Functioning and disability in traumatic brain injury: The Italian patient perspective in developing ICF Core Sets

Disability and Rehabilitation

Volumn 33, Issue 23-24, 2011, Pages 2333-2345

  Pistarini, Caterina ^a   Aiachini, Beatrice ^a   Coenen, Michaela ^b,c   Pisoni, Camilla ^a  

^a IRCCS   (Italy)

^b UNIVERSITY OF MUNICH   (Germany)

^c ICF Research Branch of WHO   (Germany)

Author keywords

Disability and Health; focus groups (MeSH); ICF; International Classification of Functioning; patient perspective; qualitative research (MeSH); traumatic brain injury (MeSH)

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; BRAIN INJURY; CAREGIVER; CLASSIFICATION; DAILY LIFE ACTIVITY; DISABILITY; ENVIRONMENT; FEMALE; HEALTH STATUS; HUMAN; INFORMATION PROCESSING; INTERNATIONAL CLASSIFICATION OF DISEASES; INTERVIEW; ITALY; MALE; MIDDLE AGED; PATIENT; PSYCHOLOGICAL ASPECT; SOCIOECONOMICS;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; BRAIN INJURIES; CAREGIVERS; DISABILITY EVALUATION; ENVIRONMENT; FEMALE; FOCUS GROUPS; HEALTH STATUS; HUMANS; INTERNATIONAL CLASSIFICATION OF DISEASES; INTERVIEWS AS TOPIC; ITALY; MALE; MIDDLE AGED; PATIENTS; SOCIOECONOMIC FACTORS; YOUNG ADULT;

EID: 80455178818     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2011.570414     Document Type: Article

References (55)

1. Jaracz K, Kozubski W. Quality of life after traumatic brain injury. Neurol Neurochir Pol 2008;42:525-535.
2. Stucki G, Ewert T, Cieza A. Value and application of the ICF in rehabilitation medicine. Disabil Rehabil 2002;24:932-938. (Pubitemid 36002173)
3. Pagulayan KF, Temkin NR, Machamer J, Dikmen SS. A longitudinal study of health related quality of life after traumatic brain injury. Arch Phys Med Rehabil 2006;87:611-618.
4. Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med 1993;118:622-629. (Pubitemid 23102698)
5. Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S, Üstün TB, Stucki G. Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med 2002;34:205-210.
6. Cieza A, Geyh S, Chatterji S, Kostanjsek N, Üstün B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005;37:212-218. (Pubitemid 41025328)
7. Von Steinbuechel N, Petersen C, Bullinger M. Assessment of health-related quality of life in persons after traumatic brain Injury - development of the Qolibri, a specific measure. Acta Neurochir Supp 2005;93:43-49.
8. Bilbao A, Kennedy C, Chatterrji S, Ustun B, Barquero JL, Barth JT. The ICF: applications of the WHO model of functioning, disability and health to brain injury rehabilitation. NeuroRehabilitation 2003;18:239-250. (Pubitemid 37159551)
9. Pierce CA, Hanks RA. Life satisfaction after traumatic brain injury and the World Health Organization model of disability. Am J Phys Med Rehabil 2006;85:889-898.
10. Temkin NR, Corrigan JD, Dikmen SS, Machamer J. Social functioning after traumatic brain injury. J Head Trauma Rehabil 2009;24:460-467.
11. Wrona RM. Disability and return to work outcomes after traumatic brain injury: results from the Washington State Industrial Insurance Fund. Disabil Rehabil 2010;32:650-655.
12. McNamee S, Walker W, Cifu DX, Wehman PH. Minimizing the effect of TBI-related physical sequelae on vocational return. J Rehabil Res Dev 2009;46:893-908.
13. Varjabić M, Bakran Z, Tusek S, Bujisić G. Assessment of long-term activity limitations and participation restrictions of persons with traumatic brain injury using the disability rating scale. Coll Antropol 2010;34 (Suppl 1):157-164.
14. Andelic N, Sigurdardottir S, Schanke AK, Sandvik L, Sveen U, Roe C. Disability, physical health and mental health 1 year after traumatic brain injury. Disabil Rehabil 2010;32:1122-1131.
15. World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO 2001.
16. Stucki G, Cieza A, Ewert T, Kostanjsek N, Chatterji S, Üstün TB. Application of the International Classification of Functioning, Disability and Health (ICF) in clinical practice. Disabil Rehabil 2002;24:281-282. (Pubitemid 34428803)
17. Aiachini B, Pisoni C, Cieza A, Cazzulani B, Giustini A, Pistarini C. Developing ICF core set for subjects with traumatic brain injury: an Italian clinical perspective. Eur J Phys Rehabil Med 2010;46:27-36.
18. Bernabeu M, Laxe S, Lopez R, Stucki G, Ward A, Barnes M, Kostanjsek N, Reed G, Tate R, Whyte J, Zasler N, Cieza A. Developing core sets for persons with traumatic brain injury based onthe international classification of functioning, disability, and health. Neurorehabil Neural Repair 2009;23:464-467.
19. Mays N, Pope C. Qualitative research in health care: assessing quality in qualitative research. Br Med J 2000;320:50-52. (Pubitemid 30173021)
20. Giacomini MK, Cook DJ. Users guides to the medical literature: XXIII. Qualitative research in health care A. Are the results of the study valid? JAMA 2000;284:357-362. (Pubitemid 30469863)
21. Murphy E, Dingwall R, Greatbatch D, Parker S, Watson P. Qualitative research methods in health technology assessment: a review of the literature. Health Technol Assess 1998;2:1-272.
22. Sim J. Collecting and analysing qualitative data: issues raised by the focus group. J Adv Nurs 1998;28:345-352. (Pubitemid 128451674)
23. Morgan DL. Focus groups as qualitative research. 2nd ed. Qualitative research methods series, Vol. 16. Thousand Oaks: Sage; 1997.
24. Vaughn S, Schumm JS, Sinagub J. Focus group interviews in education and psychology. Thousand Oaks: Sage; 1996.
25. Krueger RA, Casey MA. Focus groups: a practical guide for applied research. Thousand Oaks: Sage; 2000.
26. Morse JM. Critical issues in qualitative research methods. Thousand Oaks: Sage; 1994.
27. Morgan DL, Krueger RA. When to use focus groups and why. In: Morgan DL. Successful focus groups: advancing the state of the art. Newbury Park: Sage; 1993. pp 3-19.
28. Kitzinger J. Qualitative research: introducing focus groups. Br Med J 1995;311:299-302.
29. Powell RA, Single HM, Lloyd KR. Focus groups in mental health research: enhancing the validity of user and provider questionnaires. Int J Soc Psychiatry 1996;42:193-206. (Pubitemid 26332016)
30. Coenen M, Cieza A, Stamm TA, Amann E, Kollerits B, Stucki G. Validation of the International Classification of Functioning, Disability and Health (ICF) Core Set for rheumatoid arthritis from the patient perspective using focus groups. Arthrit Res Ther 2006;8:R84.
31. Ragnarsson KJ. Results of the NIH consensus Conference on "Rehabilitation of persons with traumatic brain injury". Restor Neurol Neurosci 2002;20:103-108.
32. Teasdale G, Jennett B. Assessment of coma and impaired consciousness. A practical scale. Lancet 1974;2:81-84.
33. Levels of cognitive function scale (Original scale Co-authored by Hagen et al.,). Communication disorders service. Ranchos Los Amigos Hospital 1972 Rev 1997 by Hagen C, 225 Winterhawk Lane, Encintas California 92024.
34. American Academy of Neurology: assessment and management of persons in the persistent vegetative state. Summary Statement. Neurology 1995;45:1015-1018.
35. Barnes MP, Ward AB. Oxford handbook of rehabilitation medicine. Oxford: Oxford University press; 2005.
36. Patton MQ. Qualitative evaluation and research methods. Newbury Park: Sage; 1990.
37. Kirchberger I, Sinnott A, Charlifue S, Kovindha A, Lüthi H, Campbell R, Zwecker M, Scheuringer M, Cieza A. Functioning and disability in spinal cord injury from the consumer perspective: an international qualitative study using focus groups and the ICF. Spinal Cord 2010;48:603-613.
38. Coenen M, Stamm TA, Stucki G, Cieza A. Individual interviews and focus groups in patients with rheumatoid arthritis: a comparison of two qualitative methods. Qual Life Res.
39. Jennett B, Plum F. Persistent vegetative state after brain damage: a syndrome in search of a name. Lancet 1972;1:734-737.
40. Kvale S. Interviews - an introduction to qualitative research interviewing. California: Sage; 1996.
41. Karlsson G. Psychological qualitative research from a phenomenological perspective. Stockholm: Almquist & Wiskell International; 1995.
42. Ewert T, Fuessl M, Cieza A, Andresen C, Chatterji S, Kostanjsek N, Stucki G. Identification of the most common patients problems in patients with chronic conditions using ICF checklist. J Rehabil Med 2004;36 (Suppl)44;5-6.
43. Grill E, Lipp B, Boldt C, Stucki G, Koenig E. Identification of relevant ICF categories by patients with neurological conditions in early post-acute rehabilitation facilities. Disabil Rehabil 2005;27:459-465. (Pubitemid 40711876)
44. Maas AIR, Stocchetti N, Bullock R. Moderate and severe traumatic brain Injury in adults. Lancet Neurol 2008;7:728-741. (Pubitemid 351957931)
45. Lovasik D, Kerr ME, Alexander S. Traumatic brain injury research. A review of clinical studies. Crit Care Nurs Q 2001;23:24-41. (Pubitemid 32187164)
46. Jacobsson LJ, Westerberg M. Health-related quality-of-life and life satisfaction 6-15 years after traumatic brain injuries in northern Sweden. Brain Inj 2010;24:1075-1086.
47. Leonardi M, Sattin D, Raggi A, Frosi G, Pisoni C, Pistarini C, Compostini A, Manera M, Croci M, Guizzetti GB. Functioning and disability in the vegetative state: results from a pilot study in Italy. Disabil Rehabil 2009;31 (Suppl 1): S128-S133.
48. Simpson G, Mohr R, Redman A. Cultural variations in the understanding of traumatic brain injury and brain injury rehabilitation. Brain Inj 2000;14(2):125-140. (Pubitemid 30087900)
49. Curtis S, Gesler W, Smith G, Washburn S. Approaches to sampling and case selection in qualitative research: examples in the geography of health. Soc Sci Med 2000;50:1001-1014. (Pubitemid 30055376)
50. Knodel J. The design and analysis of focus group studies. In: Morgan DL, editor. Successful focus groups: advancing the state of the art. Newbury Park: Sage; 1993. pp 35-50.
51. Krueger RA. The future of focus groups. Qual Health Res 1995;5:524-530.
52. Carey AM. The group effect in focus groups: planning, implementing, and interpreting focus group research. In: Morse JM, editor. Critical issues in qualitative research methods. Thousand Oaks: Sage; 1994. pp 225-241.
53. Denzin NK. The research act: a theoretical introduction to sociological methods. New York: McGraw-Hill; 1978.
54. Barbour R. Checklists for improving rigour in qualitative research: a case of the tail wagging the dog? Br Med J 2001;322:1115-1117. (Pubitemid 32411191)
55. Pope C, Ziebland S, Mays N. Qualitative research in health care: analysing qualitative data. Br Med J 2000;320:114-116.