'Rakter dosh'-corrupting blood: The challenges of preventing thalassemia in Bengal, India

Social Science and Medicine

Volumn 63, Issue 10, 2006, Pages 2661-2673

  Chattopadhyay, Sreeparna ^a  

^a BROWN UNIVERSITY   (United States)

Author keywords

Gender; Genetic screening; India; Marriage; Public health program; Thalassemia

Indexed keywords

ANTHROPOLOGY; BLOOD SYSTEM DISORDER; DISEASE INCIDENCE; GENETIC STRUCTURE; GOVERNMENT; KINSHIP; MUTATION; PUBLIC HEALTH; WOMENS HEALTH;

ARTICLE; AWARENESS; ETHNOGRAPHIC RESEARCH; GENE MUTATION; GENETIC SCREENING; HEALTH CARE UTILIZATION; HEALTH PROGRAM; HUMAN; INDIA; PHYSICAL ANTHROPOLOGY; PREVENTIVE MEDICINE; PROPHYLAXIS; SOCIAL BEHAVIOR; SOCIAL DESIRABILITY; STIGMA; THALASSEMIA MINOR;

BETA-THALASSEMIA; BLOOD; CULTURAL CHARACTERISTICS; FEMALE; GENETIC SCREENING; GENETIC TESTING; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES ACCESSIBILITY; HUMANS; INDIA; POVERTY;

ASIA; EURASIA; INDIA; SOUTH ASIA; WEST BENGAL;

EID: 33749258721     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2006.06.031     Document Type: Article

References (57)

1. Ahmed S., Mohammad S., Modell B., and Petrou M. Screening extended families for genetic haemoglobin disorders in Pakistan. New England Journal of Medicine 347 15 (2002) 1162-1168
2. Angastiniotis A., and Hadjiminas G. Prevention of thalassemia in Cyprus. Lancet 1 (1981) 369-370
3. Anionwu E., and Marteau T. Evaluating carrier testing: Objectives and outcomes. In: Marteau T., and Richards M. (Eds). The troubled helix: Social and psychological implications of the new human genetics (1996), Cambridge University Press, Cambridge 123-139
4. Atkin K., and Ahmed W. Genetic screening and haemoglobinopathies: Ethics, politics and practice. Social Science & Medicine 46 3 (1998) 445-458
5. Atkin K., Ahmed W., and Anionwu E. Screening and counseling for sickle cell disorders and thalassaemia: The experience of parents & health professionals. Social Science & Medicine 47 11 (1998) 1639-1651
6. Bandopadhyay S. Caste, widow-remarriage and the reform of popular culture in colonial Bengal. In: Ray B. (Ed). From the seams of history: Essays on Indian women (1995), Oxford University Press, Delhi, New York 8-36
7. Bandopadhyay S. Caste, culture, and hegemony: Social domination in colonial Bengal (2004), Sage Publications, New Delhi, Thousand Oaks, CA
8. Bhaumik S. Tenancy relations and agrarian development: A study of West Bengal (1993), Sage Publications, New Delhi, Newbury Park, CA
9. Becker H., Kaback M., Rosenstock M., and Ruth V. Some influences on public participation in a genetic screening program. Journal of Community Health 1 (1975) 3-14
10. Bergmann T. Agrarian reform in India: With special reference to Kerala, Karnataka, Andhra Pradesh, and West Bengal (1984), Agricole Publishing Academy, New Delhi, India
11. Chadwick R. What counts as success in genetic counseling?. Journal of Medical Ethics 19 (1993) 43-46
12. Chakrabarty D. Rethinking working-class history: Bengal, 1890-1940 (1989), Princeton University Press, Princeton, NJ
13. Christianson A., Streetly A., and Darr A. Lessons from thalassemia screening in Iran. British Medical Journal 329 (2004) 1115-1117
14. Clarke A. Is non-directive genetic counselling possible?. Lancet 338 (1991) 998-1001
15. Colah R., Nadkarni A., Gorashankar A., Phansagaonkar S., Surve R., Subramaniam P., et al. Impact of β globin gene mutations on the clinical phenotype of β thalassemia in India. Blood Cells, Molecules & Diseases 33 (2004) 153-157
16. Firdous R., and Bhopal R. Reproductive health care of Asian women: A comparative study of hospital and community perspectives. Public Health 103 (1989) 307-315
17. Franda M. Radical politics in West Bengal (1971), MIT Press, Cambridge, MA
18. Fruzzetti L. The gift of a virgin: Women, marriage & ritual in a Bengali society (1982), Rutgers University Press, New Jersey
19. Ghosh K., Shetty S., Pawar A., and Mohanty D. Carrier detection and prenatal diagnosis in hemophilia in India, realities and challenges. Haemophilia 8 (2002) 51-55
20. Gill S.P., and Modell B. Thalassaemia in Britain: A tale of two communities. British Medical Journal 317 (1998) 761-762
21. Giordano P., Dihal A., and Harteveld C. Estimating the attitude of immigrants toward primary prevention of the hemoglobinopathies. Prenatal Diagnosis 25 10 (2005) 885-893
22. Goffman E. Stigma: Notes on the management of spoiled identity (1963), Prentice Hall, Englewoods Cliff, NJ
23. Green J., and Statham H. Psychological aspects of prenatal screening and diagnosis. In: Marteau T., and Richard M. (Eds). The troubled helix: Social and psychological implications of the new human genetics (1996), Cambridge University Press, Cambridge 140-163
24. Hartwell S., Boonraksa S., Kongtalwert P., Christian D., and Grudpan K. Review on screening & analysis techniques for hemoglobin variants & thalassemia. Talanta 65 5 (2004) 1149-1161
25. Henneman L., Bramsen I., van der Ploeg H.M., Ader H.J., van der Horst H.E., Gille J.J., et al. Participation in preconceptional carrier couple, screening: Characteristics, attitudes, and knowledge of both partners. Journal of Medical Genetics 38 (2001) 695-703
26. Holtzman N., and Shapiro D. Genetic testing and public policy. British Medical Journal 316 (1998) 852-856
27. Inden R. Marriage & rank in Bengali culture (1976), University of California Press, Berkeley
28. Inden R., and Nicholas R. Kinship in Bengali culture (1977), University of Chicago Press, Chicago
29. Indian Census (2001). 〈www.censusindia.net〉.
30. Indian Council of Medical Research (ICMR). (1993). Collaborative study on thalassemia, An ICMR task force study. New Delhi, India: ICMR.
31. Lamb S. White saris and sweet mangoes: Aging, gender, and body in North India (2000), University of California Press, Berkeley
32. Mallick R. Development policy of a communist government: West Bengal since 1977 (1996), Cambridge University Press, Cambridge [England]; New York, USA
33. Marteau T., and Croyle R. Psychological responses to genetic testing. British Medical Journal 316 (1998) 693-696
34. Michie S., and Marteau T. Genetic counselling: Some issues of theory and practice. In: Marteau T., and Richards M. (Eds). The troubled helix: Social and psychological implications of the new human genetics (1996), Cambridge University Press, Cambridge 104-122
35. Mitra D. A Hindu marriage in Bengal. American Journal of Sociology 52 3 (1946) 255-258
36. Modell B., Harris R., Lane B., Khan M., Darlison M., Petrou M., et al. Informed choice in genetic screening for thalassaemia during pregnancy: Audit from a national confidential enquiry. British Medical Journal 320 (2000) 325-390
37. Modell B., Modell M., Wonke B., Anionwu E., Khan M., Tai S., et al. A multidisciplinary approach for improving services in primary care, randomized controlled trial of screening for hemoglobin disorders. British Medical Journal 317 (1998) 980-989
38. National Family Health Survey (MCH and Family Planning). (1995). West Bengal 1992 summary report. Bombay: International Institute for Population Sciences.
39. Nicholas R. The effectiveness of the Hindu sacrament (Samskara): Caste, marriage, and divorce in Bengali culture. In: Harlan L., and Courtright P.B. (Eds). From the margins of Hindu marriage: Essays on gender, religion, and culture (1995), Oxford University Press, New York; Oxford, UK 137-160
40. Oliver M. Understanding disability: From theory to practice (1996), St Martin's Press, New York
41. Ostor A., Fruzzetti L., and Bartnett S. Concepts of person-Kinship, caste and marriage in India (1982), Harvard University Press, Cambridge, MA
42. Pallikadavath S., Foss M., and Stones W. Antenatal care: Provision and inequality in rural north India. Social Science & Medicine 59 6 (2004) 1147-1158
43. Politis C., Richardson C., and Yfantopoulos G. Public knowledge of thalassemia in Greece and current concepts of the social status of the thalassemic patients. Social Science & Medicine 32 1 (1991) 59-64
44. Rapp R. Chromosomes and communication: The discourse of genetic counselling. Medical Anthropology Quarterly 2 2 (1988) 143-157
45. Rapp R. Constructing amniocentesis: Maternal and medical discourses. In: Tsing G. (Ed). Uncertain terms: Negotiating gender in American culture (1990), Beacon Press, Boston 28-42
46. Richards M. The new genetics: Some issues for social scientists. Sociology of Health and Illness 15 5 (1993) 567-586
47. Samanta A. Left extremist movement in West Bengal: An experiment in Armed Agrarian Struggle (1984), Firma KLM, Calcutta
48. Samavat A., and Modell B. Iranian national thalassemia screening program. British Medical Journal 329 (2004) 1135-1137
49. Sen S. Women and labour in late colonial India: The Bengal jute industry (1999), Cambridge University Press, New York
50. Sengupta S., and Gazdar H. Agrarian politics and rural development in West Bengal. In: Drèze J., and Sen A. (Eds). Indian development: Selected regional perspectives (1997), Oxford University Press, Delhi, New York 129-204
51. Singer M. Beyond the ivory tower: Critical praxis in medical anthropology. In: Brown P. (Ed). Understanding and applying medical anthropology (1998), Mayfield Publishing House, Mayfield, CA 225-239
52. Srinivas M. The dominant caste and other essays (1987), Oxford University Press, Delhi, New York
53. Streetly A. A national screening policy for sickle cell disease and thalassaemia major for the United Kingdom. British Medical Journal 320 7246 (2000) 1353-1354
54. Uberoi P. Family, kinship & marriage in India (1993), Oxford University Press, New Delhi
55. Wadley S. No longer a wife: Widows in rural North-India. In: Harlan L., and Courtright P.B. (Eds). From the margins of Hindu marriage: Essays on gender, religion, and culture (1995), Oxford University Press, New York, Oxford, UK 92-118
56. Weatherall D., and Clegg J. The thalassemia syndromes (1981), Blackwell Scientific, Oxford, England
57. Weatherall D., and Clegg J. Public health review: Inherited hemoglobin disorders, an increasing global health problem. Bulletin of the World Health Organization 79 8 (2001)