메뉴 건너뛰기




Volumn 15, Issue 6, 2011, Pages 633-649

'i put it on the back burner most days': Living with chronic risk

Author keywords

biographical disruption; chronic risk; Huntington's disease; zones of relevance

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; CANADA; CHRONIC DISEASE; COHORT ANALYSIS; COMPARATIVE STUDY; FEMALE; GENETIC PREDISPOSITION; GENETIC SCREENING; GENETICS; HUMAN; HUNTINGTON CHOREA; INTERVIEW; MALE; MENTAL STRESS; MIDDLE AGED; NEOPLASM; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; RISK ASSESSMENT; TIME;

EID: 80755168900     PISSN: 13634593     EISSN: 14617196     Source Type: Journal    
DOI: 10.1177/1363459310364162     Document Type: Article
Times cited : (15)

References (39)
  • 1
    • 0034779908 scopus 로고    scopus 로고
    • Process Studies in Genetic Counseling: Peering into the Black Box
    • Biesecker B., Peters K. (2001) Process Studies in Genetic Counseling: Peering into the Black Box. American Journal of Medical Genetics 106(3): 191-198.
    • (2001) American Journal of Medical Genetics , vol.106 , Issue.3 , pp. 191-198
    • Biesecker, B.1    Peters, K.2
  • 2
    • 0032410262 scopus 로고    scopus 로고
    • Predictive Testing for Huntington's Disease: II. Qualitative Findings from a Study of Uptake in South Wales
    • Binedell J., Soldan JR, and Harper PS (1998) Predictive Testing for Huntington's Disease: II. Qualitative Findings from a Study of Uptake in South Wales. Clinical Genetics 54(6): 489-496.
    • (1998) Clinical Genetics , vol.54 , Issue.6 , pp. 489-496
    • Binedell, J.1    Soldan, J.R.2    Harper, P.S.3
  • 3
    • 0020321030 scopus 로고
    • Chronic Illness as Biographical Disruption
    • Bury M. (1982) Chronic Illness as Biographical Disruption. Sociology of Health and Illness 4(2): 167-182.
    • (1982) Sociology of Health and Illness , vol.4 , Issue.2 , pp. 167-182
    • Bury, M.1
  • 4
    • 84995038114 scopus 로고
    • The Sociology of Chronic Illness: A Review of Research and Prospects
    • Bury M. (1991) The Sociology of Chronic Illness: A Review of Research and Prospects. Sociology of Health and Illness 13(4): 451-468.
    • (1991) Sociology of Health and Illness , vol.13 , Issue.4 , pp. 451-468
    • Bury, M.1
  • 5
    • 0020790850 scopus 로고
    • Loss of Self: A Fundamental Form of Suffering in the Chronically Ill
    • Charmaz K. (1983) Loss of Self: A Fundamental Form of Suffering in the Chronically Ill. Sociology of Health and Illness 5(2): 168-195.
    • (1983) Sociology of Health and Illness , vol.5 , Issue.2 , pp. 168-195
    • Charmaz, K.1
  • 7
    • 0037464588 scopus 로고    scopus 로고
    • A Vision for the Future of Genomics Research: A Blueprint for the Genomic Era
    • Collins F., Green E., Guttmacher A., and Guyer M. (2003) A Vision for the Future of Genomics Research: A Blueprint for the Genomic Era. Nature 422(6934): 835-847.
    • (2003) Nature , vol.422 , Issue.6934 , pp. 835-847
    • Collins, F.1    Green, E.2    Guttmacher, A.3    Guyer, M.4
  • 8
    • 0033181469 scopus 로고    scopus 로고
    • There's This Thing in Our Family': Predictive Testing and the Construction of Risk for Huntington Disease
    • Cox S., McKellin W. (1999) 'There's This Thing in Our Family': Predictive Testing and the Construction of Risk for Huntington Disease. Sociology of Health and Illness 21(5): 622-646.
    • (1999) Sociology of Health and Illness , vol.21 , Issue.5 , pp. 622-646
    • Cox, S.1    McKellin, W.2
  • 9
    • 10744221876 scopus 로고    scopus 로고
    • Predictive, Pre-Natal and Diagnostic Genetic Testing for Huntington's Disease: The Experience in Canada from 1987 to 2000
    • Creighton S., Almqvist E., MacGregor D.,et al.(2003) Predictive, Pre-Natal and Diagnostic Genetic Testing for Huntington's Disease: The Experience in Canada from 1987 to 2000. Clinical Genetics 63(6): 462-475.
    • (2003) Clinical Genetics , vol.63 , Issue.6 , pp. 462-475
    • Creighton, S.1    Almqvist, E.2    MacGregor, D.3
  • 10
    • 33645354566 scopus 로고    scopus 로고
    • Genetic Testing for Huntington Disease: How Is the Decision Taken?
    • Etchegary H. (2006a) Genetic Testing for Huntington Disease: How Is the Decision Taken? Genetic Testing 10(1): 60-68.
    • (2006) Genetic Testing , vol.10 , Issue.1 , pp. 60-68
    • Etchegary, H.1
  • 11
    • 33745030309 scopus 로고    scopus 로고
    • Discovering the Family History of Huntington Disease (HD)
    • Etchegary H. (2006b) Discovering the Family History of Huntington Disease (HD). Journal of Genetic Counseling 15(2): 105-117.
    • (2006) Journal of Genetic Counseling , vol.15 , Issue.2 , pp. 105-117
    • Etchegary, H.1
  • 12
    • 0032445936 scopus 로고    scopus 로고
    • Predictive Testing for Huntington's Disease: A Challenge for Persons at Risk and for Professionals
    • Evers-Kiebooms G., Decruyenaere M. (1998) Predictive Testing for Huntington's Disease: A Challenge for Persons at Risk and for Professionals. Patient Education and Counseling 35(1): 15-26.
    • (1998) Patient Education and Counseling , vol.35 , Issue.1 , pp. 15-26
    • Evers-Kiebooms, G.1    Decruyenaere, M.2
  • 14
    • 21544456087 scopus 로고    scopus 로고
    • Facilitating Family Communication about Predictive Genetic Testing: Proband's Perceptions
    • Gaff C., Collins V., Symes T., and Halliday J. (2005) Facilitating Family Communication about Predictive Genetic Testing: Proband's Perceptions. Journal of Genetic Counseling 14(2): 133-140.
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.2 , pp. 133-140
    • Gaff, C.1    Collins, V.2    Symes, T.3    Halliday, J.4
  • 16
    • 0026441237 scopus 로고
    • Genetic Testing for Huntington's Disease: A Family Issue
    • Hayes C. (1992) Genetic Testing for Huntington's Disease: A Family Issue. New England Journal of Medicine 327(20): 1449-1451.
    • (1992) New England Journal of Medicine , vol.327 , Issue.20 , pp. 1449-1451
    • Hayes, C.1
  • 17
    • 33747390872 scopus 로고    scopus 로고
    • What Do We Tell the Children? Contrasting the Disclosure Choices of Two HD Families Regarding Risk Status and Predictive Genetic Testing
    • Holt K. (2006) What Do We Tell the Children? Contrasting the Disclosure Choices of Two HD Families Regarding Risk Status and Predictive Genetic Testing. Journal of Genetic Counseling 15(4): 253-265.
    • (2006) Journal of Genetic Counseling , vol.15 , Issue.4 , pp. 253-265
    • Holt, K.1
  • 18
    • 0028470671 scopus 로고
    • Guidelines for the Molecular Genetics Predictive Test in Huntington Disease
    • International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea
    • International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea (1994) Guidelines for the Molecular Genetics Predictive Test in Huntington Disease. Journal of Medical Genetics 31(7): 555-559.
    • (1994) Journal of Medical Genetics , vol.31 , Issue.7 , pp. 555-559
  • 19
    • 0344467125 scopus 로고    scopus 로고
    • Living with Chronic Risk: Healthy Women with a Family History of Breast/Ovarian Cancer
    • Kenen R., Ardern-Jones A., and Eeles R. (2003a) Living with Chronic Risk: Healthy Women with a Family History of Breast/Ovarian Cancer. Health Risk and Society 5(3): 315-331.
    • (2003) Health Risk and Society , vol.5 , Issue.3 , pp. 315-331
    • Kenen, R.1    Ardern-Jones, A.2    Eeles, R.3
  • 20
    • 0345291276 scopus 로고    scopus 로고
    • Family Stories and the Use of Heuristics: Women from Suspected Hereditary Breast and Ovarian Cancer (HBOC) Families
    • Kenen R., Ardern-Jones A., and Eeles R. (2003b) Family Stories and the Use of Heuristics: Women from Suspected Hereditary Breast and Ovarian Cancer (HBOC) Families. Sociology of Health and Illness 25(7): 838-865.
    • (2003) Sociology of Health and Illness , vol.25 , Issue.7 , pp. 838-865
    • Kenen, R.1    Ardern-Jones, A.2    Eeles, R.3
  • 21
    • 0024635424 scopus 로고
    • Social System Responses to Huntington Disease
    • Kessler S., Bloch M. (1989) Social System Responses to Huntington Disease. Family Process 13(1): 59-68.
    • (1989) Family Process , vol.13 , Issue.1 , pp. 59-68
    • Kessler, S.1    Bloch, M.2
  • 22
    • 2942549006 scopus 로고    scopus 로고
    • While There's Life...: Hope and the Experience of Cancer
    • Little M., Sayers EJ (2004) While There's Life...: Hope and the Experience of Cancer. Social Science and Medicine 59(6): 1329-1337.
    • (2004) Social Science and Medicine , vol.59 , Issue.6 , pp. 1329-1337
    • Little, M.1    Sayers, E.J.2
  • 23
    • 70350513166 scopus 로고    scopus 로고
    • Biographical Disruption, Abruption and Repair in the Context of Motor Neurone Disease
    • Locock L., Ziebland S., and Dumelow C. (2009) Biographical Disruption, Abruption and Repair in the Context of Motor Neurone Disease. Sociology of Health and Illness 31(7): 1-16.
    • (2009) Sociology of Health and Illness , vol.31 , Issue.7 , pp. 1-16
    • Locock, L.1    Ziebland, S.2    Dumelow, C.3
  • 24
    • 33847682868 scopus 로고    scopus 로고
    • Improving Service Evaluation in Clinical Genetics: Identifying Effects of Genetic Diseases on Individuals and Families
    • McAllister M., Payne K., Nicholls S., MacLeod R., Donnai D., and Davies L. (2007) Improving Service Evaluation in Clinical Genetics: Identifying Effects of Genetic Diseases on Individuals and Families. Journal of Genetic Counseling 16(1): 71-78.
    • (2007) Journal of Genetic Counseling , vol.16 , Issue.1 , pp. 71-78
    • McAllister, M.1    Payne, K.2    Nicholls, S.3    MacLeod, R.4    Donnai, D.5    Davies, L.6
  • 25
    • 0033785340 scopus 로고    scopus 로고
    • Psychological Impact of Genetic Testing for Huntington Disease: An Update of the Literature
    • Meiser B., Dunn S. (2000) Psychological Impact of Genetic Testing for Huntington Disease: An Update of the Literature. Journal of Neurology, Neurosurgery, and Psychiatry 69(5): 574-578.
    • (2000) Journal of Neurology, Neurosurgery, and Psychiatry , vol.69 , Issue.5 , pp. 574-578
    • Meiser, B.1    Dunn, S.2
  • 27
    • 0842327450 scopus 로고    scopus 로고
    • Technical Standards and Guidelines for Huntington Disease Testing
    • Potter N., Spector E., and Prior T. (2004) Technical Standards and Guidelines for Huntington Disease Testing. Genetics in Medicine 6(1): 61-65.
    • (2004) Genetics in Medicine , vol.6 , Issue.1 , pp. 61-65
    • Potter, N.1    Spector, E.2    Prior, T.3
  • 28
    • 0346034939 scopus 로고    scopus 로고
    • Risk Constructions among People Who Have a First-Degree Relative with Cancer
    • Sanders T., Campbell R., Sharp D., and Donovan J. (2003) Risk Constructions among People Who Have a First-Degree Relative with Cancer. Health, Risk, and Society 5(1): 53-69.
    • (2003) Health, Risk, and Society , vol.5 , Issue.1 , pp. 53-69
    • Sanders, T.1    Campbell, R.2    Sharp, D.3    Donovan, J.4
  • 29
    • 33845406102 scopus 로고    scopus 로고
    • Ethical Issues in Cancer Genetics: I 1) Whose Information Is It?
    • Schneider K., Chittenden A., Branda K.,et al.(2006). Ethical Issues in Cancer Genetics: I 1) Whose Information Is It? Journal of Genetic Counseling 15(6): 491-503.
    • (2006) Journal of Genetic Counseling , vol.15 , Issue.6 , pp. 491-503
    • Schneider, K.1    Chittenden, A.2    Branda, K.3
  • 30
    • 84872459476 scopus 로고
    • The Well-Informed Citizen: An Essay on the Social Distribution of Knowledge
    • Schutz A. (1946) The Well-Informed Citizen: An Essay on the Social Distribution of Knowledge. Social Research 13(4): 463-478.
    • (1946) Social Research , vol.13 , Issue.4 , pp. 463-478
    • Schutz, A.1
  • 33
    • 85075290880 scopus 로고    scopus 로고
    • Interpretative Phenomenological Analysis and the Psychology of Health and Illness
    • In: Yardley L (ed.), London: Routledge
    • Smith JA, Flowers P., and Osborn M. (1997) Interpretative Phenomenological Analysis and the Psychology of Health and Illness. In: Yardley L (ed.) Material Discourses of Health and Illness. London: Routledge, 68-91.
    • (1997) Material Discourses of Health and Illness , pp. 68-91
    • Smith, J.A.1    Flowers, P.2    Osborn, M.3
  • 34
  • 35
    • 0142186776 scopus 로고    scopus 로고
    • Predictive Genetic Test Decisions for Huntington's Disease: Context, Appraisal and New Moral Imperatives
    • Taylor S. (2004) Predictive Genetic Test Decisions for Huntington's Disease: Context, Appraisal and New Moral Imperatives. Social Science and Medicine 58(1): 137-149.
    • (2004) Social Science and Medicine , vol.58 , Issue.1 , pp. 137-149
    • Taylor, S.1
  • 37
    • 1642329097 scopus 로고    scopus 로고
    • Adverse Effects of Predictive Testing for Huntington Disease Underestimated: Long-Term Effects 7-10 Years After the Test
    • Timman R., Roos R., Maat-Kievit, A. and Tibben A. (2004) Adverse Effects of Predictive Testing for Huntington Disease Underestimated: Long-Term Effects 7-10 Years After the Test. Health Psychology 23(2): 189-197.
    • (2004) Health Psychology , vol.23 , Issue.2 , pp. 189-197
    • Timman, R.1    Roos, R.2    Maat-Kievit, A.3    Tibben, A.4
  • 38
    • 0016264378 scopus 로고
    • Judgment under Uncertainty: Heuristics and Biases
    • Tversky A., Kahneman D. (1974) Judgment under Uncertainty: Heuristics and Biases. Science 185(4157): 1124-1131.
    • (1974) Science , vol.185 , Issue.4157 , pp. 1124-1131
    • Tversky, A.1    Kahneman, D.2
  • 39
    • 0342327379 scopus 로고    scopus 로고
    • Psychological Aspects of Genetic Counselling: A Review of the Experience with Huntington's Disease
    • Van't Spijker A., Ten Kroode, HFJ (1997) Psychological Aspects of Genetic Counselling: A Review of the Experience with Huntington's Disease. Patient Education and Counseling 32(1-2): 33-40.
    • (1997) Patient Education and Counseling , vol.32 , Issue.1-2 , pp. 33-40
    • van't Spijker, A.1    Ten Kroode, H.F.J.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.