Participatory design for computerization of clinical practice guidelines

Journal of Biomedical Informatics

Volumn 44, Issue 5, 2011, Pages 909-918

  Lyng, K M ^a   Pedersen, B S ^b,c  

^a UNIVERSITY OF COPENHAGEN   (Denmark)

^b IT UNIVERSITY OF COPENHAGEN   (Denmark)

^c Corporate IT ^*  (Denmark)

Author keywords

Computerization of clinical practice guidelines; Participatory design; Requirement specification; Software design

Indexed keywords

CLINICAL PRACTICE GUIDELINES; CLINICAL WORK; DESIGN METHOD; DESIGN PHILOSOPHY; GENERAL APPLICATIONS; HEALTH PROFESSIONALS; PARTICIPATORY DESIGN; POTENTIAL BENEFITS; REQUIREMENT SPECIFICATION;

HEALTH CARE;

SOFTWARE DESIGN;

AUTOMATION; AWARENESS; HEALTH CARE PERSONNEL; HEALTH CARE SYSTEM; INTENSIVE CARE; METHODOLOGY; PHILOSOPHY; POLITICS; PRACTICE GUIDELINE; PRIORITY JOURNAL; REVIEW;

COMPUTING METHODOLOGIES; HUMANS; PRACTICE GUIDELINES AS TOPIC; QUALITY OF HEALTH CARE;

EID: 80052935762     PISSN: 15320464     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jbi.2011.05.005     Document Type: Review

References (73)

1. Committee on Quality of Health Care in America. Crossing the Quality Chasm: A New Health System for the 21st century. Washington, DC: National Academy Press; 2001.
2. Berg M., Schellekens W., Bergen C. Bridging the quality chasm: integrating professional and organizational approaches to quality. Int J Qual Health Care 2005, 17(1):75-82.
3. Hillestad R., Bigelow J., Bower A., Girosi F., Meili R., Scoville R., et al. Can electronic medical record systems transform health care? Potential health benefits, savings, and costs. Health Aff (Millwood) 2005, 24(5):1103-1117.
4. Field M.J., Lohr K.N. Guidelines for clinical practice: from development to use 1992, Institute of Medicine.
5. Mintzberg H. The professional bureaucracy in Structure in fives - Designing effective organizations. Englewood Cliffs NJ 07632: Prentice Hall; 1983. p. 189-213.
6. Cabana M.D., Rand C.S., Powe N.R., Wu A.W., Wilson M.H., Abboud P.A., et al. Why don't physicians follow clinical practice guidelines? A framework for improvement. Jama 1999, 282(15):1458-1465.
7. Weisz G., Cambrosio A., Keating P., Knaapen L., Schlich T., Tournay V.J. The emergence of clinical practice guidelines. Milbank Q 2007, 85(4):691-727.
8. Turner T., Misso M., Harris C., Green S. Development of evidence-based clinical practice guidelines (CPGs): comparing approaches. Implement Sci 2008, 3(1):45.
9. TheJointCommission. [last accessed october 2009]. http://wwwjointcommissionorg/.
10. Grol R. Implementation of changes in practice. in Improving patient care: the implementation of change in clinical practice. In: Grol R, Wensing M, Eccles M. (Eds.). Edingburgh: Elsevier; 2005.
11. Farmer AP, Legare F, Turcot L, Grimshaw J, Harvey E, McGowan JL, et al. Printed educational materials: effects on professional practice and health care outcomes. Cochrane Database Syst Rev. 2008(3):CD004398.
12. Lenz R., Reichert M. IT support for healthcare processes - premises, challenges, perspectives. Data Knowl Eng 2007, 61(1):39-58.
13. Cummings M. Automation bias in intelligent time critical decision support systems. American Institute of Aeronautics and Astronautics, vol. 1. Cambridge: Massachusetts Institute of Technology; 2004. p. 1-6.
14. Isern D., Moreno A. Computer-based execution of clinical guidelines: a review. Int J Med Inform 2008, 77(12):787-808.
15. de Clercq P., Kaiser K., Hasman A. Computer-interpretable guideline formalisms. Stud Health Technol Inform 2008, 139:22-43.
16. Bates D.W., Cohen M., Leape L.L., Overhage J.M., Shabot M.M., Sheridan T. Reducing the frequency of errors in medicine using information technology. J Am Med Inform Assoc 2001, 8(4):299-308.
17. Kawamoto K., Houlihan C.A., Balas E.A., Lobach D.F. Improving clinical practice using clinical decision support systems: a systematic review of trials to identify features critical to success. Bmj 2005, 330(7494):765.
18. Quaglini S, Ciccarese P, Micieli G, Cavallini C. Non-compliance with guidelines: motivation and consequences in a case study. Computer-based support for clinical guidelines and protocols; 2004. p. 75-87.
19. Mulyar N., Pesic M., van der Aalst W.M.P., Peleg M. Declarative and procedural approaches for modelling clinical guidelines: addressing flexibility issues. Book Ser Lect Notes Comput Sci 2008, 4928:335-346.
20. Russell N, ter Hofstede AHM, van der Aalst WMP, Mulyar N. Workflow control-flow patterns: a revised view. Report no.: BPM center report BPM-06-22; 2006.
21. Shiffman R.N., Michel G., Essaihi A., Thornquist E. Bridging the guideline implementation gap: a systematic, document-centered approach to guideline implementation. J Am Med Inform Assoc 2004, 11(5):418-426.
22. Quaglini S., Ciccarese P. Models for guideline representation. Neurol Sci 2006, 27(Suppl. 3):S240-S244.
23. Berg M., Aarts J., van der Lei J. ICT in health care: sociotechnical approaches. Methods Inf Med 2003, 42(4):297-301.
24. Grol R., Wensing M., Eccles M. Improving patient care - the implementation of Change in clinical practice 2005, Elsevier.
25. Bates D.W., Gawande A.A. Improving safety with information technology. N Engl J Med 2003, 348(25):2526-2534.
26. Bødker K., Kensing F., Simonsen J. Participatory it design: designing for business and workplace realities 2004, MIT Press.
27. Fox J., Black E., Chronakis I., Dunlop R., Patkar V., South M., et al. From guidelines to careflows: modelling and supporting complex clinical processes. Stud Health Technol Inform 2008, 139:44-62.
28. Kaplan B., Shaw N.T. Future directions in evaluation research: people, organizational, and social issues. Methods Inf Med 2004, 43(3):215-231.
29. Pratt W., Reddy M.C., McDonald D.W., Tarczy-Hornoch P., Gennari J.H. Incorporating ideas from computer-supported cooperative work. J Biomed Inform 2004, 37(2):128-137.
30. Ash J.S., Sittig D.F., Dykstra R.H., Guappone K., Carpenter J.D., Seshadri V. Categorizing the unintended sociotechnical consequences of computerized provider order entry. Int J Med Inform 2007, 76(Suppl. 1):S21-S27. Epub 2006 Jun 21.
31. Pilemalm S., Timpka T. Third generation participatory design in health informatics - making user participation applicable to large-scale information system projects. J Biomed Inform 2008, 41(2):327-339. Epub 2007 Oct 1.
32. Scandurra I., Hägglund M., Koch S. From user needs to system specifications: multi-disciplinary thematic seminars as a collaborative design method for development of health information systems. J Biomed Inform 2008, 41(4):557-569.
33. Eriksen MA, Linde P. Design impulses: artefacts, contexts and modes of activities. Working papers in art and design, vol. 4. 2006.
34. Kanstrup A.M., Nohr C. Gaming against medical errors: methods and results from a design game on CPOE. Stud Health Technol Inform 2009, 148:188-196.
35. Nygaard K. Program development as a social activity. In: Proceedings from the IFIP 10th world computer congress, Dublin, Ireland; 1986. p. 189-98.
36. Kensing F., Blomberg J. Participatory design: issues and concerns. Comput Support Coop Work 1998, 7(3-4):167-185.
37. Granlien M.S. Participation and evaluation in the design of healthcare work systems 2010, Roskilde University, Roskilde.
38. Jenkings K.N., Wilson R.G. The challenge of electronic health records (EHRs) design and implementation: responses of health workers to drawing a 'big and rich picture' of a future EHR programme using animated tools. Inform Prim Care 2007, 15(2):93-101.
39. Kensing F, Sigurdardottir H, Stoop A. MUST - a participatory method for designing sustainable health IT. (0926-9630 (Print)).
40. Tørpel B. Participatory design: a multi-voiced effort. In: Proceedings of the 4th decennial conference on Critical computing: between sense and sensibility. Aarhus, Denmark: ACM; 2005.
41. Arnstein S.R. A ladder of citizen participation. J Am Inst Planners 1969, 35(4):216-224.
42. Vimarlund V., Eriksson H., Timpka T. Economic motives to use a participatory design approach in the development of public-health information systems. Stud Health Technol Inform 2001, 84(Pt 1):768-772.
43. Kushniruk A.W., Patel V.L. Cognitive and usability engineering methods for the evaluation of clinical information systems. J Biomed Inform 2004, 37(1):56-76.
44. Beyer H., Holtzblatt K. Contextual design: defining customer-centered systems 1997, Morgan Kaufmann Publishers Inc.
45. Oxman A.D., Schunemann H.J., Fretheim A. Improving the use of research evidence in guideline development: 2. Priority setting. Health Res Policy Syst 2006, 4(14):14.
46. DePaula R. Lost in translation: a critical analysis of actors, artifacts, agendas, and arenas in participatory design. In: Proceedings of the eighth conference on participatory design: artful integration: interweaving media, materials and practices, vol. 1. Toronto, Ontario, Canada: ACM; 2004.
47. Lyng K.M. From clinical practice guidelines, to clinical guidance in practice-implications for design of computerized guidance. Stud Health Technol Inform 2010, 157:169-175.
48. Clemensen J., Larsen S.B., Kyng M., Kirkevold M. Participatory design in health sciences: using cooperative experimental methods in developing health services and computer technology. Qual Health Res 2007, 17(1):122-130.
49. Kensing F., Simonsen J., Bødker K. MUST: a method for participatory design. Human-Comput Interact 1998, 13(2):167-198.
50. Jaspers M.W., Steen T., van den Bos C., Geenen M. The think aloud method: a guide to user interface design. Int J Med Inform 2004 Nov, 73(11-12):781-795.
51. Cederman_Haysom T. A participatory design approach in the engineering of ubiquitous computing systems. PhD thesis; 2009. p. 1-298.
52. Simonsen J. Sustained participatory design and implementation of ITHC. Stud Health Technol Inform 2010, 157:18-21.
53. Dearden A, Rizvi H. Participatory design and participatory development: a comparative review. Sheffield Hallam University Research Archive; 2008.
54. European_Resuscitation_Council. ERC guidelines; 2005. http://www.erc.edu/index.php/guidelines_download_2005/en/.
55. Pedersen B.S., Jeberg K.A., Koerner C., Balslev C., Andersen P.O., Jensen M.K., et al. IT for advanced life support in hospitals. Stud Health Technol Inform 2009, 143:429-434.
56. Keating P., Cambrosio A. Cancer clinical trials: the emergence and development of a new style of practice. Bull Hist Med 2007, 81(1):197-223.
57. Lyng KM. Guiding artifacts in clinical practice - implications for computerization. Int J Med Inform, submitted for publication.
58. Strauss A., Corbin J. Basics of qualitative research - techniques and procedures for developing grounded theory 1998, SAGE publications.
59. Lyng K.M., Hildebrandt T., Mukkamala R.R. From paper based clinical practice guidelines to declarative workflow management. Lect Notes Bus Inform Process 2009, 17:336-347.
60. Heath C, Luff P. Documents and professional practice: /“bad/” organisational reasons for /“good/” clinical records. In: Proceedings of the 1996 ACM conference on Computer supported cooperative work. Boston, Massachusetts, United States: ACM; 1996.
61. Reddy M., Pratt W., Dourish P., Shabot M.M. Sociotechnical requirements analysis for clinical systems. Methods Inf Med 2003, 42(4):437-444.
62. Bødker S, Christiansen E. Designing for ephemerality and prototypicality. In: Proceedings of the 5th conference on designing interactive systems: processes, practices, methods, and techniques. Cambridge, MA, USA: ACM; 2004.
63. Bates D.W., Kuperman G.J., Wang S., Gandhi T., Kittler A., Volk L., et al. Ten commandments for effective clinical decision support: making the practice of evidence-based medicine a reality. J Am Med Inform Assoc 2003, 10(6):523-530.
64. Hevner A.R. A three cycle view of design science research. Scand J Inf Syst 2007, 19(2):87-92.
65. Kujala S. User involvement: a review of the benefits and challenges. Behav Inform Technol 2003, 22(1):1-16.
66. Burgers JS, Grol R, Eccles M. Clinical guidelines as a tool for implementing change in patient care in improving patient care - the implementation of change in clinical practice edited by Grol, Wensing & Eccles; 2005.
67. Quaglini S. Compliance with clinical practice guidelines. Stud Health Technol Inform 2008, 139:160-179.
68. Dufour JC, Bouvenot J, Ambrosi P, Fieschi D, Fieschi M. Textual guidelines versus computable guidelines: a comparative study in the framework of the PRESGUID project in order to appreciate the impact of guideline format on physician compliance. AMIA Annu Symp Proc; 2006. p. 219-23.
69. Lenz R., Blaser R., Beyer M., Heger O., Biber C., Baumlein M., et al. IT support for clinical pathways - lessons learned. Int J Med Inform 2007, 76(Suppl. 3):S397-S402. Epub 2007 Jun 12.
70. Greiner L.E., Schein V.E. Power and organization development 1988, Addison-Wesley.
71. Steen M, Kuijt-Evers L, Klok J. Early user involvement in research and design projects - a review of methods and practices. In: Proceedings of the 23re EGOS colloquium (European Group for Organizational Studies); 2007.
72. van Kleef E., van Trijp H.C.M., Luning P. Consumer research in the early stages of new product development: a critical review of methods and techniques. Food Quality Preference 2005, 16(3):181-201.
73. Goud R., Hasman A., Strijbis A.M., Peek N. A parallel guideline development and formalization strategy to improve the quality of clinical practice guidelines. Int J Med Inform 2009 Aug, 78(8):513-520.