Creating a palliative educational session for hematopoietic stem cell transplantation recipients at relapse

Clinical Journal of Oncology Nursing

Volumn 15, Issue 4, 2011, Pages 411-417

  Cooke, Liz Diana ^a   Gemmill, Robin ^a   Lee Grant, Marcia ^a  

^a Department of Nursing Research and Education at City of Hope Medical Center in Duarte ^*  (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; BEREAVEMENT; BLOOD DISEASE; FAMILY; FEMALE; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; MALE; MENTAL STRESS; METHODOLOGY; MIDDLE AGED; NURSING EDUCATION; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PATIENT EDUCATION; PSYCHOLOGICAL ASPECT; RECURRENT DISEASE; SOCIAL SUPPORT; TERMINAL CARE;

ADULT; BEREAVEMENT; EDUCATION, NURSING; FAMILY; FEMALE; HEMATOLOGIC NEOPLASMS; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PATIENT EDUCATION AS TOPIC; RECURRENCE; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; TERMINAL CARE; YOUNG ADULT;

EID: 79961176340     PISSN: 10921095     EISSN: 1538067X     Source Type: Journal    
DOI: 10.1188/11.CJON.411-417     Document Type: Article

References (41)

1. American Association of Colleges of Nursing. (2010). AACN end-of-life care. Retrieved from http://www.aacn.nche.edu/elnec
2. American Association of Colleges of Nursing. (2011). End-of-Life Nursing Education Consortium fact sheet. Retrieved from http://www.aacn.nche.edu/elnec/factsheet.htm
3. American Cancer Society. (2011a). Nearing the end of life. Retrieved from http://www.cancer.org/Treatment/NearingtheEndofLife/NearingtheEndofLife/nearing-the-end-of-life-emotions
4. American Cancer Society. (2011b). Sex and men with cancer. Retrieved from http://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEffects/SexualSideEffectsinMen/SexandMenwithCancer/index
5. American Cancer Society. (2011c). Sexuality for the woman with cancer. Retrieved from http://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEffects/SexualSideEffectsinWomen/SexualityfortheWoman/sexuality-for-the-woman-with-cancer-toc
6. Bowman, K.F., Rose, J.H., Radziewicz, R.M., O'Toole, E., & Berila, R.A. (2009). Family caregiver engagement in a coping and communication support intervention tailored to advanced cancer patients and families. Cancer Nursing, 32, 73-81.
7. Brown-Salzman, K. (2006). Transforming the grief experience. In R.M. Carroll-Johnson, L.M. Gorman, & N.J. Bush (Eds.), Psychosocial nursing care along the cancer continuum (2nd ed., pp. 293-314). Pittsburgh, PA: Oncology Nursing Society.
8. California State Cemetery and Funeral Bureau. (2005). Consumer guide to funeral and cemetery purchases. Retrieved from http://www.cfb.ca.gov/consumer/funeral.shtml
9. Center on Aging. (2002). Preparing to say good-bye: Care for the dying. Manoa, HI: John A. Burns School of Medicine. Retrieved from http://www.areaofficeonaging.com/ECHO3.pdf
10. City of Hope National Medical Center. (n.d.). Low bacteria diet. Duarte, CA: Author.
11. City of Hope National Medical Center. (2002). A patient's guide to blood and marrow stem cell transplantation (3rd ed.). Duarte, CA: Author.
12. City of Hope National Medical Center. (2004). Patient guide: How to take care of your external center vascular access device. Duarte, CA: Author.
13. Corless, I.B. (2010). Bereavement. In B.R. Ferrell & N. Coyle (Eds.), Oxford textbook of palliative nursing (3rd ed., pp. 597-610). New York, NY: Oxford University Press.
14. Davies, B., & Steele, R. (2010). Supporting families in palliative care. In B.R. Ferrell & N. Coyle (Eds.), Oxford textbook of palliative nursing (3rd ed., 613-627). New York, NY: Oxford University Press.
15. Ellifritt, J., Nelson, K.A., & Walsh, D. (2003). Complicated bereavement: A national survey of potential risk factors. American Journal of Hospice and Palliative Care, 20, 114-120. doi:10.1177/104990910302000209
16. Ersek, M., & Cotter, V.T. (2010). The meaning of hope in the dying. In B.R. Ferrell & N. Coyle (Eds.), Oxford textbook of palliative nursing (3rd ed., pp. 579-595). New York, NY: Oxford University Press.
17. Horowitz, M. (2009). Uses and growth of hematopoietic cell transplantation. In F.R. Appelbaum, S.J. Forman, R.S. Negrin, & K.G. Blume (Eds.), Thomas' hematopoietic cell transplantation (4th ed., pp. 15-26). Hoboken, NJ: Wiley-Blackwell.
18. Hospice and Palliative Nurses Association. (2010). Patient/family teaching sheet: Final days. Retrieved from http://www.hpna.org/pdf/teachingsheet_finaldays.pdf
19. Institute of Medicine. (1998). Approaching death: Improving care at the end of life. Health Services Research, 33, 1-3.
20. Lautrette, A., Darmon, M., Megarbane, B., Joly, L.M., Chevret, S., Adrie, C. Azoulay, E. (2007). A communication strategy and brochure for relatives of patients dying in the ICU. New England Journal of Medicine, 356, 469-478. doi:10.1056/NEJMoa063446
21. Leukemia and Lymphoma Society. (2005). Coping with survival: Support for people living with adult leukemia, lymphoma, and myeloma. White Plains, NY: Author.
22. Leukemia and Lymphoma Society. (2007). Touching lives: A directory of patient services programs. White Plains, NY: Author.
23. Leukemia and Lymphoma Society. (2011). Blood and marrow stem cell transplantation. Retrieved from http://www.lls.org/content/nationalcontent/resourcecenter/freeeducationmaterials/treatments/pdf/bloodmarrowstemcelltransplantation.pdf
24. Malloy, P., Ferrell, B.R., Virani, R., Uman, G., Rhome, A.M., Whitlatch, B., & Bednash, G. (2006). Evaluation of end-of-life nursing education for continuing education and clinical staff development educators. Journal for Nurses in Staff Development, 22, 31-36. doi:10.1097/00124645-200601000-00008
25. Manitta, V.J., Philip, J.A., & Cole-Sinclair, M.F. (2010). Palliative care and the hemato-oncological patient: Can we live together? A review of the literature. Journal of Palliative Medicine, 13, 1021-1025. doi:10.1089/jpm.2009.0267
26. Marwit, S.J., Chibnall, J.T., Dougherty, R., Jenkins, C., & Shawgo, J. (2008). Assessing pre-death grief in cancer caregivers using the Marwit-Meuser Caregiver Grief Inventory (MM-CGI). Psycho-Oncology, 17, 300-303. doi:10.1002/pon.1218
27. National Cancer Institute. (2008). Coping with advanced cancer. Retrieved from http://www.cancer.gov/cancertopics/coping/advancedcancer.pdf
28. National Cancer Institute. (2009). Taking time: Support for people with cancer. Retrieved from http://www.cancer.gov/cancertopics/coping/takingtime.pdf
29. National Cancer Institute. (2010a). Facing forward: Life after cancer treatment. Retrieved from http://www.cancer.gov/cancertopics/coping/life-after-treatment.pdf
30. National Cancer Institute. (2010b). When cancer returns. Retrieved from http://www.cancer.gov/cancertopics/coping/when-cancer-returns.pdf
31. National Cancer Institute. (2010c). When someone you love has advanced cancer. Retrieved from http://www.cancer.gov/cancertopics/coping/When-Someone-You-Love-Has-Advanced-Cancer.pdf
32. National Cancer Institute. (2011a). Eating hints: Before, during, and after cancer treatment. Retrieved from http://www.cancer.gov/cancertopics/coping/eatinghints.pdf
33. National Cancer Institute. (2011b). Fatigue (PDQ®). Retrieved from http://www.cancer.gov/cancertopics/pdq/supportivecare/fatigue/HealthProfessional/AllPages
34. Negrin, R.S., & Blume, K.G. (2006). Principles of hematopoietic cell transplantation. In T.K.M. Lichtman, K. Kaushansky, E. Beutler, U. Seligson., & J. Prchal (Eds.), Williams hematology (7th ed., pp. 301-322). New York, NY: McGraw-Hill Medical.
35. Prigerson, H.G., Bierhals, A.J., Kasl, S.V., Reynolds, C.F., III, Shear, M.K., Day, N., Jacobs, S. (1997). Traumatic grief as a risk factor for mental and physical morbidity. American Journal of Psychiatry, 154, 616-623.
36. Rolland, J.S. (2005). Cancer and the family: An integrative model. Cancer, 104(11, Suppl.), 2584-2595. doi:10.1002/cncr.21489
37. Sanders, S., Marwit, S.J., Meuser, T.M., & Harrington, P. (2007). Caregiver grief in end-stage dementia: Using the Marwit and Meuser Caregiver Grief Inventory for assessment and intervention in social work practice. Social Work in Health Care, 46, 47-65. doi:10.1300/J010v46n01_04
38. Stewart, S. (2002). Bone marrow and blood stem cell transplants: A guide for patients. Highland Park, IL: BMT InfoNet.
39. van den Brink, M.R., Porter, D.L., Giralt, S., Lu, S.X., Jenq, R.R., Hanash, A., & Bishop, M.R. (2010). Relapse after allogeneic hematopoietic cell therapy. Biology of Blood Marrow Transplantation, 16(1, Suppl.), S138-S145. doi:10.1016/j.bbmt.2009.10.023
40. Wolfelt, A. (2001). Healing your grieving heart: 100 practical ideas. Fort Collins, CO: Companion Press.
41. Yoon, S.J., Conway, J., & McMillan, M. (2006). An exploration of the concept of patient education: Implications for the development of educational programmes for relapsed post-bone marrow transplantation patients and their families in Korea. International Journal of Nursing Practice, 12, 129-135.