'I have come here to learn how to cope with my illness, not to be cured': A qualitative study of patient expectations prior to a one-week self-management programme

Musculoskeletal Care

Volumn 9, Issue 4, 2011, Pages 200-210

  Hamnes, Bente ^a   Hauge, Mona I ^b   Kjeken, Ingvild ^c   Hagen, Kåre B ^c,d  

^a Hospital for Rheumatic Diseases   (Norway)

^b Norwegian Centre for Violence and Traumatic Stress Studies   (Norway)

^c DIAKONHJEMMET HOSPITAL   (Norway)

^d UNIVERSITY OF OSLO   (Norway)

Author keywords

Expectations; Fibromyalgia; Qualitative study; Rheumatoid arthritis; Self management programme; Thematic analysis

Indexed keywords

ADAPTATION; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; FEMALE; FIBROMYALGIA; HUMAN; MALE; MIDDLE AGED; PATHOPHYSIOLOGY; PATIENT ATTITUDE; PATIENT EDUCATION; PATIENT PREFERENCE; PATIENT SATISFACTION; PERCEPTION; RHEUMATOID ARTHRITIS; SELF CARE;

ADAPTATION, PHYSIOLOGICAL; ADULT; AGED; ARTHRITIS, RHEUMATOID; ATTITUDE TO HEALTH; FEMALE; FIBROMYALGIA; HUMANS; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT EDUCATION AS TOPIC; PATIENT PREFERENCE; PATIENT SATISFACTION; PERCEPTION; SELF CARE;

EID: 82155185250     PISSN: 14782189     EISSN: 15570681     Source Type: Journal    
DOI: 10.1002/msc.212     Document Type: Article

References (51)

1. Afrell M, Biguet G, Rudebeck CE (2007). Living with a body in pain - Between acceptance and denial. Scandinavian Journal of Caring Sciences 21: 291-6.
2. Anderson RM, Funnell MM, Aikens JE, Krein SL, Fitzgerald JT, Nwankwo R, Tannas CL, Tang TS (2009). Evaluating the efficacy of an empowerment-based self-management consultant intervention: Results of a two-year randomized controlled trial. Therapeutic Patient Education 1: 3-11.
3. Arnett FC, Edworthy SM, Bloch DA, McShane DJ, Fries JF, Cooper NS, Healey LA, Kaplan SR, Liang MH, Luthra HS. (1988). The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis and Rheumatism 31: 315-24.
4. Astin JA, Beckner W, Soeken K, Hochberg MC, Berman B (2002). Psychological interventions for rheumatoid arthritis: A meta-analysis of randomized controlled trials. Arthritis and Rheumatism 47: 291-302.
5. Backman CL (2004). Employment and work disability in rheumatoid arthritis. Current Opinion in Rheumatology 16: 148-52.
6. Bandura A (1997). Self-efficacy: The Exercise of Control. New York, NY: W.H. Freeman and Company.
7. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J (2002). Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling 48: 177-87.
8. Barlow JH, Wright CC, Wright S (2003). Development of job-seeking ability in people with arthritis: Evaluation of a pilot program. International journal of rehabilitation research 26: 329-33.
9. Braun V, Clarke V (2006). Using thematic analysis in psychology. Qualitative Research in Psychology 3: 77-101.
10. Buckelew SP, Huyser B, Hewett JE, Parker JC, Johnson JC, Conway R, Kay DR (1996). Self-efficacy predicting outcome among fibromyalgia subjects. Arthritis Care and Research 9: 97-104.
11. Burckhardt CS (2005). Educating patients: self-management approaches. Disability and rehabilitation 27: 703-9.
12. Cockburn J, Pit S (1997). Prescribing behaviour in clinical practice: Patients' expectations and doctors' perceptions of patients' expectations - A questionnaire study. British Medical Journal 315: 520-3.
13. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M (2008). Developing and evaluating complex interventions: The new Medical Research Council guidance. British Medical Journal 337: a1655.
14. Currey SS, Rao JK, Winfield JB, Callahan LF (2003). Performance of a generic health-related quality of life measure in a clinic population with rheumatic disease. Arthritis and Rheumatism 49: 658-64.
15. de Croon EM, Sluiter JK, Nijssen TF, Dijkmans BA, Lankhorst GJ, Frings-Dresen MH (2004). Predictive factors of work disability in rheumatoid arthritis: A systematic literature review. Annals of the Rheumatic Diseases 63: 1362-7.
16. Detaille SI, Haafkens JA, van Dijk FJ (2003). What employees with rheumatoid arthritis, diabetes mellitus and hearing loss need to cope at work. Scandinavian Journal of Work, Environment and Health 29: 134-42.
17. Dissanayake RK, Bertouch JV (2010). Psychosocial interventions as adjunct therapy for patients with rheumatoid arthritis: A systematic review. International Journal of Rheumatic Diseases 13: 324-34.
18. Faller H, Vogel H, Bosch B (2000). [Patient expectations regarding methods and outcomes of their rehabilitation - A controlled study of back pain- and cancer patients]. Rehabilitation (Stuttg) 39: 205-14.
19. Feste C, Anderson RM (1995). Empowerment: from philosophy to practice. Patient Education and Counseling 26: 139-44.
20. Gobelet C, Luthi F, Al-Khodairy AT, Chamberlain MA (2007). Work in inflammatory and degenerative joint diseases. Disabilability and Rehabilitation 29: 1331-9.
21. Henriksson CM, Liedberg GM, Gerdle B (2005). Women with fibromyalgia: Work and rehabilitation. Disabilability and Rehabilitation 27: 685-94.
22. Hoving C, Visser A, Mullen PD, van den Borne B (2010). A history of patient education by health professionals in Europe and North America: From authority to shared decision making education. Patient Education and Counseling 78: 275-81.
23. Iversen MD, Hammond A, Betteridge N (2010). Self-management of rheumatic diseases: State of the art and future perspectives. Annals of the Rheumatic Diseases 69: 955-63.
24. Janzen JA, Silvius J, Jacobs S, Slaughter S, Dalziel W, Drummond N (2006). What is a health expectation? Developing a pragmatic conceptual model from psychological theory. Health Expectations 9: 37-48.
25. Kenten C, Bowling A, Lambert N, Howe A, Rowe G (2010). A study of patient expectations in a Norfolk general practice. Health Expectation 13: 273-84.
26. Kool MB, Middendorp van H, Lumley MA, Schenk Y, Jacobs JW, Bijlsma JW, Geenen R (2010). Lack of understanding in fibromyalgia and rheumatoid arthritis: The Illness Invalidation Inventory (3*I). Annals of the Rheumatic Diseases 69: 1990-5.
27. Kravitz RL (1996). Patients' expectations for medical care: An expanded formulation based on review of the literature. Medical Care Research and Review 53: 3-27.
28. Kravitz RL (2001). Measuring patients' expectations and requests. Annals of Internal Medicine 134: 881-8.
29. Kravitz RL, Callahan EJ, Paterniti D, Antonius D, Dunham M, Lewis CE (1996). Prevalence and sources of patients' unmet expectations for care. Annals of Internal Medicine 125: 730-7.
30. Kvale S, Brinkmann S (2009). Interviews: Learning the Craft of Qualitative Research Interviewing (2nd Edn). Thousand Oaks, CA: Sage Publications, Inc.
31. Lachapelle DL, Lavoie S, Boudreau A (2008). The meaning and process of pain acceptance. Perceptions of women living with arthritis and fibromyalgia. Pain Research and Management 13: 201-10.
32. Lazarus RS (1992). Coping with the stress of illness. WHO Regional Publications. European Series. 44: 11-31.
33. Leavitt F, Katz RS, Golden HE, Glickman PB, Layfer LF (1986). Comparison of pain properties in fibromyalgia patients and rheumatoid arthritis patients. Arthritis and Rheumatism 29: 775-81.
34. Liedberg GM, Henriksson CM (2002). Factors of importance for work disability in women with fibromyalgia: An interview study. Arthritis and Rheumatism 47: 266-74.
35. Niedermann K, Fransen J, Knols R, Uebelhart D (2004). Gap between short- and long-term effects of patient education in rheumatoid arthritis patients: A systematic review. Arthritis and Rheumatism 51: 388-98.
36. Ofluoglu D, Berker N, Guven Z, Canbulat N, Yilmaz IT, Kayhan O (2005). Quality of life in patients with fibromyalgia syndrome and rheumatoid arthritis. Clinical Rheumatology 24: 490-2.
37. Oliver K, Cronan TA, Walen HR, Tomita M (2001). Effects of social support and education on health care costs for patients with fibromyalgia. Journal of Rheumatology 28: 2711-9.
38. Riemsma RP, Taal E, Kirwan JR, Rasker JJ (2004). Systematic review of rheumatoid arthritis patient education. Arthritis and Rheumatism 51: 1045-59.
39. Ritchie J, Lewis J (2003). Qualitative Research Practice: A Guide for Social Science Students and Researchers. Thousand Oaks, California: Sage Publications.
40. Savelkoul M, de Witte L, Post M (2003). Stimulating active coping in patients with rheumatic diseases: A systematic review of controlled group intervention studies. Patient Education and Counseling 50: 133-43.
41. Shearer NB (2009). Health empowerment theory as a guide for practice. Geriatric Nursing 30: 4-10.
42. Stinson JN, Toomey PC, Stevens BJ, Kagan S, Duffy CM, Huber A, Malleson P, McGrath PJ, Yeung RS, Feldman BM (2008). Asking the experts: Exploring the self-management needs of adolescents with arthritis. Arthritis and Rheumatism 59: 65-72.
43. Strombeck B, Ekdahl C, Manthorpe R, Wikstrom I, Jacobsson L (2000). Health-related quality of life in primary Sjogren's syndrome, rheumatoid arthritis and fibromyalgia compared to normal population data using SF-36. Scandinavian Journal of Rheumatology 29: 20-8.
44. Tang TS, Funnell MM, Brown MB, Kurlander JE (2010). Self-management support in "real-world" settings: An empowerment-based intervention. Patient Education and Counseling 79: 178-84.
45. Telford K, Kralik D, Koch T (2006). Acceptance and denial: implications for people adapting to chronic illness: Literature review. Journal of Advanced Nursing 55: 457-64.
46. Thompson AG, Sunol R (1995). Expectations as determinants of patient satisfaction: concepts, theory and evidence. International journal for quality in health care 7: 127-41.
47. van Hartingsveld F, Ostelo RW, Cuijpers P, de Vos R, Riphagen II, de Vet HC (2010). Treatment-related and patient-related expectations of patients with musculoskeletal disorders: A systematic review of published measurement tools. Clinical Journal of Pain 26: 470-88.
48. Walker EA, Keegan D, Gardner G, Sullivan M, Katon WJ, Bernstein D (1997). Psychosocial factors in fibromyalgia compared with rheumatoid arthritis: I. Psychiatric diagnoses and functional disability. Psychosomatic Medicine 59: 565-71.
49. Wang L, Dong J, Gan HB, Wang T (2007). Empowerment of patients in the process of rehabilitation. Peritoneal Dialysis International 27 (Suppl. 2): S32-4.
50. Wolfe F, Michaud K (2004). Severe rheumatoid arthritis [RA), worse outcomes, comorbid illness, and sociodemographic disadvantage characterize ra patients with fibromyalgia. Journal of Rheumatology 31: 695-700.
51. Wolfe F, Smythe HA, Yunus MB, Bennett RM, Bombardier C, Goldenberg DL, Tugwell P, Campbell SM, Abeles M, Clark P, (1990). The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia. Report of the Multicenter Criteria Committee. Arthritis and Rheumatism 33: 160-72.