Living with HIV/AIDS and use of online support groups

Journal of Health Psychology

Volumn 15, Issue 3, 2010, Pages 339-350

  Mo, Phoenix K H ^a   Coulson, Neil S ^a  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

Author keywords

Coping; Health status; HIV AIDS; Internet; Online support groups; Social support

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; FEMALE; HEALTH STATUS; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; INTERNET; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SELF HELP; SOCIAL SUPPORT; UTILIZATION REVIEW;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; FEMALE; HEALTH STATUS; HIV LONG-TERM SURVIVORS; HUMANS; INTERNET; MALE; MIDDLE AGED; QUESTIONNAIRES; SELF-HELP GROUPS; SOCIAL SUPPORT;

EID: 77950208732     PISSN: 13591053     EISSN: 14617277     Source Type: Journal    
DOI: 10.1177/1359105309348808     Document Type: Article

References (66)

1. Bader, A., Kremer, H., Erlich-Trungenberger, I., Rojas, R., Lohmann, M., & Deobald, O., et al. (2006). An adherence typology: coping, quality of life, and physical symptoms of people living with HIV/AIDS and their adherence to antiretroviral treatment. Medical Science Monitor, 12 (12). CR493-500.
2. Bar-Lev, S. (2008). ?We are here to give you emotional support?: Performing emotions in an online HIV/AIDS support group. Qualitative Health Research, 18 (4). 509-521.
3. Bastardo, Y.M., & Kimberlin, C.L. (2000). Relationship between quality of life, social support and disease-related factors in HIV-infected persons in Venezuela. AIDS Care, 12 (5). 673-684.
4. Bing, E.G., Hays, R.D., Jacobson, L.P., Chen, B., Gange, S.J., Kass, N.E., et al. (2000). Health-related quality of life among people with HIV disease: Results from the Multicenter AIDS Cohort Study Quality of Life Research, 9 (1). 55-63.
5. Boberg, E.W., Gustafson, D.H., Hawkins, R.P., Chan, C., Bricker, E., & Pingree, S., et al. (1995). Development, acceptance, and use patterns of a computer-based education and social support system for people living with AIDS/HIV infection. Computers in Human Behavior, 11 (2). 289-311.
6. Bogart, L.M., Catz, S.L., Kelly, J.A., Gray-Bernhardt, M.L., Hartmann, B.R., & Otto-Salaj, L.L., et al. (2000). Psychosocial issues in the era of new AIDS treatments from the perspective of persons living with HIV. Journal of Health Psychology, 5 (4). 500-516.
7. Boneva, B., Kraut, R., & Frohlich, D. (2001). Using e-mail for personal relationships: The difference gender makes. American Behavioral Scientist, 45 (3). 530-549.
8. Bosworth, K., & Gustafson, D.H. (1991). CHESS: providing decision support for reducing health risk behavior and improving access to health services. Interfaces, 21 (3). 93-104.
9. Braithwaite, D.O., Waldron, V.R., & Finn, J. (1999). Communication of social support in computer-mediated groups for people with disabilities. Health Communication, 11 (2). 123-151.
10. Buchanan, H., & Coulson, N.S. (2007). Accessing dental anxiety online support groups: An exploratory qualitative study of motives and experiences. Patient Education and Counseling, 66 (3). 263-269.
11. Burgoyne, R. (2005). Exploring direction of causation between social support and clinical outcome for HIV-positive adults in the context of highly active antiretroviral therapy. AIDS Care, 17 (1). 111-124.
12. Burgoyne, R., & Renwick, R. (2004). Social support and quality of life over time among adults living with HIV in the HAART era. Social Science & Medicine, 58 (7). 1353-1366.
13. Carver, C.S. (1997). You want to measure coping but your protocol's too long: Consider the Brief COPE. International Journal of Behavioral Medicine, 4 (1). 92-100.
14. Cohen, S. (1988). Psychosocial models of the role of social support in the etiology of physical disease. Health Psychology 7 (3). 269-297.
15. Cohen, S. (2004). Social relationships and health. American Psychologist, 59 (8). 676-684.
16. Cohen, S., & Wills, T.A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310-357.
17. Cotton, S.R., & Gupta, S.S. (2004). Characteristics of online and offline health information seekers and factors that discriminate between them. Social Science & Medicine, 59, 1795-1806.
18. Coulson, N.S., & Knibb, R.C. (2007). Coping with food allergy: exploring the role of the online support group. CyberPsychology & Behavior, 10 (1). 147-150.
19. Diaz, J.A., Griffith, R.A., Ng, J.J., Reinert, S.E., Friedmann, P.D., & Moulton, A.W. (2002). Patients' use of the Internet for medical information. Journal of General Internal Medicine, 17 (3). 180-185.
20. Eastin, M.S., & LaRose, R. (2005). Alt.support: Modeling social support online. Computers in Human Behavior, 21 (6). 977-992.
21. Engels, E.A., Rosenberg, P.S., O?Brien, T.R., & Goedert, J.J. (1999). Plasma HIV viral load in patients with hemophilia and late-stage HIV disease: a measure of current immune suppression. Multicenter Hemophilia Cohort Study. Annals of Internal Medicine, 131 (4). 256-264.
22. Flatley-Brennan, P. (1998). Computer network home care demonstration: a randomized trial in persons living with AIDS. Computers in Biology and Medicine, 28 (5). 489-508.
23. Flicker, S., Goldberg, E., Read, S., Veinot, T., McClelland, A., & Saulnier, P., et al. (2004). HIV-positive youth's perspectives on the internet and eHealth. Journal of Medical Internet Research, 6 (3). e32.
24. Fogel, J. (2004). Internet breast health information use and coping among women with breast cancer. Cyberpsychology & Behavior, 7 (1). 59-63.
25. Fogel, J., Albert, S.M., Schnabel, F., Ditkoff, B.A., & Neugut, A.I. (2002). Internet use and social support in women with breast cancer. Health Psychology, 21 (4). 398-404.
26. Fox, S., & Rainie, L. (2000). The online health care revolution: How the web helps Americans take better care of themselves. Washington, DC: Pew Internet & American Life Project.
27. Fox, S., & Rainie, L. (2002). Vital decisions: How internet users decide what information to trust when they or their loved ones are sick. Washington, DC: Pew Internet & American Life Project.
28. Galinsky, M.J., Schopler, J.H., & Abell, M.D. (1997). Connecting group members through telephone and computer groups. Health & Social Work, 22 (3). 181-188.
29. Gielen, A., McDonnell, K., Wu, A., O?Campo, P., & Faden, R. (2001). Quality of life among women living with HIV: The importance of violence, social support and self care behaviors. Social Science & Medicine, 52 (2). 315-322.
30. Green, C.A., & Pope, C.R. (1999). Gender, psychosocial factors and the use of medical services: A longitudinal analysis. Social Science & Medicine, 48 (10). 1363-1372.
31. Gustafson, D.H., Hawkins, R.P., Boberg, E., Pingree, S., Serlin, R.E., & Graziano, F., et al. (1999). Impact of a patient-centered, computer-based health information/ support system. American Journal of Preventive Medicine, 16 (1). 1-9.
32. Huber, J.T., & Cruz, J.M. (2000). Information needs and information-seeking behaviors of HIV positive men and women. Medical Reference Services Quarterly, 19 (3). 39-48.
33. Joint United Nations Programme on HIV / AIDS, & World Health Organization. (2007). 2007 AIDS epidemic update: December 2007. http://data.unaids.org/pub/EPISlides/2007/2007-epiupdate-en.pdf (accessed 2 February 2008 ).
34. Kalichman, S.C., Benotsch, E.G., Weinhardt, L., Austin, J., Luke, W., & Cherry, C. (2003). Health-related internet use, coping, social support, and health indicators in people living with HIV/AIDS: Preliminary results from a community survey. Health Psychology, 22 (1). 111-116.
35. Kalichman, S.C., Cain, D., Cherry, C., Pope, H., Eaton, L., & Kalichman, M.O. (2005). Internet use among people living with HIV/AIDS: Coping and health-related correlates. AIDS Patient Care and STDs, 19 (7). 439-448.
36. Kalichman, S.C., Sikkema, K.J., & Somlai, A. (1996). People living with HIV infection who attend and do not attend support groups: a pilot study of needs, characteristics and experiences. AIDS Care, 8 (5). 589-600.
37. Kalichman, S.C., Weinhardt, L., Benotsch, E., DiFonzo, K., Luke, W., & Austin, J. (2002). Internet access and internet use for health information among people living with HIV-AIDS. Patient Education and Counseling, 46 (2). 109-116.
38. Kong, B.N., Harwell, J.I., Suos, P., Lynen, L., Mohiuddin, S., & Reinert, S., et al. (2007). Opportunistic infections and HIV clinical disease stage among patients presenting for care in Phnom Penh, Cambodia. Southeast Asian Journal of Tropical Medicine & Public Health, 38 (1). 62-68.
39. Lau, J.T.F., Tsui, H.Y., Li, C.K., Chung, R.W.Y., Chan, M.W., & Molassiotis, A. (2003). Needs assessment and social environment of people living with HIV/AIDS in Hong Kong. AIDS Care, 15 (5). 699-706.
40. Leserman, J., Petitto, J., Gu, H., Gaynes, B.N., Barroso, J., & Golden, R.N., et al. (2002). Progression to AIDS, a clinical AIDS condition and mortality: Psychosocial and physiological predictors. Psychological Medicine, 32 (6). 1059-1073.
41. Leserman, J., Petitto, J.M., Golden, R.N., Gaynes, B.N., Gu, H., & Perkins, D.O., et al. (2000). Impact of stressful life events, depression, social support, coping, and cortisol on progression to AIDS. American Journal of Psychiatry, 157 (8). 1221-1228.
42. Madara, E.J. (1997). The mutual-aid self-help online revolution. Social Policy, 27 (3). 20-26.
43. Pakenham, K.I., & Rinaldis, M. (2001). The role of illness, resources, appraisal, and coping strategies in adjustment to HIV/AIDS: The direct and buffering effects. Journal of Behavioral Medicine, 24 (3). 259-279.
44. Powell, J., & Clarke, A. (2002). The WWW of the world wide web: Who, what, and why? [comment]. Journal of Medical Internet Research, 4 (1). e4.
45. Rahmqvist, M., & Bara, A.-C. (2007). Patients retrieving additional information via the internet: a trend analysis in a Swedish population, 2000-05. Scandinavian Journal of Public Health, 35 (5). 533-539.
46. Reeves, P.M. (2000). Coping in cyberspace: The impact of internet use on the ability of HIV-positive individuals to deal with their illness. Journal of Health Communication, 5 (1). supp. 1, 47-59.
47. Reeves, P.M. (2001). How individuals coping with HIV/AIDS use the internet. Health Education Research, 16 (6). 709-719.
48. Rier, D.A. (2007). Internet social support groups as moral agents: The ethical dynamics of HIV+ status disclosure. Sociology of Health & Illness, 29 (7). 1043-1058.
49. Scharer, K. (2005). Internet social support for parents: The state of science. Journal of Child and Adolescent Psychiatric Nursing, 18 (1). 26-35.
50. Schrimshaw, E.W., Siegel, K., Schrimshaw, E.W., & Siegel, K. (2003). Perceived barriers to social support from family and friends among older adults with HIV/ AIDS. Journal of Health Psychology, 8 (6). 738-752.
51. Schwarzer, R., Dunkel-Schetter, C., & Kemeny, M.E. (1994). The multidimensional nature of received social support in gay men at risk of HIV infection and AIDS. American Journal of Community Psychology, 22 (3). 319-339.
52. Serovich, J.M., Brucker, P.S., & Kimberly, J.A. (2000). Barriers to social support for persons living with HIV/AIDS. AIDS Care 12 (5). 651-662.
53. Sherbourne, C.D., & Stewart, A.L. (1991). The MOS Social Support Survey. Social Science & Medicine, 32 (6). 705-714.
54. Siegel, K., & Lekas, H.-M. (2002). AIDS as a chronic illness: psychosocial implications. AIDS, 16, supp. 4, S69-76.
55. Swindells, S., Mohr, J., Justis, J.C., Berman, S., Squier, C., Wagener, M.M., et al. (1999). Quality of life in patients with human immunodeficiency virus infection: Impact of social support, coping style and hopelessness. International Journal of STD & AIDS, 10 (6). 383-391.
56. Temesgen, Z., Knappe-Langworthy, J., Marie, M., Smith, B., & Dierkhising, R. (2006). Comprehensive Health Enhancement Support System (CHESS) for people with HIV infection. AIDS and Behavior, 10 (1). 35-40.
57. Tichon, J.G., & Shapiro, M. (2003). The process of sharing social support in cyberspace. CyberPsychology & Behavior, 6 (2). 161-170.
58. Turner, H.A., Hays, R.B., & Coates, T.J. (1993). Determinants of social support among gay men: The context of AIDS. Journal of Health and Social Behavior, 34 (1). 37-53.
59. Vandehey, M.A., & Shuff, I.M. (2001). HIV infection and stage of illness: A comparison of family, friend, and professional social-support providers over a 2-year period. Journal of Applied Social Psychology, 31 (11). 2217-2229.
60. Walch, S., Roetzer, L., & Minnett, T. (2006). Support group participation among persons with HIV: Demographic characteristics and perceived barriers. AIDS Care, 18 (4). 284-289.
61. Walther, J.B., & Boyd, S. (2002). Attraction to computer-mediated social support. In C. A. Lin, & D. Atkin (Eds.), Communication technology and society: Audience adoption and uses (pp. 153-188). Cresskill, NJ: Hampton Press.
62. Ware, J.E., Snow, K.K., Kosinski, M., & Gandek, B. (2000). SF-36 Health Survey: Manual and Interpretation Guide. Lincoln, RI: QualityMetric Inc.
63. Weiser, E.B. (2000). Gender differences in internet use patterns and internet application preferences: A two-sample comparison. CyberPsychology & Behavior, 3 (2). 167-177.
64. White, M.H., & Dorman, S.M. (2001). Receiving social support online: Implications for health education. Health Education Research, 16 (6). 693-707.
65. Williams, A.M., Young, J., Nikoletti, S., & McRae, S. (2004). Reasons for attending and not attending a support group for recipients of implantable cardioverter defibrillators and their carers. International Journal of Nursing Practice, 10 (3). 127-133.
66. Wright, K.B., & Bell, S.B. (2003). Health-related support groups on the Internet: Linking empirical findings to social support and computer-mediated communication theory. Journal of Health Psychology, 8 (1). 39-54.