-
1
-
-
0034964422
-
Living a 'normal' life: Young people coping with thalassaemia major or sickle cell disorder
-
DOI 10.1016/S0277-9536(00)00364-6, PII S0277953600003646
-
Atkin, K., & Ahmad, W. (2001). Living a normal life: Young people coping with sickle cell disorder. Social Sciences & Medicine, 53(5), 615-626. (Pubitemid 32611682)
-
(2001)
Social Science and Medicine
, vol.53
, Issue.5
, pp. 615-626
-
-
Atkin, K.1
Ahmad, W.I.U.2
-
2
-
-
0012690348
-
The social and cultural context of coping with sickle cell disease: The role of financial hardship in adjustment to sickle cell disease
-
Barbarin, O. A., Whitten, C. F., Bond, S., & Warren, R. C. (1999). The social and cultural context of coping with sickle cell disease: The role of financial hardship in adjustment to sickle cell disease. Journal of Black Psychology, 25(3), 294-315.
-
(1999)
Journal of Black Psychology
, vol.25
, Issue.3
, pp. 294-315
-
-
Barbarin, O.A.1
Whitten, C.F.2
Bond, S.3
Warren, R.C.4
-
3
-
-
0000231949
-
Psychosocial Considerations in Sickle Cell Disease (SCD): The Transition from Adolescence to Young Adulthood
-
Baskin, M. L., Collins, M. H., Brown, F., Griffith, J. R., Samuels, D., Moody, A., : : : Kaslow, N. J. (1998). Psychosocial considerations in sickle cell disease: The transition from adolescence to young adulthood. Journal of Clinical Psychology in Medical Settings, 5(3), 315-341. (Pubitemid 128513884)
-
(1998)
Journal of Clinical Psychology in Medical Settings
, vol.5
, Issue.3
, pp. 315-341
-
-
Baskin, M.L.1
Collins, M.H.2
Brown, F.3
Griffith, J.R.4
Samuels, D.5
Moody, A.6
Thompson, M.P.7
Eckman, J.8
Kaslow, N.J.9
-
5
-
-
0035293209
-
A revolution in genetics: Changing medicine, changing lives
-
Bottles, K. (2001). A revolution in genetics: Changing medicine, changing lives. Physician Executive, 27(2), 58-63.
-
(2001)
Physician Executive
, vol.27
, Issue.2
, pp. 58-63
-
-
Bottles, K.1
-
6
-
-
0347320492
-
Technology challenges in screening single gene disorders
-
Braun, A., Roth, R., & McGinniss, M. J. (2003). Technology challenges in screening single gene disorders. European Journal of Pediatrics, 162(1), 13-16.
-
(2003)
European Journal of Pediatrics
, vol.162
, Issue.1
, pp. 13-16
-
-
Braun, A.1
Roth, R.2
McGinniss, M.J.3
-
8
-
-
2142858260
-
Sickle cell anemia: Causes, signs, symptoms, and treatment
-
Brewster, B. (2003). Sickle cell anemia: Causes, signs, symptoms, and treatment. Nursing Times, 99(29), 30-32.
-
(2003)
Nursing Times
, vol.99
, Issue.29
, pp. 30-32
-
-
Brewster, B.1
-
9
-
-
12944287077
-
Sickle cell disease
-
Buchanan, G. R., DeBaun, M. R., Quinn, C. T., & Steinberg, M. H. (2004). Sickle cell disease. Hematology, 1, 35-47.
-
(2004)
Hematology
, vol.1
, pp. 35-47
-
-
Buchanan, G.R.1
Debaun, M.R.2
Quinn, C.T.3
Steinberg, M.H.4
-
10
-
-
0036266365
-
A randomized, controlled trial of a community-based support program for families of children with chronic illness: Pediatric outcomes
-
Chernoff, R. G., Ivey, H. I. T., Devet, K. A., & Kim, Y. J. (2002). A randomized controlled trial of community-based support for families of children with chronic illness: Pediatric outcomes. Archives of Pediatrics & Adolescent Medicine, 156(6), 533-539. (Pubitemid 34596180)
-
(2002)
Archives of Pediatrics and Adolescent Medicine
, vol.156
, Issue.6
, pp. 533-539
-
-
Chernoff, R.G.1
Ireys, H.T.2
Devet, K.A.3
Kim, Y.J.4
-
11
-
-
0035139122
-
Sickle cell disease: No longer a single gene disorder
-
DOI 10.1097/00008480-200102000-00004
-
Chui, D. H. K., & Dover, G. J. (2001). Sickle cell disease: No longer a single gene disorder. Current Opinions in Pediatrics, 13(1), 22-27. (Pubitemid 32108783)
-
(2001)
Current Opinion in Pediatrics
, vol.13
, Issue.1
, pp. 22-27
-
-
Chui, D.H.K.1
Dover, G.J.2
-
12
-
-
0000191341
-
Psychosocial Interventions for Children and Adolescents With Sickle Cell Disease (SCD)
-
Collins, M., Kaslow, N., Doepke, K., Eckman, J., & Johnson, M. (1998). Psychosocial interventions for children and adolescents with sickle cell disease (SCD). Journal of Black Psychology, 24(4), 432-454. (Pubitemid 128150099)
-
(1998)
Journal of black psychology
, vol.24
, Issue.4
, pp. 432-454
-
-
Collins, M.1
Kaslow, N.2
Doepke, K.3
Eckman, J.4
Johnson, M.5
-
13
-
-
0023644113
-
Newborn screening for sickle cell disease and other hemoglobinopathies
-
Consensus Conference
-
Consensus Conference. (1987). Newborn screening for sickle cell disease and other hemoglobinopathies. Journal of the American Medical Association, 258, 1205-1209.
-
(1987)
Journal of the American Medical Association
, vol.258
, pp. 1205-1209
-
-
-
14
-
-
0012970293
-
-
New York, NY: Nature
-
Dennis, C., Gallagher, R., & Watson, J. D. (2001). The human genome. New York, NY: Nature.
-
(2001)
The Human Genome
-
-
Dennis, C.1
Gallagher, R.2
Watson, J.D.3
-
15
-
-
0022632336
-
The psychosocial adjustment to illness scale (PAIS)
-
Derogatis, L. R. (1983). The psychosocial adjustment to illness scale (PAIS). Journal of Psychosomatic Research, 30, 77-91.
-
(1983)
Journal of Psychosomatic Research
, vol.30
, pp. 77-91
-
-
Derogatis, L.R.1
-
16
-
-
0018892606
-
The clinical application of the biopsychosocial model
-
Engel, G. L. (1980). The clinical application of the biopsychosocial model. American Journal of Psychiatry, 137(5), 535-544. (Pubitemid 10107437)
-
(1980)
American Journal of Psychiatry
, vol.137
, Issue.5
, pp. 535-544
-
-
Engel, G.L.1
-
17
-
-
0033200514
-
Transitioning adolescents with sickle cell disease to adult center care
-
Hauser, E. S., & Dorn, L. (1999). Transitioning adolescents with sickle cell disease to adult center care. Pediatric Nursing, 25(5), 479-488.
-
(1999)
Pediatric Nursing
, vol.25
, Issue.5
, pp. 479-488
-
-
Hauser, E.S.1
Dorn, L.2
-
18
-
-
84928862267
-
Peculiar elongated and sickle shaped red blood corpuscles in a case of severe sickle cell anemia
-
Herrick, J. B. (1910). Peculiar elongated and sickle shaped red blood corpuscles in a case of severe sickle cell anemia. Archives of Internal Medicine, 6, 517-521.
-
(1910)
Archives of Internal Medicine
, vol.6
, pp. 517-521
-
-
Herrick, J.B.1
-
19
-
-
0034236486
-
Care of the child with sickle cell disease: Acute complications
-
Jakubik, L. D., & Thompson, M. (2000). Care of the child with sickle cell disease: Acute complications. Pediatric Nursing, 26(4), 375-396.
-
(2000)
Pediatric Nursing
, vol.26
, Issue.4
, pp. 375-396
-
-
Jakubik, L.D.1
Thompson, M.2
-
20
-
-
0034522127
-
The efficacy of a pilot psycho-educational intervention for sickle cell disease
-
Kaslow, N. Y., Collins, M. H., & Baskin, M. L. (2002). The efficacy of a pilot psycho-educational intervention for sickle cell disease. Families, Systems, and Health, 18(4), 381-404.
-
(2002)
Families, Systems, and Health
, vol.18
, Issue.4
, pp. 381-404
-
-
Kaslow, N.Y.1
Collins, M.H.2
Baskin, M.L.3
-
21
-
-
33644849465
-
Promoting children's health through understanding of genetics and genomics
-
DOI 10.1111/j.1547-5069.2005.00054.x
-
Kenner, C., Gallo, A. M., & Bryant, K. D. (2005). Promoting children's health through understanding of genetics and genomics. Journal of Nursing Scholarship, 37(4), 308-314. (Pubitemid 43961383)
-
(2005)
Journal of Nursing Scholarship
, vol.37
, Issue.4
, pp. 308-314
-
-
Kenner, C.1
Gallo, A.M.2
Bryant, K.D.3
-
26
-
-
0031944219
-
Health status in sickle cell disease: Examining the roles of pain coping strategies, somatic awareness, and negative affectivity
-
DOI 10.1023/A:1018763404868
-
McCrae, J. D., & Lumley, M. A. (1998). Health status in sickle cell disease: Examining the roles of pain coping strategies, somatic awareness, and negative affectivity. Journal of Behavioral Medicine, 21(1), 35-55. (Pubitemid 28146211)
-
(1998)
Journal of Behavioral Medicine
, vol.21
, Issue.1
, pp. 35-55
-
-
McCrae, J.D.1
Lumley, M.A.2
-
27
-
-
0027433020
-
Psychosocial aspects of sickle cell disease (SCD) in childhood and adolescence: A review
-
Midence, K., Fuggle, P., & Davies, S. C. (1993). Psychosocial aspects of sickle cell disease in childhood and adolescence: A review. British Journal of Clinical Psychology, 32, 271-280. (Pubitemid 23288211)
-
(1993)
British Journal of Clinical Psychology
, vol.32
, Issue.3
, pp. 271-280
-
-
Midence, K.1
Fuggle, P.2
Davies, S.C.3
-
28
-
-
0013370042
-
Sickle cell disease: A biopsychosocial model
-
I. L. Livingston (Ed.) Westport, CT: Greenwood
-
Nash, K. B., & Telfair, J. (1994). Sickle cell disease: A biopsychosocial model. In I. L. Livingston (Ed.), Handbook of black American health: The mosaic of conditions, issues, policies, and prospects (pp. 123-139). Westport, CT: Greenwood.
-
(1994)
Handbook of Black American Health: The Mosaic of Conditions, Issues, Policies, and Prospects
, pp. 123-139
-
-
Nash, K.B.1
Telfair, J.2
-
29
-
-
1642449676
-
-
National Institutes of Health Silver Spring, MD: U.S. Department of Health and Human Services
-
National Institutes of Health (1996). Facts about sickle cell anemia (NIH Publication No. 96-4057). Silver Spring, MD: U.S. Department of Health and Human Services.
-
(1996)
Facts about Sickle Cell Anemia (NIH Publication No. 96-4057)
-
-
-
30
-
-
0013409935
-
-
National Institutes of Health Silver Spring, MD: U.S. Department of Health and Human Services
-
National Institutes of Health (2002). The management of sickle cell disease (NIH Publication No. 02-2117). Silver Spring, MD: U.S. Department of Health and Human Services.
-
(2002)
The Management of Sickle Cell Disease (NIH Publication No. 02-2117)
-
-
-
31
-
-
33745635097
-
What do you know about genetics?
-
Newland, J. A. (2006). What do you know about genetics? The Nurse Practitioner, 5.
-
(2006)
The Nurse Practitioner
, vol.5
-
-
Newland, J.A.1
-
32
-
-
0000192486
-
Sickle cell anemia: A molecular disease
-
Pauling, L., Itano, H., Singer, S. J., & Wells, I. C. (1949). Sickle cell anemia: A molecular disease. Science, 110, 543-548.
-
(1949)
Science
, vol.110
, pp. 543-548
-
-
Pauling, L.1
Itano, H.2
Singer, S.J.3
Wells, I.C.4
-
33
-
-
2342551596
-
Adjustment difficulties of adolescents with sickle cell disease
-
Pickney, R., & Stuart, G. (2004). Adjustment difficulties of adolescents with sickle cell disease. Journal of Child and Adolescent Psychiatric Nursing, 16(4), 5-12.
-
(2004)
Journal of Child and Adolescent Psychiatric Nursing
, vol.16
, Issue.4
, pp. 5-12
-
-
Pickney, R.1
Stuart, G.2
-
34
-
-
0009549640
-
Historical milestones
-
S. H. Embury, R. P. Hebbel, N. Mohandas, & M. H. Steinburg. (Eds) New York: Ravon Press
-
Ramney, H. (1994). Historical milestones. In S. H. Embury, R. P. Hebbel, N. Mohandas, & M. H. Steinburg. (Eds). Sickle cell disease: Basic principles and clinical practices (pp. 1-5). New York: Ravon Press.
-
(1994)
Sickle Cell Disease: Basic Principles and Clinical Practices
, pp. 1-5
-
-
Ramney, H.1
-
36
-
-
0031065088
-
Adult Adjustment to Chronic Illness: A Review of the Literature
-
Sidell, N. (1997). Adult adjustment to chronic illness: A review of the literature. Health and Social Work, 22(1), 5-11. (Pubitemid 127456931)
-
(1997)
Health and Social Work
, vol.22
, Issue.1
, pp. 5-11
-
-
Sidell, N.L.1
-
37
-
-
85079981630
-
-
Springfield, NJ: Enslow
-
Silverstein, A., Silverstein, V., & Nunn, L. S. (1997). Diseases and people: Sickle cell anemia. Springfield, NJ: Enslow.
-
(1997)
Diseases and People: Sickle Cell Anemia
-
-
Silverstein, A.1
Silverstein, V.2
Nunn, L.S.3
-
38
-
-
0020351196
-
Testing the biopsychosocial model: The ultimate challenge facing behavioral medicine
-
Swartz, G. E. (1982). Testing the biopsychosocial model: The ultimate challenge facing behavioral medicine. Journal of Consulting and Clinical Psychology, 2(6), 1040-1053.
-
(1982)
Journal of Consulting and Clinical Psychology
, vol.2
, Issue.6
, pp. 1040-1053
-
-
Swartz, G.E.1
-
39
-
-
0000310739
-
African-American adolescents with sickle cell disease: Support groups and psychological well being
-
Telfair, J., & Gardner, M. M. (1999). African-American adolescents with sickle cell disease: Support groups and psychological well being. Journal of Black Psychology, 25(3), 378-390.
-
(1999)
Journal of Black Psychology
, vol.25
, Issue.3
, pp. 378-390
-
-
Telfair, J.1
Gardner, M.M.2
-
40
-
-
0001520927
-
Modes of social support: The social support behaviors (SSB) scale
-
Vaux, A., Riedel, S., & Stewart, D. (1987). Modes of social support: The social support behaviors (SSB) scale. American Journal of Community Psychiatry, 15, 209-237.
-
(1987)
American Journal of Community Psychiatry
, vol.15
, pp. 209-237
-
-
Vaux, A.1
Riedel, S.2
Stewart, D.3
-
42
-
-
85079970408
-
Novel therapeutic approaches in sickle cell disease
-
Walters, M. C., Nienhus, A. W., & Vichinsky, E. (2002). Novel therapeutic approaches in sickle cell disease. Hematology, 1(10), 1-36.
-
(2002)
Hematology
, vol.1
, Issue.10
, pp. 1-36
-
-
Walters, M.C.1
Nienhus, A.W.2
Vichinsky, E.3
-
44
-
-
0027064971
-
The implications of the human genome project for family practice
-
Whitaker, L. A. (1992). The implications of the human genome project for family practice. Family Practice, 35(3), 294-301.
-
(1992)
Family Practice
, vol.35
, Issue.3
, pp. 294-301
-
-
Whitaker, L.A.1
-
45
-
-
0029686374
-
Genome research: Implications for children
-
Williams, J. K. & Lessick, M. (1996). Genome research: Implications for children. Pediatric Nursing, 22(1), 40-46.
-
(1996)
Pediatric Nursing
, vol.22
, Issue.1
, pp. 40-46
-
-
Williams, J.K.1
Lessick, M.2
-
46
-
-
0011499415
-
-
Westport, CT: Praeger
-
Zilinskas, R. A., & Balint, P. J. (2001). The human genome project and minority communities: Ethical, social, and political dilemmas. Westport, CT: Praeger.
-
(2001)
The Human Genome Project and Minority Communities: Ethical, Social, and Political Dilemmas
-
-
Zilinskas, R.A.1
Balint, P.J.2
|