Developmental surveillance of infants and toddlers by maternal and child health nurses in an australian community-based setting: Promoting the early identification of autism spectrum disorders

Journal of Pediatric Nursing

Volumn 26, Issue 4, 2011, Pages 334-347

  Barbaro, Josephine ^a   Ridgway, Lael ^a   Dissanayake, Cheryl ^a  

^a LA TROBE UNIVERSITY   (Australia)

Author keywords

Autism spectrum disorders; Developmental surveillance; Health nurses; Infants; Maternal child; Screening; Toddlers

Indexed keywords

ARTICLE; AUSTRALIA; AUTISM; CHILD DEVELOPMENT; COMMUNITY CARE; EARLY DIAGNOSIS; EDUCATION; EVIDENCE BASED NURSING; HEALTH SURVEY; HUMAN; INFANT; MATERNAL CARE; METHODOLOGY; NURSING; NURSING DIAGNOSIS; PRESCHOOL CHILD;

AUSTRALIA; CHILD DEVELOPMENT; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD, PRESCHOOL; COMMUNITY HEALTH SERVICES; EARLY DIAGNOSIS; EVIDENCE-BASED NURSING; HUMANS; INFANT; MATERNAL-CHILD NURSING; NURSING DIAGNOSIS; POPULATION SURVEILLANCE;

EID: 79959900284     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedn.2010.04.007     Document Type: Article

References (52)

1. American Academy of Pediatrics (AAP).Council on Children With Disabilities Section on Developmental Behavioral Pediatrics; Bright Futures Steering Committee; Medical Home Initiatives for Children With Special Needs Project Advisory Committee Identifying infants and young children with developmental disorders in the medical home: An algorithm for developmental surveillance and screening. Pediatrics 2007, 118:405-420.
2. American Psychiatric Association Diagnostic and statistical manual of mental disorders-fourth edition-text revision (DSM-IV-TR) 2000, Washington, DC. 4th ed.
3. Australian Nursing Federation (ANF; Vic Branch; MCH SIG) Standards of professional practice for maternal and child health nurses 1999, Melbourne.
4. Bailey A., Le Couteur A., Gottesman I., Bolton P., Simonoff E., Yuzda E., et al. Autism as a strongly genetic disorder: Evidence from a British twin study. Psychological Medicine 1995, 25:63-77.
5. Baird G., Charman T., Baron-Cohen S., Cox A., Swettenham J., Wheelwright S., et al. A screening instrument for autism at 18-months of age: A six-year follow-up study. Journal of the American Academy of Child and Adolescent Psychiatry 2000, 39:694-702.
6. Baird G., Simonoff E., Pickles A., Chandler S., Loucas T., Meldrum D., et al. Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: The Special Needs and Autism Project (SNAP). The Lancet 2006, 368:210-215.
7. Barbaro J., Dissanayake C. Autism spectrum disorders in infancy and toddlerhood: A review of the evidence on early signs, early identification tools, and early diagnosis. Journal of Developmental and Behavioral Pediatrics 2009, 30:447-459.
8. Barbaro, Dissanayake Prospective identification of autism spectrum disorders in infancy and toddlerhood using developmental surveillance: The Social Attention and Communication Study (SACS). Journal of Developmental and Behavioral Pediatrics 2010, 31:376-385.
9. Baron-Cohen S., Allen J., Gillberg C. Can autism be detected at 18-months? The needle, the haystack, and the CHAT. British Journal of Psychiatry 1992, 161:839-843.
10. Brogan C.A., Knussen C. The disclosure of a diagnosis of an autistic spectrum disorder. Determinants of satisfaction in a sample of Scottish parents. Autism 2003, 7:31-46.
11. Chakrabarti S., Fombonne E. Pervasive developmental disorder in preschool children. Journal of the American Medical Association 2001, 285:3093-3099.
12. Curry D.M., Duby J.C. Developmental surveillance by pediatric nurses. Pediatric nursing 1994, 20:40-44.
13. Davidovitch M., Glick L., Holtzman G., Tirosh E., Safir M.P. Developmental regression in autism: Maternal perception. Journal of Autism and Developmental Disorders 2000, 30:113-119.
14. Dawson G. Early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder. Development and Psychopathology 2008, 20:775-803.
15. Department of Education and Early Childhood Development (DEECD), Office for Children Victorian Government Maternal and child health overview Retrieved September 26, 2007, from. http://www.office-for-children.vic.gov.au/maternal-child-health.
16. Department of Education and Early Childhood Development (DEECD), Office for Children, Victorian Government Maternal and child health services annual report 2004-2005 statewide Retrieved December 4, 2008, from. http://www.education.vic.gov.au/ocecd/docs/2006-07-Victoria-Comprehensive-Report.pdf.
17. Department of Education and Early Childhood Development (DEECD), Office for Children, Victorian Government Maternal and child health service program standards 2009, Office for Children and Portfolio Coordination, Melbourne.
18. DeStefano F., Bhasin T.K., Thompson W.W., Yeargin-Allsopp M., Boyle C. Age at first measles-mumps-rubella vaccination in children with autism and school-matched control subjects: A population-based study in metropolitan Atlanta. Pediatrics 2004, 113:259-266.
19. Dietz C., Swinkels S., van Daalen E., van Engeland H., Buitelaar J.K. Screening for autistic spectrum disorder in children aged 14 to 15 Months: Population screening with the Early Screening of Autistic Traits. Design and general findings. Journal of Autism and Developmental Disorders 2006, 36:713-722.
20. Dworkin P.H. British and American recommendations for developmental monitoring: The role of surveillance. Pediatrics 1989, 84:1000-1010.
21. Filipek P.A., Accardo P.J., Ashwal S., Baranek G.T., Cook E.H., Dawson G., et al. Practice parameter: Screening and diagnosis of autism-Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Child Neurology Society. Neurology 2000, 55:468-479.
22. Fombonne E. Epidemiology of autistic disorder and other pervasive developmental disorders. The Journal of Clinical Psychiatry 2005, 66:3-8.
23. Fombonne E., Zakarian R., Bennett A., Meng L., McLean-Heywood D. Pervasive developmental disorders in Montreal, Quebec, Canada: Prevalence and links with immunization. Pediatrics 2006, 118:139-150.
24. Gernsbacher M.A., Dawson M., Goldsmith H.H. Three reasons not to believe in an autism epidemic. Current Directions in Psychological Science 2005, 14:55-58.
25. Glascoe F.P. Collaborating with parents: Using parents' evaluation of developmental status to detect and address developmental and behavioral problems 1998, Ellsworth & Vandermeer Press, Nasville, TN.
26. Glascoe F.P., Macias M.M., Wegner L.M., Robertshaw N.S. Can a broadband developmental behavioral screening test identify children likely to have autism spectrum disorder?. Clinical Pediatrics 2007, 46:801-805.
27. Goin-Kochel R.P., Macintosh V.H., Myers B.J. How many doctors does it take to make an autism spectrum diagnosis?. Autism 2006, 10:439-451.
28. Halpin J., Nugent B. Health visitors' perceptions of their role in autism spectrum disorder. Community Practitioner 2007, 80:18-22.
29. Howlin P., Moore A. Diagnosis in autism: A survey of over 1200 patients in the UK. Autism 1997, 1:135-162.
30. Johnson C.P., Myers S.M. American Academy of Pediatrics, Council on Children With Disabilities. Identification and evaluation of children with autism spectrum disorders. Pediatrics 2007, 120:1183-1215.
31. Kogan M.D., Blumberg S.J., Schieve L.A., Boyle C.A., Perrin J.M., Ghandour R.M., et al. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics 2009, 124:1395-1403.
32. Lord C., Risi S., Lambrecht L., Cook E.H., Leventhal B.L., DiLavore P.C., et al. The Autism Diagnostic Observation Schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders 2000, 30:205-223.
33. Lord C., Rutter M., Le Couteur A. Autism Diagnostic Interview Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders 1994, 24:659-685.
34. MacDermott S., Williams K., Ridley G., Glasson E., Wray J. The prevalence of autism in Australia. Can it be established from existing data?. Autism Advisory Board on Autism Spectrum Disorders 2007.
35. Nadel S., Poss J.E. Early detection of autism spectrum disorders: Screening between 12 and 24 months of age. Journal of the American Academy of Nurse Practitioners 2007, 19:408-417.
36. O'Roak B.J., State M.W. Autism genetics: Strategies, challenges, and opportunities. Autism Research 2008, 1:4-17.
37. Pinto-Martin J.A., Souders M.C., Giarelli E., Levy S.E. The role of nurses in screening for autistic spectrum disorder in pediatric primary care. Journal of Pediatric Nursing 2005, 20:163-169.
38. Pinto-Martin J.A., Dunkle M., Earls M., Fliedner D., Landes C. Developmental Stages of Developmental Screening: Steps to Implementation of a Successful Program. American Journal of Public Health 2005, 95:1928-1932.
39. Pinto-Martin J.A., Young L.M., Mandell D.S., Poghosyan L., Giarelli E., Levy S.E. Screening strategies for autism spectrum disorders in pediatric primary care. Journal of Developmental and Behavioral Pediatrics 2008, 29:345-350.
40. Richler J., Luyster R., Risi S., Wan-Ling H., Dawson G., Bernier R., et al. Is there a 'regressive phenotype' of autism spectrum disorder associated with the measles-mumps-rubella vaccine? A CPEA study. Journal of Autism and Developmental Disorders 2006, 36:299-316.
41. Rogers S.J., Vismara L.A. Evidence-based comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology 2008, 37:8-38.
42. Rutter M., Silberg J., O'Connor T., Simonoff E. Genetics and child psychiatry: II Empirical research findings. Journal of Child Psychology and Psychiatry, and Allied Disciplines 1999, 40:19-55.
43. Siperstein R., Volkmar F. Brief report: Parental reporting of regression in children with pervasive developmental disorders. Journal of Autism and Developmental Disorders 2004, 34:731-734.
44. Swinkels S.H.N., Dietz C., van Daalen E., Kerkhof I.H.G.M., van Engeland H., Buitelaar J.K. Screening for autistic spectrum disorders in children aged 14 to 15 months: The development of the Early Screening of Autistic Traits Questionnaire. Journal of Autism and Developmental Disorders 2006, 36:723-732.
45. Tager-Flusberg H., Joseph R.M., Folstein S. Current directions in research on autism. Mental Retardation and Developmental Disabilities Research Reviews 2001, 7:21-29.
46. Tebruegge M., Nandini V., Ritchie J. Does routine child health surveillance contribute to the early detection of children with pervasive developmental disorders?-An epidemiological study in Kent, U.K. BMC Pediatrics 2004, 4:4.
47. Werner E., Dawson G. Validation of the phenomenon of autistic disorder regression using home videotapes. Archives of General Psychiatry 2005, 62:889-895.
48. Werner E., Dawson G., Munson J., Osterling J. Variation in early developmental course in autism and its relation with behavioral outcome at 3-4 years of age. Journal of Autism and Developmental Disorders 2005, 35:337-350.
49. Werner E., Dawson G., Osterling J., Dinno N. Brief report: Recognition of autism spectrum disorder before one year of age: A retrospective study based on home videotapes. Journal of Autism and Developmental Disorders 2000, 30:157-162.
50. Wing L., Potter D. The epidemiology of autistic spectrum disorders: Is the prevalence rising?. Mental Retardation and Developmental Disabilities Research Reviews 2002, 8:151-162.
51. Yearing-Allsopp M., Rice C., Karapurkar T., Doernberg N., Boyle C., Murphy C. Prevalence of autism in a US metropolitan area. Journal of the American Medical Association 2003, 289:49-55.
52. Young R., Brewer N. Conceptual issues in the classification and assessment of autistic disorder. International review of research in mental retardation 2002, Vol. 23. Academic Press, San Diego, CA. L.M. Gidden (Ed.).