Living with juvenile arthritis: Adolescents' challenges and experiences

Journal of Pediatric Health Care

Volumn 25, Issue 5, 2011, Pages 302-307

  Secor Turner, Molly ^a   Scal, Peter ^b   Garwick, Ann ^a   Horvath, Keith ^b   Wells, Courtney Kellerman ^b  

^a UNIVERSITY OF MINNESOTA   (United States)

^b UNIVERSITY OF MINNESOTA   (United States)

Author keywords

Adolescent; Juvenile arthritis; Qualitative research; Transition

Indexed keywords

ADOLESCENT; ADULT; ARTHRITIS; ARTICLE; FEMALE; HUMAN; INFORMATION PROCESSING; MALE; PSYCHOLOGICAL ASPECT;

ADOLESCENT; ADULT; ARTHRITIS; FEMALE; FOCUS GROUPS; HUMANS; MALE; YOUNG ADULT;

EID: 80051871370     PISSN: 08915245     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedhc.2010.06.004     Document Type: Article

References (20)

1. Adam D., St.-Pierre Y., Fautrel B., Clarke A., Duffy C., Penrod J. What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. Journal of Rheumatology 2005, 30:354.
2. Barlow J.H., Shaw K.L., Harrison K. Consulting the experts: children's and parents' perceptions of psycho-educational interventions in the context of juvenile chronic arthritis. Health Education Research 1999, 14:597-610.
3. Duke, N., & Scal, P. (2010, in press). Adult care: Transitioning for adolescents with special health care needs: A pivotal role for family centered care. Maternal and Child Health Journal.
4. Feldman B.M., Grundland B., McCullough L., Wright V. Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care. Journal of Rheumatology 2000, 27:226-233.
5. Hazel E., Zhang X., Duffy C., Campillo S. High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis. Pediatric Rheumatology 2010, 8:2.
6. LeBovidge J.S., Lavigne J.V., Donenberg G.R., Miller M.L. Psychological adjustment of children and adolescents with chronic arthritis: A meta-analytic review. Journal of Pediatric Psychology 2003, 28:29-39.
7. Lotstein D.S., Ghandour R., Cash A., McGuire E., Strickland B., Newacheck P. Planning for health care transitions: Results from the 2005-2006 National Survey of Children With Special Health Care Needs. Pediatrics 2009, 123:e145-e152.
8. Moving on...transition from child-centered to adult health care for youth with disabilities 1992, Maternal and Child Health Bureau Surgeon General's Report, U.S. Department of Health & Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Washington, DC.
9. Maternal and Child Health Bureau. (2001). Achieving success for all: Children and youth with special health care needs a 10-year action plan to accompany healthy people 2010. Maternal and Child Health Bureau. Retrieved from http://www.mchb.hrsa.gov/html/cshcn10plan.htm%23top.
10. Krueger R.A., Casey M.A. Focus groups: A practical guide for applied research 2000, Sage Publications, Thousand Oaks, CA. 3rd ed.
11. Oen K.G., Cheang M. Epidemiology of chronic arthritis in childhood. Seminars in Arthritis and Rheumatism 1996, 12:575-591.
12. Ostensen M., Almberg K., Koksvik H.S. Sex, reproduction and gynecological disease in young adults with a history of juvenile chronic arthritis. Journal of Rheumatology 2000, 27:1783-1787.
13. Sawyer S., Collins N., Bryan D., Brown D., Hope A., Bowes G. Young people with spina bifida: Transfer from paediatric to adult health care. Journal of Paediatric Child Health 1998, 34:414-417.
14. Scal P. Transition for youth with chronic conditions: Primary care physician's approaches. Pediatrics 2002, 110:1315-1321.
15. Scal P., Horvath K., Garwick A. Preparing for adulthood: Health care transition counseling for youth with arthritis. Arthritis Care and Research 2009, 61:52-57.
16. Shaw K.L., Southwood T.R., McDonagh J.E. User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology 2004, 43:770-778.
17. Shaw K.L., Southwood T.R., Duffy C.M. Health-related quality of life in adolescents with Juvenile Idiopathic Arthritis. Rheumatology 2006, 55:199-207.
18. Steinberg L., Graham S., O'Brien L., Woolard J., Cauffman E., Banich M. Age differences in future orientation and delay discounting. Child Development 2009, 80:28-44.
19. Stinson J., Toomey P., Stevens B., Kagan S., Duffy C.M., Feldman B., et al. Asking the experts: Exploring the self-management needs of adolescents with arthritis. Arthritis Care and Research 2008, 59:65-72.
20. Viner R. Transition from paediatric to adult care. Bridging the gaps or passing the buck?. Archives of Disease in Childhood 1999, 81:271-275.