Consent for organ donation

British Journal of Anaesthesia

Volumn 108, Issue SUPPL. 1, 2012, Pages

  Vincent, A ^a   Logan, L ^b  

^a ROYAL VICTORIA INFIRMARY   (United Kingdom)

^b NHS BLOOD AND TRANSPLANT   (United Kingdom)

Author keywords

consent; donation attitudes; organ donation

Indexed keywords

BRAIN DEATH; EMOTIONAL ATTACHMENT; EMPATHY; FAMILY ATTITUDE; HUMAN; INFORMED CONSENT; ORGAN DONOR; PATIENT ATTITUDE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; REGISTER; REVIEW; TIME; UNITED KINGDOM;

EID: 84855234194     PISSN: 00070912     EISSN: 14716771     Source Type: Journal    
DOI: 10.1093/bja/aer353     Document Type: Review

References (79)

1. Barber K, Falvey S, Hamilton C, Collet D, Rudge C. Potential for organ donation in the United Kingdom: audit of intensive care records. Br Med J 2006; 332: 1124-7
2. NHS Blood and Transplant Potential Donor Audit Statistics. Available from http://www.organdonation.nhs.uk/ukt/statistics/potential-donor-audit/pdf/pda- summary-report-2007-2009.pdf (accessed May 24, 2011)
3. NHS Blood and Transplant Professional Development Programme. Available from http://www.organdonation.nhs.uk/ukt/about-us/professional-development- programme/professional-development-programme.jsp (accessed May 24, 2011)
4. Human Tissue Authority. Code of Practice 2, 'Donation of Solid Organs for Transplantation'. 2006. Available from http://www.hta.gov.uk/-db/-documents/ 2006-07-04-Approved-by-Parliament-Code-of-Practice-2-Donation-of-Solid-Organs- 200607133233.pdf (accessed May 24, 2011)
5. Bell MDD. The UK Human Tissue Act and consent: surrendering a fundamental principle to transplantation needs? J Med Ethics 2006; 32: 283-6 (Pubitemid 43676362)
6. Bell MDD. Emergency medicine, organ donation and the Human Tissue Act. Emerg Med J 2006; 23: 824-7 (Pubitemid 44696833)
7. Gardiner D. An unethical marriage-the Human Tissue Act and the UK NHS Organ Donor Register. J Intensive Care Soc 2007; 8: 42-3
8. Rudge C. An unethical marriage-a response from UK transplant. J Intensive Care Soc 2007; 8: 44
9. Price DPT. Legal framework governing deceased organ donation in the UK. Br J Anaesth 2012; 108 (Suppl. 1): i68-i72
10. Farsides B. Respecting wishes and avoiding conflict: understanding the ethical basis for organ donation and retrieval. Br J Anaesth 2012; 108 (Suppl. 1): i73-i79
11. NHS Blood and Transplant Statistics. Available from http://www. organdonation.nhs.uk/ukt/ (accessed June 19, 2011)
12. Murphy PG. Optimizing donor potential in the UK. Clin Ethics 2011; 6: 127-33
13. Morgan SE, Miller JK. Beyond the organ donor card: the effect of knowledge, attitudes, and values on willingness to communicate about organ donation to family members. Health Commun 2001; 14: 121-34
14. Horton RL, Horton PJ. A model of willingness to become a potential organ donor. Soc Sci Med 1991; 33: 1037-51
15. Sanner M. Attitudes toward organ donation and transplantation. Soc Sci Med 1994; 38: 1141-52
16. Morgan SE, Harrison TR, Afifi WA, Long SD, Stephenson MT. In their own words: the reasons why people will (not) sign an organ donor card. Health Commun 2008; 23: 23-33
17. Brug J, Van Vugt M, Van Den Borne B, Brouwers A, van Hoof H. Predictors of willingness to register as an organ donor among Dutch adolescents. Psychol Health 2000; 15: 357-68
18. Morgan SE, Stephenson MT, Harrison TR, Afifi WA, Long SD. Facts versus 'feelings'. how rational is the decision to become an organ donor? J Health Psychol 2008; 13: 644-58 (Pubitemid 351758644)
19. O'Carroll RE, Foster C, McGeechan G, Sandford K, Ferguson E. The 'Ick' factor, anticipated regret and willingness to become an organ donor. Health Psychol 2011; 30: 236-45
20. Guadagnoli E, Christiansen CL, DeJong W, et al. The public's willingness to discuss their preference for organ donation with family members. Clin Transplant 1999; 13: 342-8 (Pubitemid 29392626)
21. Siminoff LA, Gordon N, Hewlett J, Arnold RM. Factors influencing families' consent for donation of solid organs for transplantation. J Am Med Assoc 2001; 286: 71-7 (Pubitemid 32606334)
22. AfifiWA, Morgan SE, Stephenson MT, et al. Examining the decision to talk with family about organ donation: applying the theory of motivated information management. Commun Monogr 2006; 73: 188-215 (Pubitemid 43754895)
23. Exley M, White N, Martin JH. Why families say no to organ donation. Crit Care Nurse 2002; 22: 44-51
24. Rodrigue JR, Cornell DL, Howard RJ. Organ donation decision: comparison of donor and non-donor families. Am J Transplant 2006; 6: 190-8 (Pubitemid 43382218)
25. Siminoff LA, Lawrence RH. Knowing patients preferences about organ donation: does it make a difference? J Trauma 2002; 53: 754-60 (Pubitemid 35190611)
26. Brown CV, Foulkrod KH, Dworaczyk S, et al. Barriers to obtaining family consent for potential organ donors. J Trauma 2010; 68: 447-51
27. Jacoby L, Jaccard J. Perceived support among families deciding about organ donation for their loved ones: donor vs nondonor next of kin. Am J Crit Care 2010; 19: e52-61
28. Singh P, Kumar A, Sharma RK. Factors influencing refusal by relatives of brain dead patients to give consent for organ donation: experience at a transplant centre. J Indian Med Assoc 2004; 102: 630-2
29. Ghorbani F, Khoddami-Vishteh HR, Ghobadi O, et al. Causes of family refusal for organ donation. Transplant Proc 2011; 43: 405-6
30. Sotillo E, Montoya E, Martinez V, et al. Identification of variables that influence brain-dead donors' family groups regarding refusal. Transplant Proc 2009; 41: 3466-70
31. Moraes EL, Massarollo MC. Reasons for the family members' refusal to donate organ tissue for transplant. Acta Paul Enferm 2009; 22: 131-5
32. Martinez JM, Lopez JS, Martin A, et al. Organ donation and family decision making within the Spanish donation system. Soc Sci Med 2001; 53: 405-21 (Pubitemid 32547461)
33. Sanner MA. Two perspectives on organ donation: experiences of potential donor families and intensive care physicians of the same event. J Crit Care 2007; 22: 296-304 (Pubitemid 350251103)
34. Lopez Martinez JS, Lopez MJM, Scandroglio B, Garcia JMM. Psychosocial analysis of the subjective interpretation of donor and nondonor families. Span J Psychol 2008; 11: 125-36
35. DeJong W, Franz HG, Wolfe SM, et al. Requesting organ donation: an interview study of donor and nondonor families. Am J Crit Care 1998; 7: 13-23 (Pubitemid 128456906)
36. Rodrigue JR, Cornell DL, Howard RJ. Does family disagreement affect donation decisions by next of kin? Prog Transplant 2008; 18: 179-84
37. Anker AE, Feeley TH. Why families decline donation: the perspective of organ procurement coordinators. Prog Transplant 2010; 20: 239-46
38. Siminoff LA, Arnold RM, Hewlett J. The process of organ donation and its effect on consent. Clin Transplant 2001; 15: 39-47 (Pubitemid 32094333)
39. Yong BH, Cheng B, Ho S. Refusal of consent for organ donation: from survey to bedside. Transplant Proc 2000; 32: 1563
40. Sque M, Long T, Payne S, Allardyce D. Why relatives do not donate organs for transplants: 'sacrifice' or 'gift of life'? J Adv Nurs 2008; 61: 134-44
41. Long T, Sque M, Addington-Hall J. What does a diagnosis of brain deathmean to familymembers approached about organ donation? A review of the literature. Prog Transplant 2008; 18: 118-25
42. Sanner MA. People's attitudes and reactions to organ donation. Mortality 2006; 11: 133-50 (Pubitemid 43670132)
43. Haddow G. Donor and nondonor families' accounts of communication and relations with healthcare professionals. Prog Transplant 2004; 14: 41-8 (Pubitemid 38375388)
44. Howard DH, Siminoff LA, McBride V, Lin M. Does quality improvement work? Evaluation of the Organ Donation Breakthrough Collaborative. Health Serv Res 2007; 42: 2160-73 (Pubitemid 350077334)
45. Shafer TJ, Wagner D, Chessare J, et al. Organ Donation Breakthrough Collaborative: increasing organ donation through system redesign. Crit Care Nurse 2006; 26: 33-48
46. Ormrod JA, Ryder T, Chadwick RJ, Bonner SM. Experiences of families when a relative is diagnosed brain stem dead: understanding of death, observation of brain stem death testing and attitudes to organ donation. Anaesthesia 2005; 60: 1002-8 (Pubitemid 41387857)
47. Rodrigue JR, Cornell DL, Howard RJ. The instability of organ donation decisions by next of kin and factors that predict it. Am J Transplant 2008; 8: 2661-7
48. Truog RD. Consent for organ donation-balancing conflicting ethical obligations. N Engl J Med 2008; 358: 1209-11 (Pubitemid 351439221)
49. Simpkin AL, Robertson LC, Barber VS, Young JD. Modifiable factors influencing relatives' decision to offer organ donation: systematic review. Br Med J 2009; 339: b991
50. Siminoff LA, Mercer MB, Arnold R. Families understanding of brain death. Prog Transplant 2003; 13: 218-24
51. Pearson IY, Bazeley P, Spencer-Plane T, Chapman JR, Robertson P. A survey of families of brain dead patients: their experiences, attitudes to organ donation and transplantation. Anaesth Intensive Care 1995; 23: 88-95
52. Siminoff LA, Burant C, Youngner SJ. Death and organ procurement: public beliefs and attitudes. Soc Sci Med 2004; 59: 2325-34 (Pubitemid 39273472)
53. Burroughs TE, Hong BA, Kappel DF, Freedman BK. The stability of family decisions to consent or refuse organ donation: would you do it again? Psychosom Med 1998; 60: 156-62 (Pubitemid 28160527)
54. Franz HG, DeJongW,Wolfe SM, et al. Explaining brain death: a critical feature of the donation process. J Transpl Coord 1997; 7: 14-21 (Pubitemid 27196663)
55. Andres A, Morales E, Vazquez S, et al. Lower rate of family refusal for organ donation in non-heart beating versus brain dead donors. Transplant Proc 2009; 41: 2304-5
56. Jacoby LH, Breitkopf CR, Pease EA. A qualitative examination of the needs of families faced with the option of organ donation. Dimens Crit Care Nurs 2005; 24: 183-9
57. Rosel J, Frutos MA, Blanca MJ, Ruiz P. Discriminant variables between organ donors and nondonors: a post hoc investigation. J Transpl Coord 1999; 9: 50-3 (Pubitemid 29158678)
58. Shafer TJ. Improving relatives' consent to organ donation. Br Med J 2009; 338: b701
59. Siminoff LA, Lawrence RH, Zhang A. Decoupling: what is it and does it really help increase consent to organ donation? Prog Transplant 2002; 12: 52-60 (Pubitemid 34225987)
60. Gortmaker SL, Beasley CL, Sheehy E, et al. Improving the request process to increase family consent for donation. J Transpl Coord 1998; 8: 210-7 (Pubitemid 29158655)
61. Niles PA, Mattice BJ. The timing factor in the consent process. J Transpl Coord 1996; 6: 84-7 (Pubitemid 26336405)
62. Cleiren MP, Van Zoelen AA. Post mortem organ donation and grief: a study of consent, refusal and well being in bereavement. Death Studies 2002; 26: 837-49 (Pubitemid 35364626)
63. Douglass GE, Daly M. Donor families' experience of organ donation. Anaesth Intensive Care 1995; 23: 96-8
64. The ACRE Trial Collaborators. Effect of 'collaborative requesting' on consent rate for organ donation: randomised controlled trial (ACRE trial). Br Med J 2009; 339: b3911
65. Hogan M. Collaborative requesting for organ donation of no benefit in UK study, but implications of finding unclear. Nephrol Times 2010; 3: 12-3
66. Evanisko M, Beasley C, Brigham L. Readiness of critical care physicians and nurses to handle requests for organ donation. Am J Crit Care 1998; 7: 4-12 (Pubitemid 128456905)
67. Riker RR, White BW. The effect of physician education on the rates of donation request and tissue donation. Transplantation 1995; 59: 880-4
68. Shafer TJ, Ehrle RN, Davis KD, et al. Increasing organ recovery from level 1 trauma centers: the in house co-ordinator intervention. Prog Transplant 2004; 14: 250-63 (Pubitemid 39202654)
69. Dickerson J, Valadka AB, LeVert T, Davis K, Kurian M, Robertson CS. Organ donation rates in a neurosurgical intensive care unit. J Neurosurg 2002; 97: 811-4 (Pubitemid 35222401)
70. Improving donor identification and consent rates for cadaveric organ donation. Available from http://guidance.nice.org.uk/CG/Wave24/3 (accessed June 19, 2011)
71. Council of Europe. Transplant Newsletter 2010; 15: 38
72. Matas AJ, Chapman J. Should we pay donors to increase the supply of organs for transplantation? Br Med J 2008; 336: 1342-3 (Pubitemid 351914621)
73. Hippen B, Ross LF, Sade RM. Saving lives is more important than abstract moral concerns: financial incentive should be used to increase organ donation. Ann Thorac Surg 2009; 88: 1053-61
74. Arnold R, Bartlett S, Bernat J, et al. Financial incentives for cadaver organ donation: an ethical reappraisal. Transplantation 2002; 73: 1361-7 (Pubitemid 34454294)
75. Rodrigue JR, Cornell DL, Howard RJ. Attitudes toward financial incentives, donor authorisation and presumed consent among next of kin who consented vs refused organ donation. Transplantation 2006; 81: 1249-56 (Pubitemid 43804541)
76. Human bodies in medicine and research. Available from http://nuffieldbioethics.org/human-bodies (accessed June 12, 2011)
77. Lavee J, Ashkenazi T, Gurman G, Steinberg D. A new law for allocation of donor organs in Israel. Lancet 2009; 375: 1131-3
78. Available from http://www.dh.gov.uk/en/Publicationsandstatistics/ Publications/PublicationsPolicyAndGuidance/DH-114800 (accessed September 22, 2011)
79. The ANZICS Statement on Death and Organ Donation, Edition 3.1, 2010. Available from http://www.anzics.com.au/death-andorgan-donation (accessed September 22, 2011)