Experiences and perceptions of culturally and linguistically diverse family carers of people with dementia

American Journal of Alzheimer's Disease and other Dementias

Volumn 26, Issue 4, 2011, Pages 290-297

  Boughtwood, Desiree Leone ^a   Adams, Jon ^b   Shanley, Chris ^c   Santalucia, Yvonne ^c   Kyriazopoulos, Helena ^d  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

^c LIVERPOOL HOSPITAL   (Australia)

^d Alzheimer's Australia   (Australia)

Author keywords

concerns; culturally and linguistically diverse; dementia; family carers; tasks

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CAREGIVER; CULTURAL FACTOR; DEMENTIA; FAMILY; FEMALE; HUMAN; LINGUISTICS; MALE; PERCEPTION;

EID: 79960476069     PISSN: 15333175     EISSN: 19382731     Source Type: Journal    
DOI: 10.1177/1533317511411908     Document Type: Article

References (34)

1. Betts Adams K. The transition to caregiving: the experience of family members embarking on the dementia caregiving career. J Gerontol Soc. Work. 2006 ; 47 (3 / 4). 3-29.
2. Aguglia E., Onor ML, Trevisiol M., Negro C., Saina M., Maso E. Stress in the caregivers of Alzheimer's patients: an experimental investigation. Am J Alzheimer's Dis Other Demen. 2004 ; 19 (4). 248-252. (Pubitemid 39095811)
3. Vellone E., Sansoni J., Cohen MZ The experience of Italians caring for family members with Alzheimer's disease. J Nurs Sch. 2002 ; 34 (4). 323-329. (Pubitemid 41743566)
4. Bruce DG, Patterson A. Barriers to community support for the dementia carer: a qualitative study. International Journal of Geriatric Psychiatry. 2000 ; 15 (5). 451-457. (Pubitemid 30325797)
5. Bruce DG, Paley GA, Underwood PJ, Roberts D., Steed D. Communication problems between dementia carers and general practitioners: effect on access to community support services. Med J Aust. 2002 ; 177 (4). 186-188. (Pubitemid 35021428)
6. Hinton L., Franz CF, Yeo G., Levkoff SE Conceptions of dementia in a multiethnic sample of family caregivers. J Am Geriatr Soc. 2005 ; 53 (8). 1405-1410. (Pubitemid 41602489)
7. Neary S., Mahoney DF Dementia caregiving: the experiences of Hispanic/Latino caregivers. J Transcult Nurs. 2005 ; 16 (2). 163-170. (Pubitemid 40522574)
8. Draper B. Dealing with Dementia. Australia: Allen and Unwin ; 2004.
9. Farran CJ, Paun O., Elliot MH Spirituality in multicultural caregivers of persons with dementia. Dementia. 2003 ; 2 (3). 353-377.
10. Janevic MR, Connell CM Racial, Ethnic, and cultural differences in the dementia caregiving experience: recent findings. Gerontologist. 2001 ; 41 (3). 334-347. (Pubitemid 32525550)
11. Mahoney DF, Cloutterbuck J., Neary S., Zhan L. African American, Chinese, and Latino family caregivers' impressions of the onset and diagnosis of dementia: cross-cultural similarities and differences. Gerontologist. 2005 ; 45 (6). 783-792. (Pubitemid 41759784)
12. Vickrey BG, Strickland TL, Fitten LJ, Rodriguez Adams G., Ortiz F., Hays RD Ethnic Variations in dementia caregiving experiences: insights from focus groups. Journal of Human Behavior in the Social Environment. 2007 ; 15 (2 / 3). 233-249.
13. Fox K., Hinton L., Levkoff S. Take up the caregivers burden: stories of care for urban African American elders with Dementia. Cult Med Psychiatry. 1999 ; 23: 501-529.
14. Liu D., Hinton L., Tran C., Hinton D., Barker JC Reexamining the relationships among dementia, stigma, and aging in immigrant chinese and vietnamese family caregivers. J Cross Cult Gerontol. 2008 ; 23 (3). 283-299.
15. McBride MR, Morioka-Douglas N., Yeo G. Aging and Health: Asian and Pacific Islander American Elders. Palo Alto, CA: Stanford Geriatric Education Centre ; 1996.
16. Dilworth-Anderson P., Gibson BE The cultural influence of values, norms, meanings and perceptions in understanding dementia in ethnic minorities. Alzheimer Dis Assoc Disord. 2002 ; 16 (Suppl 2). 56-63.
17. Wang PC, Gallagher-Thompson D. Resolution of intergenerational conflict in a Chinese female dementia caregiver: a case study using cognitive behavioral methods. Clin Gerontol. 2005 ; 28 (3). 91-94. (Pubitemid 40933084)
18. Villa ML, Cuellar J., Gamel N., Yeo G. Aging and Health: Hispanic American Elders. Palo Alto, CA: Stanford Geriatric Education Centre ; 1993.
19. Borrayo EA, Goldwaser G., Vacha-Haase T., Hepburn KW An inquiry into Latino caregivers' experience caring for older adults with Alzheimer's disease and related dementias. Journal of Applied Gerontology. 2007 ; 26 (5). 486-505. (Pubitemid 47573546)
20. Los Angeles County Department of Public Health. Alzheimer's Disease: An Emerging Public Health Concern. Los Angeles, CA: Office of Health Assessment and Epidemiology ; 2008.
21. Ho B., Friedland J., Rappolt S., Noh S. Caregiving for relatives with Alzheimer's disease: feelings of Chinese-Canadian women. Journal of Ageing Studies. 2003 ; 17 (3). 301-321. (Pubitemid 36656831)
22. Reynoso-Vallejo H. Support group for Latino caregivers of dementia elders: cultural humility and cultural competence. Ageing Int. 2009 ; 34: 67-78.
23. Batrouney T. From White Australia' to Multiculturalism: citizenship and identity. Part1, Introduction: 37-62. Hage G, ed. Arab Australians Today: Citizenship and Belonging. Australia: Melbourne University Press ; 2002.
24. Jones P. Chinese-Australian Journeys. Records on Travel, Migration and Settlement, 1860-1975. Canberra: National Archives of Australia ; 2005.
25. Berisic M., Nesvadba N. Perceptions of Dementia in Ethnic Communities. Melbourne: Alzheimers Australia; 2008.
26. Aizpurna RL Through the Women's Eyes: Latin American Women's Experience of Immigration to Australia [dissertation]. Melbourne: Victoria University ; 2008.
27. Garcia I. Operacion Canguro. The Spanish Migration Scheme, 1958-1963. Sydney: Spanish Heritage Foundation ; 2002.
28. Legge I., Westbrook M. Intergenerational help giving and receiving: attitudes of six Australian communities. Aust J Ageing. 1993 ; 12 (3). 14-20.
29. Low LF, Draper B., Cheng A., et al. Future research on dementia relating to culturally and linguistically diverse communities. Aust J Ageing. 2009 ; 28 (3). 144-1448.
30. Access Economics. Dementia Prevalence And Incidence Among Australians Who do not Speak English at Home. Australia: Alzheimers Australia ; 2006.
31. Morgan DL Focus Groups as Qualitative Research. London: SAGE ; 1998.
32. The National Accreditation Authority for Translators and Interpreters. Accessed 26/04/11, from www.naati.com.au
33. Pope C., Ziebland S., Mays N. Qualitative research in health care. Analyzing qualitative data. British Medical Journal. 2002 ; 320 (7227). 114-116.
34. Gallagher-Thompson D. The family as the unit of assessment and treatment in work with ethnically diverse older adults with dementia. In: Yeo G, Gallagher-Thompson D, eds. Ethnicity and the Dementias. USA: Routledge ; 2006: 119-124.