Family caregiving and traumatic brain injury

Health and Social Work

Volumn 26, Issue 4, 2001, Pages 257-268

  Degeneffe, Charles Edmund ^a,b  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b UNIVERSITY OF WISCONSIN MADISON   (United States)

Author keywords

Care giving; Families; Traumatic brain injury

Indexed keywords

ADAPTIVE BEHAVIOR; BRAIN INJURY; CHRONIC DISEASE; FAMILY; HOME CARE; HUMAN; LONG TERM CARE; MENTAL STRESS; NURSING; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REVIEW; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; BRAIN INJURIES; CHRONIC DISEASE; FAMILY; HOME NURSING; HUMAN; LONG-TERM CARE; QUALITY OF LIFE; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 0035513912     PISSN: 03607283     EISSN: None     Source Type: Journal    
DOI: 10.1093/hsw/26.4.257     Document Type: Article

References (61)

1. Allen, K., Linn, R. T., Gutierrez, H., & Willer, B. S. (1994). Family burden following traumatic brain injury. Rehabilitation Psychology, 39(1), 29-48.
2. Brain Injury Association, Inc. (2000, March). Issue brief: Traumatic Brain Injury Act of 1996 [Online]. Available: www. biausa/org/policy_tbiauthoriazation2.htm.
3. Brooks, D. N. (1991). Presidential address, Innsbruck: The head-injured family. Journal of Clinical and Experimental Neuropsychology, 13, 155-188.
4. Carson, P. (1993). Investing in the comeback: Parent's experience following traumatic brain injury. Journal of Neuroscience Nursing, 25(3), 165-173.
5. Chwalisz, K. (1992). Perceived stress and caregiver burden after brain injury: A theoretical integration. Rehabilitation Psychology, 37, 189-203.
6. Chwalisz, K., & Stark-Wroblewski, K. (1996). The subjective experiences of spouse caregivers on persons with brain injuries: A qualitative analysis. Applied Neuropsychology, 3, 28-40.
7. Cicirelli, V. G. (1982). Sibling influence throughout the lifespan. In M. E. Lamb & B. Sutton-Smith (Eds.), Sibling relationships: Their nature and significance across the lifespan (pp. 267-284). Hillsdale, NJ: Lawrence Erlbaum.
8. Corrigan, J. D. (1999). Consequences of traumatic brain injury for functioning in the community. In K. T. Ragnarsson (Ed.), Report of the NIH consensus development conference on the rehabilitation of persons with traumatic brain injury (pp. 64-68). Bethesda, MD: U.S. Department of Health and Human Services.
9. Cunningham, I. M., Chan, F., Jones, I., Kramnetz, B., Stoll, J., & Calabresa, J. (1999). Brain injury rehabilitation: A primer for case managers. In F. Chan & M. J. Leahy (Eds), Health care and disability case management (pp. 475-526). Lake Zurich, IL: Vocational Consultants Press.
10. Dejong, G. (1999). Access to brain injury rehabilitation and other post-acute services. In K. Ragnarsson (Ed.), Report of the NIH consensus development conference on the rehabilitation of persons with traumatic brain injury (pp. 121-124). Bethesda, MD: U.S. Department of Health and Human Services.
11. Douglas, J. M., & Spellacy, F. J. (1996). Indicators of long-term family functioning following severe traumatic brain injury in adults. Brain Injury, 10, 819-839.
12. Eames, P., Haffey, W. J., & Cope, D. N. (1990). Treatment of behavioral disorders. In M. Rosenthal, E. R. Griffith, M. R. Bond, & J. D. Miller (Eds.), Rehabilitation of the adult and the child with traumatic brain injury (pp. 410-432). Philadelphia: F. A. Davis.
13. Family Caregiver Alliance. (1999, November). Long-term care statistics [Online]. Available: www.caregiver.org/long_term_stat.html.
14. Gervasio, A. H., & Kreutzer, J. S. (1997). Kinship and family member's psychological distress after traumatic brain injury: A large sample study. Journal of Head Trauma Rehabilitation, 12(3), 14-26.
15. Gilson, S. F., Bricout, J. C., & Baskind, F. R. (1998). Listening to the voices of individuals with disabilities. Families in Society, 79, 188-196.
16. Graffi, S., & Minnes, P. (1989). Stress and coping in caregivers of persons with traumatic head injuries. Journal of Applied Social Services, 13, 293-315.
17. Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later life caregiving. Gerontologist, 33, 542-550.
18. Greenberg, J. S., Seltzer, M. M., Krauss, M. W., & Kim, H. (1997). The differential effects of social support on the psychological well-being of aging mothers of adults with mental illness or mental retardation. Family Relations, 46, 383-394.
19. Hallett, J. D., Zasler, N. D., Maurer, P., & Cash, S. (1994). Role change after traumatic brain injury. American Journal of Occupational Therapy, 48, 241-246.
20. Hardgrove, H. (1991). Special issues for a child. In J. M. Williams & T. Kay (Eds.), Head injury: A family matter (pp. 25-27). Baltimore: Paul H. Brookes.
21. Hepworth, D. H., & Larsen, J. A. (1990). Direct social work practice (3rd ed.). Belmont, CA: Wadsworth.
22. Hosack, K. R., & Rocchio, C. A. (1995). Serving families of persons with severe brain injury in an era of managed care. Journal of Head Trauma Rehabilitation, 10(2), 57-65.
23. Jacob, E. (1993). Clarifying qualitative research: A focus on traditions. In C. Conrad, A. Neumann, J. G. Haworth, & P. Scott (Eds.), Qualitative research in higher education: Experiencing alternative perspectives and approaches (pp. 47-60). Needham Heights, MA: Ginn Press.
24. Jacobs, H. E. (1989). Long-term family intervention. In D. W. Ellis & A. Christensen (Eds.), Neuropsychological treatment after brain injury (pp. 297-316). Boston: Kluwer Academic.
25. Johnson, B. P. (1995). One family's experience with head injury: A phenomenological study. Journal of Neuroscience Nursing, 27(2), 113-118.
26. Knight, R. G., Devereux, R., & Godfrey, H.P.D. (1998). Caring for a member with a traumatic brain injury. Brain Injury, 12, 467-481.
27. Kosciulek, J. F. (1994). Relationship of family coping with head injury to family adaptation. Rehabilitation Psychology, 39, 215-230.
28. Kosciulek, J. F. (1996). The Circumplex Model and head injury family types: A test of balanced versus extreme hypothesis. Journal of Rehabilitation, 62(2), 49-54.
29. Kosciulek, J. F., McCubbin, M. A., & McCubbin, H. I. (1993). A theoretical framework for family adaptation to head injury. Journal of Rehabilitation, 59, 40-45.
30. Kreutzer, J. S. (1999). Consequences of traumatic brain injury for the family. In K. Ragnarsson (Ed.), Report of the NIH consensus development conference on the rehabilitation of persons with traumatic brain injury (pp. 59-63). Bethesda, MD: U.S. Department of Health and Human Services.
31. Kreutzer, J. S., Gervasio, A. H., & Camplair, P. S. (1994). Patient correlates of caregivers' distress and family functioning after traumatic brain injury. Brain Injury, 8, 211-230.
32. Kreutzer, J. S., Marwitz, J. H., & Kepler, K. (1992). Traumatic brain injury: Family response and outcome. Archives of Physical Medicine and Rehabilitation, 73, 771-778.
33. Kreutzer, J. S., Serio, C. D., & Bergquist, S. (1994). Family needs after brain injury: A quantitative analysis. Archives of Physical Medicine and Rehabilitation, 73, 771-778.
34. Kreutzer, J. S., Witol, A. D., & Marwitz, J. (1996). Alcohol and drug use among young persons with traumatic brain injury. Journal of Learning Disabilities, 29, 643-651.
35. Leathem, J., Heath, E., & Woolley, C. (1996). Relatives' perceptions of role change, social support and stress after traumatic brain injury. Brain Injury, 10, 27-38.
36. Lees, M. (1988). The social and emotional consequences of severe brain injury: The social work perspective. In I. Fussey & G. M. Giles (Eds.), Rehabilitation of the severely brain-injured adult: A practical approach (pp. 166-182). Baltimore: Paul H. Brookes.
37. Linn, R. T., Allen, K., & Willer, B. S. (1994). Affective symptoms in the chronic stage of traumatic brain injury: A study of married couples. Brain Injury, 8, 135-147.
38. Livingston, M., & Brooks, D. (1988). The burden of families of the brain injured: A review. Journal of Head Trauma Rehabilitation, 3, 6-15.
39. Livingston, M., Brooks, D. N., & Bond, M. R. (1985). Three months after severe head injury: Psychiatric and social impact on relatives. Journal of Neurological Neurosurgery Psychiatry, 48, 870-875.
40. Livneh, H., & Antonak, R. F. (1997). Psychological adaptation to chronic illness and disability. Gaithersburg, MD: Aspen.
41. Lynch, R. T. (1986). Traumatic brain injury: Implications for rehabilitation counseling. In T. F. Riggar, D. R. Maki, & A. W. Wolf (Eds.), Applied rehabilitation counseling (pp. 262-270). New York: Springer.
42. Maitz, E. A., & Sachs, P. (1995). Treating families of individuals with traumatic brain injury from a family systems perspective. Journal of Head Trauma Rehabilitation, 10(2), 1-11.
43. Mathis, M. (1984). Personal needs of family members of critically ill patients with and without acute brain injury. Journal of Neurosurgical Nursing, 16, 36-44.
44. McKinlay, W. W., & Hickox, A. (1988). How can families help in the rehabilitation of the head injured? Journal of Head Trauma Rehabilitation, 3(4), 64-72.
45. Mintz, M. C., Van Horn, K. R., & Levine, M. J. (1995). Developmental models of social cognition in assessing the role of family stress in relatives' predictions following traumatic brain injury. Brain Injury, 9, 173-186.
46. Moore, A. D., Stambrook, M., Peters, L. C., & Lubusko, A. (1991). Family coping and marital adjustment after traumatic brain injury. Journal of Head Trauma Rehabilitation, 6(1), 83-89.
47. Muir, C. R., & Haffey, W. J. (1984). Psychological and neuropsychological interventions in the mobile mourning process. In B. A. Edelstein & E. T. Couture (Eds.), Behavioral assessment and rehabilitation of the traumatically brain damaged (pp. 247-272). New York: Plenum Press.
48. National Institutes of Health. (1999). Report of the NIH consensus development conference on the rehabilitation of persons with traumatic brain injury. Bethesda, MD: U.S. Department of Health and Human Services.
49. Olson, D. H., Bell, R., & Portner, J. (1990). Family Adaptability and Cohesion Evaluation Scales II (FACES II). St. Paul: University of Minnesota, Family Social Science.
50. Orsillo, S. M., McCaffrey, R. I., & Fisher, J. M. (1993). Siblings of head-injured individuals: A population at risk. Journal of Head Trauma Rehabilitation, 8(1), 102-115.
51. Pessar, L. F., Coad, M. L., Linn, R. T., & Willer, B. S. (1993). The effects of parental traumatic brain injury on the behavior of parents and children. Brain Injury, 7, 231-240.
52. Quine, S., Lyle, D., & Pierce, J. (1993). Stressors experienced by relatives of patients in an innovative rehabilitation program. Health & Social Work, 18, 114-122.
53. Quinn, P. (1995). Social work education and disability: Benefiting from the impact of ADA. Journal of Teaching in Social Work, 12(1/2), 55-71.
54. Rosenthal, M. (1989). Understanding and optimizing family adaptation to traumatic brain injury. In P. Bach-y-Rita (Ed.), Traumatic brain injury (pp. 191-202). New York: Demos.
55. Rosenthal, M., & Young, T. (1988). Effective family intervention after traumatic brain injury: Theory and practice. Journal of Head Trauma Rehabilitation, 3, 42-50.
56. Sachs, P. R. (1991). Treating families of brain-injury survivors. New York: Springer.
57. Sander, A. M., High, W. M., Jr., Hannay, H. J., & Sherer, M. (1997). Predictors of psychological health in caregivers of patients with closed head injury. Brain Injury, 11, 235-249.
58. Sargent, M. M. (1997). Residential treatment. In D. W. Ellis & A. Christensen (Eds.), Neuropsychological treatment after brain injury (pp. 183-220). Boston: Kluwer Academic.
59. Spivack, M. P. (1994). Pathways to policy: A personal perspective. Journal of Head Trauma Rehabilitation, 9(2), 82-93.
60. Stebbins, P. (1997). Long term changes in family needs after brain injury: A preliminary review. Australian Journal of Rehabilitation Counseling, 3(1), 30-39.
61. Wesolowski, M. D., & Zencius, A. H. (1994). A practical guide to head injury rehabilitation: A focus on postacute residential treatment. New York: Plenum Press.