Relationships, sexuality and decision-making capacity in people with an intellectual disability

Current Opinion in Psychiatry

Volumn 24, Issue 5, 2011, Pages 398-402

  McGuire, Brian E ^a   Bayley, Austin A ^a  

^a NATIONAL UNIVERSITY OF IRELAND   (Ireland)

Author keywords

capacity to consent; intellectual disability; relationships; sexuality

Indexed keywords

BISEXUALITY; CAREGIVER SUPPORT; CHILD PARENT RELATION; CONTRACEPTION; CULTURAL ANTHROPOLOGY; DECISION MAKING; DOWN SYNDROME; EDUCATION PROGRAM; ENVIRONMENTAL FACTOR; ETHNICITY; FOLLOW UP; GENDER IDENTITY; HEALTH CARE POLICY; HEALTH SERVICE; HOMOSEXUALITY; HUMAN; INTELLECTUAL IMPAIRMENT; INTELLIGENCE QUOTIENT; INTIMACY; LESBIAN; MALE HOMOSEXUAL; MASTURBATION; PARENT; PERSONAL AUTONOMY; PRIVACY; RELIGION; REVIEW; SAFE SEX; SEXUAL BEHAVIOR; SEXUAL EDUCATION; SEXUAL HEALTH; SEXUALITY; SEXUALLY TRANSMITTED DISEASE; SOCIAL INTERACTION; SOCIAL STATUS;

CAREGIVERS; COMMUNICATION; DECISION MAKING; HUMANS; INTELLECTUAL DISABILITY; INTERPERSONAL RELATIONS; SEXUAL BEHAVIOR;

EID: 80051789835     PISSN: 09517367     EISSN: 14736578     Source Type: Journal    
DOI: 10.1097/YCO.0b013e328349bbcb     Document Type: Review

References (26)

1. Cuskelly M, Gilmore L. Attitudes to Sexuality Questionnaire (individuals with an intellectual disability): scale development and community norms. J Intellect Dev Disabil 2007;32:214-221. (Pubitemid 47450829)
2. Isler A, Beytut D, Tas F, Conk Z. A study on sexuality with the parents of adolescents with intellectual disability. Sex Disabil 2009;27:229-237.
3. Brown RD, Pirtle T. Beliefs of professional and family caregivers about the sexuality of individuals with intellectual disabilities: examining beliefs using a Q-methodology approach. Sex Educ 2008;8:59-75.
4. Healy E, McGuire BE, Evans DS, Carley SN. Sexuality and personal relationships for people with an intellectual disability. Part 1: service-user perspectives. J Intell Disabil Res 2009;53:905-912.
5. Evans DS, McGuire BE, Healy E, Carley SN. Sexuality and personal relationships for people with an intellectual disability: part 2: staff and family carer perspectives. J Intell Disabil Res 2009;53:913-921.
6. Grieve A, McLaren S, Lindsay W, Culling E. Staff attitudes towards the sexuality of people with learning disabilities: a comparison of different professional groups and residential facilities. Br J Learn Disabil 2008;37:76-84.
7. Hollomotz A. The Speak-up Committee. 'May we please have sex tonight?': people with learning difficulties pursuing privacy in residential group settings. Br J Learn Disabil 2008;37:91-97.
8. Kelly G, Crowley H, Hamilton C. Rights, sexuality and relationships in Ireland: 'it'd be nice to be kind of trusted'. Br J Learn Disabil 2009;37:308-315.
9. Lofgren-Martenson L. The invisibility of young homosexual women and men with intellectual disabilities. Sex Disabil 2009;27:21-26.
10. Withers P, Ensum I, Howarth D, et al. A psychoeducational group for men with an intellectual disability who have sex with other men. J Appl Res Intell Disabil 2001;14:327-339.
11. Yacoub E, Hall I. The sexual lives of men with mild learning disability: a qualitative study. Br J Learn Disabil 2008;37:5-11.
12. McGuire BE, Daly P, Smyth F. Lifestyle and health behaviours of adults with an intellectual disability. J Intell Disabil Res 2007;51:497-510. (Pubitemid 47097240)
13. van Schrolenstein Lnatman-de Valk H M J, Rook F, Maaskant MA. The use of contraception by women with intellectual disabilities. J Intell Disabil Res 2011;55:434-440.
14. Chou YC, Lu ZY. Deciding about sterilisation: perspectives from women with an intellectual disability and their families in Taiwan. J Intell Disabil Res 2011;55:69-74.
15. Galea J, Butler J, Iacono T, Leighton D. The assessment of sexual knowledge in people with an intellectual disability. J Intell Dev Disabil 2004;29:350-365. (Pubitemid 40065183)
16. Murphy GH, O'Callaghan A. Capacity of adults with intellectual disabilities to consent to sexual relationships. Psychol Med 2004;34:1347-1357. (Pubitemid 39517165)
17. Abbott D, Howarth J. Still off limits? Staff views on supporting gay, lesbian and bisexual people with intellectual disabilities to develop sexual and intimate relationships. J Appl Res Intellect Disabil 2007;20:116-126.
18. Stinson J, Christian LA, Dodson LA. Overcoming barriers to the sexual expression of women with developmental disabilities. Res Pract Persons Severe Disabil 2002;27:18-26.
19. Grieve A, McLaren S, Lindsay WR. An evaluation of research and training resources for the sex education of people with moderate to severe learning disabilities. Br J Learn Disabil 2006;35:30-37.
20. Katz G, Lazcano-Ponce E. Sexuality in subjects with intellectual disability: an educational intervention proposal for parents and counsellors in developing countries. Salud Publica Mex 2008;50:239-254.
21. Gougeon NA. Sexuality education for students with intellectual disabilities, a critical pedagogical approach: outing the ignored curriculum. Sex Educ 2009;9:277-291.
22. Hippolyte L, Iglesias K, Van der Linden M, Barisnikov K. Social reasoning skills in adults with Down syndrome: the role of language, executive functions and socio-emotional skills. J Intell Disabil Res 2010;54:714-726. Interesting study that examined some of the specific aspects of social cognition important for making social judgements - a key part of both intimate and nonintimate interpersonal functioning.
23. Lyden M. Assessment of sexual consent capacity. Sex Disabil 2007;25:3-20. (Pubitemid 46348667)
24. Dukes E, McGuire BE. Enhancing capacity to make sexuality-related decisions in people with an intellectual disability. J Intell Disabil Res 2009;53:727-734.
25. Penderson E. Including self advocates in community leadership. Disabil Solutions 1997;2:1-9.
26. Caldwell J. Leadership development of individuals with developmental disabilities in the self-advocacy movement. J Intell Disabil Res 2010;54:1004-1014. Provides an important insight into the experiences and process that enabled the development of leadership as a self-advocate.