical authority and the uses of experiential knowledge
    • Cambridge University Press, Cambridge, M.M. Lock, P.A. Kaufert (Eds.)
    • Abel K., Browner C. Selective compliance with biomedical authority and the uses of experiential knowledge. Pragmatic women and body politics 1998, 310-327. Cambridge University Press, Cambridge. M.M. Lock, P.A. Kaufert (Eds.).
    • (1998) Pragmatic women and body politics , pp. 310-327
    • Abel, K.1    Browner, C.2
  • 2
    • 17444366933 scopus 로고    scopus 로고
    • The effect of experiential knowledge on construction of risk perception in hereditary breast/ovarian cancer
    • D'Agincourt-Canning L. The effect of experiential knowledge on construction of risk perception in hereditary breast/ovarian cancer. Journal of Genetic Counseling 2005, 14(1):55-69.
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.1 , pp. 55-69
    • D'Agincourt-Canning, L.1
  • 3
    • 84937306525 scopus 로고
    • Expert and lay participation in the construction of medical knowledge
    • Arksey H. Expert and lay participation in the construction of medical knowledge. Sociology of Health & Illness 1994, 16(4):448-468.
    • (1994) Sociology of Health & Illness , vol.16 , Issue.4 , pp. 448-468
    • Arksey, H.1
  • 4
    • 70349150193 scopus 로고    scopus 로고
    • Patient perspectives on health advice posted on Internet discussion boards: a qualitative study
    • Armstrong N., Powell J. Patient perspectives on health advice posted on Internet discussion boards: a qualitative study. Health Expectations 2009, 12(3):313-320.
    • (2009) Health Expectations , vol.12 , Issue.3 , pp. 313-320
    • Armstrong, N.1    Powell, J.2
  • 5
    • 41049088161 scopus 로고    scopus 로고
    • 'We are here to give you emotional support': performing emotions in an online HIV/AIDS support group
    • Bar-Lev S. 'We are here to give you emotional support': performing emotions in an online HIV/AIDS support group. Qualitative Health Research 2008, 18(4):509-521.
    • (2008) Qualitative Health Research , vol.18 , Issue.4 , pp. 509-521
    • Bar-Lev, S.1
  • 6
    • 0017088327 scopus 로고
    • Experiential knowledge: a new concept for the analysis of self-help groups
    • Borkman T. Experiential knowledge: a new concept for the analysis of self-help groups. The Social Service Review 1976, 50(3):445-456.
    • (1976) The Social Service Review , vol.50 , Issue.3 , pp. 445-456
    • Borkman, T.1
  • 7
    • 33750443508 scopus 로고    scopus 로고
    • User, carer and professional experiences of care in motor neurone disease
    • Brown J.B. User, carer and professional experiences of care in motor neurone disease. Primary Health Care Research & Development 2003, 4(03):207-217.
    • (2003) Primary Health Care Research & Development , vol.4 , Issue.3 , pp. 207-217
    • Brown, J.B.1
  • 8
    • 0035324776 scopus 로고    scopus 로고
    • Illness narratives: fact or fiction
    • Bury M. Illness narratives: fact or fiction. Sociology of Health & Illness 2001, 23(3):263-285.
    • (2001) Sociology of Health & Illness , vol.23 , Issue.3 , pp. 263-285
    • Bury, M.1
  • 9
    • 0025277213 scopus 로고
    • 'Discovering' chronic illness: using grounded theory
    • Charmaz K. 'Discovering' chronic illness: using grounded theory. Social Science & Medicine 1990, 30(11):1161-1172.
    • (1990) Social Science & Medicine , vol.30 , Issue.11 , pp. 1161-1172
    • Charmaz, K.1
  • 11
    • 34548484589 scopus 로고    scopus 로고
    • Parkinson's disease
    • Clarke C.E. Parkinson's disease. British Medical Journal 2007, 335(7617):441-445.
    • (2007) British Medical Journal , vol.335 , Issue.7617 , pp. 441-445
    • Clarke, C.E.1
  • 12
    • 33645087637 scopus 로고    scopus 로고
    • Cancer in the mass print media: fear, uncertainty and the medical model
    • Clarke J.N., Everest M.M. Cancer in the mass print media: fear, uncertainty and the medical model. Social Science & Medicine 2006, 62(10):2591-2600.
    • (2006) Social Science & Medicine , vol.62 , Issue.10 , pp. 2591-2600
    • Clarke, J.N.1    Everest, M.M.2
  • 13
    • 0024638729 scopus 로고
    • AIDS and the dangerous other: metaphors of sex and deviance in the representation of disease
    • Clatts M.C., Mutchler K.M. AIDS and the dangerous other: metaphors of sex and deviance in the representation of disease. Medical Anthropology 1989, 10(2-3):105-114.
    • (1989) Medical Anthropology , vol.10 , Issue.2-3 , pp. 105-114
    • Clatts, M.C.1    Mutchler, K.M.2
  • 14
    • 34548509498 scopus 로고    scopus 로고
    • Social support in cyberspace: a content analysis of communication within a Huntington's disease online support group
    • Coulson N.S., Buchanan H., Aubeeluck A. Social support in cyberspace: a content analysis of communication within a Huntington's disease online support group. Patient Education and Counseling 2007, 68(2):173-178.
    • (2007) Patient Education and Counseling , vol.68 , Issue.2 , pp. 173-178
    • Coulson, N.S.1    Buchanan, H.2    Aubeeluck, A.3
  • 15
    • 0031230693 scopus 로고    scopus 로고
    • Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries?
    • Coyne I.T. Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries?. Journal of Advanced Nursing 1997, 26(3):623-630.
    • (1997) Journal of Advanced Nursing , vol.26 , Issue.3 , pp. 623-630
    • Coyne, I.T.1
  • 16
    • 84856377932 scopus 로고    scopus 로고
    • Department of Health Information for health: An information strategy for the modern NHS 1998-2005-executive summary
    • London
    • Department of Health Information for health: An information strategy for the modern NHS 1998-2005-executive summary 1998, London.
    • (1998)
  • 17
    • 24944547328 scopus 로고    scopus 로고
    • Department of Health Saving lives: Our healthier nation
    • London
    • Department of Health Saving lives: Our healthier nation 1999, London.
    • (1999)
  • 18
    • 0004196907 scopus 로고    scopus 로고
    • Department of Health The expert patient: A new approach to chronic disease management for the 21st century
    • London
    • Department of Health The expert patient: A new approach to chronic disease management for the 21st century 2001, London.
    • (2001)
  • 19
    • 79960977069 scopus 로고    scopus 로고
    • Department of Health Equity and excellence: Liberating the NHS
    • London
    • Department of Health Equity and excellence: Liberating the NHS 2010, London.
    • (2010)
  • 20
    • 29144432309 scopus 로고    scopus 로고
    • Social capital and social support on the web: the case of an internet mother site
    • Drentea P., Moren-Cross J.L. Social capital and social support on the web: the case of an internet mother site. Sociology of Health & Illness 2005, 27(7):920-943.
    • (2005) Sociology of Health & Illness , vol.27 , Issue.7 , pp. 920-943
    • Drentea, P.1    Moren-Cross, J.L.2
  • 21
    • 41449084590 scopus 로고    scopus 로고
    • The influence of experiential knowledge on prenatal screening and testing decisions
    • Etchegary H., Potter B., Howley H., Cappelli M., Coyle D., Graham I., et al. The influence of experiential knowledge on prenatal screening and testing decisions. Genetic Testing 2008, 12(1):115-124.
    • (2008) Genetic Testing , vol.12 , Issue.1 , pp. 115-124
    • Etchegary, H.1    Potter, B.2    Howley, H.3    Cappelli, M.4    Coyle, D.5    Graham, I.6
  • 22
    • 4644234910 scopus 로고
    • Atheory of social comparison processes
    • Festinger L. Atheory of social comparison processes. Human Relations 1954, 7(2):117-140.
    • (1954) Human Relations , vol.7 , Issue.2 , pp. 117-140
    • Festinger, L.1
  • 23
    • 79952009684 scopus 로고    scopus 로고
    • How personal experiences feature in women's accounts of use of information for decisions about antenatal diagnostic testing for foetal abnormality
    • France E.F., Wyke S., Ziebland S., Entwistle V.A., Hunt K. How personal experiences feature in women's accounts of use of information for decisions about antenatal diagnostic testing for foetal abnormality. Social Science & Medicine 2011, 72(5):755-762.
    • (2011) Social Science & Medicine , vol.72 , Issue.5 , pp. 755-762
    • France, E.F.1    Wyke, S.2    Ziebland, S.3    Entwistle, V.A.4    Hunt, K.5
  • 25
    • 38849173101 scopus 로고    scopus 로고
    • The presentation of 'pro-anorexia' in online group interactions
    • Gavin J., Rodham K., Poyer H. The presentation of 'pro-anorexia' in online group interactions. Qualitative Health Research 2008, 18(3):325-333.
    • (2008) Qualitative Health Research , vol.18 , Issue.3 , pp. 325-333
    • Gavin, J.1    Rodham, K.2    Poyer, H.3
  • 26
    • 0036371559 scopus 로고    scopus 로고
    • Embodied metaphor in women's narratives about their experiences with cancer
    • Gibbs R., Franks H. Embodied metaphor in women's narratives about their experiences with cancer. Health Communication 2002, 14(2):139-165.
    • (2002) Health Communication , vol.14 , Issue.2 , pp. 139-165
    • Gibbs, R.1    Franks, H.2
  • 30
    • 0036178629 scopus 로고    scopus 로고
    • Representations of far-flung illnesses: the case of Ebola in Britain
    • Joffe H., Haarhoff G. Representations of far-flung illnesses: the case of Ebola in Britain. Social Science & Medicine 2002, 54(6):955-969.
    • (2002) Social Science & Medicine , vol.54 , Issue.6 , pp. 955-969
    • Joffe, H.1    Haarhoff, G.2
  • 31
    • 0034407205 scopus 로고    scopus 로고
    • Media templates: patterns of association and the (re)construction of meaning over time
    • Kitzinger J. Media templates: patterns of association and the (re)construction of meaning over time. Media, Culture & Society 2000, 22(1):61-84.
    • (2000) Media, Culture & Society , vol.22 , Issue.1 , pp. 61-84
    • Kitzinger, J.1
  • 32
  • 33
    • 0037791680 scopus 로고    scopus 로고
    • Lay experiences of health and illness: past research and future agendas
    • Lawton J. Lay experiences of health and illness: past research and future agendas. Sociology of Health & Illness 2003, 25(3):23-40.
    • (2003) Sociology of Health & Illness , vol.25 , Issue.3 , pp. 23-40
    • Lawton, J.1
  • 34
    • 77956650152 scopus 로고    scopus 로고
    • 'All in the same boat'? Patient and carer attitudes to peer support and social comparison in motor neurone disease (MND)
    • Locock L., Brown J.B. 'All in the same boat'? Patient and carer attitudes to peer support and social comparison in motor neurone disease (MND). Social Science & Medicine 2010, 71(8):1498-1505.
    • (2010) Social Science & Medicine , vol.71 , Issue.8 , pp. 1498-1505
    • Locock, L.1    Brown, J.B.2
  • 35
    • 70350513166 scopus 로고    scopus 로고
    • Biographical disruption, abruption and repair in the context of motor neurone disease
    • Locock L., Ziebland S., Dumelow C. Biographical disruption, abruption and repair in the context of motor neurone disease. Sociology of Health & Illness 2009, 31(7):1043-1058.
    • (2009) Sociology of Health & Illness , vol.31 , Issue.7 , pp. 1043-1058
    • Locock, L.1    Ziebland, S.2    Dumelow, C.3
  • 37
    • 38749106971 scopus 로고    scopus 로고
    • 'Ordinary people only': knowledge, representativeness, and the publics of public participation in healthcare
    • Martin G.P. 'Ordinary people only': knowledge, representativeness, and the publics of public participation in healthcare. Sociology of Health & Illness 2008, 30(1):35-54.
    • (2008) Sociology of Health & Illness , vol.30 , Issue.1 , pp. 35-54
    • Martin, G.P.1
  • 38
    • 41449118875 scopus 로고    scopus 로고
    • Diagnosis and management of motor neurone disease
    • McDermott C.J., Shaw P.J. Diagnosis and management of motor neurone disease. British Medical Journal 2008, 336(7645):658-662.
    • (2008) British Medical Journal , vol.336 , Issue.7645 , pp. 658-662
    • McDermott, C.J.1    Shaw, P.J.2
  • 39
    • 77950208732 scopus 로고    scopus 로고
    • Living with HIV/AIDS and use of online support groups
    • Mo P.K.H., Coulson N.S. Living with HIV/AIDS and use of online support groups. Journal of Health Psychology 2010, 15(3):339-350.
    • (2010) Journal of Health Psychology , vol.15 , Issue.3 , pp. 339-350
    • Mo, P.K.H.1    Coulson, N.S.2
  • 42
    • 25444488240 scopus 로고    scopus 로고
    • Enacting appreciations: beyond the patient perspective
    • Pols J. Enacting appreciations: beyond the patient perspective. Health Care Analysis 2005, 13(3):203-221.
    • (2005) Health Care Analysis , vol.13 , Issue.3 , pp. 203-221
    • Pols, J.1
  • 44
    • 56549123628 scopus 로고    scopus 로고
    • Aspace for suffering? Communicating breast cancer in an online self-help context
    • Sandaunet A.G. Aspace for suffering? Communicating breast cancer in an online self-help context. Qualitative Health Research 2008, 18(12):1631-1641.
    • (2008) Qualitative Health Research , vol.18 , Issue.12 , pp. 1631-1641
    • Sandaunet, A.G.1
  • 45
    • 0035324774 scopus 로고    scopus 로고
    • Sporting cancer: struggle language in news reports of people with cancer
    • Seale C. Sporting cancer: struggle language in news reports of people with cancer. Sociology of Health & Illness 2001, 23(3):308-329.
    • (2001) Sociology of Health & Illness , vol.23 , Issue.3 , pp. 308-329
    • Seale, C.1
  • 46
    • 0141959103 scopus 로고    scopus 로고
    • Health and media: an overview
    • Seale C. Health and media: an overview. Sociology of Health & Illness 2003, 25(6):513-531.
    • (2003) Sociology of Health & Illness , vol.25 , Issue.6 , pp. 513-531
    • Seale, C.1
  • 47
    • 0030732965 scopus 로고    scopus 로고
    • Communicating breast cancer on-line: support and empowerment on the Internet
    • Sharf B. Communicating breast cancer on-line: support and empowerment on the Internet. Women and Health 1997, 26(1):65-84.
    • (1997) Women and Health , vol.26 , Issue.1 , pp. 65-84
    • Sharf, B.1
  • 48
    • 0003805089 scopus 로고
    • Farrar, Straus and Giroux, New York
    • Sontag S. Illness as metaphor 1977, Farrar, Straus and Giroux, New York.
    • (1977) Illness as metaphor
    • Sontag, S.1
  • 50
    • 0030952028 scopus 로고    scopus 로고
    • Life stories and shared experience
    • Steffen V. Life stories and shared experience. Social Science & Medicine 1997, 45(1):99-111.
    • (1997) Social Science & Medicine , vol.45 , Issue.1 , pp. 99-111
    • Steffen, V.1
  • 52
    • 77954650148 scopus 로고    scopus 로고
    • How should we treat a patient with early Parkinson's disease?
    • Tsouli S., Konitsiotis S. How should we treat a patient with early Parkinson's disease?. International Journal of Clinical Practice 2010, 64(9):1210-1219.
    • (2010) International Journal of Clinical Practice , vol.64 , Issue.9 , pp. 1210-1219
    • Tsouli, S.1    Konitsiotis, S.2
  • 53
    • 0008445231 scopus 로고    scopus 로고
    • Hot crises and media reassurance: a comparison of emerging diseases and Ebola Zaire
    • Ungar S. Hot crises and media reassurance: a comparison of emerging diseases and Ebola Zaire. The British Journal of Sociology 1998, 49(1):36-56.
    • (1998) The British Journal of Sociology , vol.49 , Issue.1 , pp. 36-56
    • Ungar, S.1
  • 54
    • 38849140971 scopus 로고    scopus 로고
    • Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia
    • van Uden-Kraan C.F., Drossaert C.H.C., Taal E., Shaw B.R., Seydel E.R., van de Laar M.A.F.J. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. Qualitative Health Research 2008, 18(3):405-417.
    • (2008) Qualitative Health Research , vol.18 , Issue.3 , pp. 405-417
    • van Uden-Kraan, C.F.1    Drossaert, C.H.C.2    Taal, E.3    Shaw, B.R.4    Seydel, E.R.5    van de Laar, M.A.F.J.6
  • 55
    • 16244371331 scopus 로고    scopus 로고
    • Disease metaphors in new epidemics: the UK media framing of the 2003 SARS epidemic
    • Wallis P., Nerlich B. Disease metaphors in new epidemics: the UK media framing of the 2003 SARS epidemic. Social Science & Medicine 2005, 60(11):2629-2639.
    • (2005) Social Science & Medicine , vol.60 , Issue.11 , pp. 2629-2639
    • Wallis, P.1    Nerlich, B.2
  • 56
    • 0031299062 scopus 로고    scopus 로고
    • Signifying the pandemics: metaphors of AIDS, cancer, and heart disease
    • Weiss M. Signifying the pandemics: metaphors of AIDS, cancer, and heart disease. Medical Anthropology Quarterly 1997, 11(4):456-476.
    • (1997) Medical Anthropology Quarterly , vol.11 , Issue.4 , pp. 456-476
    • Weiss, M.1
  • 57
    • 0021453787 scopus 로고
    • The genesis of chronic illness: narrative re-construction
    • Williams G. The genesis of chronic illness: narrative re-construction. Sociology of Health & Illness 1984, 6(2):175-200.
    • (1984) Sociology of Health & Illness , vol.6 , Issue.2 , pp. 175-200
    • Williams, G.1
  • 58
    • 33745648129 scopus 로고    scopus 로고
    • Support provision and emotional work in an Internet support group for cancer patients
    • Winefield H.R. Support provision and emotional work in an Internet support group for cancer patients. Patient Education and Counseling 2006, 62(2):193-197.
    • (2006) Patient Education and Counseling , vol.62 , Issue.2 , pp. 193-197
    • Winefield, H.R.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.