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Volumn 97, Issue 2, 2012, Pages 665-691

Privacy for safety: The NCAA sickle-cell trait testing policy and the potential for future discrimination

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EID: 84856156659     PISSN: 00210552     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article
Times cited : (6)

References (138)
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    • Division I schools are the largest NCAA member institutions. In order to qualify as a Division I institution, a school must meet several criteria, including offering fourteen sports, two of which must be team sports, and also offer a sports team for the fall, winter, and spring seasons. Differences Among the Three Divisions: Division I, NCAA, http://www.ncaa.org/wps/wcm/connect/ public/ncaa/about+the+ncaa/who+we+are/differences+among+the+divisions/ division+i/(last visited Sept. 27, 2011).
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    • supra note 12, requiring testing before prospective student-athletes can participate in weight training or conditioning workouts
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    • A student-athlete being marked as a carrier of the sickle-cell trait can also have negative consequences when attempting to gain insurance. According to Title I of GINA, a group health plan or "a health insurance issuer offering group health insurance coverage in connection with a group health plan" cannot use a person's "genetic information. " Genetic Information Nondiscrimination Act of 2008, Pub. L. No. 110-233, 883
    • A student-athlete being marked as a carrier of the sickle-cell trait can also have negative consequences when attempting to gain insurance. According to Title I of GINA, a group health plan or "a health insurance issuer offering group health insurance coverage in connection with a group health plan" cannot use a person's "genetic information. " Genetic Information Nondiscrimination Act of 2008, Pub. L. No. 110-233, 122 Stat. 881, 883(2008)
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    • (codified as amended at 42 U. S. C. § 2000ff-8 (a) (7) (Supp. 2008)). Yet GINA only provides protection for carriers who wish to obtain health insurance and fails to provide protection in "life insurance, disability insurance, or long-term care insurance."
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    • What Is Sickle Cell Disease?, SICKLE CELL DISEASE ASS'N OF AM., http://www.sicklecelldisease.org/index.cfm?page=about-scd (last visited Oct. 6, 2011).
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    • supra note 25, analyzing the number of Division I athletic programs that tested for the sickle-cell trait prior to the NCAA mandate, including those institutions that only tested African Americans
    • SECRETARY'S ADVISORY COMMITTEE, supra note 25, at 7-8 (analyzing the number of Division I athletic programs that tested for the sickle-cell trait prior to the NCAA mandate, including those institutions that only tested African Americans)
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    • Health Insurance Portability and Accountability Act HIPAA of 1996, Pub. L. No. 104-191, The Fourteenth Amendment does not prevent the NCAA from asking for a student-athlete's genetic information in this situation, as the NCAA is not considered a state actor
    • Health Insurance Portability and Accountability Act (HIPAA) of 1996, Pub. L. No. 104-191, 110 Stat. 2033. The Fourteenth Amendment does not prevent the NCAA from asking for a student-athlete's genetic information in this situation, as the NCAA is not considered a state actor.
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    • NCAA v. Tarkanian, 488 U. S. 179, 193-99(1988). HIPAA and FERPA allow states to enact statutes that offer more protection. Not all states offer further protection, however, and if they do the statutes usually only cover employment situations and further limit what constitutes genetic information.
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    • Amy Foster, Note, Critical Dilemmas in Genetic Testing: Why Regulations To Protect the Confidentiality of Genetic Information Should Be Expanded, 62 BAYLOR L. REV. 537, 551-53(2010). FERPA also allows states to enact statutes providing more protection, but the level of protection also varies from state to state.
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    • supra note 17. Some athletic departments cover the cost of testing all athletes
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    • USA TODAY January 7, 2:50 PM, quoting the school's chief athletic director as stating "please make sure the athlete is actually on the team before this test is done. The reason for this is that the student health center is charging the athletic department for this test to be done." internal quotation marks omitted
    • Report: N. C. A&T Trainer Urged Against Sickle Cell Test, USA TODAY (January 7, 2011 2:50 PM), http://www.usatoday.com/sports/college/2011-01-07-nc- atstudent-dies-N.htm (quoting the school's chief athletic director as stating "[p]lease make sure the [athlete is] actually on the team before this test is done. The reason for this is that the student health center is charging the athletic department for this test to be done." (internal quotation marks omitted)).
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    • supra note 25, Even if the athletic-training departments do not need to bill insurance and transmit documents electronically in that instance, the departments likely will do so for some other reason as they provide services in a variety of circumstances
    • SECRETARY'S ADVISORY COMMITTEE, supra note 25, at 7. Even if the athletic-training departments do not need to bill insurance and transmit documents electronically in that instance, the departments likely will do so for some other reason as they provide services in a variety of circumstances.
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    • Stephanie Humphries, Note, Institutes of Higher Education, Safety Swords, and Privacy Shields: Reconciling FERPA and the Common Law, 35 J. C. & U. L. 145, 157(2008)
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    • Humphries, S.1
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    • citing Gonzaga Univ. v. Doe, 283-91
    • (citing Gonzaga Univ. v. Doe, 536 U. S. 273, 283-91(2002)).
    • (2002) U. S. , vol.536 , pp. 273
  • 91
    • 84920394011 scopus 로고    scopus 로고
    • 508 c, detailing the requirements for written authorization to release PHI
    • See 45 C. F. R. § 164. 508 (c) (2010) (detailing the requirements for written authorization to release PHI);
    • (2010) C. F. R. , vol.45 , pp. 164
  • 92
    • 82655188734 scopus 로고    scopus 로고
    • 508 c. Because of this, many HIPAA covered universities have their waivers written very generally. For example, Iowa State University's waiver form lists many entities that the school can release medical information to, including coaching staff and the media. See infra note 122
    • 45 C. F. R. § 164. 508 (c). Because of this, many HIPAA covered universities have their waivers written very generally. For example, Iowa State University's waiver form lists many entities that the school can release medical information to, including coaching staff and the media. See infra note 122.
    • C. F. R. , vol.45 , pp. 164
  • 94
    • 0041612855 scopus 로고    scopus 로고
    • supra note 12, 17.1.5.1
    • See NCAA MANUAL, supra note 12, 17.1.5.1.
    • Ncaa Manual
  • 96
    • 84856196679 scopus 로고    scopus 로고
    • After announcing the legislation, and after the publication of the, article critiquing the mandate, the NCAA responded with slightly more comprehensive guidelines for when a student-athlete tests positive, but still left much up to the individual athletic programs
    • After announcing the legislation, and after the publication of the New England Journal of Medicine article critiquing the mandate, the NCAA responded with slightly more comprehensive guidelines for when a student-athlete tests positive, but still left much up to the individual athletic programs.
    • New England Journal of Medicine
  • 97
    • 84856185476 scopus 로고    scopus 로고
    • NCAA recommended that athletic programs follow the, when a student-athlete tests positive for the trait and gave further vague instructions like
    • The NCAA recommended that athletic programs follow the Sports Medicine Handbook when a student-athlete tests positive for the trait and gave further vague instructions like
    • Sports Medicine Handbook
  • 98
    • 84856196686 scopus 로고    scopus 로고
    • "Develop a year-round strength and conditioning program" and "allow longer periods of rest and recovery"
    • supra note 38. The NCAA also provided a video on dealing with student-athletes that test positive for the sickle-cell trait
    • "[d]evelop a year-round strength and conditioning program" and "allow[] longer periods of rest and recovery." Background on Sickle Cell Trait, supra note 38. The NCAA also provided a video on dealing with student-athletes that test positive for the sickle-cell trait.
    • Background on Sickle Cell Trait
  • 99
    • 84856186077 scopus 로고    scopus 로고
    • Drake Athletic Training Staff, June 9, requiring students to provide test results, without mentioning the option of a waiver. However, whether these schools are notifying each student individually of their rights is unknown. Regardless, this information is not publicized on their website to current or potential student-athletes
    • Drake Athletic Training Staff, Sickle Cell Trait Test Information, GODRAKEBULLDOGS. COM (June 9, 2010), http://www.godrakebulldogs.com/ViewArticle. dbml?DB-OEM-ID=15700& KEY=&ATCLID=204957972&SPID=39420&SPSID= 602748 (requiring students to provide test results, without mentioning the option of a waiver). However, whether these schools are notifying each student individually of their rights is unknown. Regardless, this information is not publicized on their website to current or potential student-athletes.
    • (2010) Sickle Cell Trait Test Information
  • 100
    • 84856195684 scopus 로고    scopus 로고
    • last visited Oct. 6, 2011
    • Glossary of Terms, NCAA. ORG, http://www.ncaa.org/wps/wcm/connect/public/ NCAA/Issues/Enforcement/Rules+Enforcement+glossary+of+terms#major (last visited Oct. 6, 2011).
    • NCAA. Org
  • 101
    • 84856202020 scopus 로고    scopus 로고
    • For the waiver form used, see University of Nebraska, available at
    • For the waiver form used, see University of Nebraska, Medical History for Student Athletes, available at http://www.huskers.com//pdf6/80708.pdf?SPSID= 184&SPID=41&DB-OEM-ID=100;
    • Medical History for Student Athletes
  • 102
    • 84856207876 scopus 로고    scopus 로고
    • available at, showing the waiver form used by Iowa State University
    • see also Iowa State University, Authorization for Release of Medical Information, available at http://www.cycloneathletictraining.com/documents/ filelibrary/forms/Authorization-for-Release-of-Medica-EB56D90AF4BD0.pdf (showing the waiver form used by Iowa State University).
    • Iowa State University, Authorization for Release of Medical Information
  • 103
    • 84856196681 scopus 로고    scopus 로고
    • Jan. 18, criticizing University of Iowa coaches for their handling of football players' hospitalizations
    • Pat Forde, Leadership Lacking in Latest Mess, ESPN (Jan. 18, 2011), http://sports.espn. go.com/ncf/columns/story?columnist=forde-pat&id=6069090 (criticizing University of Iowa coaches for their handling of football players' hospitalizations).
    • (2011) Leadership Lacking in Latest Mess
    • Forde, P.1
  • 104
    • 84856196682 scopus 로고    scopus 로고
    • fact, curiosity about the University of Iowa players' medical condition was so high that University of Iowa Hospitals and Clinics staff illegally accessed the players' files in violation of HIPAA, Jan. 28, 4:37 PM
    • In fact, curiosity about the University of Iowa players' medical condition was so high that University of Iowa Hospitals and Clinics staff illegally accessed the players' files in violation of HIPAA. UI Investigating Access to Players' Medical Data, KCCI. COM (Jan. 28, 2011, 4:37 PM), http://www.kcci.com/sports/26653381/detail.html.
    • (2011) UI Investigating Access to Players Medical Data
  • 106
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    • supra note 25, citing the case of Lawrence Berkeley Laboratory testing employees for "sickle cell trait, syphilis, and pregnancy without their knowledge.". Also, testing for a genetic marker like the sickle-cell trait also reveals information about the potential genetic information of family members, leading to nonconsensual disclosure in some cases
    • SECRETARY'S ADVISORY COMMITTEE, supra note 25, at 11 (citing the case of Lawrence Berkeley Laboratory testing employees for "sickle cell trait, syphilis, and pregnancy without their knowledge."). Also, testing for a genetic marker like the sickle-cell trait also reveals information about the potential genetic information of family members, leading to nonconsensual disclosure in some cases.
    • Secretary's Advisory Committee , pp. 11
  • 107
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    • Recent development, "striking out": The genetic information nondiscrimination act of 2008 and title ii's impact on professional sports employers
    • 220
    • Rhonda B. Evans, Recent Development, "Striking Out": The Genetic Information Nondiscrimination Act of 2008 and Title II's Impact on Professional Sports Employers, 11 N. C. J. L. & TECH. 205, 220(2009).
    • (2009) N. C. J. L. & Tech , vol.11 , pp. 205
    • Evans, R.B.1
  • 108
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    • Discrimination based on genetic information
    • 14-15
    • Mark A. Rothstein, Discrimination Based on Genetic Information, 33 JURIMETRICS J. 13, 14-15(1992).
    • (1992) Jurimetrics J. , vol.33 , pp. 13
    • Rothstein, M.A.1
  • 109
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    • New frontiers for genetic privacy law: The genetic information nondiscrimination act of 2008
    • 313-14, In fact, part of the motivation for passing GINA was the history of widespread testing for sickle cell in the 1960-70s and the discrimination that African Americans received as a result
    • Daniel Schlein, New Frontiers for Genetic Privacy Law: The Genetic Information Nondiscrimination Act of 2008, 19 GEO. MASON U. C. R. L. J. 311, 313-14(2009). In fact, part of the motivation for passing GINA was the history of widespread testing for sickle cell in the 1960-70s and the discrimination that African Americans received as a result.
    • (2009) Geo. Mason U. C. R. L. J. , vol.19 , pp. 311
    • Schlein, D.1
  • 110
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    • supra note 25, This discrimination against African Americans who carried the sickle-cell trait also led to the passage of the Sickle Cell Anemia Control Act, "which withholds federal funds from States unless sickle-cell testing is voluntary."
    • SECRETARY'S ADVISORY COMMITTEE, supra note 25, at 11. This discrimination against African Americans who carried the sickle-cell trait also led to the passage of the Sickle Cell Anemia Control Act, "which withholds federal funds from States unless sickle-cell testing is voluntary."
    • Secretary's Advisory Committee , pp. 11
  • 111
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    • Pub. L. No. 110-233
    • Pub. L. No. 110-233, 122 Stat. 881(2008)
    • (2008) Stat , vol.122 , pp. 881
  • 112
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    • codified as amended at, § 2000ff Supp. II, Because the sickle-cell trait is much more predominant in African Americans, employers would use the positive test result as a reason to not hire an African American, when the end goal was to simply discriminate against a person because of his or her race
    • (codified as amended at 42 U. S. C. § 2000ff (Supp. II 2008)). Because the sickle-cell trait is much more predominant in African Americans, employers would use the positive test result as a reason to not hire an African American, when the end goal was to simply discriminate against a person because of his or her race.
    • (2008) U. S. C. , vol.42
  • 114
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    • citing National Sickle Cell Anemia Control Act, Pub. L. No. 92-294, § 2
    • (citing National Sickle Cell Anemia Control Act, Pub. L. No. 92-294, § 2, 86 Stat. 136(1972)
    • (1972) Stat , vol.86 , pp. 136
  • 115
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    • codified as amended at
    • (codified as amended at 42 U. S. C. 300b (2006)));
    • (2006) U. S. C. , vol.42
  • 116
    • 84856180736 scopus 로고    scopus 로고
    • Sickle-cell testing and the implications of gina
    • Some argue GINA may not cover any employment where physical capabilities are relevant to the job description, including in professional-sports leagues. The argument is that GINA might not apply because 1 GINA assumes that a person's genetic information has no bearing on a potential employee's ability to perform the job, and this is not the case with professional football, and 2 GINA also assumes that genetic information deals with concerns of future risk because of a genetic disposition, while the NFL is concerned with current risk due to the trait, &, May 21, available at, The NFL tests for the trait during the annual scouting combine but leaves the decision whether to test all players up to each individual team
    • Some argue GINA may not cover any employment where physical capabilities are relevant to the job description, including in professional-sports leagues. The argument is that GINA might not apply because (1) GINA assumes that a person's genetic information has no bearing on a potential employee's ability to perform the job, and this is not the case with professional football, and (2) GINA also assumes that genetic information deals with concerns of future risk because of a genetic disposition, while the NFL is concerned with current risk due to the trait. Adam Y. Siegel & Frank Alvarez, Sickle-Cell Testing and the Implications of GINA, SPORTS LITIG. ALERT, May 21, 2010, available at http://www.hackneypublications.com/sla/archive/001055.php. The NFL tests for the trait during the annual scouting combine but leaves the decision whether to test all players up to each individual team.
    • (2010) Sports Litig. Alert
    • Siegel, A.Y.1    Alvarez, F.2
  • 117
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    • Apr. 12, Previously, this type of situation would have been regulated by the Americans with Disabilities Act. In Chevron U. S. A. Inc. v. Echazabal, the Court upheld the EEOC's regulation which stated that a company may refuse to hire an individual because performing the job would be a danger to his or her health
    • Katie Thomas & Brett Zarda, In N. C. A. A., Question of Bias over a Test for a Genetic Trait, N. Y. TIMES, Apr. 12, 2010, http://www.nytimes.com/ 2010/04/12/sports/12sickle.html. Previously, this type of situation would have been regulated by the Americans with Disabilities Act. In Chevron U. S. A. Inc. v. Echazabal, the Court upheld the EEOC's regulation which stated that a company may refuse to hire an individual because performing the job would be a danger to his or her health.
    • (2010) N. C. A. A., Question of Bias over a test for a Genetic Trait
    • Thomas, K.1    Zarda, B.2
  • 118
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    • 76
    • U. S. 73, 76(2002).
    • (2002) U. S. , vol.536 , pp. 73
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    • 2000ff-1 b 4 Supp. III
    • 42 U. S. C. § 2000ff-1 (b) (4) (Supp. III 2010);
    • (2010) U. S. C. , vol.42
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    • How does gina impact me?
    • last updated Nov. 10, 2008
    • How Does GINA Impact ME?, COAL. FOR GENETIC FAIRNESS, http://www.geneticfairness.org/ginaresource-impact.html (last updated Nov. 10, 2008).
    • Coal. for Genetic Fairness
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    • 2000ff-1 b 4
    • 42 U. S. C. § 2000ff-1 (b) (4).
    • U. S. C. , vol.42
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    • 2000ff a
    • 42 U. S. C. § 2000ff (a).
    • U. S. C. , vol.42
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    • Implications of genetic testing for health policy
    • 108, discussing how proving unlawful discrimination under GINA will be difficult "because of loopholes in the law"
    • Gregory Katz & Stuart O. Schweitzer, Implications of Genetic Testing for Health Policy, 10 YALE J. HEALTH POL'Y L. & ETHICS 90, 108(2010) (discussing how proving unlawful discrimination under GINA will be difficult "because of loopholes in the law").
    • (2010) Yale J. Health Pol'y L. & Ethics , vol.10 , pp. 90
    • Katz, G.1    Schweitzer, S.O.2
  • 126
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    • In a disparate-impact claim, an employee does not need to prove intent to discriminate but simply that an employer's policy or practice leads to discrimination. Smith v. City of Jackson, Miss., 241
    • In a disparate-impact claim, an employee does not need to prove intent to discriminate but simply that an employer's policy or practice leads to discrimination. Smith v. City of Jackson, Miss., 544 U. S. 228, 241(2005).
    • (2005) U. S. , vol.544 , pp. 228
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    • Sickle cell trait and fatal rhabdomyolysis in football training: A case study
    • 6
    • See Mary L. Anzalone et al., Sickle Cell Trait and Fatal Rhabdomyolysis in Football Training: A Case Study, 42 MED. & SCI. SPORTS & EXERCISE 3, 6(2010).
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    • Anzalone, M.L.1
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    • 781-87
    • (citing J. A. Kark et al., Sickle-Cell Trait as a Risk Factor for Sudden Death in Physical Training, 317 NEW ENG. J. MED. 781, 781-87(1987));
    • (1987) New Eng. J. Med , vol.317 , pp. 781
    • Kark, J.A.1
  • 130
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    • Oct. 15, 7:52 PM, hereinafter North Carolina
    • North Carolina A&T Fires Athletic Director over Student Death, USA TODAY (Oct. 15, 2010, 7:52 PM), http://www.usatoday.com/sports/college/2010-10- 15-ncat-athletics-directorfired-N.htm [hereinafter North Carolina].
    • (2010) North Carolina A&T Fires Athletic Director over Student Death
  • 131
    • 84856196687 scopus 로고    scopus 로고
    • A&T welcome
    • last visited Oct. 6, 2011
    • A&T Welcome, OFFICIAL SITE OF AGGIE ATHLETICS: N. C. A&T, http://www.ncataggies.com/ViewArticle.dbml?DB-OEM-ID=24500&ATCLID=204937491 (last visited Oct. 6, 2011);
    • Official Site of Aggie Athletics: N. C. A&T
  • 132
    • 84856202024 scopus 로고    scopus 로고
    • last visited Oct. 6, 2011
    • see also NCAA Members by Division, NCAA. ORG, http://web1.ncaa.org/ onlineDir/exec/divisionListing (last visited Oct. 6, 2011).
    • Also NCAA Members by Division
  • 133
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    • supra note 167
    • North Carolina, supra note 167.
    • North Carolina
  • 134
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    • Memorandum from Chancellor Harold L. Martin, Sr. to the University Community Oct. 15, 2010, available
    • see also Memorandum from Chancellor Harold L. Martin, Sr. to the University Community (Oct. 15, 2010), available at http://www.ncataggies.com// pdf8/716820.pdf.
  • 135
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    • 164.502 c
    • 45 C. F. R. § 164.502 (c) (2010).
    • (2010) C. F. R. , vol.45
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    • Self-reported psychopathology in athletes: A comparison of intercollegiate student-athletes and non-athletes
    • 87
    • Eric A. Storch et al., Self-Reported Psychopathology in Athletes: A Comparison of Intercollegiate Student-Athletes and Non-Athletes, 28 J. SPORT BEHAV. 86, 87(2005).
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    • Storch, E.A.1
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    • Athlete eligibility requirements and legal protection of sports participation opportunities
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    • Matthew J. Mitten & Timothy Davis, Athlete Eligibility Requirements and Legal Protection of Sports Participation Opportunities, 8 VA. SPORTS & ENT. L. J. 71, 116(2008).
    • (2008) Va. Sports & Ent. L. J. , vol.8 , pp. 71
    • Mitten, M.J.1    Davis, T.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.