Concept of death and perceptions of bereavement in adults with intellectual disabilities

Journal of Intellectual Disability Research

Volumn 56, Issue 2, 2012, Pages 191-203

  McEvoy, J ^a   Machale, R ^b   Tierney, E ^c  

^a DUNDALK INSTITUTE OF TECHNOLOGY   (Ireland)

^b Central Cork Children s Disability Network Team   (Ireland)

^c National Federation of Voluntary Bodies   (Ireland)

Author keywords

Bereavement; Concept of death; Intellectual disabilities

Indexed keywords

ADULT; AGED; ARTICLE; BEREAVEMENT; CAUSE OF DEATH; CLINICAL ARTICLE; COGNITION; DEATH; FEMALE; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; PERCEPTION; RELIGION; VIGNETTE;

ADULT; BEREAVEMENT; CHI-SQUARE DISTRIBUTION; COMPREHENSION; CONCEPT FORMATION; DEATH; FEMALE; HUMANS; INTELLECTUAL DISABILITY; MALE; MIDDLE AGED; STATISTICS, NONPARAMETRIC; YOUNG ADULT;

EID: 84856210011     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2011.01456.x     Document Type: Article

References (66)

1. Alvarado K. A., Templer D. I., Bresler L. & Thomas-Dobson S. (1995) The relationship of religious variables to death depression and death anxiety. Journal of Clinical Psychology 51, 202-4.
2. Bering J. M. & Bjorklund D. F. (2004) The natural emergence of reasoning about the afterlife as a developmental regularity. Developmental Psychology 40, 217-33.
3. Bihm E. & Elliott L. (1982) Conceptions of death in mentally retarded persons. Journal of Psychology 3, 205-10.
4. Blackman N. (2003) Loss and Learning Disability. Worth Publishing Ltd, London.
5. Blackman N. (2008) The development of an assessment tool for the bereavement needs of people with learning disabilities. British Journal of Learning Disabilities 36, 165-70.
6. Bonanno G. A., Wortman C. B., Lehman D. R., Tweed R. G., Haring M., Sonnega J. etal. (2002) Resilience to loss and chronic grief: a prospective study from pre-loss to 18 months post-loss. Journal of Personality and Social Psychology 83, 1150-64.
7. Brent S. B. & Speece M. W. (1993) 'Adult' conceptualization of irreversibility: implications for the development of the concept of death. Death Studies 17, 203-24.
8. Brickell C. & Munir K. (2008) Grief and its complications in individuals with intellectual disability. Harvard Review of Psychiatry 16, 1-12.
9. Carey S. (1985) Conceptual Change in Childhood. MIT Press, Cambridge, MA.
10. Cathcart F. (1995) Death and people with learning disabilities: interventions to support clients and carers. British Journal of Clinical Psychology 34, 165-75.
11. Clute M. A. (2010) Bereavement interventions for adults with intellectual disabilities: what works? Omega 61, 163-77.
12. Conboy-Hill S. (1992) Grief, loss and people with learning disabilities. In: Psychotherapy and Mental Handicap (eds A. Waitman & S. Conboy-Hill ), pp. 150-70. Sage, London.
13. Dagnan D. & Lindsay W. R. (2004) Cognitive therapy with people with learning disabilities. In: The International Handbook of Research and Evaluation on Intellectual Disabilities (eds E. Emerson, C. Hatton, T. Parmenter & T. Thompson ), pp. 517-30. John Wiley & Sons, Chichester.
14. Dodd P., Dowling S. & Hollins S. (2005) A review of the emotional, psychiatric and behavioural responses to bereavement in people with intellectual disabilities. Journal of Intellectual Disability Research 49, 537-43.
15. Dodd P., Guerin S., McEvoy J., Buckley S., Tyrrell J. & Hillery J. (2008) A study of complicated grief symptoms in people with intellectual disabilities. Journal of Intellectual Disability Research 52, 415-25.
16. Dowling S., Hubert J., White S. & Hollins S. (2006) Bereaved adults with intellectual disabilities: a combined randomized controlled trial and qualitative study of two community-based interventions. Journal of Intellectual Disability Research 50, 277-87.
17. Finlay W. M. & Lyons E. (2001) Methodological issues in interviewing and using self-report questionnaires with people with mental retardation. Psychological Assessment 13, 319-35.
18. Forrester-Jones R. C. J., Coolen-Schrijner P., Cambridge P., Tate A., Beecham J., Hallam A. etal. (2006) The social networks of people with intellectual disability living inn the community 12 years after resettlement from long-stay hospitals. Journal of Applied Research in Intellectual disabilities 19, 285-95.
19. Gilrane-McGarry G. & Taggart L. (2007) An exploration of the support received by people with intellectual disabilities who have been bereaved. Journal of Research in Nursing 12, 129-44.
20. Guerin S. & Hennessy E. (2002) Pupils' definitions of bullying. European Journal of Psychology of Education 17, 249-62.
21. Hansson R. O., Stroebe M. S. & Stroebe W. (1988) In conclusion: current themes in bereavement and widowhood research. Journal of Social Issues 44, 207-16.
22. Harper D. C. & Wadsworth J. S. (1993) Grief in adults with mental retardation: preliminary findings. Research in Developmental Disabilities 14, 313-30.
23. Johnson S. C. & Carey S. (1998) Knowledge enrichment and conceptual change in folkbiology: evidence from Williams syndrome. Cognitive Psychology 37, 156-200.
24. Kane B. (1979) Children's concepts of death. The Journal of Genetic Psychology 134, 141-53.
25. Kloeppel D. A. & Hollins S. (1989) Double handicap: mental retardation and death in the family. Death Studies 13, 31-8.
26. Koocher G. P. (1973) Childhood death, and cognitive development. Developmental Psychology 9, 369-75.
27. Lewis A. (2002) Accessing through research interviews, the views of children with difficulties in learning. Support for Learning 17, 111-16.
28. Lewis A. (2004) 'And When Did You Last See Your Father?' Exploring the views of children with learning difficulties/disabilities. British Journal of Special Education 31, 4-10.
29. Lipe-Goodson P. S. & Goebel B. L. (1983) Perception of age and death in mentally retarded adults. Mental Retardation 21, 68-75.
30. MacHale R. & Carey S. (2002) An investigation of the effects of bereavement on mental health and challenging behaviour in adults with a learning disability. British Journal of Learning Disabilities 30, 113-17.
31. MacHale R., McEvoy J. & Tierney E. (2009) Caregiver perceptions of the understanding of death and need for bereavement support in adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 22, 574-81.
32. Mahon M., Goldberg E. & Washington S. (1999) Concept of death in a sample of Israeli Kibbutz children. Death Studies 23, 23-59.
33. March P. (1991) How do people with a mild/moderate mental handicap conceptualise physical illness and its cause? British Journal of Mental Subnormality 37, 80-90.
34. McConkey R. & Walsh J. (1982) An Index of Social Competence for use in determining the service needs of mentally handicapped adults. Journal of Mental Deficiency Research 26, 47-61.
35. McEvoy J. (1989) Investigating the concept of death in adults who are mentally handicapped. British Journal of Mental Subnormality 35, 115-21.
36. McEvoy J. & Dagnan D. J. (1993) The psychometric properties of the Index of Social Competence: a British replication. The Irish Journal of Psychology 14, 286-92.
37. McEvoy J. & Smith E. (2005) Families perceptions of the grieving process and concept of death in individuals with intellectual disabilities. The British Journal of Developmental Disabilities 51, 17-25.
38. McEvoy J., Reid Y. & Guerin S. (2002) Emotion recognition and concept of death in people with learning disabilities. The British Journal of Developmental Disabilities 48, 83-9.
39. McEvoy J., Guerin S., Dodd P. & Hillery J. (2010) Supporting adults with an intellectual disability during experiences of loss and bereavement: staff views, experiences and suggestions for training. Journal of Applied Research in Intellectual Disabilities 23, 585-96.
40. Morin S. M. & Welsh L. A. (1996) Adolescents' perceptions and experiences of death and grieving. Adolescence 31, 585-96.
41. Neimeyer R. A. (2005) Grief, loss and the quest for meaning: narrative contributions to bereavement care. Bereavement Care 24, 27-30.
42. Neimeyer R. A. & Hogan N. S. (2001) Quantitative or qualitative? Measurement issues in the study of grief. In: Handbook of Bereavement Research (eds M. S. Stroebe, R. O. Hansson, W. Stroebe & H. Schut ), pp. 89-118. American Psychological Association, Washington, DC.
43. Parkes C. M. & Markus A. (1998) Coping with Loss. BMJ Books, London.
44. Piaget J. (1960) The Psychology of Intelligence. Routledge and Keegan Paul, London.
45. Prosser H. & Bromley J. (1998) Interviewing people with intellectual disability. In: Clinical Psychology and People with Intellectual Disabilities (eds E. Emerson, C. Hatton, J. Bromley & A. Caine ), pp. 99-113. Wiley, Chichester.
46. Raji O., Hollins S. & Drinnan A. (2003) How far are people with learning disabilities involved in funeral rites? British Journal of Learning Disabilities 31, 42-5.
47. Read S. & Elliott D. (2007) Exploring a continuum of support for bereaved people with intellectual disabilities. Journal of Intellectual Disabilities 11, 167-81.
48. Read S. & Papakosta-Harvey V. (2004) Using workshops on loss for adults with learning disabilities. Journal of Learning Disabilities 8, 191-208.
49. Ryan K., Guerin S., Dodd P. & McEvoy J. (2011) Communication contexts about illness, death and dying for people with intellectual disabilities and life limiting illness. Palliative and Supportive Care 9, 201-8.
50. Sigelman C. K., Budd E. C., Winer J. L., Schoenrock C. J. & Martin P. W. (1982) Evaluating alternative techniques of questioning mentally retarded persons. American Journal of Mental Deficiency 86, 511-18.
51. Slaughter V. (2005) Young children's understanding of death. Australian Psychologist 40, 1-8.
52. Slaughter V. & Griffiths M. (2007) Death understanding and fear of death in young children. Clinical Child psychology and Psychiatry 12, 525-35.
53. Slaughter V., Jaakkola R. O. & Carey S. (1999) Constructing a coherent theory: children's biological understanding of life and death. In: Children's Understanding of Biology and Health (eds M. Siegal & C. C. Peterson ), pp. 71-96. Cambridge University Press, Cambridge.
54. Smilansky S. (1987) On Death: Helping Children Understand and Cope. Peter Lang Publishing, New York.
55. Speece M. W. & Brent S. B. (1984) Children's understanding of death: a review of three components of a death concept. Child Development 55, 1671-86.
56. Speece M. W. & Brent S. B. (1992) The acquisition of a mature understanding of three components of the concept of death. Death Studies 16, 211-29.
57. Speece M. W. & Brent S. B. (1996) The development of children's understanding of death. In: Handbook of Child Death and Bereavement (eds C. A. Corr & D. M. Corr ), pp. 29-50. Springer, New York.
58. Stenfert-Kroese B. (1997) Cognitive-therapy for people with learning disabilities: conceptual and contextual issues. In: Cognitive-Therapy for People with Learning Disabilities (eds B. Stenfert-Kroese, D. Dagnan & K. Loumidis ), pp. 1-15. Routledge, London.
59. Stroebe M., Stroebe W. & Hansson O. (1993) Bereavement research and theory: an introduction to the handbook. In: Handbook of Bereavement: Research and Theory (eds M. Stroebe, W. Stroebe & O. Hansson ), pp. 3-21. Cambridge University press, New York.
60. Stroebe W. & Schut H. A. W. (2001) Risk factors in bereavement outcome: a methodological and empirical review. In: Handbook of Bereavement Research: Consequences, Coping and Care (eds M. S. Stroebe, R. O. Hansson, W. Stroebe & H. A. W. Schut ), pp. 349-72. American Psychological Association Books, Washington, DC.
61. Thorson J. A. (1991) Afterlife constructs, death anxiety and life reviewing: the importance of religion as a moderating variable. Journal of Psychology and Theology 19, 278-84.
62. Turner S., Hatton C., Shah R. & Rahim N. (2004) Religious expression amongst adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 17, 161-71.
63. Worden W. J. (1996) Children and Grief: When A Parent Dies. Guilford Press, London.
64. Wortman C. B. & Silver R. C. (2001) The myths of coping with loss revisited. In: Handbook of Bereavement Research: Consequences, Coping, and Care (eds M. S. Stroebe, R. O. Hansson, W. Stroebe & H. Schut ), pp. 405-30. American Psychological Association, Washington, DC.
65. Wortman J. H. & Park C. L. (2008) Religion and spirituality in adjustment following bereavement: an integrative review. Death Studies 32, 703-36.
66. Yalom I. D. (1980) Existential Psychotherapy. Basic Books, New York.