Leadership development of individuals with developmental disabilities in the self-advocacy movement

Journal of Intellectual Disability Research

Volumn 54, Issue 11, 2010, Pages 1004-1014

  Caldwell, J ^a  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

Intellectual disabilities; Leadership; Learning difficulties; Life stories; Oral histories; Self advocacy

Indexed keywords

ADULT; ARTICLE; DEVELOPMENTAL DISORDER; FEMALE; HUMAN; LEADERSHIP; MALE; PATIENT ADVOCACY; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; UNITED STATES;

ADULT; DEVELOPMENTAL DISABILITIES; DISABLED PERSONS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; LEADERSHIP; MALE; MIDDLE AGED; PATIENT ADVOCACY; QUALITATIVE RESEARCH; SELF CONCEPT; SELF EFFICACY; YOUNG ADULT;

EID: 78649452776     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2010.01326.x     Document Type: Article

References (36)

1. Atkinson R. (1998) The Life Story Interview. Sage, Thousand Oaks, CA.
2. Atkinson D. (2004) Research and empowerment: involving people with learning difficulties in oral and life history research. Disability & Society 19, 691-702.
3. Atkinson D. & Walmsley J. (1999) Using autobiographical approaches with people with learning difficulties. Disability & Society 14, 203-16.
4. Bradley V. J. (2006) Presidential address 2006: creating sustainable reform: aligning our generational prisms. Mental Retardation 44, 383-7.
5. Buchanan I. & Walmsley J. (2006) Self-advocacy in historical perspective. British Journal of Learning Disabilities 34, 133-8.
6. Caldwell J. (in press) Disability identity formation of leaders in the self-advocacy movement. Intellectual and Developmental Disabilities (in press).
7. Caldwell J., Hauss S. & Stark B. (2009) Participation of individuals with developmental disabilities and family members on advisory committee and boards. Journal of Disability Policy Studies 20, 101-9.
8. Charlton J. (1998) Nothing about Us without Us: Disability Oppression and Empowerment. University of California Press, Berkley, CA.
9. Cole A. & Knowles J. G. (2001) Lives in Context: The Art of Life History Research. AltaMira Press, Walnut Creek, CA.
10. Creswell J. W. (1998) Qualitative Inquiry and Research Design: Choosing among Five Traditions. Sage, Thousand Oaks, CA.
11. Davies C. A. & Jenkins R. (1997) 'She has different fits to me': how people with learning difficulties see themselves. Disability & Society 12, 95-109.
12. Dybwad G. & Bersani H. (1996) New Voices: Self-Advocacy by People with Disabilities. Brookline Books, Inc., Cambridge MA.
13. Finlay M. & Lyons E. (1998) Social identity and people with learning difficulties: implications for self-advocacy groups. Disability & Society 13, 37-51.
14. Gill C. (1997) Four types of integration in disability identity development. Journal of Vocational Rehabilitation 9, 39-46.
15. Goodley D. (2000) Self-Advocacy in the Lives of People with Learning Difficulties. Open University Press, Buckingham; Philadelphia, PA.
16. Goodley D. (2001) 'Learning difficulties, ' the social model of disability and impairment: challenging epistemologies. Disability & Society 16, 207-31.
17. Goodley D. (2005) Empowerment, self-advocacy, and resilience. Journal of Intellectual Disabilities 9, 333-43.
18. Goodley D., Armstrong D., Sutherland K. & Lauries L. (2003) Self-advocacy, 'learning difficulties, ' and the social model of disability. Mental Retardation 41, 149-60.
19. Hart D., Grigal M., Sax C., Martinez D. & Will M. (2006) Postsecondary Education Opportunities for Students with Intellectual Disabilities. Institute for Community Inclusion, Boston, MA.
20. Havercamp S. M., Tasse M. J., Lunsky Y. & Garcin N. (2003) Who will lead the field beyond 2020? Mental Retardation 41, 473-6.
21. Hayden M. & Nelis T. (2002) Self-Advocacy. In: Embarking on a New Century: Mental Retardation at the End of the 20th Century (eds R. L. Schalock, P. C. Baker & M. D. Croser ), pp. 221-33. American Association on Mental retardation, Washington, CD.
22. Hughes B. & Paterson K. (1997) The social model of disability and the disappearing body: towards a sociology of impairment. Disability & Society 12, 325-40.
23. Kasnitz D. (2001) Life event histories and the US independent living movement. In: Disability and the Life Course: Global Perspectives (ed. M. Priestly ), pp. 67-78. Cambridge University Press.
24. Longmore P. (2003) The second phase: From disability rights to disability culture. In: Why I Burned My Book and Other Essays on Disability (ed. P. Longmore ), pp. 215-24. Temple University Press, Philadelphia, PA.
25. Meininger H. P. (2006) Narrating, writing, reading: life story work as a aid to (self) advocacy. British Journal of Learning Disabilities 34, 181-8.
26. Miles M. B. & Huberman M. (1994) Qualitative Data Analysis: An Expanded Sourcebook, 2nd edn. Sage, Thousand Oaks, CA.
27. Nelis T. & Pederson E. (1999) Leadership Today: Highly Effective People Working Together. Rehabilitation Research and Training Center on Aging with Developmental Disabilities, University of Illinois at Chicago, Chicago, IL.
28. Patton M. Q. (2002) Qualitative Research & Evaluation Methods, 3rd edn. Sage, Thousand Oaks, CA.
29. Pederson E. (1997) Including self-advocates in community leadership. Disability Solutions 2, 1-9.
30. Pederson S. & Chaikin M. (1993) Voices That Count. Rehabilitation Research and Training Center on Aging with Developmental Disabilities, University of Illinois at Chicago, Chicago, IL.
31. Pederson E. & Nelis T. (2003) Using the 7 Habits of Highly Effective People. Rehabilitation Research and Training Center on Aging with Developmental Disabilities, University of Illinois at Chicago, Chicago, IL.
32. Strauss A. & Corbin J. (1990) Basics of Qualitative Research: Grounded Theory, Procedures, and Techniques. Sage Publications, Newbury Park, CA.
33. Taylor S. J. & Bogdan R. (1998) Introduction to Qualitative Research Methods: A Guide Book and Resource, 3rd edn. John Wiley & Sons, Inc., New York.
34. Traustadottir R. (2006) Learning about self-advocacy from life history: a case study from the United States. British Journal of Learning Disabilities 34, 175-80.
35. Weeber J. E. (2004) Disability community leaders' disability identity development: a journey of integration and expansion. Unpublished doctoral dissertation, North Carolina State University, Raleigh, NC.
36. Williams P. & Shoultz B. (1982) We Can Speak for Ourselves. Indiana University Press, Bloomington, IN.