Family members' experiences of "wait and see" as a communication strategy in end-of-life decisions

Intensive Care Medicine

Volumn 37, Issue 7, 2011, Pages 1143-1150

  Lind, Ranveig ^a,b   Lorem, Geir F ^b   Nortvedt, Per ^c   Hevrøy, Olav ^d  

^a UNIVERSITY HOSPITAL OF NORTH NORWAY   (Norway)

^b UNIVERSITY OF TROMSØ   (Norway)

^c UNIVERSITY OF OSLO   (Norway)

^d HAUKELAND UNIVERSITY HOSPITAL   (Norway)

Author keywords

Communication; Decision making; End of life; Family members; Intensive care

Indexed keywords

ADULT; AGED; ARTICLE; BEREAVEMENT; DEATH; FAMILY; FAMILY DECISION MAKING; FEMALE; GROUNDED THEORY; HUMAN; INTENSIVE CARE UNIT; INTERPERSONAL COMMUNICATION; INTERVIEW; MALE; NORWAY; PATIENT PREFERENCE; PHYSICIAN; QUALITATIVE RESEARCH; TERMINAL CARE;

ADULT; AGED; AGED, 80 AND OVER; COMMUNICATION; DECISION MAKING; FAMILY; FEMALE; HUMANS; INTENSIVE CARE UNITS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; NORWAY; TERMINAL CARE;

EID: 79961030140     PISSN: 03424642     EISSN: 14321238     Source Type: Journal    
DOI: 10.1007/s00134-011-2253-x     Document Type: Article

References (40)

1. S Cohen C Sprung P Sjokvist A Lippert B Ricou M Baras S Hovilehto P Maia D Phelan K Reinhart K Werdan HH Bulow T Woodcock 2005 Communication of end-of-life decisions in European intensive care units Intensive Care Med 31 1215 1221 16041519 10.1007/s00134-005-2742-x (Pubitemid 41355798)
2. Norwegian legislation: the patients' rights act (1999) Available at http://www.ub.uio.no/ujur/ulovdata/lov-19990702-063-eng.pdf. Accessed Nov 29, 2010
3. E Ferrand R Robert P Ingrand F Lemaire French LATAREA Group 2001 Withholding and withdrawal of life support in intensive-care units in France: a prospective survey. French LATAREA Group Lancet 357 9 14 11197395 10.1016/S0140-6736(00)03564-9 1:STN:280:DC%2BD3M7gtV2lug%3D%3D (Pubitemid 32056494)
4. NM Moselli F Debernardi F Piovano 2006 Forgoing life sustaining treatments: differences and similarities between North America and Europe. [Review] Acta Anaesthesiol Scand 50 1177 1186 17067320 10.1111/j.1399-6576.2006. 01150.x 1:STN:280:DC%2BD28nktVymtw%3D%3D (Pubitemid 44624295)
5. A Lautrette V Peigne J Watts B Souweine E Azoulay 2008 Surrogate decision makers for incompetent ICU patients: a European perspective Curr Opin Crit Care 14 714 719 19005315 10.1097/MCC.0b013e3283196319
6. CL Sprung SL Cohen P Sjokvist M Baras HH Bulow S Hovilehto D Ledoux A Lippert P Maia D Phelan W Schobersberger E Wennberg T Woodcock Ethicus Study Group 2003 End-of-life practices in European intensive care units: the Ethicus Study JAMA 290 790 797 12915432 10.1001/jama.290.6.790 (Pubitemid 37432956)
7. RMM Arnold JM Kellum 2003 Moral justifications for surrogate decision making in the intensive care unit: implications and limitations. [Review] Crit Care Med 31 347 353 10.1097/01.CCM.0000065123.23736.12
8. Buchanan AE, Brock DW (1989) Deciding for others: the ethics of surrogate decision making. Cambridge University Press, New York
9. JL McAdam KA Dracup DB White DK Fontaine KA Puntillo 2010 Symptom experiences of family members of intensive care unit patients at high risk for dying Crit Care Med 38 1078 1085 20124890 10.1097/CCM.0b013e3181cf6d94
10. E Azoulay F Pochard S Chevret M Jourdain C Bornstain A Wernet I Cattaneo D Annane F Brun PE Bollaert JR Zahar D Goldgran-Toledano C Adrie LM Joly J Tayoro T Desmettre E Pigne A Parrot O Sanchez C Poisson JR Le Gall B Schlemmer F Lemaire 2002 Impact of a family information leaflet on effectiveness of information provided to family members of intensive care unit patients: a multicenter, prospective, randomized, controlled trial Am J Respir Crit Care Med 165 438 442 11850333 (Pubitemid 34165464)
11. KH Abbott JG Sago CM Breen AP Abernethy JA Tulsky 2001 Families looking back: 1 year after discussion of withdrawal or withholding of life-sustaining support Crit Care Med 29 197 201 11176185 10.1097/00003246-200101000-00040 1:STN:280:DC%2BD3M7ksVWqsA%3D%3D (Pubitemid 32125798)
12. RD Truog ML Campbell JR Curtis CE Haas JM Luce GD Rubenfeld CH Rushton DC Kaufman American Academy of Critical Care Medicine 2008 Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine Crit Care Med 36 953 963 18431285 10.1097/CCM.0B013E3181659096
13. Carlet J, Thijs LG, Antonelli M, Cassell J, Cox P, Hill N, Hinds C, Pimentel JM, Reinhart K, Thompson BT (2004) Challenges in end-of-life care in the ICU. Statement of the 5th International Consensus Conference in Critical Care, Brussels, Belgium, April 2003. Intensive Care Med 30:770-784 (Pubitemid 38639466)
14. P Sjökvist T Nilstun M Svantesson L Berggren 1999 Withdrawal of life support - who should decide? Differences in attitudes among the general public, nurses and physicians Intensive Care Med 25 949 954 10501750 10.1007/s001340050987 (Pubitemid 29452540)
15. K Halvorsen R Forde P Nortvedt 2009 The principle of justice in patient priorities in the intensive care unit: the role of significant others J Med Ethics 35 483 487 19644006 10.1136/jme.2008.028183 1:STN:280: DC%2BD1MrisVCquw%3D%3D
16. M Svantesson P Sjokvist H Thorsén 2003 End-of-life decisions in Swedish ICUs: how do physicians from the admitting department reason? Intensive Crit Care Nurs 19 241 251 12915113 10.1016/S0964-3397(03)00055-7 (Pubitemid 37069907)
17. K Halvorsen R Forde P Nortvedt 2009 Value choices and considerations when limiting intensive care treatment: a qualitative study Acta Anaesthesiol Scand 53 10 17 19032565 10.1111/j.1399-6576.2008.01793.x 1:STN:280: DC%2BD1M%2Fls1yjsQ%3D%3D
18. EH Bunch 2000 Delayed clarification: information, clarification and ethical decisions in critical care in Norway J Adv Nurs 32 1485 1491 11136417 10.1046/j.1365-2648.2000.01613.x 1:STN:280:DC%2BD3M7ktVamug%3D%3D
19. M Tallgren P Klepstad J Petersson U Skram M Hynninen 2005 Ethical issues in intensive care - a survey among Scandinavian intensivists Acta Anaesthesiol Scand 49 1092 1100 16095450 10.1111/j.1399-6576.2005.00799.x 1:STN:280:DC%2BD2MvivFWqsA%3D%3D (Pubitemid 41192458)
20. Charmaz K (2006) Constructing grounded theory: a practical guide through qualitative analysis. Sage, London
21. Riessman CK (2008) Narrative methods for the human sciences. Sage, Los Angeles
22. JR Curtis DB White 2008 Practical guidance for evidence-based ICU family conferences Chest 134 835 843 18842916 10.1378/chest.08-0235
23. E Machare Delgado A Callahan G Paganelli B Reville SM Parks PE Marik 2009 Multidisciplinary family meetings in the ICU facilitate end-of-life decision making Am J Hos Palliat Care 26 295 302 10.1177/1049909109333934
24. A Lautrette M Ciroldi H Ksibi E Azoulay 2006 End-of-life family conferences: rooted in the evidence Crit Care Med 34 364 372 10.1097/01.CCM.0000237049.44246.8C (Pubitemid 44627427)
25. JH Laake 2007 Livsavslutning i intensivavdelinger Tidsskr Nor Laegeforen 127 3235 18084368 (Norwegian language)
26. HH Bulow 2004 Ethical considerations in the termination of intensive care Ugeskr Laeger 166 2352 2356 15281577
27. DK Heyland GM Rocker CJ O'Callaghan PM Dodek DJ Cook 2003 Dying in the ICU: perspectives of family members Chest 124 392 397 12853551 10.1378/chest.124.1.392 (Pubitemid 36851380)
28. JE Nelson KA Puntillo PJ Pronovost AS Walker JL McAdam D Ilaoa J Penrod 2010 In their own words: patients and families define high-quality palliative care in the intensive care unit Crit Care Med 38 808 818 20198726 10.1097/CCM.0b013e3181c5887c
29. P Sjokvist PO Sundin L Berggren 1998 Limiting life support. Experiences with a special protocol Acta Anaesthesiol Scand 42 232 237 9509209 10.1111/j.1399-6576.1998.tb05115.x 1:STN:280:DyaK1c7mvF2ntQ%3D%3D (Pubitemid 28067891)
30. G Melltorp T Nilstun 1996 Decisions to forego life-sustaining treatment and the duty of documentation Intensive Care Med 22 1015 1019 8923063 10.1007/BF01699221 1:STN:280:DyaK2s%2FotFyhsg%3D%3D (Pubitemid 26372163)
31. EJ Emanuel LL Emanuel 1992 Four models of the physician-patient relationship JAMA 267 2221 2226 1556799 10.1001/jama.267.16.2221 1:STN:280:DyaK383htFOrug%3D%3D
32. EJ Emanuel LL Emanuel 1992 Proxy decision making for incompetent patients. An ethical and empirical analysis JAMA 267 2067 2071 1552642 10.1001/jama.267.15.2067 1:STN:280:DyaK383gtlCmsw%3D%3D
33. JM Latour P Fulbrook JW Albarran 2009 EfCCNa survey: European intensive care nurses' attitudes and beliefs towards end-of-life care Nurs Crit Care 14 110 121 19366408 10.1111/j.1478-5153.2008.00328.x
34. E Ferrand F Lemaire B Regnier K Kuteifan M Badet P Asfar S Jaber JL Chagnon A Renault R Robert F Pochard C Herve C Brun-Buisson P Duvaldestin French RESSENTI Group 2003 Discrepancies between perceptions by physicians and nursing staff of intensive care unit end-of-life decisions Am J Respir Crit Care Med 167 1310 1315 12738597 10.1164/rccm.200207-752OC (Pubitemid 36609712)
35. SA Norton 2001 Working toward consensus: providers' strategies to shift patients from curative to palliative treatment choices Res Nurs Health 24 258 269 11746057 10.1002/nur.1028 1:STN:280:DC%2BD3MnpsFGiug%3D%3D (Pubitemid 33610385)
36. JR Curtis DL Patrick SE Shannon PD Treece RA Engelberg GD Rubenfeld 2001 The family conference as a focus to improve communication about end-of-life care in the intensive care unit: Opportunities for improvement Crit Care Med 29 26 33 10.1097/00003246-200102001-00006
37. DB White G Malvar J Karr B Lo JR Curtis 2010 Expanding the paradigm of the physician's role in surrogate decision-making: an empirically derived framework Crit Care Med 38 743 750 20029347 10.1097/CCM.0b013e3181c58842
38. KA Puntillo JL McAdam 2006 Communication between physicians and nurses as a target for improving end-of-life care in the intensive care unit: challenges and opportunities for moving forward Crit Care Med 34 332 340 10.1097/01.CCM.0000237047.31376.28 (Pubitemid 44627422)
39. Ambuel B, Weissman DE (2005) Fast fact and concept #16: conducting a family conference. Available at: http://www.aging.pitt.edu/professionals/ resources-polst/Fast-Fact-16-Family-Conf-2005.pdf Accessed Dec 14, 2010
40. L Fallowfield V Jenkins V Farewell J Saul A Duffy R Eves 2002 Efficacy of a Cancer Research UK communication skills training model for oncologists: a randomised controlled trial Lancet 359 650 656 11879860 10.1016/S0140-6736(02) 07810-8 (Pubitemid 34203764)