Who is the key worker in palliative home care?

Scandinavian Journal of Primary Health Care

Volumn 29, Issue 3, 2011, Pages 150-156

  Brogaard, Trine ^a   Jensen, Anders Bonde ^b   Sokolowski, Ineta ^a   Olesen, Frede ^a   Neergaard, Mette Asbjørn ^b  

^a AARHUS UNIVERSITY   (Denmark)

^b AARHUS UNIVERSITY HOSPITAL   (Denmark)

Author keywords

Denmark; organisation and administration; palliative care; patient care; primary health care

Indexed keywords

ADULT; ARTICLE; CAREGIVER; COMMUNITY HEALTH NURSING; DENMARK; DOCTOR PATIENT RELATION; FEMALE; GENERAL PRACTICE; HOME CARE; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; MALE; MANPOWER; NEOPLASM; NURSING; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PATIENT CARE; PRACTICE GUIDELINE; QUESTIONNAIRE; ROLE PLAYING; TERMINAL CARE;

ADULT; CAREGIVERS; COMMUNICATION; COMMUNITY HEALTH NURSING; CONTINUITY OF PATIENT CARE; DENMARK; FEMALE; GENERAL PRACTICE; HOME CARE SERVICES; HUMANS; MALE; NEOPLASMS; PALLIATIVE CARE; PHYSICIAN-PATIENT RELATIONS; PRACTICE GUIDELINES AS TOPIC; PROFESSIONAL-PATIENT RELATIONS; QUESTIONNAIRES; ROLE; TERMINAL CARE;

EID: 80052760929     PISSN: 02813432     EISSN: 15027724     Source Type: Journal    
DOI: 10.3109/02813432.2011.603282     Document Type: Conference Paper

References (29)

1. Borgsteede SD, Deliens L, van der Wal G, Francke AL, Stalman WA, van Eijk JT. Interdisciplinary cooperation of GPs in palliative care at home: A nationwide survey in the Netherlands. Scand J Prim Health Care 2007;25:226-31. (Pubitemid 350182381)
2. Murray SA, Kendall M, Boyd K, Grant L, Highet G, Sheikh A. Archetypal trajectories of social, psychological, and spiritual wellbeing and distress in family care givers of patients with lung cancer: Secondary analysis of serial qualitative interviews. BMJ 2010;340:c2581.
3. Johnsen AT, Petersen MA, Pedersen L, Groenvold M. Symptoms and problems in a nationally representative sample of advanced cancer patients. Palliat Med 2009;23: 491-501.
4. Neergaard MA, Vedsted P, Olesen F, Sokolowski I, Jensen AB, Sondergaard J. Associations between successful palliative trajectories, place of death and GP involvement. Scand J Prim Health Care 2010;28:138-45.
5. Preston C, Cheater F, Baker R, Hearnshaw H. Left in limbo: Patients' views on care across the primary/secondary interface. Qual Health Care 1999;8:16-21. (Pubitemid 29161507)
6. Nielsen JD. Shared care between family physicians and a department of oncology. Do cancer patients benefi t?-A randomized controlled trial. Thesis, Faculty of Health Sciences, University of Aarhus; 2001.
7. Neergaard MA, Olesen F, Jensen AB, Sondergaard J. Palliative care for cancer patients in a primary health care setting: Bereaved relatives' experience, a qualitative group interview study. BMC Palliat Care 2008;7:1.
8. Neergaard MA. Palliative home care for cancer patients in Denmark-with a particular focus on the primary care sector, GPs and community nurses. Aarhus: Faculty of Health Sciences, Aarhus University. Research Unit and Department of General Practice; 2009.
9. Field D. Special not different: General practitioners' accounts of their care of dying people. Soc Sci Med 1998;46: 1111-20. (Pubitemid 28149529)
10. Hanratty B, Hibbert D, Mair F, May C, Ward C, Capewell S et al. Doctors' perceptions of palliative care for heart failure: Focus group study. BMJ 2002;325:581-5. (Pubitemid 35026135)
11. National Institute for Clinical Excellence. Supportive and palliative care: The Manual. London: NICE; 2004.
12. Boyd KJ, Worth A, Kendall M, Pratt R, Hockley J, Denvir M, et al. Making sure services deliver for people with advanced heart failure: A longitudinal qualitative study of patients, family carers, and health professionals. Palliat Med 2009;23:767-76.
13. Danish National Board of Health [Sundhedsstyrelsen]. Pakkeforløb på Kraeftområdet [National Integrated Cancer Pathways] [updated 2009; cited 2010 oct 9] Available from http://www.sst.dk/English/ cancer%20pathways.aspx; 2009.
14. Danish College of General Practitioners. Palliation i Primaersektoren [Palliative Care in The Primary Sector] (in Danish). Copenhagen: Danish College of General Practitioners; 2004.
15. Groenvold M, Petersen MA, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A, et al. The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care. Eur J Cancer 2006;42: 55-64. (Pubitemid 41818953)
16. Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977;33:159-74. (Pubitemid 8054849)
17. Stata Statistical Software: Release 11.0. College Station, TX: Statacorp LP; 2009.
18. Suarez-Del-Real Y, Allende-Perez S, Alferez-Mancera A, Rodriguez RB, Jimenez-Toxtle S, Mohar A, et al. Validation of the Mexican-Spanish version of the EORTC QLQC15- PAL questionnaire for the evaluation of health-related quality of life in patients on palliative care. Psychooncology 2011;20:889-896.
19. Robinson L, Stacy R. Palliative care in the community: Setting practice guidelines for primary care teams. Br J Gen Pract 1994;44:461-4. (Pubitemid 24317937)
20. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284:2476-82.
21. Mitchell GK. How well do general practitioners deliver palliative care? A systematic review. Palliat Med 2002;16: 457-64. (Pubitemid 35386003)
22. Chan R, Webster J. End-of-life care pathways for improving outcomes in caring for the dying. Cochrane Database Syst Rev 2010;CD008006.
23. Mikkelsen TH, Soendergaard J, Jensen AB, Olesen F. Cancer surviving patients' rehabilitation: Understanding failure through application of theoretical perspectives from Habermas. BMC Health Serv Res 2008;8:122.
24. Aabom B, Pfeiffer P. Why are some patients in treatment for advanced cancer reluctant to consult their GP? Scand J Prim Health Care 2009;27:58-62.
25. Neergaard MA, Olesen F, Jensen AB, Sondergaard J. Shared care in basic level palliative home care: Organizational and interpersonal challenges. J Palliat Med 2010;13: 1071-7.
26. Groenvold M, Pedersen C, Jensen CR, Faber MT, Johnsen AT. Kraeftpatientens verden-En undersøgelse af hvad danske kraeftpatienter har brug for [Cancer patients' world-a study of the needs of Danish cancer patients] (in Danish). Copenhagen: Danish Cancer Society; 2006.
27. King N, Thomas K, Martin N, Bell D, Farrell S. "Now nobody falls through the net": Practitioners' perspectives on the Gold Standards Framework for community palliative care. Palliat Med 2005;19:619-27. (Pubitemid 43125340)
28. Borgsteede SD, Graafl and-Riedstra C, Deliens L, Francke AL, van Eijk JT, Willems DL. Good end-of-life care according to patients and their GPs. Br J Gen Pract 2006;56:20-6. (Pubitemid 43072203)
29. Groot MM, Vernooij-Dassen MJ, Crul BJ, Grol RP. General practitioners (GPs) and palliative care: Perceived tasks and barriers in daily practice. Palliat Med 2005;19:111-18. (Pubitemid 40443693)