Treat-to-target from the patient perspective;Treat-to-Target aus Sicht der Betroffenen

Zeitschrift fur Rheumatologie

Volumn 70, Issue 8, 2011, Pages 678-684

  Gromnica Ihle, E ^a   Rink, M ^a  

^a Deutsche Rheuma Liga   (Germany)

Author keywords

Low disease activity; Patient reported outcomes; Remission; Rheumatoid arthritis; Shared decision making

Indexed keywords

ARTICLE; DISEASE ACTIVITY; HEALTH CARE PLANNING; HEALTH PROGRAM; MEDICAL PRACTICE; MEDICAL PROFESSION; OUTCOME ASSESSMENT; OUTCOME VARIABLE; PATIENT INFORMATION; REMISSION; RHEUMATOID ARTHRITIS; SELF CARE; COOPERATION; DISABILITY; GERMANY; HEALTH SERVICE; HUMAN; INTERDISCIPLINARY COMMUNICATION; PATIENT CARE; PATIENT EDUCATION; PATIENT SATISFACTION; REVIEW; TREATMENT OUTCOME;

ANTIRHEUMATIC AGENT;

ANTIRHEUMATIC AGENTS; ARTHRITIS, RHEUMATOID; COOPERATIVE BEHAVIOR; DISABILITY EVALUATION; GERMANY; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERDISCIPLINARY COMMUNICATION; PATIENT CARE TEAM; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; REMISSION INDUCTION; SELF CARE; TREATMENT OUTCOME;

EID: 84055191578     PISSN: 03401855     EISSN: 14351250     Source Type: Journal    
DOI: 10.1007/s00393-011-0773-y     Document Type: Article

References (30)

1. Ahlmén M, Nordenskiöld U, Archenholtz B et al (2005) Rheumatology outcomes: the patient's per-spective. A multicentre focus group interview stu-dy of Swedish rheumatoid arthritis patients. Rheu-matology (Oxford) 44:105-110
2. Barrett EM, Scott DGI, Wiles NJ, Symmons DPM (2000) The impact of rheumatoid arthritis on em-ployment status in the early years of disease: a UK community-based study. Rheumatology (Oxford) 39:1403-1409 (Pubitemid 32045868)
3. Barton JL, Imboden J, Graf J et al (2010) Patient-physician discordance in assessments of global di-sease severity in rheumatoid arthritis. Arthritis Care Res (Hoboken) 62:857-864
4. Carr A, Hewlett S, Hughes R et al (2003) Rheu-matology outcomes: the patient's perspective. J Rheumatol 30:880-883
5. Wit MPT de, Smolen JS, Gossec L, Heijde DMFM van der (2011) Treating rheumatoid arthritis to tar-get: the patient version of the international recom-mendations. Ann Rheum Dis 70:891-895
6. Dougados M (2005) It's good to feel better but it's better to feel good. J Rheumatol 32:1-2 (Pubitemid 40092580)
7. Food and Drug Administration (2009) Guidance for Industry. Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. http://www.fda.gov/downloads/ Drugs/Guidance Compliance Regulatory Informati-on/Guidances/UCM193282.pdf
8. Gossec L, Dougados M, Rincheval N et al (2009) Elaboration of the preliminary Rheumatoid Arthri-tis Impact of Disease (RAID) score: a EULAR initiati-ve. Ann Rheum Dis 68:1680-1685
9. Gossec L, Paternotte S, Aanerud GJ et al (2011) Finalisation and validation of the rheumatoid arthri-tis impact of disease score, a patient-derived com-posite measure of impact of rheumatoid arthritis: a EULAR initiative. Ann Rheum Dis 70:935-942
10. Härter M, Loh A, Spies C (Hrsg) (2005) Gemeinsam entscheiden-erfolgreich behandeln: Neue We-ge für Ärzte und Patienten im Gesundheitswesen. Deutscher Ärzte-Verlag, Köln
11. Hazes JM, Taylor P, Strand V et al (2010) Physical function improvements and relief from fatigue and pain are associated with increased productivi-ty at work and at home in rheumatoid arthritis pa-tients treated with certolizumab pegol. Rheumatology (Oxford) 49:1900-1910
12. Heiberg T, Austad C, Kvien TK, Uhlig T (2011) Performance of the Rheumatoid Arthritis Impact of Disease (RAID) score in relation to other patient-reported outcomes in a register of patients with rheumatoid arthritis. Ann Rheum Dis 70:1080-1082
13. Hewlett S, Carr M, Ryan S et al (2005) Outcomes generated by patients with rheumatoid arthri-tis: how important are they? Musculoskeletal Care 3:131-142
14. Hewlett S, Sanderson T, May J et al (2011) I'm hur-ting, I want to kill myself': rheumatoid arthritis flare is more than a high joint count-an interna-tional patient perspective on flare where medi-cal help is sought. Rheumatology (Oxford). [Epub ahead of print]
15. Kalyoncu U, Dougados M, Daurès J-P, Gossec L (2009) Reporting of patient-reported outcomes in recent trials in rheumatoid arthritis: a systematic li-terature review. Ann Rheum Dis 68:183-190
16. Kavanaugh A, Lee SJ, Weng HH et al (2010) Patient-derived joint counts are a potential alternative for determining Disease Activity Score. J Rheumatol 37:1035-1041
17. Keystone EC (2010) Are physician-derived joint counts obsolete? J Rheumatol 37:883-884
18. Kirwan JR, Newman S, Tugwell PS et al (2009) Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9. J Rheumatol 36:2071-2076
19. Krauth C, Rieger J, Mau W et al (2003) Gesund-heitsökonomische Analyse der langfristigen Aus-wirkungen eines Schulungsprogramms für Patienten mit chronischer Polyarthritis. In: Petermann F (Hrsg) Prädiktion, Verfahrensoptimierung und Kosten in der medizinischen Rehabilitation. Roderer, Regensburg, S 293-307
20. Kvamme MK, Kristiansen IS, Lie E, Kvien TK (2010) Identification of cutpoints for acceptable health status and important improvement in patient-re-ported outcomes, in rheumatoid arthritis, psoriatic arthritis, and ankylosing spondylitis. J Rheumatol 37:26-31
21. Martin RW, Head AJ, René J et al (2008) Patient de-cision-making related to antirheumatic drugs in rheumatoid arthritis: the importance of patient trust of physician. J Rheumatol 35:618-624 (Pubitemid 351500056)
22. Maurischat C, Ehlebracht-König I, Kühn A, Bullin-ger M (2005) Strukturelle Validität des Short Form 36 (SF-36) bei Patienten mit entzündlich-rheuma-tischen Erkrankungen. Z Rheumatol 64:255-264 (Pubitemid 40896622)
23. Mc Pherson KM, Brander P, Taylor WJ, Mc Naugh-ton HK (2001) Living with arthritis-what is important? Disabil Rehabil 23:706-721
24. Pincus T, Yazici Y, Bergman MJ (2009) RAPID3, an index to assess and monitor patients with rheuma-toid arthritis, without formal joint counts: similar results to DAS28 and CDAI in clinical trials and cli-nical care. Rheum Dis Clin North Am 35:773-778
25. Schett G (o J) persönliche Mitteilung Smolen JS, Aletaha D, Bijlsma JWJ et al (2010) Tre-ating rheumatoid arthritis to target: recommenda-tions of an international task force. Ann Rheum Dis 69:631-637
26. Sokka T, Häkkinen A, Krishnan E, Hannonen P (2004) Similar prediction of mortality by the health assessment questionnaire in patients with rheu-matoid arthritis and the general population. Ann Rheum Dis 63:494-497 (Pubitemid 38530191)
27. Stucki G, Cieza A, Geyh S et al (2004) ICF Core Sets for rheumatoid arthritis. J Rehabil Med Suppl 44:87-93 (Pubitemid 39307116)
28. Ten Klooster PM, Veehof MM, Taal E et al (2007) Changes in priorities for improvement in patients with rheumatoid arthritis during 1 year of anti-tu-mour necrosis factor treatment. Ann Rheum Dis 66:1485-1490 (Pubitemid 350032657)
29. Tuyl LHD van, Plass AMC, Lems WF et al (2008) Dis-cordant perspectives of rheumatologists and Patients on COBRA combination therapy in rheumato-id arthritis. Rheumatology (Oxford) 47:1571-1576
30. Wolfe F, Michaud K (2007) Resistance of rheuma-toid arthritis patients to changing therapy: dis-cordance between disease activity and patients' treatment choices. Arthritis Rheum 56:2135-2142