Psychosocial Considerations in Sickle Cell Disease (SCD): The Transition from Adolescence to Young Adulthood

Journal of Clinical Psychology in Medical Settings

Volumn 5, Issue 3, 1998, Pages 315-341

  Baskin, Monica L ^a   Collins, Marietta H ^b   Brown, Fontina ^a   Griffith, Jeana R ^b   Samuels, Denisse ^c   Moody, Anissa ^a   Thompson, Martha P ^b   Eckman, James ^b   Kaslow, Nadine J ^b  

^a GEORGIA STATE UNIVERSITY   (United States)

^b EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c CLARK ATLANTA UNIVERSITY   (United States)

Author keywords

Adolescents; Psychosocial; Sickle cell disease; Transition; Young adults

Indexed keywords

EID: 0000231949     PISSN: 10689583     EISSN: None     Source Type: Journal    
DOI: 10.1023/A:1026206204009     Document Type: Article

References (88)

1. Arroyo, C. G., & Zigler, E. (1995). Racial identity, academic achievement, and the psychological well-being of economically disadvantaged adolescents. Journal of Personality and Social Psychology, 69, 903-914.
2. Barbarin, O. A., Whitten C. F., & Bonds, S. M. (1994). Estimating rates of psychosocial problems in urban and poor children with sickle cell anemia. Health and Social Work, 19, 112-119.
3. Barrett, D. H., Wisotzek, I., Abel, G., Rouleau, J. L., Platt, A. F., Pollard, W. E., & Eckman, J. R. (1988). Assessment of psychosocial functioning of patients with sickle cell disease. Southern Medical Journal, 81, 745-750.
4. Battle, S. F. (1984). Chronically ill children with sickle cell anemia. In R. W. Blum (Ed.), Chronic Illness and Disabilities in Childhood and Adolescence. Orlando, FL: Grune & Stratton.
5. Baum, K. F., Dunn, D. T., Maude, G. H., & Serjeant, G. R. (1987). The painful crisis of homozygous sickle cell disease. Archives of Internal Medicine, 147, 1231-1234.
6. Bee, H. (1994). Lifespan development. New York: Harper Collins.
7. Belgrave, F. Z., & Molock, S. D. (1991). The role of depression in hospital admissions and emergency treatment of patients with sickle cell disease. Journal of the National Medical Association, 83, 777-781.
8. Blechman, E. A. (1992). Mentors for high-risk minority youth: From effective communication to bicultural competence. Journal of Clinical Child Psychology, 21, 160-169.
9. Boyd-Franldin, N. (1989). Black families in therapy. New York: Guilford Press.
10. Brown, R. T., Doepke, K. J., & Kaslow, N. J. (1993). Risk-resistance-adaptation model for pediatric chronic illness: Sickle cell syndrome as an example. Clinical Psychology Review, 13, 119-132.
11. Brown, R. T., Kaslow, N. J., Doepke, K., Buchanan, I., Eckman, J., Baldwin, K., & Goonan, B. (1993). Psychosocial and family functioning in children with sickle cell syndrome and their mothers. Journal of the American Academy of Child and Adolescent Psychiatry, 32, 545-553.
12. Brozovic, M., & Anionwu, E. (1984). Sickle cell disease. British Journal of Clinical Pathology, 37, 1321-1326.
13. Bunn, H. F., & Forget, B. G. (1986). Hemoglobin: Molecular, genetic, and clinical aspects. Philadelphia: W. B. Saunders.
14. Butler, D., & Beltran, L. (1993). Functions of an adult sickle cell group: Education, task orientation, and support. Journal of Social Work, 18, 49-56.
15. Charache, S., Terrin, M. L., Moore, R. D., Dover, G. J., Barton, F. B., Eckert, S. V., McMahon, R. P., Bonds, D. R., and the Investigators of the Multicenter Study of Hydroxyurea in Sickle Cell Anemia (1995). Effect of hydroxyurea on the frequency of painful crises in sickle cell anemia. New England Journal of Medicine, 332, 1317-1322.
16. Cross, W. E. (1971). The Negro-to-Black conversion experience: Toward a psychology of Black liberation. Black World, 20, 13-27.
17. Cross, W. E. (1987). A two-factor theory of Black identity: Implications for the study of identity development in minority children. In J. Phinney & M. Rotheram (Eds.), Children's ethnic socialization: Pluralism and development (pp. 117-133). Newbury Park, CA: Sage.
18. Cross, W. E. (1991). Shades of Black: Diversity in African American identity. Philadelphia: Temple University Press.
19. Day, S., Brunson, G., & Wang, W. (1992). A successful education program for parents of infants with newly diagnosed sickle cell disease. Journal of Pediatric Nursing, 7, 52-57.
20. Derogatis, L. (1983). SCL-90-R: Administration, scoring and procedures manual: II. Baltimore, MD: Clinical Psychometric Research.
21. Derogatis, L. R. (1986). The Psychosocial Adjustment to Illness Scale (PAIS). Journal of Psychosomatic Research, 30, 77-91.
22. Erikson, E. H. (1958). Identity: Youth and crisis. New York: W. W. Norton.
23. Farber, M. D., Koshy, M., Kinney, T. R., & the Cooperative Study of Sickle Cell Disease (1985). Cooperative study of sickle cell disease: Demographics and socioeconomic characteristics of patients and families with sickle cell disease. Journal of Chronic Disease, 38, 495-505.
24. Fowler, M. G., Johnson, M. P., & Atkinson, S. S. (1985). School achievement and absence in children with chronic health conditions. Journal of Pediatrics, 106, 683-687.
25. Gil, K. M., Abrams, M. R., Phillips, G., & Keefe, F. J. (1989). Sickle cell disease pain: Relation of coping strategies to adjustment. Journal of Consulting and Clinical Psychology, 57, 725-731.
26. Gil, K. M., Williams, D. A., Thompson, R. J., & Kinney, T. R. (1991). Sickle cell disease in children and adolescents: The relation of child and parent pain coping strategies to adjustment. Journal of Pediatric Psychology, 16, 643-663.
27. Gil, K. M., Abrams, M. R., Phillips, G., & Williams, D. A. (1992). Sickle cell disease pain: 2. Predicting health care use and activity level at 9-month follow-up. Journal of Consulting and Clinical Psychology, 60, 267-273.
28. Gil, K. M., Thompson, R. J., Keith, B. R., Tota-Faucette, N., Noll, S., & Kinney, T. R. (1993). Sickle cell disease pain in children and adolescents: Change in pain frequency and coping strategies over time. Journal of Pediatric Psychology, 18, 621-637.
29. Goodstein, R., & Ponterotto, J. G. (1997). Racial and ethnic identity: Their relationship and their contribution to self-esteem. Journal of Black Psychology, 23, 275-292.
30. Helms, J. E. (1990). An overview of Black racial identity theory. In J. E. Helms (Ed.), Black and White racial identity: Theory, research, and practice (pp. 9-31). New York: Greenwood Press.
31. Helms, J. E., & Parham, T. A. (1985). The Racial Identity Attitude Scale (RIAS). Unpublished manuscript, University of Maryland and University of California, Irvine.
32. Hurtig, A. L., Koepke, D., & Park, K. B. (1989). Relation between severity of chronic illness and adjustment in children and adolescents with sickle cell disease. Journal of Pediatric Psychology, 14, 117-132.
33. Hurtig, A. L., & Park, K. B. (1989). Adjustment and coping in adolescents with sickle cell disease. Annals of New York Academy of Sciences, 565, 172-182.
34. Hurtig, A. L., & White, L. S. (1986). Psychosocial adjustment in children and adolescents with sickle cell disease. Journal of Pediatric Psychology, 11, 411-427.
35. Kaslow, N. J., & Brown, F. (1995). Culturally sensitive family interventions for chronically ill youth: Sickle cell disease as an example. Family Systems Medicine, 13, 201-213.
36. Kirkpatrick, D. V., Barrios, N. J., & Humbert, J. H. (1991). Bone marrow transplantation for sickle cell anemia. Seminars in Hematology, 28, 240-243.
37. nd ed. (pp. 55-83). New York: Guilford Press.
38. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
39. Leavell, S. R., & Ford, C. V. (1983). Psychopathology in patients with sickle cell disease. Psychosomatics, 24, 23-37.
40. nd ed. (pp. 286-309). New York: Guilford Press.
41. Lemanek, K. L., Moore, S. L., Gresham, F. M., Williamson, D. A., & Kelly, M. L. (1986). Psychosocial adjustment of children with sickle cell anemia. Journal of Pediatric Psychology, 11, 397-410.
42. Lewis, H. A., & Kliewer, W. (1996). Hope, coping, and adjustment among children with sickle cell disease: Tests of mediator and moderator models. Journal of Pediatric Psychology, 21, 25-41.
43. Maldonado, D., Jr. (1975). Ethnic self-identity and self-understanding. Social Casework, 56, 618-622.
44. Marcia, J. (1980). Identity in adolescents. In J. Adelson (Ed.), Handbook of adolescent psychology (pp. 159-187). New York: Wiley and Sons.
45. Maton, K. I. (1988). Social support, organizational characteristics, psychological well- being, and group appraisal in three self-help group populations. American Journal of Community Psychology, 16, 53-77.
46. Molock, S., & Belgrave, F. (1994). Depression and anxiety in patients with sickle cell disease: Methodological considerations. In K. Nash (Ed.), Psychosocial aspects of sickle cell disease (pp. 39-53). New York: Hawthorn Press.
47. Morgan, S. A., & Jackson, J. (1986). Psychological and social concominants of sickle cell anemia in adolescents. Journal of Pediatric Psychology, 11, 429-440.
48. Munford, M. B. (1994). Relationship of gender, self-esteem, social class, and racial identity to depression in Blacks. Journal of Black Psychology, 20, 157-174.
49. Nadel, C., & Portadin, G. (1977). Sickle cell crises: Psychological factors associated with onset. New York State Journal of Medicine, 77, 1075-1078.
50. Nash, K. B., & Kramer, K. D. (1993). Self-help for sickle cell disease in African American communities. Journal of Applied Behavioral Science, 29, 202-215.
51. Ohaeri, J. U., Shokunbi, W. A., Akinlade, K. S., & Dare, L. O. (1995). The psychosocial problems of sickle cell disease sufferers and their methods of coping. Social Science Medicine, 40, 955-960.
52. Outlaw, F. H. (1993). Stress and coping: The influence of racism on the cognitive appraisal processing of African Americans. Issues in Mental Health Nursing, 14, 399-409.
53. Parham, T. A. (1989). Cycles of psychological nigrescence. Counseling Psychologist, 17, 187-226.
54. Parham, T., & Helms, J. (1985). Attitudes of racial identity and self-esteem of Black students: An exploratory investigation. Journal of College Student Personnel, 26, 143-147.
55. Perrin, S. P., Ginder, G. D., Faller, D. V., Dover, G. H., Ikuta, T., Witkowska, H. E., Cai, S. P., Vichinsky, E. P., & Olivieri, N. F. (1993). A short-term trial of butyrate to stimulate fetal- globin-gene expression in the beta-globin disorders. New England Journal of Medicine, 328, 81-86.
56. Peterson, C., & Seligman, M. E. P. (1987). Explanatory style and illness. Journal of Personality, 55, 237-265.
57. Phinney, J. S. (1989). Stages of ethnic identity development in minority group adolescents. Journal of Early Adolescence, 9, 34-49.
58. Phinney, J. S., Cantu, C. L., & Kurtz, D. A. (1997). Ethnic and American identity as predictors of self-esteem among African American, Latino, and White adolescents. Journal of Youth and Adolescence, 26, 165-185.
59. Plant, C. T., & Yanico, B. J. (1991). Relationship of racial identity and gender-role attitudes to Black women's psychological well-being. Journal of Counseling Psychology, 38, 315-322.
60. Platt, O. S., Brambilla, D. J., Rosse, W. F., Milner, P. F., Castro, O., Steinberg, M. H., & Klug, P. P. (1994). Mortality in sickle cell disease: Life expectancy and risk factors for early death. New England Journal of Medicine, 330, 1539-1644.
61. Plummer, D. L. (1995). Patterns of racial identity development of African American adolescent males and females. Journal of Black Psychology, 21, 168-180.
62. Ponterotto, J., & Wise, S. (1987). Construct validity study of the Racial Identity Attitude Scale. Journal of Counseling Psychology, 34, 218-223.
63. Rao, R. P., & Kramer, L. (1993). Stress and coping among mothers of infants with sickle cell condition. Children's Health Care, 22, 169-188.
64. Rodgers, G. P., Dover, G. J., Nobukiro, U., Noguchi, C. T., Schechter, A. N., & Nienhuis, A. W. (1993). Augmentation by erythropoietin of the fetal-hemoglobin response to hydroxyurea in sickle cell disease. New England Journal of Medicine, 328, 73-80.
65. Rosenthal, D. A., Guerney, R. M., & Moore, S. M. (1981). From trust to intimacy: A new inventory for examining Erikson's stages of psychosocial development. Journal of Youth and Adolescence, 10, 525-537.
66. Satin, W., La Greca, A. M., Zigo, M. A., & Skyler, J. S. (1989). Diabetes in adolescence: effects of multifamily group intervention and parent simulation of diabetes. Journal of Pediatric Psychology, 14, 259-275.
67. Schoenherr, S. J., Brown, R. T., Baldwin, K., & Kaslow, N. J. (1992). Attributional styles and psychopathology in pediatric chronic-illness groups. Journal of Clinical Child Psychology, 21, 380-387.
68. Seigel, W. M., Golden, N. H., Gough, J. W., Lashler, M. S., & Sacker, I. M. (1990). Depression, self-esteem, and life events in adolescents with chronic diseases. Journal of Adolescent Health Care, 11, 501-504.
69. Serjeant, G. R. (1985). Sickle cell disease. Oxford: Oxford University Press.
70. Shapiro, B. S. (1989). The management of pain in sickle cell disease. Pediatric Clinics of North America, 36(4), 1029-1045.
71. Shapiro, B., Dinges, D. F., Orne, E. D., Ohene-Fremong, K, & Orne, M. T. (1990). Recording of crisis pain in sickle cell disease. In D. Tyler, & E. Krane (Eds.), Advances in pain research and therapy (pp. 313-321). New York: Raven Press.
72. Spitzer, R. L., Williams, J. B. W., Gibbon, M., & First, M. B. (1992). The Structured Clinical Interview for DSM-III-R (SCID) I: History, rationale and description. Archives of General Psychiatry, 49, 624-629.
73. Telfair, J., Myers, J., & Drezner, S. (1994). Transfer as a component of the transition of adolescents with sickle cell disease to adult care: Adolescent, adult, and parent perspectives. Journal of Adolescent Health, 15, 558-565.
74. Thompson, R. J., Gil, K. M., Abrams, M. R., & Phillips, G. (1992). Stress, coping, and psychological adjustment of adults with sickle cell disease. Journal of Consulting and Clinical Psychology, 60(3), 433-440.
75. Thompson, R. J., Gil, K. M., Burbach, D. J., Keith, B. R., & Kinney, T. R. (1993a). Psychological adjustment of mothers of children and adolescents with sickle cell disease: The role of stress, coping methods, and family functioning. Journal of Pediatric Psychology, 18, 549-559.
76. Thompson, R. J., Gil, K. M., Burbach, D. J., Keith, B. R., & Kinney, T. R. (1993b). Role of child and maternal processes in the psychological adjustment of children with sickle cell disease. Journal of Consulting and Clinical Psychology, 61, 468-474.
77. Treadwell, M. J., & Gil, K. M. (1994). Psychosocial aspects. In S. H. Embury, R. P. Hebbel, N. Mohandas, and M. H. Steinberg (Eds.), Sickle cell disease: Basic principles and clinical practice (pp. 517-529). New York: Raven Press.
78. Utsey, S. O. (1991). Vocational rehabilitation and counseling approaches with sickle cell anemia. Journal of Applied Rehabilitation Counseling, 22, 29-31.
79. Vichinsky, E. P., Johnson, R., & Lubin, B. H. (1982). Multidisciplinary approach to pain management in sickle cell disease. American Journal of Pediatrics, Hematology, Oncology, 4, 328-333.
80. Walters, M. C., Patience, M., Leisenring, W., Eckman, J. R., Scott, J. P., Mentzer, W. C., Davies, S. C., Ohene-Frempong, K., Bernaudin, F., Matthews, D. C., Storb, R., & Siovan, K. M. (1996). Bone marrow transplantation for sickle cell disease. New England Journal of Medicine, 355, 369-376.
81. Weissman, M. M., & Bothwell, S. (1976). Assessment of social adjustment by patient self-report. Archives of General Psychiatry, 33, 1111-1115.
82. Whitten, C. F., & Fischhoff, J. (1974). Psychosocial effects of sickle cell disease. Archives of Internal Medicine, 133, 681-689.
83. Williams, I., Earles, A. N., & Pack, B. (1983). Psychological considerations in sickle cell disease. Nursing Clinics of North America, 18, 215-229.
84. Williams, J. B. W., Gibbon, M., First, M. B., Spitzer, R. L., Davies, M., Borus, J., House, M. J., Kane, J., Pope, H. G., Rounsaville, B., & Wittchen, H. (1992). The Structures Clinical Interview for DSM-III-R (SCID) II: Multisite test-retest reliability. Archives of General Psychiatry, 49, 630-636.
85. Wilson, J., Gil, K., Burchinal, P., Kramer, K., & Nash, K. (1996). Depression, disease, severity, and sickle cell disease. Unpublished manuscript.
86. Wood, B. L. (1995). A developmental biopsychosocial approach to the treatment of chronic illness in children and adolescents. In R. H. Mikesell, D. D. Lusterman, & S. H. McDaniel (Eds.), Integrating family therapy: Handbook of family psychology and systems theory (pp. 437-455). Washington, DC: American Psychological Association.
87. Wright, H. H., & Phillips, L. G. (1988). Psychosocial issues in sickle cell disease. In A. F. Coner-Edwards & J. Spurlock (Eds.), Black families in crises: The middle class. New York: Brunner/Mazel.
88. Yanico, B. J., Swanson, J. L., & Tokar, D. M. (1994). A psychometric investigation of the Black Racial Identity Attitude Scale-Form B. Journal of Vocational Behavior, 44, 218-234.