Chaos and Uncertainty: The Post-Caregiving Transition

Geriatric Nursing

Volumn 32, Issue 4, 2011, Pages 288-293

  Ume, Ebere P ^a   Evans, Bronwynne C ^a  

^a ARIZONA STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAREGIVER; HUMAN; NONLINEAR SYSTEM; SOCIAL SUPPORT; UNCERTAINTY;

CAREGIVERS; HUMANS; NONLINEAR DYNAMICS; SOCIAL SUPPORT; UNCERTAINTY;

EID: 79960939140     PISSN: 01974572     EISSN: 15283984     Source Type: Journal    
DOI: 10.1016/j.gerinurse.2011.06.009     Document Type: Article

References (34)

1. AARP, and The Metlife Foundation. Caregiving in the U.S. A focused look at those caring for someone age 50 or older. Exec Summ 2009, 1-16. National Alliance for Caregiving.
2. Wallace W., Dilworth-Anderson S., Goodwin P.Y. Caregiver role strain: the contribution of multiple roles and available resources in African-American women. Aging Ment Health 2003, 7:103-112.
3. Hirst M. Carer distress: a prospective, population-based study. Soc Sci Med 2005, 61:697-708.
4. Schulz R., Mendelsohn A., Haley W., et al. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. N Engl J Med 2003, 349:1936-1942.
5. Bullock K., Crawford S.L., Tennstedt S.L. Employment and caregiving: exploration of African American caregivers. Soc Work 2003, 48:150-162.
6. Stajduhar K.I., Martin W., Cairns M. What makes grief difficult? Perspectives from bereaved family caregivers and healthcare providers of advanced cancer patients. Palliat Support Care 2010, 8:277-289.
7. Burton A.M., Haley W.E., Small B.J. Bereavement after caregiving or unexpected death: effects on elderly spouses. Aging Ment Health 2006, 10:319-326.
8. Aneshensel C.S., Pearlin L.I., Levy-Storms L., Schuler R.H. The transition from home to nursing home mortality among people with dementia. J Gerontol Soc Sci 2000, 55B:S152-S162.
9. Aneshensel C.S., Botticello A.L., Yamamoto-Mitani N. When caregiving ends: the course of depressive symptoms after bereavement. J Health Soc Beh 2004, 45:422-440.
10. Pearlin LI, Zarit SH. Research into informal caregiving: current perspectives and future directions. In SH Zarit, LI Pearlin, and KW Schaie, eds. Caregiving systems: informal and formal helpers. Hillsdale, New Jersey: Lawrence Erlbaum Associates, Inc; 1993, p. 155-68.
11. Herbert R.S., Dang Q., Schulz R. Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH Study. J Palliat Med 2006, 9:683-693.
12. Meleis A. Transitions as a NURSING THEORY. Transitions theory: middle-range and situation-specific theories in nursing research and practice 2009, Springer Publishing Company, New York, 11.
13. Bridges W., Bridges S. It isn't the changes that do you in. Managing transitions: making the most of change 2009, 5. Da Copa Press, Philadelphia. 3rd edition.
14. Richardson V.E. Length of caregiving and well-being among older widowers: implications for the Dual Process Model of Bereavement. Omega 2010, 61:333-356.
15. Meleis A.I., Sawyer L.M., Im E., et al. Experiencing transitions: an emerging middle-range theory. Adv Nursing Sci 2000, 23:12-28.
16. Grant I., Adler K.A., Patterson T.L., et al. Health consequences of Alzheimer's caregiving transitions: effects of placement and bereavement. Psychosom Med 2002, 64:477-486.
17. Schulz R., Boerner K., Shear K., et al. Predictors of complicated grief among dementia caregivers: a prospective study of bereavement. Am J Geriatr Psychiatry 2006, 14:650-658.
18. Schulz R., Hebert R., Boerner K. Bereavement after caregiving. Geriatrics 2008, 63:20-22.
19. Rubio D., et al. Comparing the well-being of Post caregivers and non caregivers. Am J Alzheimers Dis Other Demen 2001, 16:97-101.
20. Li L.W. From caregiving to bereavement: trajectories of depressive symptoms among wife and daughter caregivers. J Gerontol Psychol Sci 2005, 60B:P190-P198.
21. Larkin M. Life after caring: the post-caring experiences of former carers. Br J Soc Work 2009, 39:1026-1042.
22. Holtslander L.F., Duggleby W.D. The hope experience of older bereaved women who cared for a spouse with terminal cancer. Qual Health Res 2009, 19:388-400.
23. Schulz R., Beach S.R. Caregiving as a risk factor for mortality. JAMA 1999, 16:2215-2219.
24. Bond M.J., Clark M.S., Davies S. The quality of life of spouse dementia caregivers: changes associated with yielding to formal care and widowhood. Soc Sci Med 2003, 57:2385-2395.
25. Almberg B.E., Grafstrom M., Winblad B. Caregivers of relatives with dementia: experiences encompassing social support and bereavement. Aging Ment Health 2000, 4:82-89.
26. Schulz R., Newsom J.T., Fleissner K., et al. The effects of bereavement after family caregiving. Aging Ment Health 1997, 1:269-282.
27. Koop P.M., Strang V.R. The bereavement experience following home-based family caregiving for persons with advanced cancer. Clin Nursing Res 2003, 12:127-144.
28. Dumont I., Dumont S., Mongeau S. End-of-life care and the grieving process: family caregivers who have experienced the loss of a terminal-phase cancer patient. Qual Health Res 2008, 18:1049-1061.
29. Schulz R., Beach S.R., Lind B., et al. Involvement in caregiving and adjustment to death of a spouse. JAMA 2001, 285:3123-3129.
30. Owen J.E., Goode K.T., Haley W.E. End of life care and reactions to death in African-American and white family caregivers of relatives with Alzheimer's disease. Omega 2001, 43:349-361.
31. Taylor D.H., Kuchibhatla M., Ostbye T., et al. The effect of spousal caregiving and bereavement on depressive symptoms. Aging Ment Health 2000, 12:100-107.
32. Carter P., Mikan S., Simpson C. A feasibility study of a two-session home-based cognitive behavioral therapy-insomnia intervention for bereaved family caregivers. Palliat Support Care 2009, 7:197-206.
33. Bernard L.L., Guarnaccia C.A. Two models of caregiver strain and bereavement adjustment: a comparison of husband and daughter caregivers of breast cancer hospice patients. Gerontologist 2003, 43:808-816.
34. Gustavson K., Dal Santo T.S. Caregiver service use: a complex story of care at the end of life. J Soc Work End-of-Life Palliat Care 2008, 4:286-311.