Down syndrome: Issues to consider in a national registry, research database and biobank

Molecular Genetics and Metabolism

Volumn 104, Issue 1-2, 2011, Pages 10-12

  McCabe, Linda L ^a,b   McCabe, Edward R B ^a,b  

^a UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^b Nutrition Obesity Research Center at the University of Colorado   (United States)

Author keywords

Biobank; Database; Down syndrome; Registry

Indexed keywords

COMPUTER PROGRAM; CONFIDENTIALITY; DATA BASE; DISEASE REGISTRY; DOWN SYNDROME; FUNDING; GOVERNMENT; HEALTH CARE COST; HEALTH CARE FACILITY; HEALTH SERVICE; HUMAN; MEDICAL INFORMATION; MEDICAL RESEARCH; NON INSULIN DEPENDENT DIABETES MELLITUS; NOTE; PEER REVIEW; PRIORITY JOURNAL; PRIVACY; QUALITY CONTROL; QUALITY OF LIFE; SCHIZOPHRENIA; TREATMENT OUTCOME;

BIOLOGICAL SPECIMEN BANKS; BIOMEDICAL RESEARCH; DATABASES AS TOPIC; DOWN SYNDROME; HUMANS; REGISTRIES; UNITED STATES;

EID: 80052542458     PISSN: 10967192     EISSN: 10967206     Source Type: Journal    
DOI: 10.1016/j.ymgme.2011.03.018     Document Type: Note

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