Communication contexts about illness, death and dying for people with intellectual disabilities and life-limiting illness

Palliative and Supportive Care

Volumn 9, Issue 2, 2011, Pages 201-208

  Ryan, Karen ^a   Guerin, Suzanne ^b   Dodd, Philip ^b,c   McEvoy, John ^d,e  

^a St Francis Hospice   (Ireland)

^b UNIVERSITY COLLEGE DUBLIN   (Ireland)

^c St Michael' House   (Ireland)

^d Midway Services   (Ireland)

^e DUNDALK INSTITUTE OF TECHNOLOGY   (Ireland)

Author keywords

Communication; Death; Intellectual disability; Mental retardation; Palliative care

Indexed keywords

COMORBIDITY; FEMALE; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; INTELLECTUAL IMPAIRMENT; INTERPERSONAL COMMUNICATION; INTERVIEW; IRELAND; MALE; PALLIATIVE THERAPY; PSYCHOLOGY; QUALITATIVE RESEARCH; STANDARDS; TERMINALLY ILL PATIENT;

ATTITUDE OF HEALTH PERSONNEL; COMMUNICATION; COMORBIDITY; FEMALE; FOCUS GROUPS; HUMANS; INTELLECTUAL DISABILITY; INTERVIEWS AS TOPIC; IRELAND; MALE; PALLIATIVE CARE; PROFESSIONAL-FAMILY RELATIONS; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; TERMINALLY ILL;

EID: 79956089612     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951511000137     Document Type: Article

References (13)

1. Brown, H., Burns, S. & Flynn, M. (2002). Supporting People Though Terminal Illness and Death in Today and Tomorrow: The Report of the Growing Older with Learning Disabilities Programme. London: The Foundation for People with Learning Disabilities.
2. Department of Health. (2001). Valuing People: A New Strategy for Learning Disability for the 21st Century, Cm 5086. London: Department of Health.
3. Dodd, P., Dowling, S. & Hollins, S. (2005). A review of the emotional, psychiatric and behavioural responses to bereavement in people with intellectual disabilities. Journal of Intellectual Disability Research, 49, 537-543. (Pubitemid 40932407)
4. Field, D.&Copp, G. (1999). Communication and awareness about dying in the 1990s. Palliative Medicine, 13, 459-568.
5. Glaser, B.G. & Strauss, A.L. (1965). Awareness of Dying. Chicago: Aldine.
6. Leick, N. & Davidson-Neilson, M. (1991). Healing Pain. London: Routledge.
7. Lennox, N., Diggens, J. & Ugoni, A.M. (1997). The general practice care of people with intellectual disability: Barriers and solutions. Journal of Intellectual Disability Research, 41, 380-390. (Pubitemid 127502707)
8. Rees, S., Cullen, C., Kavanagh, S., et al. (2004). Learning disabilities. In Health Care Needs Assessment, Vol 1. (2nd ed.), Stevens, A., Raftery, J., Mant, J., et al. (eds.). pp. 451-542. Oxford: Radcliffe Medical Press.
9. Ritchie, J. & Spencer, L. (1993). Qualitative data analysis for applied policy research. In Analysing Qualitative Data, Bryman, A. & Burgess, R. (eds.). pp 173-194. London: Routledge.
10. Todd, S. (2002). Death does not become us: The absence of death and dying in intellectual disability research. Journal of Gerontological Social Work, 38, 225-239.
11. Tuffrey-Wijne, I. (2002). The palliative care needs of people with intellectual disabilities: A case study. International Journal of Palliative Nursing, 8, 222-232.
12. Tuffrey-Wijne, I., Hogg, J.&Curfs, L (2007). End of life and palliative care for people with intellectual disability who have cancer or other life-limiting illness: A review of the literature and available resources. Journal of Applied Research in Intellectual Disabilities, 20, 331-344.
13. World Health Organization. (1992). The ICD-10 Classification of Mental and Behavioural Disorders. Clinical Descriptions and Diagnostic Guidelines. Geneva:World Health Organization.