What are the important factors in health-related quality of life for people with aphasia? A systematic review

Archives of Physical Medicine and Rehabilitation

Volumn 93, Issue 1 SUPPL., 2012, Pages

  Hilari, Katerina ^a   Needle, Justin J ^a   Harrison, Kirsty L ^a  

^a CITY UNIVERSITY   (United Kingdom)

Author keywords

Aphasia; Health status; Health status indicators; Quality of life; Rehabilitation; Stroke

Indexed keywords

APHASIA; EVIDENCE BASED MEDICINE; HEALTH STATUS; HUMAN; PREDICTIVE VALUE; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; REVIEW; STATISTICAL MODEL; STROKE; SYSTEMATIC REVIEW; VALIDITY;

EID: 84855186745     PISSN: 00039993     EISSN: 1532821X     Source Type: Journal    
DOI: 10.1016/j.apmr.2011.05.028     Document Type: Review

References (115)

1. S.T. Engelter, M. Gostynski, S. Papa Epidemiology of aphasia attributable to first ischemic stroke: Incidence, severity, fluency, etiology, and thrombolysis Stroke 37 2006 1379 1384 (Pubitemid 44305713)
2. D.T. Wade Stroke (acute cerebrovascular disease) A. Stevens, J. Raftery, Health care needs assessment 1994 Radcliffe Medical Pr Oxford
3. M. Bullinger, R. Anderson, D. Cella, N.K. Aaronson Developing and evaluating cross cultural instruments: from minimum requirements to optimal models Qual Life Res 2 1993 451 459 (Pubitemid 24035217)
4. R. Berzon, R.D. Hays, S.A. Shumaker International use, application and performance of health-related quality of life instruments Qual Life Res 2 1993 367 368 (Pubitemid 24035212)
5. Intercollegiate Stroke Working Party National clinical guideline for stroke London: Royal College of Physicians 3rd ed. 2008
6. J.M. Lam, W.P. Wodchis The relationship of 60 disease diagnoses and 15 conditions to preference-based health-related quality of life in Ontario hospital-based long-term care residents Med Care 48 2010 380 387
7. K. Hilari The impact of stroke: are people with aphasia different to those without? Disabil Rehabil 33 2011 211 218
8. K.B. Ross, R.T. Wertz Quality of life with and without aphasia Aphasiology 17 2003 355 364 (Pubitemid 36456983)
9. F.J. Carod-Artal, J.A. Egido Quality of life after stroke: the importance of a good recovery Cerebrovasc Dis 27 2009 204 214
10. B. Ahlsio, M. Britton, V. Murray Disablement and quality of life after stroke Stroke 15 1984 886 890 (Pubitemid 14027507)
11. M. Astrom, R. Adolfsson, K. Asplund, T. Astrom Life before and after stroke Living conditions and life satisfaction in relation to a general elderly population Cerebrovasc Dis 2 1992 28 34
12. M. Astrom, K. Asplund, T. Astrom Psychosocial function and life satisfaction after stroke Stroke 23 1992 527 531
13. P.J. Clarke, S.E. Black, E.M. Badley, J.M. Lawrence, J.I. Williams Handicap in stroke survivors Disabil Rehabil 21 1999 116 123 (Pubitemid 29099735)
14. P.W. Duncan, G.P. Samsa, M. Weinberger Health status of individuals with mild stroke Stroke 28 1997 740 745 (Pubitemid 27161456)
15. E.J. Jonkman, A.W. de Weerd, N.L. Vrijens Quality of life after a first ischemic stroke Long-term developments and correlations with changes in neurological deficit, mood and cognitive impairment Acta Neurol Scand 98 1998 169 175 (Pubitemid 28435310)
16. R.B. King Quality of life after stroke Stroke 27 1996 1467 1472 (Pubitemid 26295890)
17. E.B. Lynch, Z. Butt, A. Heinemann A qualitative study of quality of life after stroke: the importance of social relationships J Rehabil Med 40 2008 518 523
18. M.L. Niemi, R. Laaksonen, M. Kotila, O. Waltimo Quality of life 4 years after stroke Stroke 19 1988 1101 1107
19. J.H. Pan, X.Y. Song, S.Y. Lee, T. Kwok Longitudinal analysis of quality of life for stroke survivors using latent curve models Stroke 39 2008 2795 2802
20. M. Viitanen, K.S. Fugl-Meyer, B. Bernspaang, A.R. Fugl-Meyer Life satisfaction in long-term survivors after stroke Scand J Rehabil Med 20 1988 17 24
21. J. Carod-Artal, J.A. Egido, J.L. Gonzalez, E. Varela de Seijas Quality of life among stroke survivors evaluated 1 year after stroke: experience of a stroke unit Stroke 31 2000 2995 3000
22. R.J. de Haan, M. Limburg, J.H. Van der Meulen, H.M. Jacobs, N.K. Aaronson Quality of life after stroke: impact of stroke type and lesion location Stroke 26 1995 402 408
23. M.L. Hackett, J.R. Duncan, C.S. Anderson, J.B. Broad, R. Bonita Health-related quality of life among long-term survivors of stroke: results from the Auckland Stroke Study, 1991-1992 Stroke 31 2000 440 447 (Pubitemid 30078180)
24. J.P. Neau, P. Ingrand, C. Mouille-Brachet Functional recovery and social outcome after cerebral infarction in young adults Cerebrovasc Dis 8 1998 296 302 (Pubitemid 28420797)
25. J.W. Sturm, G.A. Donnan, H.M. Dewey Quality of life after stroke: the North East Melbourne Stroke Incidence study (NEMESIS) Stroke 35 2004 2340 2345 (Pubitemid 39311260)
26. F. Angeleri, V.A. Angeleri, N. Foschi, S. Giaquinto, G. Nolfe The influence of depression, social activity, and family stress on functional outcome after stroke Stroke 24 1993 1478 1483 (Pubitemid 23285199)
27. V.I. Kwa, M. Limburg, R.J. de Haan The role of cognitive impairment in the quality of life after ischaemic stroke J Neurol 243 1996 599 604 (Pubitemid 26265827)
28. M.D. Patel, C. McKevitt, E. Lawrence, A.G. Rudd, C.D. Wolfe Clinical determinants of long-term quality of life after stroke Age Ageing 36 2007 316 322 (Pubitemid 47072326)
29. P.R. Wilkinson, C.D. Wolfe, F.G. Warburton Longer term quality of life and outcome in stroke patients: is the Barthel Index alone an adequate measure of outcome? Qual Health Care 6 1997 125 130 (Pubitemid 127542038)
30. M.O. Owolabi Determinants of health-related quality of life in Nigerian stroke survivors Trans R Soc Trop Med Hyg 102 2008 1219 1225
31. M.O. Owolabi What are the consistent predictors of generic and specific post-stroke health-related quality of life? Cerebrovasc Dis 29 2010 105 110
32. C. Code, D.J. Mller, M. Herrmann Perceptions of psychosocial adjustment to aphasia: applications of the Code-Mller Protocols Semin Speech Lang 20 1999 51 63
33. C. Code, D.J. Mller, A. Hogan, M. Herrmann Perceptions of psychosocial adjustment to acquired communication disorders: applications of the Code-Mller Protocols Int J Lang Commun Disord 34 1999 193 207 (Pubitemid 29138993)
34. G. Hemsley, C. Code Interactions between recovery in aphasia, emotional and psychosocial factors in subjects with aphasia, their significant others and speech pathologists Disabil Rehabil 18 1996 567 584 (Pubitemid 26421532)
35. B.B. Shadden Aphasia as identity theft Theory and practice Aphasiology 19 2005 211 223 (Pubitemid 40716101)
36. C. Code The quantity of life for people with chronic aphasia Neuropsychol Rehabil 13 2003 379 390 (Pubitemid 36775601)
37. R.J.P. Dalemans, L.P. De Witte, D.T. Wade, W.J.A. Van den Heuvel A description of social participation in working-age persons with aphasia: a review of the literature Aphasiology 22 2008 1071 1091
38. B. Davidson, T. Howe, L. Worrall, L. Hickson, L. Togher Social participation for older people with aphasia: the impact of communication disability on friendships Top Stroke Rehabil 15 2008 325 340
39. S. Parr Living with severe aphasia: tracking social exclusion Aphasiology 21 2007 98 123 (Pubitemid 44762602)
40. B. Hoen, M. Thelander, J. Worsley Improvement in psychological well-being of people with aphasia and their families: evaluation of a community-based programme Aphasiology 11 1997 681 691 (Pubitemid 27320999)
41. J.G. Lyon, D. Cariski, L. Keisler Communication partners: enhancing participation in life and communication for adults with aphasia in natural settings Aphasiology 11 1997 693 708 (Pubitemid 27321000)
42. M.J. Thelander, B. Hoen, J. Worsley Report on the evaluation of effectiveness of a community program for aphasic adults Stouffville: York-Durham Aphasia Centre 1994
43. J.J. Hinckley Investigating the predictors of lifestyle satisfaction among younger adults with chronic aphasia Aphasiology 12 1998 509 518 (Pubitemid 28276656)
44. T. Salonen Report of a questionnaire survey of poststroke patients with aphasia and their families Top Stroke Rehabil 2 1995 72 75
45. N. Simmons-Mackie, A. Raymer, E. Armstrong, A. Holland, L.R. Cherney Communication partner training in aphasia: a systematic review Arch Phys Med Rehabil 91 2010 1814 1837
46. Centre for Reviews and Dissemination Systematic reviews: CRD's guidance for undertaking reviews in health care 2009 University of York York
47. D. Moher, A. Liberati, J. Tetzlaff, D.G. Altman The PRISMA Group Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement PLoS Med 6 2009 e1000097
48. Evidence for Policy and Practice Information and Co-ordinating Centre EPPI-reviewer: software for research synthesis 2010 Institute of Education London
49. C. Counsell, M. Dennis Systematic review of prognostic models in patients with acute stroke Cerebrovasc Dis 12 2001 159 170 (Pubitemid 32973945)
50. Public Health Resource Unit 10 questions to help you make sense of qualitative research Oxford: Public Health Resource Unit 2006
51. J. Popay, H. Roberts, A. Sowden Developing guidance on the conduct of narrative synthesis in systematic reviews J Epidemiol Comm Health 59 Suppl 1 2005 A7
52. C.L. Bays Quality of life of stroke survivors: a research synthesis J Neurosci Nurs 33 2001 310 316
53. C.D. Callahan, P.L. Young, M.T. Barisa Using the SF-36 for longitudinal outcomes measurement in rehabilitation Rehabil Psychol 50 2005 65 70 (Pubitemid 40344142)
54. L. Ferrucci, S. Baldasseroni, S. Bandinelli Disease severity and health-related quality of life across different chronic conditions J Am Geriatr Soc 48 2000 1490 1495
55. A. Hartman-Maeir, N. Soroker, H. Ring, N. Avni, N. Katz Activities, participation and satisfaction one-year post stroke Disabil Rehabil 29 2007 559 566 (Pubitemid 46534746)
56. N.F. Horgan, M. O'Regan, C.J. Cunningham, A.M. Finn Recovery after stroke: a 1-year profile Disabil Rehabil 31 2009 831 839
57. D.R. Jeffery, D.C. Good Rehabilitation of the stroke patient Curr Opin Neurol 8 1995 62 68
58. M. Jiménez Muro, J. de Pedro-Cuesta, J. Almazán, L. von Koch, L. Widén Holmqvist Outcome and use of health care in patients with moderate impairment and stroke in south Madrid and Southwest Stockholm J Stroke Cerebrovasc Dis 14 2005 167 173
59. J. Kim, A.W. Heinemann, R.K. Bode, J. Sliwa, R.B. King Spirituality, quality of life, and functional recovery after medical rehabilitation Rehabil Psychol 45 2000 365 385
60. M.E. Segal, R.R. Schall Life satisfaction and caregiving stress for individuals with stroke and their primary caregivers Rehabil Psychol 41 1996 303 320 (Pubitemid 27203841)
61. T.W. Teasdale, A.W. Engberg Psychosocial consequences of stroke: a long-term population-based follow-up Brain Inj 19 2005 1049 1058 (Pubitemid 41701027)
62. B. Benejam, J. Sahuquillo, M.A. Poca Quality of life and neurobehavioral changes in survivors of malignant middle cerebral artery infarction J Neurol 256 2009 1126 1133
63. F. Jones, A. Mandy, C. Partridge Reasons for recovery after stroke: a perspective based on personal experience Disabil Rehabil 30 2008 507 516 (Pubitemid 351455012)
64. H. Naess, L. Hammersvik, G.O. Skeie Aphasia among young patients with ischemic stroke on long-term follow-up J Stroke Cerebrovasc Dis 18 2009 247 250
65. M.T. Sarno, M. Silverman, E. Levita Psychosocial factors and recovery in geriatric patients with severe aphasia J Am Geriatr Soc 18 1970 405 409
66. D. Lafond, R. DeGiovani, Y. Joanette, J. Ponzio, M.T. Sarno Living with aphasia: psychosocial issues 1993 Singular Publishing Group San Diego
67. L.L. LaPointe Quality of life with aphasia Semin Speech Lang 20 1999 5 17
68. J.E. Sarno, G. Gainotti The psychological and social sequelae of aphasia M.T. Sarno, Acquired aphasia 3rd ed. 1998 Academic Pr San Diego 569 594
69. L. Worrall, K. Brown, M. Cruice The evidence for a life-coaching approach to aphasia Aphasiology 24 2010 497 514
70. A.L. Holland Living successfully with aphasia: three variations on the theme Top Stroke Rehabil 13 2006 44 51
71. B.O. Hutter, J.M. Gilsbach, I. Kreitschmann Quality of life and cognitive deficits after subarachnoid haemorrhage Br J Neurosurg 9 1995 465 475
72. A. Bose, T. McHugh, H. Schollenberger, L. Buchanan Measuring quality of life in aphasia: results from two scales Aphasiology 23 2009 797 808
73. M. Cruice, L. Worrall, L. Hickson, R. Murison Finding a focus for quality of life with aphasia: social and emotional health, and psychological well-being Aphasiology 17 2003 333 353 (Pubitemid 36456982)
74. M. Cruice, R. Hill, L. Worrall, L. Hickson Conceptualising quality of life for older people with aphasia Aphasiology 24 2010 327 347
75. M. Cruice, L. Worrall, L. Hickson Health-related quality of life in people with aphasia: implications for fluency disorders quality of life research J Fluency Disord 35 2010 173 189
76. Franzén-Dahlin, M. Rydell Karlsson, M. Mejhert, A.C. Laska Quality of life in chronic disease: a comparison between patients with heart failure and patients with aphasia after stroke J Clin Nurs 19 2010 1855 1860
77. K. Hilari, R.D. Wiggins, P. Roy, S. Byng, S.C. Smith Predictors of health-related quality of life (HRQL) in people with chronic aphasia Aphasiology 17 2003 365 382
78. K. Hilari, S. Northcott Social support in people with chronic aphasia Aphasiology 20 2006 17 36 (Pubitemid 43285133)
79. K. Hilari, S. Byng Health-related quality of life in people with severe aphasia Int J Lang Commun Disord 44 2009 193 205
80. J.J. Hinckley Finding messages in bottles: living successfully with stroke and aphasia Top Stroke Rehabil 13 2006 25 36
81. E. Manders, E. Dammekens, I. Leemans, K. Michiels Evaluation of quality of life in people with aphasia using a Dutch version of the SAQOL-39 Disabil Rehabil 32 2010 173 182
82. M. Nagayoshi, N. Iwata, K. Hachisuka Factors associated with life satisfaction in Japanese stroke outpatients Disabil Rehabil 30 2008 222 230 (Pubitemid 351167283)
83. S. Parr, S. Byng, S. Gilpin, C. Ireland Talking about aphasia: living with loss of language after stroke 1997 Open Univ Pr Buckingham
84. K.B. Ross, R.T. Wertz Relationships between language-based disability and quality of life in chronically aphasic adults Aphasiology 16 2002 791 800
85. M.T. Sarno Quality of life in aphasia in the first post-stroke year Aphasiology 11 1997 665 679 (Pubitemid 27320998)
86. M. Cruice, L. Worrall, L. Hickson Perspectives of quality of life by people with aphasia and their family: suggestions for successful living Top Stroke Rehabil 13 2006 14 24
87. S. Parr Psychosocial aspects of aphasia: whose perspectives? Folia Phoniatr Logop 53 2001 266 288 (Pubitemid 32679648)
88. M. Taylor-Sarno Preliminary findings in a study of age, linguistic evolution and quality of life in recovery from aphasia Scand J Rehabil Med Suppl 26 1992 43 59 (Pubitemid 23032921)
89. C. Haacke, A. Althaus, A. Spottke, U. Siebert, T. Back, R. Dodel Long-term outcome after stroke: evaluating health-related quality of life using utility measurements Stroke 37 2006 193 198 (Pubitemid 43732070)
90. A.C. Jönsson, I. Lindgren, B. Hallström, B. Norrving, A. Lindgren Determinants of quality of life in stroke survivors and their informal caregivers Stroke 36 2005 803 808
91. H. Naess, U. Waje-Andreassen, L. Thomassen, H. Nyland, K.M. Myhr Health-related quality of life among young adults with ischemic stroke on long-term follow-up Stroke 37 2006 1232 1236 (Pubitemid 43731868)
92. M.L. Kauhanen, J.T. Korpelainen, P. Hiltunen Aphasia, depression, and nonverbal cognitive impairment in ischaemic stroke Cerebrovasc Dis 10 2000 455 461
93. M.L. Hackett, C. Yapa, V. Parag, C.S. Anderson Frequency of depression after stroke A systematic review of observational studies Stroke 36 2005 1330 1340 (Pubitemid 40798764)
94. P.L. Morris, B. Raphael, R.S. Robinson Clinical depression is associated with impaired recovery from stroke Med J Aust 157 1992 239 242
95. N. Herrman, S.E. Black, J. Lawrence, C. Szekely, J.P. Szalai The Sunnybrook Stroke Study: a prospective study of depressive symptoms and functional outcome Stroke 29 1998 618 624 (Pubitemid 28145788)
96. H. Jia, T.M. Damush, H. Qin The impact of poststroke depression on healthcare use by veterans with acute stroke Stroke 37 2006 2796 2801 (Pubitemid 44922542)
97. A. House, P. Knapp, J. Bamford, A. Vail Mortality at 12 and 24 months after stroke may be associated with depressive symptoms at 1 month Stroke 32 2001 696 701
98. P.H. Mitchell, R.C. Veith, K.J. Becker Brief psychosocial-behavioral intervention with antidepressant reduces poststroke depression significantly more than usual care with antidepressant: living well with stroke: randomized, controlled trial Stroke 40 2009 3073 3078
99. D.S. Nichols-Larsen, P.C. Clark, A. Zeringue, A. Greenspan, S. Blanton Factors influencing stroke survivors' quality of life during subacute recovery Stroke 36 2005 1480 1484 (Pubitemid 40967516)
100. M. Cruice, L. Worrall, L. Hickson Quantifying aphasic people's social lives in the context of non-aphasic peers Aphasiology 20 2006 1210 1225 (Pubitemid 44473414)
101. R.J. Dalemans, L. de Witte, D. Wade, W. van den Heuvel Social participation through the eyes of people with aphasia Int J Lang Commun Disord 45 2010 537 550
102. K. Hilari, S. Northcott, P. Roy Psychological distress after stroke and aphasia: the first six months Clin Rehabil 24 2010 181 190
103. S. Northcott, K. Hilari Why do people lose their friends after a stroke? Int J Lang Commun Disord 46 2011 524 534
104. E. Townend, M. Brady, K. McLaughlan A systematic evaluation of the adaptation of depression diagnostic methods for stroke survivors who have aphasia Stroke 38 2007 3076 3083 (Pubitemid 350035707)
105. L. Worrall, T. Rose, T. Howe Access to written information for people with aphasia Aphasiology 19 2005 923 929 (Pubitemid 43084494)
106. R.J. Elman, E. Bernstein-Ellis Psychosocial aspects of group communication treatment: preliminary findings Semin Speech Lang 20 1999 65 72
107. R. Elman The importance of aphasia group treatment for rebuilding community and health Top Lang Disord 27 2007 300 308
108. A. Ross, I. Winslow, P. Marchant, S. Brumfitt Evaluation of communication, life participation and psychological well-being in chronic aphasia: the influence of group intervention Aphasiology 20 2006 427 448
109. C.P. Vickers Social networks after the onset of aphasia: the impact of aphasia group attendance Aphasiology 24 2010 902 913
110. W. Best, A. Greenwood, J. Grassly, J. Hickin Bridging the gap: can impairment-based therapy for anomia have an impact at the psycho-social level? Int J Lang Commun Disord 43 2008 390 407 (Pubitemid 351918628)
111. R.B. Fink, M.F. Schwartz MossRehab aphasia center: a collaborative model for long-term rehabilitation Top Stroke Rehabil 7 2000 32 43 (Pubitemid 30644158)
112. L. Legg, D. Stott, G. Ellis, C. Sellars Volunteer stroke service (VSS) groups for patients with communication difficulties after stroke: a qualitative analysis of the value of groups to their users Clin Rehabil 21 2007 794 804 (Pubitemid 47534826)
113. K. Mitchell, S. Parr, C. Pound Access to life: investment, innovation, impact Enhancing services for people with stroke and aphasia across the UK London: Connect: The Communication Disability Network 2009
114. A. van der Gaag, L. Smith, S. Davis Therapy and support services for people with long-term stroke and aphasia and their relatives: a six-month follow-up study Clin Rehabil 19 2005 372 380 (Pubitemid 40716414)
115. EPPI-Centre at the Social Science Research Unit at the Institute of Education, University of London, UK. Available at: http://eppi.ioe.ac.uk.