The invisible side of war: Families caring for US service members with traumatic brain injuries and polytrauma

Journal of Head Trauma Rehabilitation

Volumn 27, Issue 1, 2012, Pages 3-13

  Griffin, Joan M ^a,b   Friedemann Sánchez, Greta ^c   Jensen, Agnes C ^a   Taylor, Brent C ^a,b,d   Gravely, Amy ^a   Clothier, Barbara ^a   Simon, Alisha Baines ^a   Bangerter, Ann ^a   Pickett, Treven ^e,f   Thors, Christina ^e   Ceperich, Sherry ^e   Poole, John ^g   Van Ryn, Michelle ^b  

^a DEPARTMENT OF VETERANS AFFAIRS   (United States)

^b UNIVERSITY OF MINNESOTA MEDICAL SCHOOL   (United States)

^c UNIVERSITY OF MINNESOTA   (United States)

^d UNIVERSITY OF MINNESOTA   (United States)

^e VETERANS AFFAIRS MEDICAL CENTER   (United States)

^f VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

^g VA PALO ALTO HEALTH CARE SYSTEM   (United States)

Author keywords

caregiving; families; polytrauma; traumatic brain injury; veterans

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DISEASE DURATION; EMOTION; FEMALE; HEALTH CARE SYSTEM; HEALTH SERVICE; HOSPITAL PATIENT; HUMAN; LEGAL ASPECT; MAJOR CLINICAL STUDY; MALE; MULTIPLE TRAUMA; PARENT; PATIENT CARE; PREVALENCE; REHABILITATION CARE; REHABILITATION CENTER; SPOUSE; TRAUMATIC BRAIN INJURY; UNITED STATES;

ACTIVITIES OF DAILY LIVING; ADULT; AFGHAN CAMPAIGN 2001-; BRAIN INJURIES; CAREGIVERS; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; IRAQ WAR, 2003 -; MALE; MIDDLE AGED; MILITARY PERSONNEL; MULTIPLE TRAUMA; UNITED STATES; WORKLOAD;

EID: 84855567402     PISSN: 08859701     EISSN: 1550509X     Source Type: Journal    
DOI: 10.1097/HTR.0b013e3182274260     Document Type: Article

References (36)

1. Okie S. Traumatic brain injury in the war zone. N Engl J Med. 2005;352(20):2043-2047. (Pubitemid 40664304)
2. Okie S. Reconstructing lives:a tale of two soldiers. N Engl J Med. 2006;355(25):2609-2615. (Pubitemid 44969119)
3. Warden DL. Military TBI during the Iraq and Afghanistan wars. J Head Trauma Rehabil. 2006;21:398-402.
4. Sayer NA, Chiros CE, Sigford B, et al. Characteristics and rehabilitation outcomes among patients with blast and other injuries sustained during the global war on terror. Arch Phys Med Rehabil. 2008;89(1):163-170. (Pubitemid 350298990)
5. Friedemann-Sanchez G, Sayer NA, Pickett T. Provider perspectives on the rehabilitation of patients with polytrauma. Arch Phys Med Rehabil. 2008;89(1):171-178. (Pubitemid 350299017)
6. Sigford BJ. "To care for him who shall have borne the battle and for his widow and his orphan" (Abraham Lincoln): The Department of Veterans Affairs polytrauma system of care. Arch Phys Med Rehabil. 2008;89(1):160-162. (Pubitemid 350298993)
7. Chandra A, Burns RM, Tanielian T, Jaycox LH. Understanding the deployment experience for children and youth from military families. In: Wadsworth SM, Riggs D, eds. Risk and Resilience in U.S. Military Families. New York, NY: Springer, 2010:175-192.
8. Mansfield AJ, Kaufman JS, Marshall SW, Gaynes BN, Morrissey JP, Engel CC. Deployment and the use of mental health services among U.S. army wives. N Engl J Med. 2010;362(2):101-109.
9. Griffin JM, Friedemann-Sanchez G, Hall C, Phelan S, van Ryn M. Families of patients with polytrauma: understanding the evidence and charting a new research agenda. J Rehabil Res Dev. 2009;46(6879-892.
10. Badr H, Barker TM,Milbury K. Couples' psychosocial adaptation to combat wounds and injuries. In: Risk and Resilience in US Military Families. Wadsworth SM, Riggs D, eds. New York, NY: Springer, 2010.
11. Gordon WA, Zafonte R, Cicerone K, et al. Traumatic brain injury rehabilitation: State of the science. Am J Phys Med Rehabil. 2006;85(4):343-382.
12. American Association for Public Opinion Research. StandardDefinitions: FinalDispositions of Case Codes and Outcome Rates for Surveys. 6th ed. Deerfield, IL: American Association for Public Opinion Research; 2009.
13. Katz S, Ford A, Moskowitz R, Jackson B, Jaffe M. Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. JAMA. 1963;185:914-919.
14. Lawton MP, Brody EM. Assessment of older people: Selfmaintaining and instrumental activities of daily living. Gerontologist. 1969;9(3):179-186.
15. van Ryn M, Sanders S, Kahn K, et al. Objective burden, resources and other stressors among informal cancer caregivers; a hidden quality issue? Psychooncology. 2011;20(1):44-52.
16. Lilly M, Laporte A, Coyte P. Labor market work and home care's unpaid caregivers: A systematic review of labor force participation rates, predictors of labor market withdrawal, and hours of work. Milbank Q. 2007;85(4):641-691.
17. Navaie-Waliser M, Spriggs A, Feldman PH. Informal caregiving: differential experiences by gender. Med Care. 2002;40(121249-1259.
18. Navaie-Waliser M, Feldman PH, Gould DA, Levine C, Kuerbis AN, Donelan K. When the caregiver needs care: The plight of vulnerable caregivers. Am J Public Health. 2002;92(3):409-413 (Pubitemid 34184830)
19. Sady MD, Sander AM, Clark AN, Sherer M, Nakase-Richardson R, Malec JF. Relationship of preinjury caregiver and family functioning to community integration in adults with traumatic brain injury. Arch Phys Med Rehabil. 2010;91:1542-1550.
20. Belle SH, Burgio L, Burns R, et al. Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial. Ann Intern Med. 2006;145(10727-738. (Pubitemid 351650352)
21. Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: A review of the literature. J Clin Nurs. 2005;14(8):1004-1012. (Pubitemid 41196628)
22. Burg MM, Seeman TE. Families and health: The negative side of social ties. Ann BehavMed. 1994;16(109115.
23. Carnwath TC, Johnson DA. Psychiatric morbidity among spouses of patients with stroke. Br Med J Clin Res Ed. 1987;294(6569 409-411. (Pubitemid 17023614)
24. Williamson GM, Shaffer DR. Relationship quality and potentially harmful behaviors by spousal caregivers: How we were then, how we are now. The Family Relationships in Late Life Project. Psychol Aging. 2001;16(2217-226. (Pubitemid 32530284)
25. Williamson GM, Walters AS, Shaffer DR. Caregiver models of self and others, coping, and depression: Predictors of depression in children with chronic pain. Health Psychol. 2002;21(4): 405-410. (Pubitemid 34663289)
26. Covinsky KE, Newcomer R, Fox P, Wood J, Sands L, Dane K, et al. Patient and caregiver characteristics associated with depression in caregivers of patients with dementia. J Gen Intern Med. 2003;18(121006-1014. (Pubitemid 38091395)
27. Ory MG, Hoffman RR III, Yee JL, Tennstedt S, Schulz R. Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. Gerontolo. 1999;39(2177-185. (Pubitemid 29187874)
28. Tooth L,McKenna K, Barnett A, Prescott C,Murphy S. Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Injury. 2005;19(12963-974. (Pubitemid 41701018)
29. Bakas T, Lewis RR, Parsons JE. Caregiving tasks among family caregivers of patients with lung cancer. Oncol Nurs Forum. 2001;28(5):847-854.
30. Kreutzer JS, Marwitz JH, Godwin EE, Arango-Lasprilla JC. Practical approaches to effective family intervention after brain injury. J Head Trauma Rehabil. 2010;25(2113-120.
31. Degeneffe CE. Family caregiving and traumatic brain injury. Health SocWork. 2001;26(4):257-268. (Pubitemid 33612933)
32. Faul M, Xu L, Wald MM, Coronado VG. Traumatic Brain Injury in the United States: Emergency Department Visits, Hospitalizations, and Deaths. Atlanta, GA: Centers for Disease Control and Prevention, National Center for Injury Prevention and Control; 2010.
33. Naumann RB, Dellinger AM, Zaloshnja E, Lawrence BA, Miller TR. Incidence and total lifetime costs of motor vehicle-related fatal and nonfatal injury by road user type, United States, 2005. Traffic Inj Prev. 2010;11(4):353-360.
34. Hart T, O'Neil-Pirozzi TM,Williams KD, Rapport LJ, Hammond F, Kreutzer J. Racial differences in caregiving patterns, caregiver emotional function, and sources of emotional support following traumatic brain injury. J Head Trauma Rehabil. 2007;22(2 122-131. (Pubitemid 46596646)
35. Pruchno RA, Brill JE, Shands Y, et al. Convenience samples and caregiving research: How generalizable are the findings? Gerontologist. 2008;48(6820-827.
36. National Alliance for Caregiving, AARP. Caregiving in the U.S., 2009. Bethesda, MD: National Alliance for Caregiving and AARP; 2010.