Ethical issues in genetics

Journal of Paediatrics and Child Health

Volumn 47, Issue 9, 2011, Pages 668-671

  Wilcken, Bridget ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

CHILD ADVOCACY; CHILD SAFETY; CLINICAL GENETICS; CONFIDENTIALITY; DIAGNOSTIC TEST; DIRECT TO CONSUMER TESTING; GENE SEQUENCE; GENETIC COUNSELING; GENETIC SCREENING; GENETIC SELECTION; HEALTH CARE ACCESS; HEALTH CARE COST; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL ETHICS; NEWBORN SCREENING; PRENATAL SCREENING; PRIORITY JOURNAL; REPRODUCTION; REVIEW; SIBLING;

CONFIDENTIALITY; FEMALE; GENETIC SERVICES; GENETIC TECHNIQUES; GENETICS, MEDICAL; HEALTH SERVICES ACCESSIBILITY; HUMANS; INFANT, NEWBORN; NEONATAL SCREENING; PREGNANCY; PRENATAL DIAGNOSIS;

EID: 80053512775     PISSN: 10344810     EISSN: 14401754     Source Type: Journal    
DOI: 10.1111/j.1440-1754.2011.02168.x     Document Type: Review

References (26)

1. Suzuki D, Knudtson P,. Genethics: The Clash between the New Genetics and Human Values. Cambridge, MA: Harvard University Press, 1989.
2. Beauchamp T, Childress J,. Principles of Biomedical Ethics, 4th edn. New York: Oxford University Press, 1994.
3. Tsai DF,. Ancient Chinese medical ethics and the four principles of biomedicalethics. J. Med. Ethics 1999; 25: 315-21. (Pubitemid 29373969)
4. Parker M, Lucassen AM,. Genetic information: a joint account? BMJ 2004; 329: 165-7. (Pubitemid 38951764)
5. PHG foundation: Australian Guidance on genetics and patient confidentiality. 2010. Avalaible from: [accessed 18 January 2011].
6. Klitzman R,. Exclusion of genetic information from the medical record: ethical and medical dilemmas. JAMA 2010; 304: 1120-21.
7. Insurance and Financial Services Association. Policies. Avalaible from: [accessed 18 January 2011].
8. Roze E, Bonnet C, Betuing S, Caboche J,. Huntington's disease. Adv. Exp. Med. Biol. 2010; 685: 45-63.
9. Levy-Lahad E, Friedman E,. Cancer risks among BRCA1 and BRCA2 carriers. Br. J. Cancer 2007; 96: 11-5. (Pubitemid 46094632)
10. Duncan RE, Savulescu J, Gillam L, Williamson R, Delatycki MB,. An international survey of predictive genetic testing in children for adult onset conditions. Genet. Med. 2005; 7: 390-6. (Pubitemid 41139622)
11. Malpas PJ,. Why tell asymptomatic children of the risk of an adult-onset disease in the family but not test them for it? J. Med. Ethics 2006; 32: 639-42. (Pubitemid 44782036)
12. Suvalescu J,. Predictive genetic testing in children. Med. J. Aust. 2001; 175: 379-81.
13. Cervinski MA, Tsongais GJ,. Direct-to-consumer genotyping: are we ready for a brave new world? Clin. Chem. 2010; 56: 1056-60.
14. Udesky L,. The ethics of direct-to-consumer genetic testing. Lancet 2010; 376: 1377-8.
15. Robins Wahlin TB, Bäckman L, Lundin A, Haegermark A, Winblad B, Anvret M,. High suicidal ideation in persons testing for Huntington's disease. Acta Neurol. Scand. 2000; 102: 150-61. (Pubitemid 30648831)
16. US Government Accountability Office. Direct-To-Consumer Genetic Tests: Misleading Test Results Are Further Complicated by Deceptive Marketing and Other Questionable Practices GAO-10-847T July 22, 2010. Avalaible from: [accessed 18 January 2011].
17. Human Genetics Society of Australasia. Polices and Guidelines [online]. Avalaible from: [accessed 18 January 2011].
18. Hedayat KM, Shooshtarizadeh P, Raza M,. Therapeutic abortion in Islam: contemporary views of Muslim Shiite scholars and effect of recent Iranian legislation. J. Med. Ethics 2006; 32: 652-7. (Pubitemid 44782038)
19. Marteau TM, Chitty LS,. Sex selection: triumph or tyranny? Prenat. Diagn. 2006; 26: 597. (Pubitemid 44146772)
20. Sheldon S, Wilkinson S,. Should selecting saviour siblings be banned? J. Med. Ethics 2004; 30: 533-7. (Pubitemid 40029054)
21. Baldwin T,. Understanding the opposition. Prenat. Diagn. 2006; 26: 637-45. (Pubitemid 44146780)
22. Wilcken B,. Ethical issues in newborn screening and the impact of new technologies. Eur. J. Pediatr. 2003; 162: S62-S66. (Pubitemid 38064749)
23. Connock M, Burls A, Frew E, et al,. The clinical effectiveness and cost-effectiveness of enzyme replacement therapy for Gaucher's disease: a systematic review. Health Technol. Assess. 2006; 10: iii-iv, ix- 136.
24. Pollitt RJ,. Introducing new screens: why are we all doing different things? J. Inherit. Metab. Dis. 2007; 30: 423-9. (Pubitemid 47377037)
25. Kemper AR, Knapp AA, Green NS, Comeau AM, Metterville DR, Perrin JM,. Weighing the evidence for newborn screening for early-infantile Krabbe disease. Genet. Med. 2010; 12: 39-43.
26. Ormond KE, Wheeler MT, Hudgins L, et al,. Challenges in the clinical application of whole-genome sequencing. Lancet 2010; 375: 1749-51.