Can clinicians and carers make valid decisions about others' decision-making capacities unless tests of decision-making competence and capacity include emotionality and neurodiversity?

Tizard Learning Disability Review

Volumn 16, Issue 3, 2011, Pages 43-51

  MacKenzie, Robin ^a   Watts, John ^b  

^a UNIVERSITY OF KENT   (United Kingdom)

^b Gatland House CAMHS   (United Kingdom)

Author keywords

Assessing capacity; Carers; Competence; Emotions; Intellectual disability; Mental Capacity Act 2005; Neurodiversity

Indexed keywords

EID: 80055070763     PISSN: 13595474     EISSN: None     Source Type: Journal    
DOI: 10.1108/13595471111158693     Document Type: Article

References (26)

1. Appelbaum, P.S. (1998), "Ought we to require emotional competence as part of decisional competence?", Kennedy Institute of Ethics Journal, Vol. 8 No. 4, pp. 377-87. (Pubitemid 128449392)
2. Appelbaum, P.S. (2007), "Assessment of patients' competence to consent to treatment", The New England Journal of Medicine, Vol. 357 No. 18, pp. 1834-40.
3. Appelbaum, P.S. (2010), "Consent in impaired populations", Current Neurology and Neuroscience Reports, Vol. 10, pp. 367-73.
4. Charland, L.C. (1998), "Appreciation and emotion: theoretical reflections on the MacArthur treatment competence study", Kennedy Institute of Ethics Journal, Vol. 8 No. 4, pp. 359-76.
5. Charland, L.C. (2006), "Anorexia and the MacCAT-T test for mental competence: validity, value, and emotion", Philosophy, Psychiatry, and Psychology, Vol. 13 No. 4, pp. 283-7.
6. Charland, L.C. (2008), "Decision-making capacity", Stanford Encyclopedia of Philosophy, http://plato.stanford.edu/entries/decision-capacity
7. Chow, G.V., Czarny, M.J., Hughes, M.T. and Carrese, J.A. (2010), "CURVES: a mnemonic for determining medical decision making capacity and providing emergency treatment in the acute setting", Chest, Vol. 137 No. 2, pp. 421-7.
8. Dunn, L.B., Nowrangi, M.A., Palmer, B.W., Jeste, D.V. and Saks, E.R. (2006), "Assessing decisional capacity for clinical research or treatment: a review of instruments", American Journal of Psychiatry, Vol. 163 No. 8, pp. 1323-34. (Pubitemid 44464400)
9. Etchells, E., Daizins, P., Silberfeld, M., Singer, P.A., McKenny, J., Naglie, G., Katz, M., Guyatt, G.H., Molloy, W. and Strang, D. (1999), "Assessment of patient capacity to consent to treatment", Journal of General Internal Medicine, Vol. 14, pp. 27-34. (Pubitemid 29056698)
10. General Medical Council (2007), 0-18 Years: Guidance for All Doctors, GMC, London.
11. Grisso, T., Appelbaum, P.S. and Hill-Fotouhi, C. (1997), "The MacCAT-T: a clinical tool to assess patients' capacities to make treatment decisions", Psychiatric Services, Vol. 48 No. 11, pp. 1415-9. (Pubitemid 27465168)
12. Gurrera, R.J., Karel, M.J., Azar, A.R. and Moye, J. (2007), "Agreement between instruments for rating treatment decisional capacity", American Journal of Geriatric Psychiatry, Vol. 15, pp. 168-73.
13. Halpern, T. (2010), "When concretized emotion-belief complexes derail decision-making capacity", Bioethics.
14. Kluge, E.W. (2005), "Competence, capacity and informed consent: beyond the cognitive competence model", Canadian Journal on Aging, Vol. 24 No. 3, pp. 295-304.
15. Mackenzie, R. and Watts, J. (2010), "Injustice and disabilities: the case against the extradition of Gary McKinnon to the United States of America", Tizard Learning Disability Review, Vol. 15 No. 2, pp. 45-51.
16. Mackenzie, R. and Watts, J. (2011a), "Including emotionality in tests of competence and capacity: how does neurodiversity affect measures of free will and agency in medical decision-making?", American Journal of Bioethics Neuroscience, (forthcoming).
17. Mackenzie, R. and Watts, J. (2011b), "Is our legal, healthcare and social support infrastructure neurodiverse enough? How far are the aims of the neurodiversity movement fulfilled for those diagnosed with cognitive disability and learning disability?", Tizard Learning Disability Review, Vol. 16 No. 1, pp. 30-7.
18. Marson, D.C., Ingram, K.K., Cody, H.A. and Harrell, L.E. (1995), "Assessing the competency of patients with Alzheimer's disease under different legal standards: a prototype instrument", Archives of Neurology, Vol. 52, pp. 949-54.
19. Moye, J., Gurrerra, R.J., Karel, M.J., Edelstein, B. and O'Connell, C. (2006), "Empirical advances in the assessment of the capacity to consent to medical treatment: clinical implications and research needs", Clinical Psychology Review, Vol. 26 No. 8, pp. 1054-77. (Pubitemid 46107213)
20. Okai, D., Owen, G., McGuire, H., Singh, S., Churchill, R. and Hotopf, M. (2007), "Mental capacity in psychiatric patients", British Journal of Psychiatry, Vol. 191, pp. 291-7.
21. Raymont, V., Buchanan, A., David, A.S., Hayward, P.,Wessely, S. and Hotopf, M. (2007), "The inter-rater reliability of mental capacity assessments", International Journal of Law and Psychiatry, Vol. 30 No. 2, pp. 112-7. (Pubitemid 46329118)
22. Sturman, E.D. (2005), "The capacity to consent to treatment and research: a review of standardized assessment tools", Clinical Psychology Review, Vol. 25, pp. 954-74. (Pubitemid 41338781)
23. Tan, J.O.A., Hope, T., Stewart, A. and Fitzpatrick, R. (2006), "Competence to make treatment decisions in anorexia nervosa: thinking processes and values", Philosophy, Psychiatry and Psychology, Vol. 13 No. 4, pp. 267-82.
24. van Staden, W. (2009), "Acceptance and insight: incapacity to give informed consent", Current Opinion in Psychiatry, Vol. 22 No. 6, pp. 554-8.
25. Wong, J.G., Clare, I.C.H., Holland, A.J.,Watson, P.C. and Gunn, M. (2000), "The capacity of people with a 'mental disability' to make a health care decision", Psychological Medicine, Vol. 30, pp. 295-306. (Pubitemid 30245793)
26. Yu, F.O.T., Lui, V.W.C., Lam, L.C.W., Chin, H.F.K., Karlawish, J.H.T. and Appelbaum, P.S. (2009), "Assessment of capacity to make financial decision in Chinese psychogeriatric patients: a pilot study", Hong Kong Journal of Psychiatry, Vol. 19, pp. 82-6.