Temporal lobe epilepsy surgery: What do patients want to know?

Epilepsy and Behavior

Volumn 22, Issue 3, 2011, Pages 479-482

  Choi, Hyunmi ^a   Pargeon, Kim ^a   Bausell, Rebecca ^a   Wong, John B ^b   Mendiratta, Anil ^a   Bakken, Suzanne ^a  

^a Columbia University ^*  (United States)

^b TUFTS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Epilepsy surgery; Focus group; Patient decision aid; Shared decision making

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; CONTROLLED STUDY; DECISION SUPPORT SYSTEM; EXPERIENCE; FACTUAL DATABASE; FEMALE; HEALTH CARE NEED; HUMAN; LEARNING; MALE; MEDICAL DECISION MAKING; PATIENT DECISION MAKING; PATIENT INFORMATION; QUALITY OF LIFE; TEMPORAL LOBE EPILEPSY; THEMATIC ANALYSIS; WITNESS;

ADULT; AGED; DECISION MAKING; DECISION SUPPORT TECHNIQUES; EPILEPSY, TEMPORAL LOBE; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; PHYSICIAN SELF-REFERRAL; PILOT PROJECTS; QUALITY OF LIFE;

EID: 80054998713     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2011.07.038     Document Type: Article

References (19)

1. Kwan P., Brodie M.J. Early identification of refractory epilepsy. N Engl J Med 2000, 342:314-319.
2. Semah F., Picot M.C., Adam C., et al. Is the underlying cause of epilepsy a major prognostic factor for recurrence?. Neurology 1998, 51:1256-1262.
3. Engel J., Wiebe S., French J., et al. Practice parameter: temporal lobe and localized neocortical resections for epilepsy: report of the Quality Standards Subcommittee of the American Academy of Neurology, in association with the American Epilepsy Society and the American Association of Neurological Surgeons. Neurology 2003, 60:538-547.
4. Committee on Quality of Health Care in America IoM Crossing the quality chasm: a new health system for the 21st century 2001, Natl. Academy Press, Washington, DC.
5. Braddock C.H., Edwards K.A., Hasenberg N.M., Laidley T.L., Levinson W. Informed decision making in outpatient practice: time to get back to basics. JAMA 1999, 282:2313-2320.
6. O'Connor A.M., Stacey D., Entwistle V., et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev 2003, 2:CD001431.
7. O'Connor A.M., Bennett C., Stacey D., et al. Do patient decision aids meet effectiveness criteria of the international patient decision aid standards collaboration? A systematic review and meta-analysis. Med Decis Making 2007, 27:554-574.
8. O'Connor A.M., Bennett C.L., Stacey D., et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev 2009, 3:CD001431.
9. Whelan T., Levine M., Willan A., et al. Effect of a decision aid on knowledge and treatment decision making for breast cancer surgery: a randomized trial. JAMA 2004, 292:435-441.
10. Green M.J., Peterson S.K., Baker M.W., et al. Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial. JAMA 2004, 292:442-452.
11. Vaughn S.S.J., Sinagub J.M. Focus group interviews in education and psychology 1996, Sage, Thousand Oaks, CA.
12. Swarztrauber K., Dewar S., Engel J. Patient attitudes about treatments for intractable epilepsy. Epilepsy Behav 2003, 4:19-25.
13. Gilliam F., Kuzniecky R., Faught E., Black L., Carpenter G., Schrodt R. Patient-validated content of epilepsy-specific quality-of-life measurement. Epilepsia 1997, 38:233-236.
14. O'Connor A.M., Rostom A., Fiset V., et al. Decision aids for patients facing health treatment or screening decisions: systematic review. Br Med J 1999, 319:731-734.
15. O'Connor A.M., Fiset V., DeGrasse C., et al. Decision aids for patients considering options affecting cancer outcomes: evidence of efficacy and policy implications. J Natl Cancer Inst Monogr 1999, 25:67-80.
16. Garg A.X., Adhikari N.K., McDonald H., et al. Effects of computerized clinical decision support systems on practitioner performance and patient outcomes: a systematic review. JAMA 2005, 293:1223-1238.
17. Elwyn G., Edwards A., Wensing M., Hibbs R., Wilkinson C., Grol R. Shared decision making observed in clinical practice: visual displays of communication sequence and patterns. J Eval Clin Pract 2001, 7:211-221.
18. Stevenson F.A. General practitioners' views on shared decision making: a qualitative analysis. Patient Educ Couns 2003, 50:291-293.
19. Weston W.W. Informed and shared decision-making: the crux of patient-centered care. Can Med Assoc J 2001, 165:438-439.