Young people learning to live with inflammatory bowel disease: Working with an "unclosed" diary

Qualitative Health Research

Volumn 21, Issue 10, 2011, Pages 1360-1370

  Sargeant, Sally ^a   Gross, Harriet ^b  

^a KEELE UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF LINCOLN   (United Kingdom)

Author keywords

adolescents; diaries; illness and disease, experiences; journals; narrative inquiry; psychosocial issues; research, qualitative; youth

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILD PSYCHOLOGY; ENTERITIS; FEMALE; HUMAN; INFORMATION PROCESSING; LONGITUDINAL STUDY; MALE; MEDICAL RECORD; METHODOLOGY; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; SENSORY FEEDBACK; UNITED KINGDOM;

ADOLESCENT; ADOLESCENT PSYCHOLOGY; CHILD; DATA COLLECTION; FEEDBACK, SENSORY; FEMALE; GREAT BRITAIN; HUMANS; INFLAMMATORY BOWEL DISEASES; LONGITUDINAL STUDIES; MALE; MEDICAL RECORDS;

EID: 80052730572     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732311407211     Document Type: Article

References (41)

1. Baumgart D., Carding S.. Inflammatory bowel disease: Causes and immunobiology. Lancet. 2007 ; 369 (9573). 1627-1640 (Pubitemid 46722636)
2. Bradley C., Speight J.. Patient perceptions of diabetes and diabetes therapy: Assessing quality of life. Diabetes Metabolism Research and Reviews. 2002 ; 18 (3). S64 - S69
3. Brydolf M., Segesten K.. Living with ulcerative colitis: Experiences of adolescents and young adults. Journal of Advanced Nursing. 1996a ; 23: 39-47 (Pubitemid 126438658)
4. Brydolf M., Segesten K.. "They feel your needs in the air": Experiences of supportive activities among adolescents with ulcerative colitis. Journal of Pediatric Nursing. 1996b ; 11 (1). 71-78
5. Bryman A. Social research methods. Oxford, UK: Oxford University Press ; 2001 :
6. Bytheway B., Johnson J. Researching ageing and later life. Jamieson A. Victor C., ed. Buckingham, UK: Open University Press ; 2002: 156-174.
7. Casati J., Toner B., de Rooy E., Drossman D., Maunder R.. Concerns of patients with inflammatory bowel disease: A review of emerging themes. Digestive Diseases and Sciences. 2000 ; 45 (1). 26-31 (Pubitemid 30111683)
8. Crohn's and Colitis UK. (2010). Inflammatory bowel disease basics. Retrieved from http://www.nacc.org.uk/content/ibd.asp
9. Decker J. W.. The effects of inflammatory bowel disease on adolescents. Gastroenterology Nursing. 2000 ; 23 (2). 63-66
10. Drossman D., Leserman J., Li Z., Mitchell C., Zagami E., Patrick D. (1991). The rating form of IBD patient concerns: A new measure of health status. Psychosomatic Medicine, 53, 701-712. Retrieved from http://www. psychosomaticmedicine.org/cgi/reprint/53/6/701
11. Drossman D.A. (1998). Presidential address: Gastrointestinal illness and the biopsychosocial model. Psychosomatic Medicine, 60(3), 258-267. Retrieved from http://www.psychosomaticmedicine.org/cgi/reprint/60/3/258 (Pubitemid 28279969)
12. Egerod I., Christensen D.. A comparative study of ICU patient diaries vs. hospital charts. Qualitative Health Research. 2010 ; 22: 1446-1456
13. Elliott H. (1997). The use of diaries in sociological research on health experience. Sociological Research Online, 2(2). Retrieved from http://www.socresonline.org.uk/2/2/7.html
14. Ferry G.D. (1999). Quality of life in inflammatory bowel disease: Background and definitions. Journal of Pediatric Gastroenterology and Nutrition, 28(4), S15-S18. Retrieved from http://journals.lww.com/jpgn/Fulltext/1999/ 04001/ (Pubitemid 30349261)
15. Finan P., Zautra A., Tennen H.. Daily diaries reveal influence of pessimism and anxiety on pain prediction patterns. Psychology and Health. 2008 ; 23: 551-567
16. Grinyer A. Cancer in young adults: Through parents' eyes. Milton Keynes, UK: Open University Press ; 2003 :
17. Gross H., Pattison H.. Cognitive failure during pregnancy. Journal of Reproductive and Infant Psychology. 1995 ; 13 (1). 17-32
18. Habermas T., Bluck S.. Getting a life: The emer-gence of the life story in adolescence. Psychological Bulletin. 2000 ; 126: 748-769
19. Hanauer S.. Inflammatory bowel disease: Epidemiology, pathogenesis and therapeutic opportunities. Inflammatory Bowel Diseases. 2006 ; 12 (5). S3 - S9
20. Harré R., van Langenhove L.. Varieties of positioning. Journal for the Theory of Social Behaviour. 1991 ; 21: 393-407
21. Hislop J., Arber S., Meadows R., Venn S. (2005). Narratives of the night: The use of audio diaries in researching sleep. Sociological Research Online, 10(4). Retrieved from http://www.socresonline.org.uk/10/4/hislop.html
22. Holstein J. A., Gubrium J. F. Qualitative research: Theory, method and practice. Silverman D., ed. London: Sage ; 1997: 113-129.
23. Ironside P. M., Scheckel M., Wessels C., Bailey M. E., Powers S., Seeley D. K.. Experiencing chronic illness: Co-creating new understandings. Qualitative Health Research. 2003 ; 13: 171-183 (Pubitemid 44534788)
24. Johnson J., Bytheway B.. An evaluation of the use of diaries in a study of medication in later life. International Journal of Social Research Methodology. 2001 ; 4: 183-204
25. Jokinen E.. The makings of mother in diary narratives. Qualitative Inquiry. 2004 ; 10 (3). 339-359
26. Jones R.. "Older people" talking as if they are not older people: Positioning theory as an explanation. Journal of Aging Studies. 2006 ; 20: 79-91 (Pubitemid 43055575)
27. Kelly M. P.. Coping with an ileostomy. Social Science and Medicine. 1991 ; 33: 115-125
28. Lichtenstein G. R., Bala M., Han C., DeWoody K., Schaible T.. Infliximab improves quality of life in patients with Crohn's disease. Inflammatory Bowel Diseases. 2002 ; 8: 237-243 (Pubitemid 34784975)
29. McMillan C. V., Honeyford R. J., Datta J., Madge N., Bradley C.. The development of a new measure of quality of life for young people with diabetes mellitus: The ADDQoL-Teen. Health and Quality of Life Outcomes. 2004 ; 2: 61
30. Milligan C., Bingley A., Gatrell A.. Digging deep: Using diary techniques to explore the place of health and wellbeing among older people. Social Science and Medicine. 2005 ; 61: 1882-1892 (Pubitemid 41112290)
31. Montez J. K., Karner T. X.. Understanding the diabetic body. Qualitative Health Research. 2005 ; 15: 1086-1104
32. Moran Ellis J., Venn S. (2007). The sleeping lives of children and teenagers: Night-worlds and arenas of action. Sociological Research Online, 12(5). Retrieved from http://www.socresonline.org.uk/12/5/9.html
33. Niva M.. All foods affect health: Understandings of functional foods and healthy eating among health-oriented Finns. Appetite. 2007 ; 48: 384-393 (Pubitemid 46413411)
34. Plummer K. Documents of life. London: Allen & Unwin ; 1983 :
35. Radley A.. Pity, modernity and the spectacle of suffering. Journal of Palliative Care. 2004 ; 20 (3). 179-184 (Pubitemid 39297165)
36. Radley A., Billig M.. Accounts of health and illness: Dilemmas and representations. Sociology of Health and Illness. 1996 ; 18 (2). 220-240
37. Sargeant S., Gross H., Middleton D. (2005). Public conveniences private matters: Retrospective narration of adolescent daily life with inflammatory bowel disease. In KellyN.HorrocksC.MilnesK.RobertsB.RobinsonD. (Eds.), Narrative, memory and everyday life (pp. 143-152). Huddersfield, UK: University of Huddersfield. Retrieved from http://www2.hud.ac.uk/hhs/nme/books/2005/
38. Smith G., Watson R., Palmer K.. Inflammatory bowel disease: Developing a short disease specific scale to measure health related quality of life. International Journal of Nursing Studies. 2002 ; 39: 583-590 (Pubitemid 40433351)
39. Stone A., Shiffman S., Schwarz J., Broderick J., Hufford M.. Patients' non-compliance with paper diaries. British Medical Journal. 2002 ; 324: 1193-1194
40. Ussher J., Kirsten L., Butow P., Sandoval M.. What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Social Science and Medicine. 2006 ; 62: 2565-2576
41. van Raaij J. M. A., Schonk C. M., Vermaat-Miedema S. H., Peek M. E. M. (1990). Energy cost of physical activity throughout pregnancy and the first year postpartum in Dutch women with sedentary lifestyles. American Journal of Clinical Nutrition, 52, 234-239. Retrieved from http://www.ajcn.org/content/52/ 2/234