ETHICAL IMPLICATIONS OF LIFESTYLE MONITORING DATA IN AGEING RESEARCH

Information Communication and Society

Volumn 15, Issue 1, 2012, Pages 5-22

  Bowes, Alison ^a   Dawson, Alison ^a   Bell, David ^b  

^a UNIVERSITY OF STIRLING   (United Kingdom)

^b UNIVERSITY OF STIRLING   (United Kingdom)

Author keywords

ethics; informed consent; lifestyle monitoring; older people; surveillance; telecare

Indexed keywords

EID: 84856101799     PISSN: 1369118X     EISSN: 14684462     Source Type: Journal    
DOI: 10.1080/1369118X.2010.530673     Document Type: Article

References (37)

1. Agich, G. J. 2003. Dependence and Autonomy in Old Age: An Ethical Framework for Long-term Care, Cambridge: Cambridge University Press.
2. Amaral, T., Hine, N., Arnott, J.L., Curry, R. & Barlow, J. (2005) 'Integrating the single assessment process into a lifestyle-monitoring system', in Proceedings of the 3rd International Conference on Smart Homes and Telematics (ICOST 2005), Sherbrooke, Quebec, Canada, 4-6 July 2005, IOS Press, Amsterdam, pp. 42-49.
3. Bowes, A. M. and McColgan, G. 2003. Evaluation of Home Comforts Smart Home Technologies Initiative: Final Report to South Ayrshire Council, Stirling: Department of Applied Social Science, University of Stirling.
4. Bowes, A. M. and McColgan, G. 2006. Smart Technology and Community Care for Older People: Innovation in West Lothian, Scotland, Edinburgh: Age Concern Scotland.
5. Brownsell, S. and Bradley, D. 2003. "New generations of telecare equipment". In Assistive Technology and Telecare: Forging Solutions for Independent Living, Edited by: Brownsell, S. and Bradley, D. 39-49. Bristol: Policy Press.
6. Brownsell, S. & Hawley, M. S. (2005) 'Memorandum by Dr S Brownsell and Professor M. S. Hawley', Written Evidence to the House of Lords Select Committee on Science and Technology, in House of Lords Select Committee on Science and Technology First Report. Ageing: Scientific Aspects (Session 2005-06) Volume II (House of Lords Paper No. 20-II), [Online] Available at: http://www.publications.parliament.uk/pa/ld200506/ldselect/ldsctech/20/20we01.htm (6 January 2010).
7. Brownsell, S., Blackburn, S. and Hawley, M. S. 2008. An evaluation of second and third generation telecare services in older people's housing. Journal of Telemedicine and Telecare, 14(1): 8-12.
8. Calnan, M., Badcott, D. and Woolhead, G. 2006. Dignity under threat? A study of the experiences of older people in the United Kingdom. International Journal of Health Services, 36(2): 355-375.
9. Council of Europe (2003) 'Convention for the Protection of Human Rights and Fundamental Freedoms, as amended by Protocol No. 11', Registry of the European Court of Human Rights, September.
10. Doughty, K., Cameron, K. and Garner, P. 1996. Three generations of telecare for the elderly. Journal of Telemedicine and Telecare, 2(2): 71-80.
11. Gilloran, A. J., McGlew, T., McKee, K., Robertson, A. and Wight, D. 1993. Measuring the quality of care in psychogeriatric wards. Journal of Advanced Nursing, 18(2): 269-275.
12. Hanson, J., Osipovič, D., Hine, N., Amaral, T., Curry, R. and Barlow, J. 2007a. Lifestyle monitoring as a predictive tool in telecare. Journal of Telemedicine and Telecare, 13(suppl. 1): 26-28.
13. Hanson, J., Percival, J., Aldred, H., Brownsell, S. and Hawley, M. 2007b. Attitudes to telecare among older people, professional care workers and informal carers: a preventative strategy or crisis management?. Universal Access in the Information Society, 6(2): 193-205.
14. Hensel, B. K., Demiris, G. and Courtney, K. L. 2006. Defining obtrusiveness in home telehealth technologies: a conceptual framework. Journal of the American Medical Informatics Association, 13(4): 428-431.
15. Innes, A. 2002. The social and political context of formal dementia care provision. Ageing and Society, 22(4): 483-499.
16. Jones, K. (2004) 'Enabling technologies for people with dementia. Report of the Assessment Study in England', ENABLE Project Deliverable 4.1.1, [Online] Available at: http://www.enableproject.org/ (5 January 2010).
17. Kenner, A. M. 2008. Securing the elderly body: dementia, surveillance and the politics of ageing in place. Surveillance and Society, 5(3): 252-269.
18. Lawrence, R. J. 1987. Housing, Dwellings, and Homes: Design Theory, Research and Practice, Chichester: Wiley.
19. Lyon, D. 2001. Surveillance Society: Monitoring Everyday Life, Buckingham and Philadelphia: Open University Press.
20. Magnusson, L. & Hanson, E. J. (2003) 'Ethical issues arising from a research, technology and development project to support frail older people and their family carers at home', Health and Social Care in the Community, vol. 11, no. 5, pp. 431-439.
21. Mahoney, D. F., Purtilo, R. B., Webbe, F. M., Alwan, M., Bharucha, A. J., Adlam, T. D., Jimison, H. B., Turner, B. and Becker, S. A. 2007. In-home monitoring of persons with dementia: ethical guidelines for technology research and development. Alzheimer's and Dementia, 3(3): 217-226.
22. Mahoney, D. M. F., Mutschler, P. H., Tarlow, B. and Liss, E. 2008. Real world implementation lessons and outcomes from the Worker Interactive Networking (WIN) project: workplace-based online caregiver support and remote monitoring of elders at home. Telemedicine and eHealth, 14(3): 224-234.
23. Marx, G. T. 1998. Ethics for the new surveillance. The Information Society, 14: 171-185.
24. Marziali, E., Dergal Serafini, J. M. and McCleary, L. 2005. A systematic review of practice standards and research ethics in technology-based home health care intervention programmes for older adults. Journal of Aging and Health, 17(6): 679-696.
25. Munro, M. and Madigan, R. 1993. Privacy in the private sphere. Housing Studies, 8(1): 29-45.
26. Percival, J. & Hanson, J. (2006) 'Big brother or brave new world? Telecare and its implications for older people's independence and social inclusion', Critical Social Policy, vol. 26, no. 4, pp. 888-909.
27. Perry, J., Bayer, S. and Holm, S. 2009. Assistive technology, telecare and people with intellectual disabilities: ethical considerations. Journal of Medical Ethics, 35(2): 81-86.
28. Pols, J. and Moser, I. 2009. Cold technologies versus warm care? On affective and social relations with and through care technologies. ALTER, European Journal of Disability Research, 3(2): 159-178.
29. Rowan, J. & Mynatt, E. (2005) 'Digital family portrait field trial: support for aging in place', paper presented at CH1 2005, Portland, Oregon, 2-5 April.
30. Sixsmith, A., Hine, N., Neild, I., Brown, S. and Garner, P. 2007. Monitoring the well-being of older people. Topics in Geriatric Rehabilitation, 23(1): 9-23.
31. Splaine Wiggins, M. 2008. The partnership care delivery model: an examination of the core concept and the need for a new model of care. Journal of Nursing Management, 16(5): 629-638.
32. Stacey, M. 1988. The Sociology of Health and Ageing. A Textbook, London: Unwin Hyman.
33. Tadd, W. and Bayer, A. 2006. Dignity in health and social care for older Europeans: implications of a European project. Aging Health, 2(5): 771-779.
34. Twigg, J. 1999. The spatial ordering of care: public and private in bathing support at home. Sociology of Health and Illness, 21(4): 381-400.
35. van Wynsberghe, A. and Gastmans, C. 2009. Telepsychiatry and the meaning of in-person contact: a preliminary ethical appraisal. Medicine Health Care and Philosophy, 12(4): 469-476.
36. Woolhead, G., Calnan, M., Dieppe, P. and Tadd, W. 2004. Dignity in older age: what do older people in the United Kingdom think?. Age and Ageing, 33(2): 165-170.
37. Yeandle, S. 2009. Telecare: A Crucial Opportunity to Help Save Our Health and Social Care System, London: Bow Group.