Internet-based patient education intervention for fibromyalgia: A model-driven evaluation

AAAI Spring Symposium - Technical Report

Volumn SS-11-01, Issue , 2011, Pages 10-16

  Camerini, Luca ^a   Frisch, Anne Linda ^a   Schulz, Peter J ^a  

^a UNIVERSITY OF LUGANO   (Switzerland)

Author keywords

[No Author keywords available]

Indexed keywords

ARTIFICIAL INTELLIGENCE; E-LEARNING;

CHRONIC DISEASE; CROSS-SECTIONAL SURVEYS; HEALTH CONDITION; HEALTH PROFESSIONALS; INTERNET INTERVENTIONS; PATIENT EDUCATION; STRUCTURAL EQUATION MODELING; THEORETICAL MODELING;

PATIENT TREATMENT;

EID: 80051487169     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: None     Document Type: Conference Paper

References (34)

1. Annemans, L.; Wesseley, S.; Spaepen, E.; Caekelbergh, K.; Caubère, J.P.; Le Lay, K.; and Taïeb, C. 2008. Health economic consequences related to the diagnosis of fibromyalgia syndrome. Arthritis and Rheumatism 58(3): 895-902. (Pubitemid 351364892)
2. Arnold, L.M.; Bradley, L.A.; Clauw, D.J.; Glass, J.M.; and Goldenberg, D.L. 2008. Evaluating and diagnosing fibromyalgia and comorbid psychiatric disorders. Journal of Clinical Psychiatry 69(10): e28.
3. Belt, N.K.; Kronholm, E.; and Kauppi, M.J. 2009. Sleep problems in fibromyalgia and rheumatoid arthritis compared with the general population. Clinical and Experimental Rheumatology 27(1): 35-41.
4. Bennett, R. 2005. The fibromyalgia impact questionnaire (FIQ): A review of its development, current version, operating characteristics and uses. Clinical and Experimental Rheumatology 23(5 Suppl. 39): 154-162.
5. Burckhardt, C.S.; Clark, S.R.; and Bennett, R.M. 1991. The fibromyalgia impact questionnaire: Development and validation. The Journal of Rheumatology 18(5): 728-733.
6. Buskila, D., and Cohen, H. 2007. Comorbidity of fibromyalgia and psychiatric disorders. Current Pain and Headache Reports 11(5): 333-338.
7. Choy, E.; Perrot, S.; Leon, T.; Kaplan, J.; Petersel, D.; Ginovker, A.; and Kramer, E. 2010. A patient survey of the impact of fibromyalgia and the journey to diagnosis. BMC health services research 10: 102-110.
8. Clauw, D.J. 2008. Assessing and diagnosing fibromyalgia in the clinical setting. Journal of Clinical Psychiatry 69(11): e33.
9. DeWalt, D.A.; Berkman, N.D.; Sheridan, S.; Lohr, K.N.; and Pignone, M.P. 2004. Literacy and health outcomes: a systematic review of the literature. Journal of General Internal Medicine 19(12): 1228-1239. (Pubitemid 40041388)
10. Fox, S., and Purcell, K. 2010. Chronic disease and the Internet. Report of the Pew Internet and American Life Project: Washington, DC.
11. Glueckauf, R., and Lustria, M.L.A. 2008. E-Health Self-Care Interventions for Persons with Chronic Illnesses: Review and Future Directions. In J.C. Parker and E. Thorson (Eds.), Health Communication in the New Media Landscape (pp. 151-241). NY: Springer Publishing Company.
12. Goldenberg, D.L. 1989. Psychological symptoms and psychiatric diagnosis in patients with fibromyalgia. The Journal of Rheumatology Suppl. Nov. 19: 127-130. (Pubitemid 20015405)
13. Ishikawa, H., and Yano, E. 2008. Patient health literacy and participation in the health-care process. Health Expectations 11(2): 113-122. (Pubitemid 351725003)
14. Koulil, S. van; Lankveld, W.; Kraaimaat, F.W.; Helmond, T. van; Vedder, A.; Hoorn, H. van; Cats, H.; Riel, P.L. van; and Evers, A.W. 2008. Tailored cognitive-behavioral therapy for fibromyalgia: two case studies. Patient Education and Counseling 71(2): 308-314.
15. Lorig, K.R., and Holman, H.R. 2003. Self-management education: history, definition, outcomes, and mechanisms. Annals of Behavioral Medicine 26(1): 1-7.
16. Lorig, K.R.; Ritter, P.L.; Laurent, D.D.; and Plant, K. 2006. Internet-Based Chronic Disease Self-Management: A Randomized Trial. Medical Care 44(11): 964-971. (Pubitemid 44674028)
17. Lorig, K.R.; Ritter, P.L.; Laurent, D.D.; and Plant, K. 2008. The Internet-based Arthritis Self-Management Program: a one-year randomized trial for patients with Arthritis or Fibromyalgia. Arthritis Care Research 59(7): 1009-1017. (Pubitemid 351990999)
18. MacCallum, R.C.; Zhang, S.; Preacher, K.J.; and Rucker, D.D. 2002. On the practice of dichotomization of quantitative variables. Psychological Methods 7(1): 19-40.
19. Murray, E.; Burns, J.; See Tai, S.; and Nazareth, I. 2007. Interactive health communication applications for people with chronic disease. Cochrane Database of Systematic Reviews, Issue 3.
20. Nutbeam, D. 2008. The evolving concept of health literacy. Social Science and Medicine 67(12): 2072-2078.
21. Paasche-Orlow, M.K.; Parker, R.M.; Gazmararian, J.A.; Nielsen-Bohlman, L.T.; and Rudd, R.R. 2005. The prevalence of limited health literacy. Journal of General Internal Medicine 20(2): 175-184.
22. Paasche-Orlow, M.K., and Wolf, M.S. 2007. The causal pathways linking health literacy to health outcomes. American Journal of Health Behavior 31 (Suppl. 1): 19-26.
23. Ratzan, S. C., and Parker, R. M. 2000. Introduction. In C. Seiden; M. Zorn; S. C. Ratzan; and R. M. Parker (Eds.), National Library of Medicine Current Bibliographies in Medicine: Health Literacy. Bethesda, MD: National Institutes of Health, U.S. Department of Health and Human Services.
24. Sarzi-Puttini, P.; Atzeni, F.; Fiorini, T.; Panni, B.; Randisi, G.; Turiel, M.; and Carabba M. 2003. Validation of an Italian version of the Firbomyalgia Impact Questionnaire (FIQ-I). Clinical and Experimental Rheumatology 21(4): 459-464.
25. Schulz, P.J.; Rubinelli, S.; and Hartung, U. 2007. An Internet based approach to enhance self-management of chronic low back pain in the Italian-speaking population of Switzerland: results from a pilot study. International Journal of Public Health 52(5): 286-294. (Pubitemid 47521496)
26. Schulz, P.J.; Rubinelli, S.; Caiata-Zufferey, M.; and Hartung, U. 2010. Coping with chronic lower back pain: designing and testing the online tool ONESELF. Journal of Computer-Mediated Communication 15(4): 625-645.
27. Spaeth, M. 2009. Epidemiology, costs, and the economic burden of fibromyalgia. Arthritis Research and Therapy 11(3): 117-118.
28. Uden-Kraan, C.F. van; Drossaert, C.H.C.; Taal, E.; Shaw, B.R.; Seydel, E.R.; and Laar, M.A.F.J. van de 2008. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis or fibromyalgia. Qualitative Health Research 18(3): 405-417.
29. Wagner, C. von; Steptoe, A.; Wolf, M.S.; and Wardle, J. 2009. Health literacy and health actions: a review and a framework from health psychology. Health Education and Behavior 36(5): 860-877.
30. Wantland, D.J.; Portillo, C.J.; Holzerner, W.L.; Slaughter, R.; and McGhee, E.M. 2004. The effectiveness of web-based vs non-web-based interventions: a meta-analysis of behavioral change outcomes. Journal of Medical Internet Research 6(4): e40.
31. Wilson, H.D.; Robinson, J.P.; and Turk, D.C. 2009. Towards the identification of symptoms patterns in people with fibromyalgia'. Arthritis Care Research 61(4): 527-534.
32. Wolfe, F.; Smythe H.A.; Yunus, M.B.; et al. 1990. The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia. Report of the Multicenter Criteria Committee. Arthritis and Rheumatism 33(2): 160-172.
33. Wolfe, F.; Ross, K.; Anderson, J.; Rusell, I.J.; and Herbert, L. 1995. The prevalence and characteristics of fibromyalgia in the general population. Arthritis and Rheumatism 38(1): 19-28.
34. World Health Organization 1998. Health Promotion Glossary. Geneva, Switzerland: WHO.