Exclusion of genetic information from the medical record: Ethical and medical dilemmas

JAMA

Volumn 304, Issue 10, 2010, Pages 1120-1121

  Klitzman, Robert ^a  

^a Och Spine at New York Presbyterian Hospitals   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL DECISION MAKING; ELECTRONIC MEDICAL RECORD; GENE IDENTIFICATION; GENETIC SCREENING; HEALTH CARE SYSTEM; HEALTH INSURANCE; MEDICAL ETHICS; MEDICAL INFORMATION; NOTE; PATIENT ATTITUDE; PATIENT COUNSELING; PHYSICIAN ATTITUDE; PRACTICE GUIDELINE; PRIORITY JOURNAL; ARTICLE; DECISION MAKING; ETHICS; GENETIC PRIVACY; HEALTH CARE POLICY; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL RECORD; PHYSICIAN; SOCIAL PSYCHOLOGY; STANDARD; UNITED STATES;

DECISION MAKING; GENETIC PRIVACY; GENETIC TESTING; HEALTH CARE REFORM; HUMANS; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; PHYSICIANS; PREJUDICE; TRUTH DISCLOSURE; UNITED STATES;

EID: 77956406569     PISSN: 00987484     EISSN: 15383598     Source Type: Journal    
DOI: 10.1001/jama.2010.1303     Document Type: Note

References (10)

1. Taylor S, Treloar S, Barlow-Stewart K, Stranger M, Otlowski M. Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients. Clin Genet. 2008;74(1):20-30. (Pubitemid 351833815)
2. Hall MA, Rich SS. Laws restricting health insurers' use of genetic information: impact on genetic discrimination. Am J Hum Genet. 2000;66(1):293-307.
3. Klitzman R. Views of discrimination among individuals confronting genetic disease. J Genet Couns. 2010;19(1):68-83.
4. Klitzman R, Thorne D, Williamson J, Chung W, Marder K. Disclosures of Huntington disease risk within families: patterns of decision-making and implications. Am J Med Genet. 2007;143A(16):1835-1849.
5. American Medical Association. Code of medical ethics, opinion 2.135: insurance companies and genetic information. http://www.ama-assn.org/ama/pub/ physician-resources/medical-ethics/code-medical-ethics/opinion2135.shtml. Accessed April 1, 2010.
6. Geppert CMA, Weiss Roberts L. Protecting patient confidentiality in primary care. Semin Med Pract. 2000;3(1):7-14.
7. Denbo SM. What your genes know affects them: should patient confidentiality prevent disclosure of genetic test results to a patient's biological relatives? Am Bus Law J. 2006;43:561-607. doi:10.1111/j.1744-1714. 2006.00025.x.
8. Freeman VG, Rathore SS, Weinfurt KP, Schulman KA, Sulmasy DP. Lying for patients: physician deception of third-party payers. Arch Intern Med. 1999;159(19):2263-2270.
9. Wideroff L, Freedman AN, Olson L, et al. Physician use of genetic testing for cancer susceptibility: results of a national survey. Cancer Epidemiol Biomarkers Prev. 2003;12(4):295-303. (Pubitemid 36427989)
10. Siegler M. Sounding boards: confidentiality in medicine - a decrepit concept. N Engl J Med. 1982;307(24):1518-1521.