메뉴 건너뛰기




Volumn 17, Issue 6, 2011, Pages 473-477

The use of a cystic fibrosis patient registry to assess outcomes and improve cystic fibrosis care in Germany

Author keywords

benchmarking; cystic fibrosis; outcome research; patient registry; quality improvement

Indexed keywords

BODY HEIGHT; BODY MASS; BODY WEIGHT; CYSTIC FIBROSIS; DISEASE REGISTRY; GERMANY; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HUMAN; LUNG FUNCTION; MORTALITY; NUTRITIONAL STATUS; OUTCOME ASSESSMENT; PATIENT CARE; PSEUDOMONAS INFECTION; QUALITY OF LIFE; REVIEW; SURVIVAL RATE; TOTAL QUALITY MANAGEMENT;

EID: 80053360266     PISSN: 10705287     EISSN: 15316971     Source Type: Journal    
DOI: 10.1097/MCP.0b013e32834b6b72     Document Type: Review
Times cited : (15)

References (30)
  • 1
    • 0023923679 scopus 로고
    • A comparison of survival, growth, and pulmonary function in patients with cystic fibrosis in Boston and Toronto
    • Corey M, McLaughlin FJ, Williams M, Levison H. A comparison of survival, growth, and pulmonary function in patients with cystic fibrosis in Boston and Toronto. J Clin Epidemiol 1988; 41:583-591.
    • (1988) J Clin Epidemiol , vol.41 , pp. 583-591
    • Corey, M.1    McLaughlin, F.J.2    Williams, M.3    Levison, H.4
  • 2
    • 25144516833 scopus 로고    scopus 로고
    • Improving subspecialty healthcare: Lessons from cystic fibrosis
    • DOI 10.1016/j.jpeds.2005.03.044, PII S0022347605002581
    • Schechter MS, Margolis P. Improving subspecialty healthcare: lessons from cystic fibrosis. J Pediatr 2005; 147:295-301. (Pubitemid 41345756)
    • (2005) Journal of Pediatrics , vol.147 , Issue.3 , pp. 295-301
    • Schechter, M.S.1    Margolis, P.2
  • 3
    • 34247522808 scopus 로고    scopus 로고
    • Current Issues in Quality Improvement in Cystic Fibrosis
    • DOI 10.1016/j.ccm.2007.02.013, PII S0272523107000275
    • Quinton HB, OConnor GT; for the Northern New England CV Cystic Fibrosis Consortium. Current issues in quality improvement in cystic fibrosis. Clin Chest Med 2007; 28:459-472. (Pubitemid 46654483)
    • (2007) Clinics in Chest Medicine , vol.28 , Issue.2 , pp. 459-472
    • Quinton, H.B.1    O'Connor, G.T.2
  • 4
    • 45849099155 scopus 로고    scopus 로고
    • From registry to quality management: The German Cystic Fibrosis Quality Assessment Project 1995-2006
    • on behalf of the German Cystic Fibrosis Quality AssessmentGroup
    • Stern M, Wiedemann B, Wenzlaff P; on behalf of the German Cystic Fibrosis Quality AssessmentGroup. From registry to quality management: the German Cystic Fibrosis Quality Assessment Project 1995-2006. Eur Respir J 2008; 31:29-35.
    • (2008) Eur Respir J , vol.31 , pp. 29-35
    • Stern, M.1    Wiedemann, B.2    Wenzlaff, P.3
  • 5
    • 78649647554 scopus 로고    scopus 로고
    • Trends in the use of routine therapies in cystic fibrosis 1995-2005
    • for the Scientific Advisory Group and Investigators and Coordinators of the Epidemiology Study of Cystic Fibrosis
    • Konstan MW, VanDevanter DR, Rasouliyan L, et al.; for the Scientific Advisory Group and Investigators and Coordinators of the Epidemiology Study of Cystic Fibrosis. Trends in the use of routine therapies in cystic fibrosis: 1995-2005. Pediatr Pulmonol 2010; 45:1167-1172.
    • (2010) Pediatr Pulmonol , vol.45 , pp. 1167-1172
    • Konstan, M.W.1    Vandevanter, D.R.2    Rasouliyan, L.3
  • 6
    • 77952420292 scopus 로고    scopus 로고
    • Improving the quality of care for patients with cystic fibrosis
    • Schechter MS, Gutierrez HH. Improving the quality of care for patients with cystic fibrosis. Curr Opin Pediatr 2010; 22:296-301.
    • (2010) Curr Opin Pediatr , vol.22 , pp. 296-301
    • Schechter, M.S.1    Gutierrez, H.H.2
  • 7
    • 67649792041 scopus 로고    scopus 로고
    • An overview of international literature from Cystic Fibrosis Registries. 1: Mortality and survival studies in cystic fibrosis
    • Buzzetti R, Salvatore D, Baldo E, et al. An overview of international literature from Cystic Fibrosis Registries. 1: Mortality and survival studies in cystic fibrosis. J Cyst Fibros 2009; 8:229-237.
    • (2009) J Cyst Fibros , Issue.8 , pp. 229-237
    • Buzzetti, R.1    Salvatore, D.2    Baldo, E.3
  • 8
    • 77949728437 scopus 로고    scopus 로고
    • Comparative demographics of the European Cystic Fibrosis Population: A cross-sectional database analysis
    • McCormick J, Mehta G, Olesen HV, et al. Comparative demographics of the European Cystic Fibrosis Population: a cross-sectional database analysis. Lancet 2010; 375:1007-1013.
    • (2010) Lancet , vol.375 , pp. 1007-1013
    • McCormick, J.1    Mehta, G.2    Olesen, H.V.3
  • 9
    • 78649904844 scopus 로고    scopus 로고
    • The European Cystic Fibrosis Patient Registry: The power of sharing data
    • Sheppard BN. The European Cystic Fibrosis Patient Registry: the power of sharing data. J Cyst Fibros 2010; 9:S1-S2.
    • (2010) J Cyst Fibros , vol.9
    • Sheppard, B.N.1
  • 10
    • 78649908972 scopus 로고    scopus 로고
    • On behalf of the European Registry Working Group. Cystic Fibrosis across Europe: EuroCareCF analysis of demographic data from 35 countries
    • Mehta G, Macek M Jr, Metha A, On behalf of the European Registry Working Group. Cystic Fibrosis across Europe: EuroCareCF analysis of demographic data from 35 countries. J Cyst Fibros 2010; 9:S5-S21.
    • (2010) J Cyst Fibros , vol.9
    • Mehta, G.1    Macek Jr., M.2    Metha, A.3
  • 13
    • 75549089811 scopus 로고    scopus 로고
    • Do specialized centers and specialists produce better outcomes for patients with chronic diseases than primary care generalists? A systemic review
    • Post PN, Wittenberg J, Burgers JS. Do specialized centers and specialists produce better outcomes for patients with chronic diseases than primary care generalists? A systemic review. Int J Qual Healthcare 2009; 21:387-396.
    • (2009) Int J Qual Healthcare , vol.21 , pp. 387-396
    • Post, P.N.1    Wittenberg, J.2    Burgers, J.S.3
  • 14
    • 67949092933 scopus 로고    scopus 로고
    • Quality improvement in your CF Centre: Taking care of care
    • Tiddens H. Quality improvement in your CF Centre: taking care of care. J Cyst Fibros 2009; 8 (Suppl 1):S2-S5.
    • (2009) J Cyst Fibros , vol.8 , Issue.SUPPL. 1
    • Tiddens, H.1
  • 15
    • 60449108922 scopus 로고    scopus 로고
    • Differences in prevalence and treatment of Pseudomonas aeruginosa in cystic fibrosis centres in Denmark, Norway and Sweden
    • Knudsen PK, Olesen HV, Hiby N, et al. Differences in prevalence and treatment of Pseudomonas aeruginosa in cystic fibrosis centres in Denmark, Norway and Sweden. J Cyst Fibros 2009; 8:135-142.
    • (2009) J Cyst Fibros , vol.8 , pp. 135-142
    • Knudsen, P.K.1    Olesen, H.V.2    Hiby, N.3
  • 16
    • 34447109141 scopus 로고    scopus 로고
    • Evaluation of body mass index percentiles for assessment of malnutrition in children with cystic fibrosis
    • DOI 10.1038/sj.ejcn.1602582, PII 1602582
    • Wiedemann B, Paul KD, Stern M, et al., on behalf of the German CFQA Group. Evaluation of body mass index percentiles for assessment of malnutrition in children with cystic fibrosis. Eur J Clin Nutr 2007; 61:759-768. (Pubitemid 47232356)
    • (2007) European Journal of Clinical Nutrition , vol.61 , Issue.6 , pp. 759-768
    • Wiedemann, B.1    Paul, K.D.2    Stern, M.3    Wagner, T.O.4    Hirche, T.O.5
  • 17
    • 73449113631 scopus 로고    scopus 로고
    • Measuring and improving respiratory outcomes in cystic fibrosis lung disease: Opportunities and challenges to therapy
    • Zemanick ET, Harris JK, Conway S, et al. Measuring and improving respiratory outcomes in cystic fibrosis lung disease: opportunities and challenges to therapy. J Cyst Fibros 2010; 9:1-16.
    • (2010) J Cyst Fibros , vol.9 , pp. 1-16
    • Zemanick, E.T.1    Harris, J.K.2    Conway, S.3
  • 18
    • 77953913894 scopus 로고    scopus 로고
    • Year-to-year changes in lung functions in individuals with cystic fibrosis
    • Liou TG, Elkin EP, Pasta EJ, et al. Year-to-year changes in lung functions in individuals with cystic fibrosis. J Cyst Fibros 2010; 9:250-256.
    • (2010) J Cyst Fibros , vol.9 , pp. 250-256
    • Liou, T.G.1    Elkin, E.P.2    Pasta, E.J.3
  • 19
    • 77956925970 scopus 로고    scopus 로고
    • Design and powering of cystic fibrosis clinical trials using rate of FEV1 decline as an efficacy endpoint
    • Konstan MW, Wagener JS, Yegin A, et al. Design and powering of cystic fibrosis clinical trials using rate of FEV1 decline as an efficacy endpoint. J Cyst Fibros 2010; 9:332-338.
    • (2010) J Cyst Fibros , vol.9 , pp. 332-338
    • Konstan, M.W.1    Wagener, J.S.2    Yegin, A.3
  • 21
    • 58349096675 scopus 로고    scopus 로고
    • Can health-related quality of life predict survival in adults with cystic fibrosis?
    • Abbott J, Hart A, Morton AM, et al. Can health-related quality of life predict survival in adults with cystic fibrosis? Am J Respir Crit Care Med 2009; 179:54-58.
    • (2009) Am J Respir Crit Care Med , vol.179 , pp. 54-58
    • Abbott, J.1    Hart, A.2    Morton, A.M.3
  • 22
    • 72549116378 scopus 로고    scopus 로고
    • Health-related quality of life in children with cystic fibrosis: Validation of the German CFQ-R
    • doi:10.1186/1477-7525-7-97
    • Schmidt A, Wenninger K, Niemann N, et al. Health-related quality of life in children with cystic fibrosis: validation of the German CFQ-R. Health Qual Life Outcomes 2009; 7:97. doi:10.1186/1477-7525-7-97.
    • (2009) Health Qual Life Outcomes , vol.7 , pp. 97
    • Schmidt, A.1    Wenninger, K.2    Niemann, N.3
  • 23
    • 70350452924 scopus 로고    scopus 로고
    • Improving care at cystic fibrosis centers through quality improvement
    • Kraynack NC, McBride JT. Improving care at cystic fibrosis centers through quality improvement. Respir Crit Care Med 2009; 30:547-558.
    • (2009) Respir Crit Care Med , vol.30 , pp. 547-558
    • Kraynack, N.C.1    McBride, J.T.2
  • 24
    • 77958060913 scopus 로고    scopus 로고
    • Improving evidence-based care in cystic fibrosis through quality improvement
    • 25
    • McPhail GL, Weiland J, Acton JD, et al. Improving evidence-based care in cystic fibrosis through quality improvement. Arch Pediatr Adolesc Med 2010; 164:957-960. 25
    • (2010) Arch Pediatr Adolesc Med , vol.164 , pp. 957-960
    • McPhail, G.L.1    Weiland, J.2    Acton, J.D.3
  • 25
    • 75449094832 scopus 로고    scopus 로고
    • Using quality improvement science to implement a multidisciplinary behavioral intervention targeting pediatric inpatient airway clearance
    • 26
    • Ernst MM, Wooldridge JL, Conway E, et al. Using quality improvement science to implement a multidisciplinary behavioral intervention targeting pediatric inpatient airway clearance. J Pediatr Psychol 2010; 35: 14-24. 26
    • (2010) J Pediatr Psychol , vol.35 , pp. 14-24
    • Ernst, M.M.1    Wooldridge, J.L.2    Conway, E.3
  • 26
    • 75449095654 scopus 로고    scopus 로고
    • Description of a standardized nutrition classification plan and its relation to nutritional outcomes in children with cystic fibrosis
    • Leonard A, Davis E, Rosenstein BJ, et al. Description of a standardized nutrition classification plan and its relation to nutritional outcomes in children with cystic fibrosis. J Pediatr Psychol 2010; 35:6-13.
    • (2010) J Pediatr Psychol , vol.35 , pp. 6-13
    • Leonard, A.1    Davis, E.2    Rosenstein, B.J.3
  • 27
    • 78650478310 scopus 로고    scopus 로고
    • Effects of an intensive behavior and nutrition intervention compared to standard of care on weight outcomes in CF
    • Stark LJ, Opipari-Arrigan L, Quittner AL, et al. Effects of an intensive behavior and nutrition intervention compared to standard of care on weight outcomes in CF. Pediatr Pulmonol 2011; 46:31-35.
    • (2011) Pediatr Pulmonol , vol.46 , pp. 31-35
    • Stark, L.J.1    Opipari-Arrigan, L.2    Quittner, A.L.3
  • 29
    • 79960727918 scopus 로고    scopus 로고
    • Benchmarking in der Versorgung von Mukoviszidose-Patienten/innen -Ein etabliertes Instrument zur Verbesserung der Patientenversorgung
    • (in press)
    • Niemann N, Wenzlaff P, Stern M. Benchmarking in der Versorgung von Mukoviszidose-Patienten/innen -Ein etabliertes Instrument zur Verbesserung der Patientenversorgung. German J Evidence Quality Healthcare 2011 (in press).
    • (2011) German J Evidence Quality Healthcare
    • Niemann, N.1    Wenzlaff, P.2    Stern, M.3
  • 30
    • 79956146266 scopus 로고    scopus 로고
    • Benchmarking improves quality in cystic fibrosis care: A Pilot Project involving 12 Centres
    • on behalf of the German CFQA Group doi: 10.1093/intqhc/mzr017
    • Stern M, Niemann N, Wiedemann B, Wenzlaff P; on behalf of the German CFQA Group. Benchmarking improves quality in cystic fibrosis care: a Pilot Project involving 12 Centres. Int J Qual Healthcare 2011; 23:349-356. doi: 10.1093/intqhc/mzr017.
    • (2011) Int J Qual Healthcare , vol.23 , pp. 349-356
    • Stern, M.1    Niemann, N.2    Wiedemann, B.3    Wenzlaff, P.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.