Beyond value? Measuring the costs and benefits of public participation

Journal of Integrated Care

Volumn 19, Issue 6, 2011, Pages 45-57

  Ansari, Walid El ^a   Andersson, Edward ^b  

^a UNIVERSITY OF GLOUCESTERSHIRE   (United Kingdom)

^b INVOLVE   (United Kingdom)

Author keywords

Benefit cost ratio; Community engagement; Economic evaluation; Involvement costs benefits; Public patient participation; Quality improvement

Indexed keywords

EID: 84055190850     PISSN: 14769018     EISSN: None     Source Type: Journal    
DOI: 10.1108/14769011111191467     Document Type: Article

References (70)

1. Baiocchi, G. (2001), ''Participation, activism and politics: the Porto Alegre experiment and deliberative democratic theory'', Politics & Society, Vol. 29 No. 1, pp. 43-72.
2. Bibeau, D.L., Howell, K.A., Rife, J.C. and Taylor, M.L. (1996), ''The role of a community coalition in the development of health services for the poor and uninsured'', International Journal of Health Services, Vol. 26 No. 1, pp. 93-210.
3. Blau, P.M. (1967), Exchange and Powerin Social Life, Wiley, New York, NY (second printing).
4. Burton, P., Goodland, R. and Croft, J. (2006), ''Howwe knowwhatworks?Contextand complexity in the evaluation of community involvement'', Evaluation, Vol. 12 No. 3, pp. 294-312. (Pubitemid 44704272)
5. Burton, P., Goodland, R., Croft, J., Abbott, J., Hastings, A., Macdonald, G. and Slater, T. (2004), ''What works in community involvement in area-based initiatives? A systematic review of the literature'', HO Report No. 53/04, Home Office, London.
6. Byford, S., Mc Daid, D. and Sefton, T. (2003), Because It's Worth It: A Practical Guide to Conducting Economic Evaluations in the Social Welfare Field, Joseph Rowntree Foundation, York.
7. Carley, M. (2005), ''Summary'', in Bound, K., Carley, M., Harrison, J., Skidmore, P. and Winckler, V. (Eds), Mapping Governance at the Local Level, Joseph Rowntree Foundation, York.
8. Carr-Hill, R. and Street, A. (2008), ''Economic analysis of cost-effectiveness of community engagement to improve health'', CHE Research Paper No. 33, Centre for Health Economics, Universityof York, York.
9. Chinman, M.J.,Anderson, C.M., Imm, PS.,Wandersman, A. and Goodman, R.M. (1996), ''Theperception of costs and benefits of high active versus low active groups in community coalitions atdifferent stages in coalition development'', Journal of Community Psychology, Vol. 24 No. 3, pp. 263-74.
10. Coleman, A., Checkland, K. and Harrison, S. (2009), ''Still puzzling: patient and public involvement in commissioning'', Journal of Integrated Care, Vol. 17 No. 6, pp. 23-30.
11. Coleman, A., Checkland, K., Mc Dermott, I. and Harrison, S. (2011), ''Patient and public involvement in the restructured NHS'', Journal of Integrated Care, Vol. 19 No. 4, pp. 30-6.
12. Countryside Agency (2004), ''Newlands community involvement research'', Final Report, Countryside Agency, London.
13. Cushing, A. and Metcalfe, R. (2007), ''Optimizing medicines management: from compliance to concordance'', Therapeuticsand Clinical Risk Management, Vol. 3 No. 6, pp. 1047-58.
14. Dawnay E. and Shah, H. (2005), Behavioural Economics: Seven Principles for Policy-makers, New Economics Foundation, London.
15. Deegan, P.E. and Drake, R.E. (2006), ''Shared decision making and medication management in the recovery process'', Psychiatric Services, Vol. 57 No. 11, pp. 1636-9. (Pubitemid 44807044)
16. Department of Communities and Local Government (2011), ''Building the big society'', available at: www.communities.gov.uk/communities/bigsociety/
17. Department of Health (2001a), The Expert Patient: A New Approach to Chronic Disease Management for the 21st Century Department of Health, London.
18. Department of Health (2001b), The Expert Patients Programme, Department of Health, London.
19. Department of Health (2002), Learning from Bristol: The Department of Health Response to the Reportof the Public Inquiry into Children's Heart Surgery at the Bristol Royal Infirmary 1984-1995, Department of Health, London.
20. Department of Health (2004), Reconfiguring the Department of Health's Arm's Length Bodies, Department of Health, London.
21. Department of Health (2006), Your Health, Your Care, Your Say - Research Report, Department of Health, London, available at: www.dh.gov.uk/en/ Publicationsandstatistics/Publications/ Publications Policy And Guidance/DH-4127357
22. Department of Health (2009), The Engagement Cycle: A New Way of Thinking about Patient and Public Engagement in World Class Commissioning, Department of Health, London.
23. Doherty J. and Price, M. (1998), ''The cost implications of participatory research: experience of a health services review in a rural region in South Africa'', South African Medical Journal, Vol. 88, Suppl. 3, pp. 390-3. (Pubitemid 128774570)
24. Eccles, M. and Mason, J. (2001), ''How to develop cost-conscious guidelines'', Health Technology Assessment, Vol. 5 No. 16, pp. 1-69.
25. Edwards, A., Elwyn, G., Hood, K., Atwell, C., Robling, M., Houston, H., Kinnersley P. and Russell, I. (2004), ''Patient-based outcome results from a cluster randomized trial of shared decision making skil developmentand useof riskcommunication aids in general practice'', Family Practice, Vol. 21 No. 4, pp. 347-54. (Pubitemid 39172054)
26. El Ansari, W. (2003), ''Educational partnerships for public health: do stakeholders perceive similar outcomes?'', Journal of Public Health Managementand Practice, Vol. 9 No. 2, pp. 136-56.
27. El Ansari, W. (2011), ''When meanings blur, do differences matter? Initiatives for improving the quality and integration of care: conceptual matrix or measurement maze?'', Journal of Integrated Care, Vol. 19 No. 3, pp. 5-22.
28. El Ansari, W. and Phillips, C.J. (2001a), ''Interprofessional collaboration: a stakeholder approach to evaluationofvoluntaryparticipationincommunitypartnerships'', Journal of Inter professional Care,Vol. 15 No. 4, pp. 351-68. (Pubitemid 33061679)
29. El Ansari, W. and Phillips, C.J. (2001b), ''Partnerships, community participation and intersectoral collaboration in South Africa'', Journal of Inter professional Care, Vol. 15 No. 2, pp. 119-32. (Pubitemid 32451894)
30. El Ansari, W. and Phillips, C.J. (2004), ''The costs and benefits of participants in community partnerships: a paradox?'', Health Promotion Practice, Vol. 5 No. 1, pp. 35-48.
31. El Ansari, W., Phillips, C.J. and Hammick, M. (2001), ''Collaboration and partnerships: developing the evidence base'', Health & Social Care in the Community, Vol. 9 No. 4, pp. 215-27. (Pubitemid 33696786)
32. Expert Patients Programme (2007), ''The evidence base'', available at: www.dh.gov.uk/en/ Aboutus/Ministersand Department Leaders/Chief Medical Officer/Progress On Policy/Progress Browsable Document/DH-5380885
33. Frank, R., Gilovich, T. and Regan, D. (1993), ''Does study in geconomics in hibit cooperation?'', Journal of Economic Perspectives, Vol. 7 No. 2, pp. 159-71.
34. Frey, B. and Goette, L. (1999), ''Does pay motivate volunteers?'', Working Paper No. 7, University of Zurich, Zürich.
35. Frey, B. and Jegeni, R. (2000), ''Motivation crowding theory: a survey of empirical evidence'', Working Paper No. 26, University of Zurich, Zürich.
36. Gardner, S. (2004), ''An evaluation of the effectiveness of stakeholder dialogue in environmental decision-making'', PhD thesis, Department of Geography, University College London, London.
37. Gillespie, R., Florin, D. and Gillam, S. (2004), ''How is patient-centred care understood by the clinical, managerial and lay stakeholders responsible for promoting this agenda?'', Health Expectations, Vol. 7 No. 4, pp. 355-7.
38. Homans, G.C. (1958), ''Social behavior asexchange'', American Journal of Sociology, Vol.63, pp.597-606.
39. House, E. (2000), ''The limits of cost benefit evaluation'', Evaluation, Vol. 6 No. 1, pp. 79-86.
40. House of Commons Debate (2005), ''Written answers for 20 Oct 2005'', Column 1187W, Hansard Society, London.
41. INVOLVE (2005a), People and Participation: How to Put Citizens at the Heart of Decision Making, INVOLVE, London.
42. INVOLVE (2005b), The True Costs of Public Participation: Full Report, INVOLVE, London.
43. INVOLVE (2007), ''INVOLVE's core purpose'', available at: www.involve.org.uk/index.cfm? fuseaction=main.view Section&intsectionid \- 368
44. National Institutefor Health Research Public Health Research Programme (NIHR) (2010), ''Community engagement approaches to improve health and reduce health inequalities'', available at: www.phr.ac. uk/fundingopportunities/pdfs/ Community-engagement-comm-brief-final-version.pdf
45. National Primary Care Research and Development Centre (2004), National Evaluation of Expert Patients Programme: Assessing the Process of Embedding EPP in the NHS: Preliminary Survey of PCT Pilot Sites, National Primary Care Research and Development Centre, Manchester.
46. Naylor, P.J., Wharf-Higgins, J., Blair, L., Green, L. and O'Connor, B. (2002), ''Evaluating the participatory process in a community-based heart health project'', Social Science & Medicine, Vol. 55 No. 7, pp. 1173-87.
47. Nicholl, J.P., Coleman, P. and Brazier, J.E. (1994), ''Health and healthcare costs and benefits of exercise'', Pharmacoeconomics, Vol. 5 No. 2, pp. 109-22.
48. Norton, S., Wandersman, A. and Goldman, C. (1993), ''Perceived costs and benefits of membership in a self-help group: comparisons of members and nonmembers of the alliance for the mentally ill'', Community Mental Health Journal, Vol. 29 No. 2, pp. 143-60. (Pubitemid 23139572)
49. Office of the Deputy Prime Minister (UK) (ODPM) (2005), Improving Delivery of Mainstream Services in Deprived Areas - The Role of Community Involvement, Office of the Deputy Prime Minister, London.
50. Parris, M. ''Don't ask my opinion; don't consult, engage or include; just lead: we should not tip bucket-loads of participation over every group and question'', The Times, 26 February
51. Pearce, D. (1998), ''Cost-benefit analysis and environmental policy'', Oxford Review of Economic Policy, Vol. 14, pp. 84-100. (Pubitemid 29198881)
52. Plumb, M., Price, W. and Kavanaugh-Lynch, M.H. (2004), ''Funding community-based participatory research: lessons learned'', Journal of Inter professional Care, Vol. 18 No. 4, pp. 428-39. (Pubitemid 40100614)
53. Pollak, R.A. (1998), ''Notes on how economists think'', Working Paper No. 3, Joint Center for Poverty Research, Chicago, IL.
54. Potts, M., Prata, N., Walsh, J. and Grossman, A. (2006), ''Parachute approach to evidence based medicine'', British Medical Journal, Vol. 333, pp. 701-3. (Pubitemid 44521019)
55. Prestby J.E., Wandersman, A., Florin, P.R., Rich, R.C. and Chavis, D.M. (1990), ''Benefits, costs, incentive management and participation in voluntary organisations: a means to understanding and promoting empowerment'', American Journal of Community Psychology Vol. 18 No. 1, pp. 117-49.
56. Rask, K.J., Wells, K.J., Kohler, S.A., Rust, C.T. and Cangialose, C.B. (2000), ''The cost to providers of participating in an immunization registry'', American Journal of Preventive Medicine, Vol. 19 No. 2, pp. 99-103. (Pubitemid 30460057)
57. Rawls, J. (1971), A Theoryof Justice, Harvard University Press, Cambridge, MA.
58. Redelmeier, D., Rozin, P. and Kahneman, D. (1993), ''Understanding patients' decisions: cognitiveand emotional perspectives'', Journal of American Medical Association, Vol. 270, pp. 72-6. (Pubitemid 23202655)
59. Roberts-De Gennaro, M. (1986), ''Factors contributing to coalition maintenance'', Journal of Sociology and Social Welfare, Vol. 13, pp. 248-64.
60. Rowe, R. and Shepherd, M. (2002), ''Public participation in the new NHS: no closer to citizen control?'', Social Policy&Administration, Vol. 36 No. 3, pp. 275-90 (Pubitemid 34635595)
61. Rush, B.,Shiell,A.and Hawe, P. (2004), 'Acensus of economice valuations in health promotion'', Health Education Research, Vol. 19, pp. 720-9.
62. Rydin, Y. and Pennington, M. (2000), ''Public participation and local environmental planning: collective action problem and the potential of social capital'', Local Environment, Vol. 5 No. 2, pp. 153-70.
63. Sefton, T., Byford, S., Mc Daid, D., Hills, J. and Knapp, M. (2002), Making the Most of It: Economic Evaluation in the Social Welfare Field, Joseph Rowntree Foundation, York.
64. Sen, A. (1999), ''Democracy as a universal value'', Journal of Democracy Vol. 10 No. 3, pp. 3-17.
65. Smith, K.G., Carroll, S.J. and Ashford, S.J. (1995), ''Intra- and interorganizational cooperation: toward a research agenda'', Academy of Management Review, Vol. 38 No. 1, pp. 7-23.
66. Taverne, D. (2005), The March of Unreason: Science, Democracy and the New Fundamentalism, Oxford University Press, Oxford.
67. Victoria, C., Bryce, J., Fontaine, O. and Monash, R. (2000), ''Reducing deathsfrom diarrheathrough oral rehydration therapy'', Bulletin of the World Health Organization, Vol. 78, pp. 1246-55.
68. Wandersman, A. and Alderman, J. (1993), ''Incentives, costs, and barriers for volunteers: a staff perspective on volunteers in one state'', Review of Public Personnel Administration, Winter, pp. 67-76.
69. Wanless, D. (2002), Securing our Future Health: Taking a Long Term View, HM Treasury, London.
70. The World Bank (1994), The World Bank and Participation, The World Bank Learning Group on Participatory Development, Operations Department, The World Bank, Washington, DC, September.