China's first rare-disease registry is under development

The Lancet

Volumn 378, Issue 9793, 2011, Pages 769-770

  Zhang, Yan Jun ^a,b   Wang, Yi Ou ^c   Li, Liang ^d   Guo, Jeff J ^a   Wang, Jing Bo ^e  

^a UNIVERSITY OF CINCINNATI ACADEMIC HEALTH CENTER   (United States)

^b BRISTOL MYERS SQUIBB   (United States)

^c China Dolls Care and Support Association   (China)

^d SOUTHERN MEDICAL UNIVERSITY   (China)

^e 309TH HOSPITAL OF PLA   (China)

Author keywords

[No Author keywords available]

Indexed keywords

CHINA; DISEASE REGISTRY; DRUG RESEARCH; HUMAN; INFORMATION DISSEMINATION; INTERNET; LAW; LETTER; MEDICAL SOCIETY; OSTEOGENESIS IMPERFECTA; PRIORITY JOURNAL; RARE DISEASE; RARE DISEASE REGISTRY;

EID: 80052190250     PISSN: 01406736     EISSN: 1474547X     Source Type: Journal    
DOI: 10.1016/S0140-6736(11)61375-5     Document Type: Letter

References (4)

1. CB Forrest, RJ Bartek, Y Rubinstein, SC Groft The case for a global rare-diseases registry Lancet 377 2011 1057 1059
2. JB Wang, JJ Guo, L Yang, YD Zhang, ZQ Sun, YJ Zhang Rare diseases and legislation in China Lancet 375 2010 708 709
3. B Hughes Evolving R&D for emerging markets Nat Rev Drug Discov 9 2010 417 420
4. J Qi, Q Wang, Z Yu, X Chen, F Wang Innovative drug R&D in China Nat Rev Drug Discov 10 2011 333 334