메뉴 건너뛰기




Volumn 6, Issue 3, 2011, Pages 19-30

Protecting participants, promoting progress: Public perspectives on community advisory boards (CABs) in biobanking

Author keywords

Biobanking; Community advisory boards; Public perspectives

Indexed keywords

ATTITUDE TO HEALTH; CONFIDENTIALITY; CONSUMER; ETHICS; HEALTH CARE FACILITY; HUMAN; MOTIVATION; NUCLEIC ACID DATABASE; PROFESSIONAL STANDARD; PUBLIC OPINION; RESEARCH ETHICS; REVIEW; UNITED STATES;

EID: 80053156727     PISSN: 15562646     EISSN: 15562654     Source Type: Journal    
DOI: 10.1525/jer.2011.6.3.19     Document Type: Review
Times cited : (13)

References (45)
  • 2
    • 0015012388 scopus 로고
    • Community advisory boards and maximum feasible participation
    • BRIELAND, D. (1971). Community advisory boards and maximum feasible participation. American Journal of Public Health, 61(2), 292-296.
    • (1971) American Journal of Public Health , vol.61 , Issue.2 , pp. 292-296
    • Brieland, D.1
  • 3
    • 33845354052 scopus 로고    scopus 로고
    • Trends in ethical and legal frameworks for the use of human biobanks
    • DOI 10.1183/09031936.00165006
    • CAMBON-THOMSEN, A., RIAL-SEBBAG, E., & KNOPPERS, B. M. (2007). Trends in ethical and legal frameworks for the use of human biobanks. European Respiratory Journal, 30(2), 373-382. (Pubitemid 47194191)
    • (2007) European Respiratory Journal , vol.30 , Issue.2 , pp. 373-382
    • Cambon-Thomsen, A.1    Rial-Sebbag, E.2    Knoppers, B.M.3
  • 5
  • 6
    • 67650024627 scopus 로고    scopus 로고
    • Washington, DC: Sponsored by National Institute of Allergy and Infectious Diseases NIAID, Division of AIDS DAIDS. Retrieved from
    • Cross-Cab Working Group. (2005). Defining best practices for community representation involvement in HIV clinical research networks. Washington, DC: Sponsored by National Institute of Allergy and Infectious Diseases (NIAID), Division of AIDS (DAIDS). Retrieved from http://www.hptn.org/web%20documents/ CommunityProgram/Cross-CabMeeting/DBPforCommunityMay6-82005Report.pdf.
    • (2005) Defining Best Practices for Community Representation Involvement in HIV Clinical Research Networks
  • 8
    • 33745596413 scopus 로고    scopus 로고
    • Consent and anonymization in research involving biobanks: Differing terms and norms present serious barriers to an international framework
    • DOI 10.1038/sj.embor.7400740, PII 7400740
    • ELGER, B. S. & CAPLAN, A. L. (2006). Consent and anonymization in research involving biobanks: Differing terms and norms present serious barriers to an international framework. EMBO Reports, 7(7), 661-666. (Pubitemid 43986258)
    • (2006) EMBO Reports , vol.7 , Issue.7 , pp. 661-666
    • Elger, B.S.1    Caplan, A.L.2
  • 11
    • 79956066390 scopus 로고    scopus 로고
    • Patient perspectives on group benefits and harms in genetic research
    • GOLDENBERG, A. J., HULL, S. C., WILFOND, B. S., & SHARP, R. R. (2011). Patient perspectives on group benefits and harms in genetic research. Public Health Genomics, 14(3), 135-142.
    • (2011) Public Health Genomics , vol.14 , Issue.3 , pp. 135-142
    • Goldenberg, A.J.1    Hull, S.C.2    Wilfond, B.S.3    Sharp, R.R.4
  • 12
    • 77951641631 scopus 로고    scopus 로고
    • Research ethics: An investigation of patients' motivations for their participation in genetics-related research
    • HALLOWELL, N., COOKE, S., CRAWFORD, G., LUCASSEN, A., PARKER, M., & SNOWDON, C. (2010). Research ethics: An investigation of patients' motivations for their participation in genetics-related research. Journal of Medical Ethics, 36(1), 37-45.
    • (2010) Journal of Medical Ethics , vol.36 , Issue.1 , pp. 37-45
    • Hallowell, N.1    Cooke, S.2    Crawford, G.3    Lucassen, A.4    Parker, M.5    Snowdon, C.6
  • 13
    • 34548297542 scopus 로고    scopus 로고
    • Community engagement: Participation on whose terms?
    • HEAD, B. W. (2007). Community engagement: Participation on whose terms? Australian Journal of Political Science, 42(3), 441-454.
    • (2007) Australian Journal of Political Science , vol.42 , Issue.3 , pp. 441-454
    • Head, B.W.1
  • 15
    • 77956341799 scopus 로고    scopus 로고
    • Donors perceptions of consent to and feedback from biobank research: Time to acknowledge diversity?
    • HOEYER, K. (2010). Donors perceptions of consent to and feedback from biobank research: Time to acknowledge diversity? Public Health Genomics, 13(6), 345-352.
    • (2010) Public Health Genomics , vol.13 , Issue.6 , pp. 345-352
    • Hoeyer, K.1
  • 17
    • 40149099045 scopus 로고    scopus 로고
    • Offering results to research subjects: U. S. institutional review board policy
    • KOZANCZYN, C., COLLINS, K., & FERNANDEZ, C. V. (2007). Offering results to research subjects: U. S. institutional review board policy. Accountability in Research, 14(4), 255-267.
    • (2007) Accountability in Research , vol.14 , Issue.4 , pp. 255-267
    • Kozanczyn, C.1    Collins, K.2    Fernandez, C.V.3
  • 19
    • 0347275939 scopus 로고    scopus 로고
    • Broadening participation in community problem solving: A multidisciplinary model to support collaborative practice and research
    • DOI 10.1093/jurban/jtg014
    • LASKER, R. D. & WEISS, E. S. (2003). Broadening participation in community problem solving: A multidisciplinary model to support collaborative practice and research. Journal of Urban Health, 80(1), 14-60. (Pubitemid 37486153)
    • (2003) Journal of Urban Health , vol.80 , Issue.1 , pp. 14-60
    • Lasker, R.D.1    Weiss, E.S.2    Baker, Q.E.3    Collier, A.K.4    Israel, B.A.5    Plough, A.6    Bruner, C.7
  • 20
    • 77955660006 scopus 로고    scopus 로고
    • Public and biobank participant attitudes toward genetic research participation and data sharing
    • LEMKE, A. A., WOLF, W. A., HEBERT-BEIRNE, J., & SMITH, M. E. (2010). Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics, 13(6), 368-377.
    • (2010) Public Health Genomics , vol.13 , Issue.6 , pp. 368-377
    • Lemke, A.A.1    Wolf, W.A.2    Hebert-Beirne, J.3    Smith, M.E.4
  • 21
    • 0141675032 scopus 로고    scopus 로고
    • Public consultation in bioethics. What's the point of asking the public when they have neither scientific nor ethical expertise?
    • DOI 10.1023/A:1025381828650
    • LEVITT, M. (2003). Public consultation in bioethics: What's the point of consulting the public when they have neither scientific nor ethical expertise? Health Care Analysis, 11(1), 15-25. (Pubitemid 37129583)
    • (2003) Health Care Analysis , vol.11 , Issue.1 , pp. 15-25
    • Levitt, M.1
  • 22
    • 77954826175 scopus 로고    scopus 로고
    • In the public interest: Assessing expert and stakeholder influence in public deliberation about biobanks
    • MACLEAN, S. & BURGESS, M. M. (2010). In the public interest: Assessing expert and stakeholder influence in public deliberation about biobanks. Public Understanding of Science, 19(4), 486-496.
    • (2010) Public Understanding of Science , vol.19 , Issue.4 , pp. 486-496
    • Maclean, S.1    Burgess, M.M.2
  • 25
    • 84857905955 scopus 로고    scopus 로고
    • Retrieved January 10, 2011 from
    • Mayo Foundation for Medical Education and Research. (2011). Mayo Clinic Biobank: Governing the biobank. Retrieved January 10, 2011 from http://mayoresearch.mayo.edu/biobank/biobank-governing.cfm.
    • (2011) Mayo Clinic Biobank: Governing the Biobank
  • 29
    • 0024051319 scopus 로고
    • Community consultation in socially sensitive research: Lessons from clinical trials of treatments for AIDS
    • MELTON, G. B., LEVINE, R. J., KOOCHER, G. P., ROSENTHAL, R., & THOMPSON, W. C. (1988). Community consultation in socially sensitive research: Lessons from clinical trials of treatments for AIDS. American Psychologist, 43(7), 573-581.
    • (1988) American Psychologist , vol.43 , Issue.7 , pp. 573-581
    • Melton, G.B.1    Levine, R.J.2    Koocher, G.P.3    Rosenthal, R.4    Thompson, W.C.5
  • 30
    • 84857908574 scopus 로고    scopus 로고
    • Retrieved January 10, 2011 from
    • Michigan Department of Community Health (MDCH). Michigan BioTrust for health-Advisory boards (2001-2011). Retrieved January 10, 2011 from http://www.michigan. gov/mdch/0, 1607, 7-132-2942-4911-4916-244424-, 00.html.
    • Michigan BioTrust for Health-advisory Boards (2001-2011)
  • 33
    • 67449097690 scopus 로고    scopus 로고
    • Engaging the public on biobanks: Outcomes of the BC biobank deliberation
    • O'DOHERTY, K. C. & BURGESS, M. M. (2009). Engaging the public on biobanks: Outcomes of the BC biobank deliberation. Public Health Genomics, 12(4), 203-215.
    • (2009) Public Health Genomics , vol.12 , Issue.4 , pp. 203-215
    • O'Doherty, K.C.1    Burgess, M.M.2
  • 34
    • 77951473507 scopus 로고    scopus 로고
    • Structuring public engagement for effective input in policy development on human tissue biobanking
    • O'DOHERTY, K. C. & HAWKINS, A. (2010). Structuring public engagement for effective input in policy development on human tissue biobanking. Public Health Genomics, 13(4), 197-206.
    • (2010) Public Health Genomics , vol.13 , Issue.4 , pp. 197-206
    • O'Doherty, K.C.1    Hawkins, A.2
  • 35
    • 2542444547 scopus 로고    scopus 로고
    • Protecting human subjects: The role of community advisory boards
    • QUINN, S. C. (2004). Ethics in public health research: Protecting human subjects-The role of community advisory boards. American Journal of Public Health, 94(6), 918-922. (Pubitemid 38691533)
    • (2004) American Journal of Public Health , vol.94 , Issue.6 , pp. 918-922
    • Quinn, S.C.1
  • 37
    • 22944436146 scopus 로고    scopus 로고
    • Biobanks and bioethics: The politics of legitimation
    • DOI 10.1080/13501760500160623
    • SALTER, B. & JONES, M. (2005). Biobanks and bioethics: The politics of legitimation. Journal of European Public Policy, 12(4), 710-732. (Pubitemid 41053338)
    • (2005) Journal of European Public Policy , vol.12 , Issue.4 , pp. 710-732
    • Salter, B.1    Jones, D.M.2
  • 38
    • 67650077579 scopus 로고    scopus 로고
    • Challenges of establishing a community advisory board (CAB) in a low-income, low-resource setting: Experiences from Bagamoyo, Tanzania
    • SHUBIS, K., JUMA, O., SHARIFU, R., BURGESS, B., & ABDULLA, S. (2009). Challenges of establishing a community advisory board (CAB) in a low-income, low-resource setting: Experiences from Bagamoyo, Tanzania. Health Research Policy and Systems, 7(1), 16.
    • (2009) Health Research Policy and Systems , vol.7 , Issue.1 , pp. 16
    • Shubis, K.1    Juma, O.2    Sharifu, R.3    Burgess, B.4    Abdulla, S.5
  • 40
    • 85035320097 scopus 로고    scopus 로고
    • Biobanking: Social, political and ethical aspects
    • John Wiley & Sons, Ltd
    • TUTTON, R. (2010). Biobanking: Social, political and ethical aspects. In Encyclopedia of Life Sciences. John Wiley & Sons, Ltd.
    • (2010) Encyclopedia of Life Sciences
    • Tutton, R.1
  • 43
    • 32644450117 scopus 로고    scopus 로고
    • Community-based participatory research in practice-based research networks
    • DOI 10.1370/afm.511
    • WESTFALL, J. M., VANVORST, R. F., MAIN, D. S., & HERBERT, C. (2006). Community-based participatory research in practicebased research networks. Annals of Family Medicine, 4(1), 8-14. (Pubitemid 43243907)
    • (2006) Annals of Family Medicine , vol.4 , Issue.1 , pp. 8-14
    • Westfall, J.M.1    VanVorst, R.F.2    Main, D.S.3    Herbert, C.4
  • 44
    • 0141679157 scopus 로고    scopus 로고
    • The charitable trust as a model for genomic biobanks
    • DOI 10.1056/NEJMsb030036
    • WINICKOFF, D. E. & WINICKOFF, R. N. (2003). The charitable trust as a model for genomic biobanks. New England Journal of Medicine, 349(12), 1180-1184. (Pubitemid 37122332)
    • (2003) New England Journal of Medicine , vol.349 , Issue.12 , pp. 1180-1184
    • Winickoff, D.E.1    Winickoff, R.N.2
  • 45
    • 70349523756 scopus 로고    scopus 로고
    • IRB chairs' perspectives on genomics research involving stored biological materials: Ethical concerns and proposed solutions
    • WOLF, L. E., CATANIA, J. A., DOLCINI, M. M., POLLACK, L. M., & LO, B. (2008). IRB chairs' perspectives on genomics research involving stored biological materials: Ethical concerns and proposed solutions. Journal of Empirical Research on Human Research Ethics, 3(4), 99-111.
    • (2008) Journal of Empirical Research on Human Research Ethics , vol.3 , Issue.4 , pp. 99-111
    • Wolf, L.E.1    Catania, J.A.2    Dolcini, M.M.3    Pollack, L.M.4    Lo, B.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.