메뉴 건너뛰기




Volumn 32, Issue 9, 2011, Pages 644-650

Resilience in children diagnosed with a chronic neuromuscular disorder

Author keywords

Duchenne muscular dystrophy; psychosocial impact; resilience; social support

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILD BEHAVIOR; CHRONIC DISEASE; COPING BEHAVIOR; DUCHENNE MUSCULAR DYSTROPHY; FAMILY RELATION; HOSPITALIZATION; HUMAN; INTELLIGENCE; MALE; PARENT; PHYSIOLOGY; PSYCHOLOGICAL ASPECT; RISK; SOCIAL ADAPTATION; SOCIAL SUPPORT; STATISTICAL MODEL;

EID: 80955136711     PISSN: 0196206X     EISSN: None     Source Type: Journal    
DOI: 10.1097/DBP.0b013e318235d614     Document Type: Article
Times cited : (41)

References (41)
  • 1
    • 0026229568 scopus 로고
    • Resilience among children with special health-care needs and among their families
    • Sinnema G. Resilience among children with special health-care needs and among their families. Pediatr Ann. 1991;20:483-486.
    • (1991) Pediatr Ann. , vol.20 , pp. 483-486
    • Sinnema, G.1
  • 2
    • 0026228173 scopus 로고
    • Family resilience to the challenge of a child's disability
    • Patterson JM. Family resilience to the challenge of a child's disability. Pediatr Ann. 1991;20:491-499.
    • (1991) Pediatr Ann. , vol.20 , pp. 491-499
    • Patterson, J.M.1
  • 3
    • 33646168463 scopus 로고    scopus 로고
    • Resilience in children: A review of literature with implications for education
    • DOI 10.1177/0042085906287902
    • Condly SJ. Resilience in Children: a review of literature with implications for education. Urban Educ. 2006;41:211-236. (Pubitemid 43643165)
    • (2006) Urban Education , vol.41 , Issue.3 , pp. 211-236
    • Condly, S.J.1
  • 4
    • 0024655446 scopus 로고
    • Children of the Garden Island
    • Werner EE. Children of the Garden Island. Sci Am. 1989;260:106-111.
    • (1989) Sci Am. , vol.260 , pp. 106-111
    • Werner, E.E.1
  • 7
    • 44949197836 scopus 로고    scopus 로고
    • The impact of childhood conditions and concurrent morbidities on child health and well-being
    • DOI 10.1111/j.1365-2214.2008.00825.x
    • Waters E, Davis E, Nicolas C, Wake M, Lo SK. The impact of childhood conditions and concurrent morbidities on child health and well-being. Child Care Health Dev. 2008;34:418-429. (Pubitemid 351818795)
    • (2008) Child: Care, Health and Development , vol.34 , Issue.4 , pp. 418-429
    • Waters, E.1    Davis, E.2    Nicolas, C.3    Wake, M.4    Lo, S.K.5
  • 8
    • 67049159566 scopus 로고    scopus 로고
    • Emotional and behavioural problems in subgroups of children with chronic illness: Results from a large-scale population study
    • Hysing M, Elgen I, Gillberg C, Lundervold AJ. Emotional and behavioural problems in subgroups of children with chronic illness: results from a large-scale population study. Child Care Health Dev. 2009;35:527-533.
    • (2009) Child Care Health Dev. , vol.35 , pp. 527-533
    • Hysing, M.1    Elgen, I.2    Gillberg, C.3    Lundervold, A.J.4
  • 10
    • 0026633186 scopus 로고
    • Psychological adjustment to pediatric physical disorders: A meta-analytic review
    • Lavigne JV, Faier-Routman J. Psychological adjustment to pediatric physical disorders: a meta-analytic review. J Pediatr Psychol. 1992;17:133-157.
    • (1992) J Pediatr Psychol. , vol.17 , pp. 133-157
    • Lavigne, J.V.1    Faier-Routman, J.2
  • 12
    • 0036895043 scopus 로고    scopus 로고
    • Survival in Duchenne muscular dystrophy: Improvements in life expectancy since 1967 and the impact of home nocturnal ventilation
    • DOI 10.1016/S0960-8966(02)00140-2, PII S0960896602001402
    • Eagle M, Baudouin SV, Chandler C, Giddings DR, Bullock R, Bushby K. Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscul Disord. 2002;12:926-929. (Pubitemid 35408673)
    • (2002) Neuromuscular Disorders , vol.12 , Issue.10 , pp. 926-929
    • Eagle, M.1    Baudouin, S.V.2    Chandler, C.3    Giddings, D.R.4    Bullock, R.5    Bushby, K.6
  • 13
    • 16844369869 scopus 로고    scopus 로고
    • Association between intellectual functioning and age in children and young adults with Duchenne muscular dystrophy: Further results from a meta-analysis
    • DOI 10.1017/S0012162205000496
    • Cotton SM, Voudouris NJ, Greenwood KM. Association between intellectual functioning and age in children and young adults with Duchenne muscular dystrophy: further results from a metaanalysis. Dev Med Child Neurol. 2005;47:257-265. (Pubitemid 40484905)
    • (2005) Developmental Medicine and Child Neurology , vol.47 , Issue.4 , pp. 257-265
    • Cotton, S.M.1    Voudouris, N.J.2    Greenwood, K.M.3
  • 14
    • 0035109506 scopus 로고    scopus 로고
    • Selective deficits in verbal working memory associated with a known genetic etiology: The neuropsychological profile of Duchenne muscular dystrophy
    • DOI 10.1017/S1355617701711058
    • Hinton VJ, De Vivo DC, Nereo NE, Goldstein E, Stern Y. Selective deficits in verbal working memory associated with a known genetic etiology: the neuropsychological profile of Duchenne muscular dystrophy. J Int Neuropsychol Soc. 2001;7:45-54. (Pubitemid 32177856)
    • (2001) Journal of the International Neuropsychological Society , vol.7 , Issue.1 , pp. 45-54
    • Hinton, V.J.1    De Vivo, D.C.2    Nereo, N.E.3    Goldstein, E.4    Stern, Y.5
  • 16
    • 72149108443 scopus 로고    scopus 로고
    • Diagnosis and management of Duchenne muscular dystrophy, part 1: Diagnosis, and pharmacological and psychosocial management
    • Bushby K, Finkel R, Birnkrant DJ, et al. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management. Lancet Neurol. 2010;9:77-93.
    • (2010) Lancet Neurol. , vol.9 , pp. 77-93
    • Bushby, K.1    Finkel, R.2    Birnkrant, D.J.3
  • 17
    • 76549130473 scopus 로고    scopus 로고
    • Diagnosis and management of Duchenne muscular dystrophy, part 2: Implementation of multidisciplinary care
    • Bushby K, Finkel R, Birnkrant DJ, et al. Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care. Lancet Neurol. 2010;9:177-189.
    • (2010) Lancet Neurol. , vol.9 , pp. 177-189
    • Bushby, K.1    Finkel, R.2    Birnkrant, D.J.3
  • 18
    • 42449160246 scopus 로고    scopus 로고
    • Neuropsychiatric disorders in males with duchenne muscular dystrophy: Frequency rate of attention-deficit hyperactivity disorder (ADHD), autism spectrum disorder, and obsessive-compulsive disorder
    • DOI 10.1177/0883073807309775
    • Hendriksen JG, Vles JS. Neuropsychiatric disorders in males with Duchenne muscular dystrophy: frequency rate of attentiondeficit hyperactivity disorder (ADHD), autism spectrum disorder, and obsessive-compulsive disorder. J Child Neurol. 2008;23:477-481. (Pubitemid 351566858)
    • (2008) Journal of Child Neurology , vol.23 , Issue.5 , pp. 477-481
    • Hendriksen, J.G.M.1    Vles, J.S.H.2
  • 20
    • 33745889037 scopus 로고    scopus 로고
    • Survey of behaviour problems in children with neuromuscular diseases
    • DOI 10.1016/j.ejpn.2006.04.004, PII S1090379806000687
    • Darke J, Bushby K, Le Couteur A, McConachie H. Survey of behaviour problems in children with neuromuscular diseases. Eur J Paediatr Neurol. 2006;10:129-134. (Pubitemid 44041215)
    • (2006) European Journal of Paediatric Neurology , vol.10 , Issue.3 , pp. 129-134
    • Darke, J.1    Bushby, K.2    Couteur, A.L.3    McConachie, H.4
  • 21
    • 36348945650 scopus 로고    scopus 로고
    • Behavior patterns in Duchenne muscular dystrophy: Report on the Parent Project Muscular Dystrophy behavior workshop 8-9 of December 2006, Philadelphia, USA
    • DOI 10.1016/j.nmd.2007.06.465, PII S0960896607006736
    • Poysky J; Behavior in DMD Study Group. Behavior patterns in Duchenne muscular dystrophy: report on the Parent Project Muscular Dystrophy behavior workshop 8-9 of December 2006, Philadelphia, USA. Neuromuscul Disord. 2007;17:986-994. (Pubitemid 350141665)
    • (2007) Neuromuscular Disorders , vol.17 , Issue.11-12 , pp. 986-994
    • Poysky, J.1
  • 22
    • 58549114191 scopus 로고    scopus 로고
    • Psychosocial adjustment in males with Duchenne muscular dystrophy: Psychometric properties and clinical utility of a parent-report questionnaire
    • Hendriksen JG, Poysky JT, Schrans DG, Schouten EG, Aldenkamp AP, Vles JS. Psychosocial adjustment in males with Duchenne muscular dystrophy: psychometric properties and clinical utility of a parent-report questionnaire. J Pediatr Psychol. 2009;34:69-78.
    • (2009) J Pediatr Psychol. , vol.34 , pp. 69-78
    • Hendriksen, J.G.1    Poysky, J.T.2    Schrans, D.G.3    Schouten, E.G.4    Aldenkamp, A.P.5    Vles, J.S.6
  • 23
    • 70349771922 scopus 로고    scopus 로고
    • Association of autistic spectrum disorders with dystrophinopathies
    • Hinton VJ, Cyrulnik SE, Fee RJ, et al. Association of autistic spectrum disorders with dystrophinopathies. Pediatr Neurol. 2009;41:339-346.
    • (2009) Pediatr Neurol. , vol.41 , pp. 339-346
    • Hinton, V.J.1    Cyrulnik, S.E.2    Fee, R.J.3
  • 24
    • 0038066863 scopus 로고    scopus 로고
    • Three Wishes and psychological functioning in boys with Duchenne muscular dystrophy
    • Nereo NE, Hinton VJ. Three wishes and psychological functioning in boys with Duchenne muscular dystrophy. J Dev Behav Pediatr. 2003;24:96-103. (Pubitemid 36546776)
    • (2003) Journal of Developmental and Behavioral Pediatrics , vol.24 , Issue.2 , pp. 96-103
    • Nereo, N.E.1    Hinton, V.J.2
  • 25
    • 0025835096 scopus 로고
    • Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
    • Bach JR, Campagnolo DI, Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil. 1991;70:129-135.
    • (1991) Am J Phys Med Rehabil. , vol.70 , pp. 129-135
    • Bach, J.R.1    Campagnolo, D.I.2    Hoeman, S.3
  • 26
    • 12344314856 scopus 로고    scopus 로고
    • Adult life with Duchenne muscular dystrophy: Observations among an emerging and unforeseen patient population
    • DOI 10.1080/13638490400010191
    • Rahbek J, Werge B, Madsen A, Marquardt J, Steffensen BF, Jeppesen J. Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population. Pediatr Rehabil. 2005;8:17-28. (Pubitemid 40127948)
    • (2005) Pediatric Rehabilitation , vol.8 , Issue.1 , pp. 17-28
    • Rahbek, J.1    Werge, B.2    Madsen, A.3    Marquardt, J.4    Steffensen, B.F.5    Jeppesen, J.6
  • 27
    • 0034993579 scopus 로고    scopus 로고
    • Relating familial stress to the psychosocial adjustment of adolescents with Duchenne muscular dystrophy
    • Reid DT, Renwick RM. Relating familial stress to the psychosocial adjustment of adolescents with Duchenne muscular dystrophy. Int J Rehabil Res. 2001;24:83-93. (Pubitemid 32531169)
    • (2001) International Journal of Rehabilitation Research , vol.24 , Issue.2 , pp. 83-93
    • Reid, D.T.1    Renwick, R.M.2
  • 28
    • 34548669613 scopus 로고    scopus 로고
    • Family function in families of children with Duchenne muscular dystrophy
    • Chen JY, Clark MJ. Family function in families of children with Duchenne muscular dystrophy. Fam Community Health. 2007;30:296-304.
    • (2007) Fam Community Health , vol.30 , pp. 296-304
    • Chen, J.Y.1    Clark, M.J.2
  • 32
    • 0027157559 scopus 로고
    • Coping theory and research: Past, present, and future
    • Lazarus RS. Coping theory and research: past, present, and future. Psychosom Med. 1993;55:234-247. (Pubitemid 23155671)
    • (1993) Psychosomatic Medicine , vol.55 , Issue.3 , pp. 234-247
    • Lazarus, R.S.1
  • 34
    • 0024643681 scopus 로고
    • Social support and adjustment in chronically ill and handicapped children
    • Wallander JL, Varni JW. Social support and adjustment in chronically ill and handicapped children. Am J Community Psychol. 1989;17:185-201.
    • (1989) Am J Community Psychol. , vol.17 , pp. 185-201
    • Wallander, J.L.1    Varni, J.W.2
  • 36
    • 0026694508 scopus 로고
    • Psychosocial adaptation of children and adolescents with limb deficiencies: A review
    • Tyc VL. Psychosocial adaptation of children and adolescents with limb deficiencies: a review. Clin Psychol Rev. 1992;12:275-291.
    • (1992) Clin Psychol Rev. , vol.12 , pp. 275-291
    • Tyc, V.L.1
  • 37
    • 0028376008 scopus 로고
    • Perceived social support and adjustment of children with newly diagnosed cancer
    • Varni JW, Katz ER, Colegrove R Jr, Dolgin M. Perceived social support and adjustment of children with newly diagnosed cancer. J Dev Behav Pediatr. 1994;15:20-26.
    • (1994) J Dev Behav Pediatr. , vol.15 , pp. 20-26
    • Varni, J.W.1    Katz, E.R.2    Colegrove Jr., R.3    Dolgin, M.4
  • 38
    • 0030731092 scopus 로고    scopus 로고
    • Psychosocial impact of chronic illness in children
    • Northam EA. Psychosocial impact of chronic illness in children. J Paediatr Child Health. 1997;33:369-372. (Pubitemid 27460729)
    • (1997) Journal of Paediatrics and Child Health , vol.33 , Issue.5 , pp. 369-372
    • Northam, E.A.1
  • 39
    • 0034180852 scopus 로고    scopus 로고
    • The construct of resilience: A critical evaluation and guidelines for future work
    • Luthar SS, Cicchetti D, Becker B. The construct of resilience: a critical evaluation and guidelines for future work. Child Dev. 2000;71:543-562.
    • (2000) Child Dev. , vol.71 , pp. 543-562
    • Luthar, S.S.1    Cicchetti, D.2    Becker, B.3
  • 40
    • 0025851408 scopus 로고
    • Cautions in using the child behavior checklist: Observations based on research about children with a chronic illness
    • Perrin EC, Stein RE, Drotar D. Cautions in using the Child Behavior Checklist: observations based on research about children with a chronic illness. J Pediatr Psychol. 1991;16:411-421.
    • (1991) J Pediatr Psychol. , vol.16 , pp. 411-421
    • Perrin, E.C.1    Stein, R.E.2    Drotar, D.3
  • 41
    • 0028219706 scopus 로고
    • Performance of screening tools for mental health problems in chronically ill children
    • Canning EH, Kelleher K. Performance of screening tools for mental health problems in chronically ill children. Arch Pediatr Adolesc Med. 1994;148:272-278. (Pubitemid 24083971)
    • (1994) Archives of Pediatrics and Adolescent Medicine , vol.148 , Issue.3 , pp. 272-278
    • Canning, E.H.1    Kelleher, K.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.