The European cystic fibrosis patient registry: The power of sharing data

Journal of Cystic Fibrosis

Volumn 9, Issue SUPPL. 2, 2010, Pages S1-

  Sheppard, David N ^a  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL RESEARCH; CYSTIC FIBROSIS; DISEASE REGISTRY; EDITORIAL; EUROPEAN UNION; HEALTH CARE SYSTEM; MEDICAL EDUCATION; PATIENT CARE; PUBLIC HEALTH; WORKSHOP;

EID: 78649904844     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2010.08.018     Document Type: Editorial

References (10)

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7. Mehta G., Macek M., Mehta A. European Registry Working Group. Cystic fibrosis across Europe: EuroCareCF analysis of demographic data from 35 countries. J Cyst Fibros 2010, 9:S5-S21. (this issue).
8. Fahy N. Commentary. J Cyst Fibros 2010, 9:S3-S4. (this issue).
9. McCormick J., Mehta G., Olesen H.V., Viviani L., Macek M., Mehta A. Comparative demographics of the European cystic fibrosis population: a cross-sectional database analysis. Lancet 2010, 375:1007-1013. European Registry Working Group.
10. De Boeck K., Bulteel V., Tiddens H., et al. Guideline on the design and conduct of CF clinical trials: the European Cystic Fibrosis Society Clinical Trial Network (ECFS-CTN). J Cyst Fibros 2010, (Second EuroCareCF Supplement).