The Genetic Information Nondiscrimination Act: Why Your Personal Genetics are Still Vulnerable to Discrimination

Surgical Clinics of North America

Volumn 88, Issue 4, 2008, Pages 723-738

  Slaughter, Louise M ^a  

^a US House of Representatives   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACT; EMPLOYER; GENETIC ANALYSIS; GENETIC INFORMATION NONDISCRIMINATION ACT; GOVERNMENT; HEALTH INSURANCE; LAW; LEGAL ASPECT; MEDICAL ETHICS; MEDICAL INFORMATION; POLITICS; PRIORITY JOURNAL; PUBLIC HEALTH SERVICE; REVIEW; SOCIAL ASPECT; SOCIAL DISCRIMINATION; UNITED STATES;

FEDERAL GOVERNMENT; GENETIC SCREENING; GOVERNMENT REGULATION; HUMANS; NEOPLASMS; PERSONNEL MANAGEMENT; PRIVACY; TRUTH DISCLOSURE; UNITED STATES;

EID: 47949120149     PISSN: 00396109     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.suc.2008.04.004     Document Type: Review

References (22)

1. Schoonmaker M, Williams ED. Genetic testing: scientific background and nondiscrimination legislation. Congressional Research Service Report for Congress 3,4 (updated March 21, 2005).
2. Johns Hopkins University Genetics and Public Policy Center. Reproductive genetic testing: what America thinks 4 (2004).
3. Slaughter LM. Genetic non-discrimination: examining the implications for workers and employers. Statement at the hearing before the Subcommittee on Employer-Employee Relations of the House Education and the Workforce Committee, 108th Congress 87 (2004).
4. Williams E, Sarata A, Redhead CS. Genetic discrimination: overview of the issue and proposed legislation. Congressional Research Service Report for Congress 10 (updated March 7, 2007).
5. Public perspectives on genetic discrimination. Comments from the Secretary's Advisory Committee on Genetics, Health, and Society 29, 30 (2004). Available at:. www4.od.nih.gov/oba/sacghs/reports/Public_Perspectives_GenDiscrim.pdf Accessed July 1, 2008
6. A roadmap for the integration of genetics and genomics in society. Report on the study priorities of the Secretary's Advisory Committee on Genetics, Health, and Society 20 (2004). Available at:. www4.od.nih.gov/oba/sacghs/reports/reports.html Accessed July 1, 2008
7. The U.S. Equal Employment Opportunity Commission. EEOC settles ADA suit against BNSF for genetic bias (April 18, 2001). Available at:. www.eeoc.gov/press/4-18-01.html Accessed July 6, 2005
8. White C. Americans' attitudes towards genetic discrimination. Cogent Research 3-4, 2006.
9. Hadley D.W., Jenkins J., Dimond E., et al. Genetic counseling and testing in families with hereditary nonpolyposis colorectal cancer. Arch Intern Med 163 (2003) 573-582
10. Lanman R.B. The Secretary's Advisory Committee on Genetics, Health, and Society. An analysis of the adequacy of current law in protecting against genetic discrimination in health insurance and employment 23 (May 2005). Available at:. www4.od.nih.gov/oba/SACGHS.htm Accessed July 1, 2008
11. Tuckson R.V. Letter from the Chair of the Secretary's Advisory Committee on Genetics, Health, and Society to Michael O. Levitt, Secretary of Health and Human Services (May 3, 2005). Available at:. www4.od.nih.gov/oba/sacghs/reports/letter_to_Sec_05_03_2005.pdf Accessed July 1, 2008
12. Masny A. SACGHS efforts on genetic discrimination issue, slide 9 (June 15, 2005). Available at:. www4.od.nih.gov/oba/SACGHS/meetings/June2005/Masny.pdf Accessed July 1, 2008
13. Peterson CL. Health insurance coverage: characteristics of the insured and uninsured populations in 2003. Congressional Research Service Report for Congress 2 (last updated August 27, 2004).
14. Genetic Information Nondiscrimination Act, H.R. 493, S. 358. 110th Cong., 1st Session. Available at: frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=110_cong_bills&do cid=f:h493eh.txt.pdf and frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=110_cong_bills&do cid=f:s358is.txt.pdf. Accessed February 1, 2008
15. Genetic discrimination bill clears Senate. House in no hurry to act. National Journal's Congress Daily (October 15, 2003)
16. Roll call vote 11. Available at: (February 17, 2005). http://www.senate.gov/legislative/LIS/roll_call_lists/roll_call_vote_cfm .cfm?congress=109&;session=1&vote=00011
17. Executive Office of the President, Office of Management and Budget. Statement of administration policy. H.R. 493-Genetic Information Nondiscrimination Act of 2007 (April 25, 2007). Available at:. www.whitehouse.gov/omb/legislative/sap/110-1/hr493sap-h.pdf Accessed July 1, 2008
18. Collins F.S., and Watson J.D. Genetic discrimination: time to act. Science 302 (2003) 745
19. President Bush participates in roundtable on advances in cancer prevention at the National Institutes of Health, Bethesda, MD. Available at: (2007). www.whitehouse.gov/news/releases/2007/01/20070117-1.html Accessed July 1, 2008
20. Coalition for Genetic Fairness. Available at:. www.geneticfairness.org/members.html Accessed July 11, 2005
21. Josten R.B. Cause of action against employers based on claims of genetic discrimination. U.S. Chamber of Commerce letter to U.S. Senator Gregg (May 13, 2003). Available at:. www.uschamber.com/issues/letters/2003/030513dna.htm Accessed June 22, 2005
22. Genetic discrimination bill stalls in House. National Journal's CongressDaily (April 20, 2004)