Meeting the ongoing needs of survivors of rarer cancer

European Journal of Oncology Nursing

Volumn 11, Issue 5, 2007, Pages 434-441

  Griffiths, Jane ^a   Willard, Carole ^a   Burgess, Andrea ^b   Amir, Ziv ^a   Luker, Karen ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

^b CHRISTIE HOSPITAL   (United Kingdom)

Author keywords

Community nursing; Psychosocial needs; Supportive care; Survivors

Indexed keywords

ADAPTIVE BEHAVIOR; AFTERCARE; ARTICLE; ATTITUDE TO HEALTH; COMMUNITY HEALTH NURSING; DISEASE FREE SURVIVAL; FAMILY; FEMALE; HOSPITAL DISCHARGE; HUMAN; MALE; NEEDS ASSESSMENT; NEOPLASM; NURSE; NURSE ATTITUDE; NURSING METHODOLOGY RESEARCH; ONCOLOGY NURSING; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PRIMARY HEALTH CARE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUESTIONNAIRE; RARE DISEASE; SOCIAL SUPPORT; SURVIVOR; UNITED KINGDOM;

ADAPTATION, PSYCHOLOGICAL; AFTERCARE; ATTITUDE TO HEALTH; CONTINUITY OF PATIENT CARE; DISEASE-FREE SURVIVAL; ENGLAND; FAMILY; FEMALE; HUMANS; MALE; NEEDS ASSESSMENT; NEOPLASMS; NURSE CLINICIANS; NURSE'S ROLE; NURSING METHODOLOGY RESEARCH; ONCOLOGIC NURSING; PATIENT DISCHARGE; PRIMARY HEALTH CARE; PUBLIC HEALTH NURSING; QUALITATIVE RESEARCH; QUESTIONNAIRES; RARE DISEASES; SOCIAL SUPPORT; SURVIVORS;

EID: 36749032241     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2007.09.004     Document Type: Article

References (55)

1. Amir M., and Ramati A. Post-traumatic symptoms, emotional distress and quality of life in the long-term survivors of breast cancer: a preliminary research. Journal of Anxiety Disorders 16 (2002) 191-206
2. Aziz N.M.O. Cancer survivorship research: challenge and opportunity. Journal of Nutrition 132 Suppl. (2002) 3494-3503
3. Bloom J.R. Surviving and thriving?. Psycho-oncology 11 (2002) 89-92
4. Booth K., Beaver, Kitchener H., O'Neill J., Farrell K., Beaver H., Kitchener J., and O'Neill Farrell C. Women's experiences of information, psychological distress and worry after treatment for gynaecological cancer. Patient Education and Counseling 56 2 (2005) 225-232
5. Bowman K.F., Deimling G.T., Smerglia V., Sage P., and Kahana B. Appraisal of the cancer experience by long term survivors. Psycho-oncology 12 (2003) 226-238
6. Bower P., and Gilbody S. Stepped care in psychological therapies: access, effectiveness and efficiency. British Journal of Psychiatry 186 (2005) 11-17
7. Breaden K. Cancer and beyond: the question of survivorship. Journal of Advanced Nursing 26 (1997) 978-984
8. Bulsara C., Ward A., and Joske D. Haemotological cancer people: achieving a sense of empowerment by use of strategies to control illness. Journal of Clinical Nursing 13 (2004) 251-258
9. Cancer Research UK (CRUK), 2006. 〈http://www.cancerresearchuk.co.uk/〉 (accessed 18/12/06).
10. Connolly, M., 2007. Conference Paper Presentation at the 10th Congress of the European Association of Palliative Care, Budapest, Hungary.
11. Curtiss C.P., Haylock P.J., and Hawkins R. Improving the care of cancer survivors. American Journal of Nursing 106 1 (2006) 48-52
12. Deimling G.T., Bowman K.F., and Schaefer M.L. Psycho-oncology 11 (2002) 479-494
13. Department of Health (DH), 2000. The NHS Cancer Plan: A Plan for Investment and Reform. London.
14. Department of Health (DH). The Expert Patient: a New Approach to Chronic Disease Management for the 21st Century (2001), Department of Health, London
15. Fontana A., and Frey B. Interviewing: the art of the science. In: Denzin N., and Lincoln Y. (Eds). Handbook of Qualitative Research (1994), Sage, Beverley Hills, CA (Chapter 22)
16. Golant M., Altman T., and Martin C. Managing cancer side effects to improve quality of life. A cancer psychoeducation program. Cancer Nursing 26 1 (2003) 37-44
17. Goodman C., Knight D., Machen I., and Hunt B. Emphasizing terminal care as district nursing work: a helpful strategy in a purchasing environment?. Journal of Advanced Nursing 28 3 (1998) 491-498
18. Griffiths J.M. Holistic district nursing: caring for the terminally ill. British Journal of Community Health Nursing 2 9 (1997) 440-444
19. Griffiths J., Ewing G., Rogers M., Barclay S., Martin A., McCabe J., and Todd C. Supporting cancer patients with palliative care needs: district nurses' role perceptions. Cancer Nursing 30 2 (2007) 156-162
20. Grunfeld E. Cancer survivorship: a challenge for primary care physicians. British Journal of General Practice 55 519 (2005) 741-742
21. Harding R., and Higginson I.J. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliative Medicine 17 1 (2003) 63-74
22. Hassey Dow K. The growing phenomenon of cancer survivorship. Journal of Professional Nursing 7 1 (1991) 54-61
23. Helgeson V.S., and Tomich P.L. Surviving cancer: a comparison of 5 year disease free breast cancer survivors with healthy women. Psycho-oncology 14 (2004) 307-317
24. Janesick V. The dance of qualitative research design. In: Denzin N., and Lincoln Y. (Eds). Handbook of Qualitative Research (1994), Sage, Beverley Hills, CA (Chapter 12)
25. Kullmer U., Stenger K., Milch W., Zygmunt M., Sachsse S., and Münsedt K. Self-concept, body image, and use of unconventional therapies in people with gynaecological malignancies in the state of complete remission and recurrence. European Journal of Obstetrics and Gynaecology and Reproductive Biology 82 (1999) 101-106
26. Lampic C., Wennberg A., Schill J.E., Brodin O., Glimelius B., and Sjoden P.O. Anxiety and cancer-related worry of cancer people at routine follow-up visits. Acta Oncology 33 2 (1994) 119-125
27. Lewis L. Discussion and recommendations: addressing barriers to the management of cancer survivors. American Journal of Nursing 106 Suppl. 3 (2006) 91-95
28. Little M., Paul K., Jordens C.F.C., and Sayers E.-J. Survivorship and discourses of identity. Psycho-oncology 11 (2002) 170-178
29. Lorig K. Partnerships between expert people and physicians. The Lancet 359 (2002) 814-815
30. Luker K.A., Austin L., Caress A., and Hallett C.E. The importance of knowing the patient: community nurses' constructions of quality in providing palliative care. Journal of Advanced Nursing 31 4 (2000) 775-782
31. Lyne M.E., Coyne P.J., and Watson A.C. Pain management issues for cancer survivors. Cancer Practice 10 Suppl. 1 (2002) 27-31
32. Maguire P., Faulkner A., Booth K., Elliott C., and Hillier V. Helping cancer patients to disclose their concerns. European Journal of Cancer 32a (1996) 78-81
33. Maughan K., Heyman B., and Matthews M. In the shadow of risk. How men cope with a partner's gynaecological cancer. International Journal of Nursing Studies 39 (2002) 27-34
34. Mellon S., and Northouse L.L. Family survivorship and quality of life following a cancer diagnosis. Research in Nursing and Health 24 (2001) 446-459
35. Mullan F. Seasons of survival; reflections of a physician with cancer. New England Journal of Medicine 313 4 (1985) 270-273
36. National Institute for Clinical Excellence and Health (NICE). Prophylaxis for People Who have Experienced a Myocardial Infarction (2001), NICE, London
37. National Institute for Clinical Excellence and Health (NICE). Improving Supportive and Palliative Care for Adults with Cancer (2004), NICE, London
38. National Institute for Clinical Excellence and Health (NICE). Management of Chronic Obstructive Pulmonary Disease in Adults in Primary and Secondary Care (2004), NICE, London
39. Parry C. Embracing uncertainty: an exploration of the experiences of childhood survivors. Qualitative Health Research 13 1 (2003) 227-246
40. Persson L., and Hallberg I.R. Lived experience of survivors of leukemia or malignant lymphoma. Cancer Nursing 27 4 (2004) 303-313
41. Richardson A., Sitzia J., Brown V., and Medina J. Assessment Tools in Cancer Care: Principles and Practice (2007), King's College London, London
42. Rogers M.S., and Todd C.J. Information exchange in oncology outpatient clinics:source, valence and uncertainty. Psycho-oncology 11 (2002) 336-345
43. Ronson A., and Body J.-J. Psycho-social rehabilitation of cancer people after curative therapy. Supportive Care in Cancer 10 (2002) 281-291
44. Rosenbaum E., Gautier H., Fobair P., Neri E., Festa B., Hawn M., Andrews A., Hirschberger N., Selim S., and Spiegel D. Cancer supportive care, improving the quality of life for cancer people. A program evaluation report. Supportive Care in Cancer 12 (2004) 293-301
45. Surbone A., and Peccatori F.A. Unmet needs of cancer survivors: supportive care's new challenge. Supportive Care in Cancer 14 (2006) 397-399
46. Thewes B., Butow P., Girgis A., and Pendlebury S. Assessment of unmet needs among survivors of breast cancer. Journal of Psycho-social Oncology 22 1 (2004) 51-73
47. Thomas S., Glynne-Jones R., Chait I., and Marks D.F. Anxiety in long term cancer survivors influences the acceptability of planned discharge from follow up. Psycho-oncology 6 (1997) 190-196
48. van de Poll-Franse L.V., Mols F., Vingerhoets A.J., Voogd A.C., Ruomen R.M., and Coebergh J.W. Increased health care utilization among 10 year breast cancer survivors. Supportive Care in Cancer 14 (2006) 436-443
49. Wells A. The hidden experience of radiotherapy to the head and neck: a qualitative study of people after completion of treatment. Journal of Advanced Nursing 28 4 (2004) 840-848
50. Wenzel L.B., Donnelly J.P., Fowler J.M., Habbal R., Taylor T.H., Aziz N., and Cella D. Resilience, reflection and residual stress in ovarian cancer survivorship: a gynaecological oncology group study. Psycho-oncology 11 (2002) 142-153
51. Wettergren L., Bjorkholm M., Axdorph U., Bowling A., and Languis-Ekolf A. Individual quality of life in long term survivors of Hodgkin's lymphoma-a comparative study. Quality of Life Research 12 (2003) 545-554
52. Willard, C., 2004. Navigating the system: a grounded theory study of specialist cancer nursing. Unpublished Ph.D. Thesis, University of Manchester.
53. Wilson P. A policy analysis of the expert patient in the United Kingdom: self-care as an expression of pastoral power?. Health & Social Care in the Community 9 3 (2001) 134-142
54. Wilson K., Pateman B., Beaver K., and Luker K.A. Patient and carer needs following a cancer related hospital admission: the importance of referral to the district nursing service. Journal of Advanced Nursing 38 3 (2002) 245-253
55. Zebrack B.J., and Chesler M.A. Quality of life in childhood cancer survivors. Psycho-oncology 11 (2002) 132-141