Exploring quality of life in families of children living with and without a severe food allergy

Appetite

Volumn 57, Issue 2, 2011, Pages 467-474

  Valentine, Althea Z ^a   Knibb, Rebecca C ^b  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^b UNIVERSITY OF DERBY   (United Kingdom)

Author keywords

'Photovoice'; Children; Family; Food allergy; Quality of life

Indexed keywords

IMMUNOGLOBULIN E;

ADULT; ARTICLE; CAREGIVER; CHILD; CLINICAL ARTICLE; CONTENT ANALYSIS; CONTROLLED STUDY; EGG ALLERGY; FEMALE; FOOD ALLERGY; HUMAN; MALE; NUT ALLERGY; PEANUT ALLERGY; PEDS-QL; PHOTOGRAPHY; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SOCIAL INTERACTION; WHOQOL-BREF;

ACTIVITIES OF DAILY LIVING; CASE-CONTROL STUDIES; CHILD; FAMILY; FEMALE; FOOD; FOOD HYPERSENSITIVITY; HEALTH STATUS; HUMANS; MALE; PARENTS; PILOT PROJECTS; QUALITY OF LIFE; QUESTIONNAIRES; SOCIOECONOMIC FACTORS;

EID: 79960231439     PISSN: 01956663     EISSN: 10958304     Source Type: Journal    
DOI: 10.1016/j.appet.2011.06.007     Document Type: Article

References (33)

1. Arvola T., Tahvanainen A., Isolauri E. Concerns and expectations of parents with atopic infants. Pediatric Allergy and Immunology 2000, 11:183-188.
2. Avery N.J., King R.M., Knight S., Hourihane J.O. Assessment of quality of life of children with a peanut allergy. Pediatric Allergy and Immunology 2003, 14:378-382.
3. Bindslev-Jensen C. ABC of allergies. Food allergy. British Medical Journal 1998, 316:1299.
4. Cummings A.J., Knibb R.C., Erlewyn-Lajeunesse M., King R.M., Roberts G., Lucas J.S. Management of nut allergy influences quality of life and anxiety in children and their mothers. Pediatric Allergy and Immunology 2010, 21:586-594.
5. Cummings A.J., Knibb R.C., King R.M., Lucas J.S. The psychosocial impact of food allergy and food hypersensitivity in children, adolescents and their families. A review. Allergy 2010, 65:933-945.
6. DunnGalvin A., Flokstra-de Blok B.M., Burks A.W., Dubois A.E., Hourihane J.O. Food allergy quality of life questionnaire for children aged 0-12 years. Content, construct, and cross-cultural validity. Clinical and Experimental Allergy 2008, 38:977-986.
7. DunnGalvin A., Gaffney A., O'B Hourihane J. Developmental pathways in food allergy. A new theoretical framework. Allergy 2009, 64:560-568.
8. Eiser C., Morse R. The measurement of quality of life in children. Past and future perspectives. Journal of Developmental and Behavioural Pediatrics 2001, 22:1-9.
9. Falvo D.R. Medical and psychosocial aspects of chronic illness and disability 1999, Aspen Publishers, Inc., Maryland.
10. Fayers P.M., Machin D. Quality of life: Assessment, analysis and interpretation 2000, Wiley, Chichester.
11. Felder-Puig R., Frey E., Proksch K., Varni J.W., Gadner H., Topf R. Validation of the German version of the Pediatric Quality of Life Inventory™ (PedsQL™) in childhood cancer patients off treatment and children with epilepsy. Quality of Life Research 2004, 13:223-234.
12. Flokstra-de Blok B.M., Dubois A.E., Vlieg-Boerstra B.J., Oude Elberink J.N., Raat H., DunnGalvin A., et al. Health-related quality of life of food allergic patients. Comparison with the general population and other diseases. Allergy 2010, 65:238-244.
13. Flokstra-de Blok B.M., van der Velde J.L., Vlieg-Boerstra B.J., Oude Elberink J.N., DunnGalvin A., Hourihane J.O., et al. Health-related quality of life of food allergic patients measured with generic and disease-specific questionnaires. Allergy 2010, 65:1031-1038.
14. Gowland M.H. Food allergen avoidance. Risk assessment for life. Proceedings of the Nutrition Society 2002, 61:39-43.
15. Hanson C.L. Quality of life in families of youths with chronic conditions. Quality of life in child and adolescent illness: Concepts, methods, and findings 2001, 181-209. Brunner-Routledge, Hove. H.M. Koot, J.L. Wallander (Eds.).
16. Hourihane J.O. The threshold concept in food safety and its applicability to food allergy. Allergy 2001, 56:86-90.
17. Jirojanakul P., Skevington S. Developing a quality of life measure for children aged 5-8 years. British Journal of Health Psychology 2000, 5:299-321.
18. King R.M., Knibb R.C., Hourihane J.O. Impact of peanut allergy on quality of life, stress and anxiety in the family. Allergy 2009, 64:461-468.
19. Neuendorf K.A. The content analysis guidebook 2001, Sage, London.
20. Primeau M.N., Kagan R., Joseph L., Lim H., Dufresne C., Duffy C., et al. The psychological burden of peanut allergy as perceived by adults with peanut allergy and the parents of peanut allergic children. Clinical and Experimental Allergy 2000, 30:1135-1143.
21. Pumphrey R. Anaphylaxis. Can we tell who is at risk of a fatal reaction?. Current Opinion in Allergy and Clinical Immunology 2004, 4:285-290.
22. Rapley M. Quality of life research: A critical introduction 2003, Sage, London.
23. Sales E. Family burden and quality of life. Quality of Life Research 2003, 12:33-41.
24. Sampson H.A., Mendelson L., Rosen J.P. Fatal and near-fatal anaphylactic reactions to food in children and adolescents. New England Journal of Medicine 1992, 327:380-381.
25. Sicherer S.H., Noone S.A., Munoz-Furlong A. The impact of childhood food allergy on quality of life. Annals of Allergy, Asthma and Immunology 2001, 87:461-464.
26. Skevington S.M., Lotfy M., O'Connell K.A. The World Health Organization's WHOQOL-BREF quality of life assessment. Psychometric properties and results of the international field trial. A report from the WHOQOL Group. Quality of Life Research 2004, 13:299-310.
27. Springston E.E., Shulruff J., Smith B., Wang X., Pongracic J., Holl J., et al. Variations in quality of life among caregivers of food-allergic children. Annals of Allergy, Asthma and Immunology 2010, 105:287-294.
28. Varni J.W., Seid M., Kurtin P.S. The PedsQL™ 4.0. Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care 2001, 39:800-812.
29. Varni, J. W. (2004). The PedsQL™ Scoring Algorithm. Scoring the Pediatric Quality of Life Inventory. Retrieved from http://www.pedsql.org/score.html.
30. Wallander J.L. Theoretical and developmental issues in quality of life for children and adolescents. Quality of life in child and adolescent illness: Concepts, methods, and findings 2001, 23-48. Brunner-Routledge, Hove. H.M. Koot, J.L. Wallander (Eds.).
31. WHOQOL Group (The) The World Health Organisation Quality of Life Assessment (WHOQOL). Development and general psychometric properties. Social Science and Medicine 1998, 1569-1585.
32. WHOQOL Group (The) WHOQOL-BREF: Introduction, administration, scoring and generic version of the assessment 1996, WHO, Geneva.
33. Young M.C., Munoz-Furlong A., Sicherer S.H. Management of food allergies in schools. A perspective for allergists. Journal of Allergy and Clinical Immunology 2009, 124:175-182.