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Volumn 12, Issue 1, 2011, Pages

Qualitative thematic analysis of consent forms used in cancer genome sequencing

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; BELGIUM; CANADA; ETHICS; GENETIC SCREENING; GENETICS; HUMAN; HUMAN GENOME; INFORMED CONSENT; METHODOLOGY; NEOPLASM; NETHERLANDS; PROFESSIONAL STANDARD; QUALITATIVE RESEARCH; STANDARD; UNITED KINGDOM; UNITED STATES;

EID: 79960565912     PISSN: None     EISSN: 14726939     Source Type: Journal    
DOI: 10.1186/1472-6939-12-14     Document Type: Article
Times cited : (25)

References (33)
  • 1
    • 77950440741 scopus 로고    scopus 로고
    • Has the Revolution Arrived?
    • 10.1038/464674a 20360716
    • Has the Revolution Arrived? Collins F, Nature 2010 464 674 675 10.1038/464674a 20360716
    • (2010) Nature , vol.464 , pp. 674-675
    • Collins, F.1
  • 2
    • 79952183410 scopus 로고    scopus 로고
    • The Advent of Personal Genome Sequencing
    • The Advent of Personal Genome Sequencing. Drmanac R, Genet Med 2010 13 188 190
    • (2010) Genet Med , vol.13 , pp. 188-190
    • Drmanac, R.1
  • 3
    • 77953706104 scopus 로고    scopus 로고
    • Whole-Genome Sequencing Breaks the Cost Barrier
    • 10.1016/j.cell.2010.05.034 20550926
    • Whole-Genome Sequencing Breaks the Cost Barrier. Bonetta L, Cell 2010 141 917 919 10.1016/j.cell.2010.05.034 20550926
    • (2010) Cell , vol.141 , pp. 917-919
    • Bonetta, L.1
  • 4
    • 64749094310 scopus 로고    scopus 로고
    • The cancer genome
    • 10.1038/nature07943 19360079
    • The cancer genome. Stratton MR, Campbell PJ, Futreal PA, Nature 2009 458 719 724 10.1038/nature07943 19360079
    • (2009) Nature , vol.458 , pp. 719-724
    • Stratton, M.R.1    Campbell, P.J.2    Futreal, P.A.3
  • 6
    • 38549099198 scopus 로고    scopus 로고
    • Biobanks and blanket consent: The proper place of the public perception and public good rationales
    • 21776343
    • Biobanks and blanket consent: the proper place of the public perception and public good rationales. Caulfield T, King's Law J 2007 18 209 226 21776343
    • (2007) King's Law J , vol.18 , pp. 209-226
    • Caulfield, T.1
  • 7
    • 33750624177 scopus 로고    scopus 로고
    • Undesirable implications of disclosing individual genetic results to research participants
    • DOI 10.1080/15265160600935811, PII NPK674654V3477P4
    • Undesirable Implications of Disclosing Individual Genetic Results to Research Participants. Meltzer LA, Am J Bioeth 2006 6 28 30 17085401 (Pubitemid 44691480)
    • (2006) American Journal of Bioethics , vol.6 , Issue.6 , pp. 28-30
    • Meltzer, L.A.1
  • 8
    • 38549085235 scopus 로고    scopus 로고
    • Research ethics and the challenge of whole-genome sequencing
    • DOI 10.1038/nrg2302, PII NRG2302
    • Research Ethics and the Challenge of whole-genome sequencing. McGuire AL, Caulfield T, Cho MK, Nat Rev Genet 2008 9 152 156 18087293 (Pubitemid 351147709)
    • (2008) Nature Reviews Genetics , vol.9 , Issue.2 , pp. 152-156
    • McGuire, A.L.1    Caulfield, T.2    Cho, M.K.3
  • 10
    • 59649110565 scopus 로고    scopus 로고
    • Informed consent in biobank research: A deliberative approach to the debate
    • 21776216
    • Informed consent in biobank research: A deliberative approach to the debate. Secko DM, Preto N, Niemeyer S, Burgess MM, Social Science & Medicine 2008 68 781 789 21776216
    • (2008) Social Science & Medicine , vol.68 , pp. 781-789
    • Secko, D.M.1    Preto, N.2    Niemeyer, S.3    Burgess, M.M.4
  • 11
    • 33344475590 scopus 로고    scopus 로고
    • Should donors be allowed to give broad consent to future biobank research?
    • DOI 10.1016/S1470-2045(06)70618-0, PII S1470204506706180
    • Should donors be allowed to give broad consent to future biobank research? Hansson M, Dillner J, Bartram CR, Carlson J A, Helgesson G, Lancet Oncology 2006 7 266 269 10.1016/S1470-2045(06)70618-0 16510336 (Pubitemid 43286456)
    • (2006) Lancet Oncology , vol.7 , Issue.3 , pp. 266-269
    • Hansson, M.G.1    Dillner, J.2    Bartram, C.R.3    Carlson, J.A.4    Helgesson, G.5
  • 12
    • 11144348715 scopus 로고    scopus 로고
    • An evaluation of the current state of genomic data privacy protection technology and a roadmap for the future
    • DOI 10.1197/jamia.M1603, PII S1067502704001549
    • An evaluation of the current state of genomic data privacy protection technology and a roadmap for the future. Malin BA, J Am Med Inform Assoc 2005 12 28 34 15492030 (Pubitemid 40038620)
    • (2005) Journal of the American Medical Informatics Association , vol.12 , Issue.1 , pp. 28-34
    • Malin, B.A.1
  • 13
    • 0347750518 scopus 로고    scopus 로고
    • DNA databanks and consent: A suggested policy option involving an authorization model
    • DNA databanks and consent: a suggested policy option involving an authorization model. Caulfield T, Upshur R, Daar A, BMC Medical Ethics 2007 4
    • (2007) BMC Medical Ethics , vol.4
    • Caulfield, T.1    Upshur, R.2    Daar, A.3
  • 14
    • 52049118113 scopus 로고    scopus 로고
    • Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: Points to consider
    • 10.1097/GIM.0b013e31817a8aaa 18580687
    • Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. McGuire AL, Fisher R, Cusenza P, Hudson K, Rothstein MA, McGraw D, Matteson S, Glaser J, Henley DE, Genet Med 2008 10 495 499 10.1097/GIM.0b013e31817a8aaa 18580687
    • (2008) Genet Med , vol.10 , pp. 495-499
    • McGuire, A.L.1    Fisher, R.2    Cusenza, P.3    Hudson, K.4    Rothstein, M.A.5    McGraw, D.6    Matteson, S.7    Glaser, J.8    Henley, D.E.9
  • 16
    • 63449084638 scopus 로고    scopus 로고
    • Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing
    • 10.1097/GIM.0b013e318194ee75 19287242
    • Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing. Barlow-Stewart K, Taylor SD, Treloar SA, Stranger M, Otlowski M, Genet Med 2009 11 193 201 10.1097/GIM.0b013e318194ee75 19287242
    • (2009) Genet Med , vol.11 , pp. 193-201
    • Barlow-Stewart, K.1    Taylor, S.D.2    Treloar, S.A.3    Stranger, M.4    Otlowski, M.5
  • 17
    • 77951571382 scopus 로고    scopus 로고
    • Handling ethical, legal and social issues in birth cohort studies involving genetic research: Responses from studies in six countries
    • 10.1186/1472-6939-11-4 20331891
    • Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries. Ries NM, LeGrandeur J, Caulfield T, BMC Med Ethics 2010 11 4 12 10.1186/1472-6939-11-4 20331891
    • (2010) BMC Med Ethics , vol.11 , pp. 4-12
    • Ries, N.M.1    Legrandeur, J.2    Caulfield, T.3
  • 18
    • 47949120149 scopus 로고    scopus 로고
    • The Genetic Information Nondiscrimination Act: Why Your Personal Genetics are Still Vulnerable to Discrimination
    • DOI 10.1016/j.suc.2008.04.004, PII S0039610908000510
    • The Genetic Information Nondiscrimination Act: Why your Personal Genetics are Still Vulnerable to Discrimination. Slaughter LM, Surg Clin N Am 2008 88 723 738 10.1016/j.suc.2008.04.004 18672138 (Pubitemid 352043832)
    • (2008) Surgical Clinics of North America , vol.88 , Issue.4 , pp. 723-738
    • Slaughter, L.M.1
  • 19
    • 33750611619 scopus 로고    scopus 로고
    • When do genetic researchers have a duty to recontact study participants?
    • DOI 10.1080/15265160600935746, PII U232273430500146
    • When Do Genetic Researchers Have a Duty to Re-contact Study Participants? Wade CH, Kalfoglou AL, Am J Bioeth 2006 6 26 27 17085400 (Pubitemid 44691479)
    • (2006) American Journal of Bioethics , vol.6 , Issue.6 , pp. 26-27
    • Wade, C.H.1    Kalfoglou, A.L.2
  • 20
    • 41649109807 scopus 로고    scopus 로고
    • Translating insights from the cancer genome into clinical practice
    • DOI 10.1038/nature06914, PII NATURE06914
    • Translating insights from the cancer genome into clinical practice. Chin L, Gray JW, Nature 2008 452 553 563 10.1038/nature06914 18385729 (Pubitemid 351483369)
    • (2008) Nature , vol.452 , Issue.7187 , pp. 553-563
    • Chin, L.1    Gray, J.W.2
  • 21
    • 75549084134 scopus 로고    scopus 로고
    • Personalized genomic information: Preparing for the future of genetic medicine
    • 20065954
    • Personalized genomic information: preparing for the future of genetic medicine. Guttmacher AE, McGuire AL, Ponder B, Stefansson K, Nat Rev Genet 2010 11 161 165 20065954
    • (2010) Nat Rev Genet , vol.11 , pp. 161-165
    • Guttmacher, A.E.1    McGuire, A.L.2    Ponder, B.3    Stefansson, K.4
  • 22
    • 57349167685 scopus 로고    scopus 로고
    • Public Expectations for Return of Results from Large-Cohort Genetic Research
    • 19061108
    • Public Expectations for Return of Results from Large-Cohort Genetic Research. Murphy J, Scott J, Kaufman D, Geller G, Hudson K, Am J Bioeth 2008 8 36 43 19061108
    • (2008) Am J Bioeth , vol.8 , pp. 36-43
    • Murphy, J.1    Scott, J.2    Kaufman, D.3    Geller, G.4    Hudson, K.5
  • 24
    • 33750631748 scopus 로고    scopus 로고
    • Disclosing individual genetic results to research participants
    • DOI 10.1080/15265160600934772, PII K2052P45R4645537
    • Disclosing Individual Genetic Results to Research Participants. Ravitsky V, Wilfond BS, Am J Bioeth 2006 6 8 17 17085395 (Pubitemid 44691474)
    • (2006) American Journal of Bioethics , vol.6 , Issue.6 , pp. 8-17
    • Ravitsky, V.1    Wilfond, B.S.2
  • 26
    • 44949089705 scopus 로고    scopus 로고
    • Incidental findings in human subjects research: What do investigators owe research participants?
    • 10.1111/j.1748-720X.2008.00269.x 18547194
    • Incidental findings in human subjects research: What do investigators owe research participants? Miller FG, Mello MM, Joffe S, J Law Med Ethics 2008 36 271 10.1111/j.1748-720X.2008.00269.x 18547194
    • (2008) J Law Med Ethics , vol.36 , pp. 271
    • Miller, F.G.1    Mello, M.M.2    Joffe, S.3
  • 27
    • 33750388916 scopus 로고    scopus 로고
    • The emergence of an ethical duty to disclose genetic research results: International perspectives
    • DOI 10.1038/sj.ejhg.5201690, PII 5201690
    • The emergence of an ethical duty to disclose genetic research results: international perspectives. Knoppers BM, Joly Y, Simard J, Durocher F, Eur J Hum Genet 2006 13 1170 1178 (Pubitemid 44642582)
    • (2006) European Journal of Human Genetics , vol.14 , Issue.11 , pp. 1170-1178
    • Knoppers, B.M.1    Joly, Y.2    Simard, J.3    Durocher, F.4
  • 28
    • 77951914791 scopus 로고    scopus 로고
    • Personal genome research: What should the participant be told?
    • 10.1016/j.tig.2009.12.007 20381895
    • Personal genome research: what should the participant be told? McGuire AL, Lupski JR, Trends Genet 2010 26 199 201 10.1016/j.tig.2009.12.007 20381895
    • (2010) Trends Genet , vol.26 , pp. 199-201
    • McGuire, A.L.1    Lupski, J.R.2
  • 29
    • 79151476271 scopus 로고    scopus 로고
    • Disclosure of individual genetic data to research participants: The debate reconsidered
    • 10.1016/j.tig.2010.11.004 21190750
    • Disclosure of individual genetic data to research participants: the debate reconsidered. Bredenoord AL, Kroes HY, Cuppen E, Parker M, van Delden JJM, Trends Genet 2011 27 41 7 10.1016/j.tig.2010.11.004 21190750
    • (2011) Trends Genet , vol.27 , pp. 41-7
    • Bredenoord, A.L.1    Kroes, H.Y.2    Cuppen, E.3    Parker, M.4    Van Delden, J.J.M.5
  • 30
    • 7644233870 scopus 로고    scopus 로고
    • United Nations Educational,Scientific and Cultural Organization
    • United Nations Educational,Scientific and Cultural Organization, International Declaration on Human Genetic Data 2003 http://www.unesco.org/new/ en/unesco human-sciences/themes/bioethics/human-genetic-data/
    • (2003) International Declaration on Human Genetic Data
  • 32
    • 77957252585 scopus 로고    scopus 로고
    • Application of second-generation sequencing to cancer genomics
    • 10.1093/bib/bbq013 20427421
    • Application of second-generation sequencing to cancer genomics. Robison K, Brief Bioinform 2010 11 524 534 10.1093/bib/bbq013 20427421
    • (2010) Brief Bioinform , vol.11 , pp. 524-534
    • Robison, K.1
  • 33
    • 77952574849 scopus 로고    scopus 로고
    • Uncovering the roles of rare variants in common disease through whole-genome sequencing
    • 10.1038/nrg2779 20479773
    • Uncovering the roles of rare variants in common disease through whole-genome sequencing. Ciruli ET, Goldstein DB, Nat Rev Genet 2010 11 415 425 10.1038/nrg2779 20479773
    • (2010) Nat Rev Genet , vol.11 , pp. 415-425
    • Ciruli, E.T.1    Goldstein, D.B.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.