Quality of life after traumatic brain injury;Jakość życia chorych po urazie czaszkowo-mózgowym

Neurologia i Neurochirurgia Polska

Volumn 42, Issue 6, 2008, Pages 525-535

  Jaracz, Krystyna ^a   Kozubski, Wojciech ^a  

^a POZNAN UNIVERSITY OF MEDICAL SCIENCES   (Poland)

Author keywords

Outcome assessment; Quality of life; Traumatic brain injury

Indexed keywords

CAREGIVER; COGNITION; DETERIORATION; HUMAN; LIFE SATISFACTION; PROGNOSIS; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REHABILITATION CARE; REVIEW; SOCIAL ASPECT; TRAUMATIC BRAIN INJURY; ADAPTIVE BEHAVIOR; ATTITUDE TO HEALTH; BRAIN INJURY; DAILY LIFE ACTIVITY; FEMALE; HEALTH SURVEY; MALE; PATIENT ATTITUDE; PATIENT SATISFACTION; SICKNESS IMPACT PROFILE;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO HEALTH; BRAIN INJURIES; FEMALE; HEALTH STATUS INDICATORS; HUMANS; MALE; PATIENT SATISFACTION; QUALITY OF LIFE; SICK ROLE; SICKNESS IMPACT PROFILE;

EID: 64849107857     PISSN: 00283843     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (82)

1. Bruns J., Hauser W.A. The epidemiology of traumatic brain injury: a review. Epilepsia 2003; 44 Suppl 10: 2-10.
2. Tagliaferri F., Compagnone C., Korsic M. i wsp. A systematic review of brain injury epidemiology in Europe. Acta Neurochir (Wien) 2006; 148: 255-268.
3. Flaada J.T., Leibson C.L., Mandrekar J.N. i wsp. Relative risk mortality after traumatic brain injury: a population-based study of the role of age and injury severity. J Neurotrauma 2007; 24: 435-445.
4. Brown A.W., Leibson C.L., Malec J.F. i wsp. Long-term survival after traumatic brain injury: a population-based analysis. NeuroRehabilitation 2004; 19: 37-43.
5. Emanuelson I., Andersson Holmkvist E., Björklund R. i wsp. Quality of life and post-concussion symptoms in adults after mild traumatic brain injury: a population-based study in western Sweden. Acta Neurol Scand 2003; 108: 332-338.
6. Morton M.V., Wehman P. Psychosocial and emotional sequelae of individuals with traumatic brain injury: a literature review and recommendations. Brain Inj 1995; 9: 81-92.
7. Hickey J.V. The Clinical Practice of Neurological and Neurosurgical Nursing. Lippincott Williams & Wilkins, Philadelphia 2003, s. 373.
8. Kaczmarczyk R., Kaczmarczyk R. Urazy czaszkowo-mózgowe. Cześć I. Medycyna Rodzinna 2001; 3-4: 121-125.
9. Warriner E.M., Velikonja D. Psychiatric disturbances after traumatic brain injury: neurobehavioral and personality changes. Curr Psychiatry Rep 2006; 8: 73-80.
10. Pachalska M. Neuropsychologia kliniczna. Urazy mózgu. Tom 2. Wydawnictwo PWN, Warszawa 2007.
11. Kadzielawa D. Zaburzenia jezykowe po urazach czaszkowo-mózgowych. W: Herzyk A., Daniluk B., Pachalska M. i wsp. [red.]. Neuropsychologiczne konsekwencje urazów głowy. Jakość życia pacjentów. Wydawnictwo UMCS, Lublin 2003, ss. 17-24.
12. Voogt R.D. Quality of life: an aspect of life care planning and long-term care. NeuroRehabilitation 1996; 7: 95-117.
13. Fleminger S. Long-term psychiatric disorders after traumatic brain injury. Eur J Anaesthesiol Suppl. 2008; 42: 123-130.
14. Bullinger M., Azouvi P., Brooks N. i wsp.; TBI Consensus Group. Quality of life in patients with traumatic brain injury-basic issues, assessment and recommendations. Restor Neurol Neurosci 2002; 20: 111-124.
15. Herzyk A., Daniluk B., Pachalska M. i wsp. [red.]. Neuropsychologiczne konsekwencje urazów głowy. Jakość życia pacjentów. Wydawnictwo UMCS, Lublin 2003.
16. Pachalska M., Kiejna A., Frańczuk B. i wsp. Pośpiaczkowa paraschizofrenia a jakość życia pacjentów po urazach czaszkowo-mózgowych. Ortop Traumat Rehab 2001; 3: 401-414.
17. Aleksińska A. Pojecie jakości życia. [cytowany 14 kwietnia 2008]; dostepne na: http://www.psychologia.net.pl/ artykul.php?level=231.
18. Jaracz K. Jakość życia po niedokrwiennym udarze mózgu: uwarunkowania kliniczne, funkcjonalne, psychospołeczne i czasowe. Praca habilitacyjna, Wydawnictwo Akademii Medycznej, Poznań 2002.
19. Sek H. Wprowadzenie do psychologii klinicznej. Scholar, Warszawa 2001, s. 45.
20. Berger E., Leven F., Pirente N. i wsp. Quality of life after traumatic brain injury: a systematic review of the literature. Restor Neurol Neurosci 1999; 14: 93-102.
21. Petchprapai N., Winkelman Ch. Mild traumatic brain injury: determinants and subsequent quality of life. A review of the literature. J Neurosci Nurs 2007; 39: 260-272.
22. Seibert P.S., Reedy D.P., Hash J. i wsp. Brain injury: quality of life's greatest challenge. Brain Inj 2002; 16: 837-848.
23. Teasdale T.W., Christensen A.L., Willmes K. i wsp. Subjective experience in brain-injured patients and their close relatives: a European Brain Injury Questionnaire study. Brain Inj 1997; 11: 543-563.
24. Dikmen S., Machamer J., Temkin N. Psychosocial outcome in patients with moderate to severe head injury: 2-year follow-up. Brain Inj 1993; 7: 113-124.
25. Kaitaro T., Koskinen S., Kaipio M.L. Neuropsychological problems in everyday life: a 5-year follow-up study of young severely closed-head injured patients. Brain Inj 1995; 9: 713-727.
26. Dawson D.R., Chipman M. The disablement experienced by traumatically brain-injured adults living in the community. Brain Inj 1995; 9: 339-353.
27. Hawkins M.L., Lewis F.D., Medeiros R.S. Serious traumatic brain injury: an evaluation of functional outcomes. J Trauma 1996; 41: 257-263.
28. Kreuter M., Sullivan M., Dahllöf A.G. i wsp. Partner relationships, functioning, mood and global quality of life in persons with spinal cord injury and traumatic brain injury. Spinal Cord 1998; 36: 252-261.
29. Koskinen S. Quality of life 10 years after a very severe traumatic brain injury (TBI): the perspective of the injured and the closest relative. Brain Inj 1998; 12: 631-648.
30. Johnston M.V., Goverover Y., Dijkers M. Community activities and individuals' satisfaction with them: quality of life in the first year after traumatic brain injury. Arch Phys Med Rehabil 2005; 86: 735-745.
31. Mailhan L., Azouvi P., Dazord A. Life satisfaction and disability after severe traumatic brain injury. Brain Inj 2005; 19: 227-238.
32. Kersel D.A., Marsh N.V., Havill J.H. i wsp. Psychosocial functioning during the year following severe traumatic brain injury. Brain Inj 2001; 15: 683-696.
33. Williams D.H., Levin H.S., Eisenberg H.M. Mild head injury classification. Neurosurgery 1990; 27: 422-428.
34. Deb S., Lyons I., Koutzoukis C. Neuropsychiatric sequelae one year after a minor head injury. J Neurol Neurosurg Psychiatry 1998; 65: 899-902.
35. Langlois J.A., Kegler S.R., Butler J.A. i wsp. Traumatic brain injury-related hospital discharges. Results from a 14-state surveillance system, 1997. MMWR Surveill Summ 2003; 52: 1-20.
36. Colantonio A., Dawson D.R., McLellan B.A. Head injury in young adults: long-term outcome. Arch Phys Med Rehabil 1998; 79: 550-558.
37. Findler M., Cantor J., Haaddad L. i wsp. The reliability and validity of the SF-36 health survey questionnaire for use with individuals with traumatic brain injury. Brain Inj 2001; 15: 715-723.
38. Laskowska E., Michalak S., Nowak S. Lek i zaburzenia nastroju u chorych po urazach czaszkowo-mózgowych i z guzami mózgu. Neuroskop 2005; 7: 144-148.
39. Hanks R.A., Temkin N., Machamer J. i wsp. Emotional and behavioral adjustment after traumatic brain injury. Arch Phys Med Rehabil 1999; 80: 991-997.
40. Marsh N.V., Kersel D.A., Havill J.H. i wsp. Caregiver burden at 6 months following severe traumatic brain injury. Brain Inj 1998; 12: 225-238.
41. Moldover J.E., Goldberg K.B., Prout M.F. Depression after traumatic brain injury: a review of evidence for clinical heterogeneity. Neuropsychol Rev 2004; 14: 143-154.
42. Cantor J.B., Ashman T.A., Schwarz M.E. i wsp. The role of self-discrepancy theory in understanding post-traumatic brain injury affective disorders. A pilot study. J Head Trauma Rehabil 2005; 20: 527-543.
43. Godfrey H.P., Partridge F.M., Knight R.G. i wsp. Course of insight disorder and emotional dysfunction following closed head injury: a controlled cross-sectional follow-up study. J Clin Exp Neuropsychol 1993; 15: 503-515.
44. Malec J.F., Testa J.A, Rush B.K. i wsp. Self-assessment of impairment, impaired self-awareness, and depression after traumatic brain injury. J Head Trauma Rehabil 2007; 22: 156-166.
45. Pritigano G.P. Disturbances of self-awareness and rehabilitation of patients with traumatic brain injury: a 20-year perspective. J Head Trauma Rehabil 2005; 20: 19-29.
46. Perlesz A., Kinsella G., Crowe S. Psychological distress and family satisfaction following traumatic brain injury: Injured individuals and their primary, secondary and tertiary carers. J Head Trauma Rehabil 2000; 15: 909-929.
47. Hoofien D., Gilboa A., Vakil E. i wsp. Traumatic brain injury (TBI) 10-20 years later: a comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Inj 2001; 15: 189-209.
48. Rosenthal M., Christensen B.K., Ross T.P. Depression following traumatic brain injury. Arch Phys Med Rehabil 1998; 79: 90-103.
49. Kreutzer J.S., Seel R.T., Gourley E. The prevalence and symptom rate of depression after brain injury: a comprehensive examination. Brain Inj 2001; 15: 563-576.
50. Jorge R.E., Robinson R.G., Moser D. i wsp. Major depression following traumatic brain injury. Arch Gen Psychiatry 2004; 61: 42-50.
51. Puzyński S. Choroby afektywne nawracajace. W: Bilikiewicz A., Puzyński S., Rybakowski J. i wsp. [red.]. Psychiatria. Tom II. Psychiatria kliniczna. Urban & Partner, Wrocław 2002, ss. 343-432.
52. Siwiak-Kobayashi M. Zaburzenia lekowe uogólnione i napadowe. W: Bilikiewicz A., Puzyński S., Rybakowski J. i wsp. [red.]. Psychiatria. Tom II. Psychiatria kliniczna. Urban & Partner, Wrocław 2002, ss. 433-453.
53. Rao V., Lyketsos C. Neuropsychiatric sequelae of traumatic brain injury. Psychosomatics 2000; 41: 95-103.
54. Pagulayan K.F., Temkin N.R., Machamer J. i wsp. A longitudinal study of health-related quality of life after traumatic brain injury. Arch Phys Med Rehabil 2006; 87: 611-618.
55. Martin C., Viguier D., Deloche G. i wsp. Subjective experiences after traumatic brain injury. Brain Inj 2001; 15: 947-959.
56. Sopena S., Dewar B.K., Nanery R. i wsp. The European Brain Injury Questionnaire (EBIQ) as a reliable outcome measure for use with people with brain injury. Brain Inj 2007; 21: 1063-1068.
57. Van der Naalt J., van Zomeren A.H., Sluiter W.J. i wsp. One year outcome in mild to moderate head injury: the predictive value of acute injury characteristics related to complaints and return to work. J Neurol Neurosurg Psychiatry 1999; 66: 207-213.
58. Dikmen S.S., Machamer J.E., Powell J. i wsp. Outcome 3 to 5 years after moderate to severe traumatic brain injury. Arch Phys Med Rehabil 2003; 84: 1449-1457.
59. Wood R.L., Rutterford N.A. Psychosocial adjustment 17 years after severe brain injury. J Neurol Neurosurg Psychiatry 2006; 77: 71-73.
60. Ownsworth T., McKenna K. Investigation of factors related to employment outcome followin traumatic brain injury: a critical review and conceptual model. Disabil Rehabil 2004; 26: 765-783.
61. Dijkers M.P. Quality of life after traumatic brain injury: a review of research approaches and findings. Arch Phys Med Rehabil 2004; 85 (4 Suppl 2): S21-35.
62. Marsh N.V., Kersel D.A., Havill J.H. i wsp. Caregiver burden at 1 year following severe traumatic brain injury. Brain Inj 1998; 12: 1045-1059.
63. Kreutzer J.S., Gervasio A.H., Camplair P.S. Primary caregivers' psychological status and family functioning after traumatic brain injury. Brain Inj 1994; 8: 197-210.
64. Ponsford J., Olver J., Ponsford M. i wsp. Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Inj 2003; 17: 453-468.
65. Liss M., Willer B. Traumatic brain injury and marital relationships: a literature review. Int J Rehab Res 1990; 13: 309-320.
66. Kreutzer J.S., Marwitz J.H., Hsu N. i wsp. Marital stability after brain injury: an investigation and analysis. NeuroRehabilitation 2007; 22: 53-59.
67. Anderson M.I., Parmenter T.R., Mok M. The relationships between neurobehavioral problem of severe traumatic brain injury (TBI), family functioning and the psychological well-being of the spouses/caregiver: path model analysis. Brain Inj 2002; 16: 743-757.
68. Testa J.A., Malec J.F., Moessner A.N. i wsp. Predicting family functioning after TBI: impact of neurobehavioral factors. J Head Trauma Rehabil 2006; 21: 236-247.
69. Tazopoulou E., Truelle J., Pierre N. i wsp. Generic and specific measures of quality of life after traumatic brain injury: initial validation of a new specific measure, the QOLBI. Acta Neuropsychol 2005; 3: 13-24.
70. Eriksson G., Tham K., Fugl-Meyer R. Couples' happiness and its relationship to functioning in everyday life after brain injury. Scand J Occup Ther 2005; 12: 40-48.
71. Johansson U., Bernspang B. Life satisfaction related to work re-entry after brain injury: a longitudinal study. Brain Inj 2003; 17: 991-1002.
72. Johnston M.V., Miklos C.S. Activity-related quality of life in rehabilitation and traumatic brain injury. Arch Phys Med Rehabil 2002; 83 (12 Suppl 2): S26-38.
73. Corrigan J.D., Bogner J.A., Mysiw W.J. i wsp. Life satisfaction after traumatic brain injury. J Head Trauma Rehabil 2001; 16: 543-555.
74. Azouvi P., Dufosse I., Mailhan L. i wsp. Life satisfaction after severe traumatic brain injury: inverse relationship with disability. Acta Neuropsychol 2005; 1/2: 25-35.
75. Jumisko E. Striving to become familiar with life with traumatic brain injury. Experiences of people with traumatic brain injury and their close relatives. Doctoral Dissertation. Luea University of Technology. Department of Health Science. Division of Nursing 2007.
76. Sarajuuri J.M., Kaipo M.L., Koskinen S.K. i wsp. Outcome of a comprehensive neurorehabilitation program for patients with traumatic brain injury. Arch Phys Med Rehabil 2005; 86: 2296-2302.
77. Cicerone K.D., Mott T., Azulay J. i wsp. Community integration and satisfaction with functioning after intensive cognitive rehabilitation for traumatic brain injury. Arch Phys Med Rehabil 2004; 85: 943-950.
78. Svendsen H.A., Teasdale T.W. The influence of neuropsychological rehabilitation on symptomatology and quality of life following brain injury: a controlled long-term follow-up. Brain Inj 2006; 20: 1295-1306.
79. Powell J., Heslin J., Greenwood R.J. Community based rehabilitation after severe traumatic brain injury: a randomised controlled trial. J Neurol Neurosurg Psychiatry 2002; 72: 193-202.
80. Chard S.E. Community neurorehabilitation: a synthesis of current evidence and future research directions. NeuroRx 2006; 3: 525-543.
81. Cicerone K.D., Dahlberg C., Malec J.F. i wsp. Evidence-based cognitive rehabilitation: Updated review of the literature from 1998 through 2002. Arch Phys Med Rehabil 2005; 86: 1681-1692.
82. Turner-Stokes L., Disler P.B., Nair A. i wsp. Multi-disciplinary rehabilitation for acquired brain injury in adults of working age. Cochrane Database of Syst Rev 2005; (3): CD004170.