French validation of the Multiple Sclerosis International Quality of Life Questionnaire;Validation française du Multiple Sclerosis International Quality of Life Questionnaire (MusiQoL)

Revue Neurologique

Volumn 167, Issue 6-7, 2011, Pages 511-521

  Baumstarck Barrau, K ^a,b   Pelletier, J ^c   Simeoni, M C ^b   Auquier, P ^b  

^a ASSISTANCE PUBLIQUE HÔPITAUX DE MARSEILLE   (France)

^b AIX MARSEILLE UNIVERSITY   (France)

^c TIMONE HOSPITAL   (France)

Author keywords

French version questionnaire; Multiple sclerosis; MusiQoL; Quality of life; Validation

Indexed keywords

ARTICLE; CLINICAL ASSESSMENT TOOL; COPING BEHAVIOR; DAILY LIFE ACTIVITY; DISEASE COURSE; EMOTIONAL STABILITY; FAMILY RELATION; FEMALE; FRANCE; HEALTH CARE QUALITY; HEALTH SURVEY; HUMAN; HUMAN RELATION; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; MULTIPLE SCLEROSIS INTERNATIONAL QUALITY OF LIFE QUESTIONNAIRE; PATIENT SATISFACTION; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; RECURRENCE RISK; SEXUAL BEHAVIOR; SYMPTOM; VALIDATION PROCESS;

EID: 79959361395     PISSN: 00353787     EISSN: 00353787     Source Type: Journal    
DOI: 10.1016/j.neurol.2010.10.008     Document Type: Article

References (43)

1. Amato MP, Grimaud J, Achiti I, Bartolozzi ML, Adeleine P, Hartung HP, et al. European validation of a standardized clinical description of multiple sclerosis. J Neurol 2004;251:1472-80. (Pubitemid 40169470)
2. Benedict RH, Wahlig E, Bakshi R, Fishman I, Munschauer F, Zivadinov R, et al. Predicting quality of life in multiple sclerosis: accounting for physical disability, fatigue, cognition, mood disorder, personality, and behavior change. J Neurol Sci 2005;231:29-34. (Pubitemid 40432023)
3. Benito-Leon J, Morales JM, Rivera-Navarro J. Health-related quality of life and its relationship to cognitive and emotional functioning in multiple sclerosis patients. Eur J Neurol 2002;9:497-502. (Pubitemid 35013875)
4. Bernet-Bernady P, Preux PM, Preux C, Dumas M, Vallat JM, Couratier P. É tude descriptive de 199 patients atteints de sclérose en plaques à partir du programme EDMUS. Rev Neurol (Paris) 2000;156:41-6. (Pubitemid 30084389)
5. Carey RG, Seibert JH. A patient survey system to measure quality improvement: questionnaire reliability and validity. Med Care 1993;31:834-45.
6. Confavreux C, Compston DA, Hommes OR, McDonald WI, Thompson AJ. EDMUS, a European database for multiple sclerosis. J Neurol Neurosurg Psychiatry 1992;55:671-6.
7. Dilorenzo TA, Halper J, Ann Picone M. Quality of life in MS: does aging enhance perceptions of mental health? Disabil Rehabil 2009;1-8.
8. Folstein MF, Robins LN, Helzer J. The Mini Mental State Examination. Arch Gen Psychiatry 1983;40:812.
9. Fuvesi J, Bencsik K, Benedek K, Matyas K, Meszaros E, Rajda C, et al. Cross-cultural adaptation and validation of the "Multiple Sclerosis Quality of Life Instrument" in Hungarian. Mult Scler 2008;14:391-8.
10. Ganz PA. Impact of quality of life outcomes on clinical practice. Oncology 1995;9(Suppl 11):61-5.
11. Gold SM, Schulz H, Monch A, Schulz KH, Heesen C. Cognitive impairment in multiple sclerosis does not affect reliability and validity of self-report health measures. Mult Scler 2003;9:404-10. (Pubitemid 36958025)
12. Gruenewald DA, Higginson IJ, Vivat B, Edmonds P, Burman RE. Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review. Mult Scler 2004;10:690-704. (Pubitemid 39585250)
13. Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993;46:1417-32. (Pubitemid 24017263)
14. Guy W. ECDEU Assessment Manual for Psychopharmacology. edn, Rockville, MD: US Department of Health and Human Services publication (ADM); 1976.
15. Hauser SL, Dawson DM, Lehrich JR, Beal MF, Kevy SV, Propper RD, et al. Intensive immunosuppression in progressive multiple sclerosis. A randomized, three-arm study of high-dose intravenous cyclophosphamide, plasma exchange, and ACTH. N Engl J Med 1983;308:173-80. (Pubitemid 13171135)
16. Hopman WM, Harrison MB, Coo H, Friedberg E, Buchanan M, Vandenkerkhof EG. Associations between chronic disease, age and physical and mental health status. Chronic Dis Can 2009;29:108-16.
17. Idiman E, Uzunel F, Ozakbas S, Yozbatiran N, Oguz M, Callioglu B, et al. Cross-cultural adaptation and validation of multiple sclerosis quality of life questionnaire (MSQOL-54) in a Turkish multiple sclerosis sample. J Neurol Sci 2006;240:77-80. (Pubitemid 41814957)
18. Kurtzke JF. Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology 1983;33:1444-52. (Pubitemid 14237132)
19. Leplege A, Ecosse E, Verdier A, Perneger TV. The French SF-36 Health Survey: translation, cultural adaptation and preliminary psychometric evaluation. J Clin Epidemiol 1998;51:1013-23. (Pubitemid 28527157)
20. Leplege A, Hunt S. The problem of quality of life in medicine. JAMA 1997;278:47-50. (Pubitemid 27274516)
21. Leplege A, Mesbah M, Marquis P. Analyse préliminaire des propriétés psychométriques de la version française d'un questionnaire international de mesure de qualité de vie: le MOS SF-36 (version 1.1). Rev Epidemiol Sante Publique 1995;43:371-9.
22. Leplège A, Verdier A. The adaptation of health status measures: methodological aspects of the translation procedure. In: Shumaker S, Berzon R, eds., International Use and Performance of Health-Related Quality of Life Instruments. Oxford: Oxford Rapid Communication, 1995.
23. Lovera J, Bagert B, Smoot KH, Wild K, Frank R, Bogardus K, et al. Correlations of Perceived Deficits Questionnaire of Multiple Sclerosis Quality of Life Inventory with Beck Depression Inventory and neuropsychological tests. J Rehabil Res Dev 2006;43:73-82. (Pubitemid 43938748)
24. McCabe MP, Stokes M, McDonald E. Changes in quality of life and coping among people with multiple sclerosis over a 2-year period. Psychol Health Med 2009;14:86-96.
25. McDonald WI, Compston A, Edan G, Goodkin D, Hartung HP, Lublin FD, et al. Recommended diagnostic criteria for multiple sclerosis: guidelines from the International Panel on the diagnosis of multiple sclerosis. Ann Neurol 2001;50:121-7.
26. McKenna SP. Measuring quality of life in schizophrenia. Eur Psychiatry 1997;12(Suppl 3):267s-74s.
27. Miller DM, Rudick RA, Baier M, Cutter G, Doughtery DS, Weinstock-Guttman B, et al. Factors that predict health-related quality of life in patients with relapsing-remitting multiple sclerosis. Mult Scler 2003;9:1-5. (Pubitemid 36253688)
28. Miller DM, Rudick RA, Cutter G, Baier M, Fischer JS. Clinical significance of the multiple sclerosis functional composite: relationship to patient-reported quality of life. Arch Neurol 2000;57:1319-24.
29. Mitchell AJ, Benito-Leon J, Gonzalez JM, Rivera-Navarro J. Quality of life and its assessment in multiple sclerosis: integrating physical and psychological components of wellbeing. Lancet Neurol 2005;4:556-66. (Pubitemid 41139977)
30. Montel SR, Bungener C. Coping and quality of life in one hundred and thirty five subjects with multiple sclerosis. Mult Scler 2007;13:393-401. (Pubitemid 46706001)
31. Nicholl L, Hobart JC, Cramp AF, Lowe-Strong AS. Measuring quality of life in multiple sclerosis: not as simple as it sounds. Mult Scler 2005;11:708-12. (Pubitemid 41685143)
32. Pekmezovic T, Kisic Tepavcevic D, Kostic J, Drulovic J. Validation and cross-cultural adaptation of the disease-specific questionnaire MSQOL-54 in Serbian multiple sclerosis patients sample. Qual Life Res 2007;16:1383-7. (Pubitemid 47459874)
33. Perneger TV, Leplege A, Etter JF. Cross-cultural adaptation of a psychometric instrument: two methods compared. J Clin Epidemiol 1999;52:1037-46. (Pubitemid 29469806)
34. Pfaffenberger N, Pfeiffer KP, Deibl M, Hofer S, Gunther V, Ulmer H. Association of factors influencing health-related quality of life in MS. Acta Neurol Scand 2006;114:102-8. (Pubitemid 44034257)
35. Simeoni M, Auquier P, Fernandez O, Flachenecker P, Stecchi S, Constantinescu C, et al. Validation of the Multiple Sclerosis International Quality of Life questionnaire. Mult Scler 2008;14:219-30. (Pubitemid 351639631)
36. Solari A. Role of health-related quality of life measures in the routine care of people with multiple sclerosis. Health Qual Life Outcomes 2005;3:16.
37. Solari A, Filippini G, Mendozzi L, Ghezzi A, Cifani S, Barbieri E, et al. Validation of Italian multiple sclerosis quality of life 54 questionnaire. J Neurol Neurosurg Psychiatry 1999;67: 158-62. (Pubitemid 29326944)
38. Spilker B. Quality of life and pharmacoeconomics in clinical trials. Philadelphia: Lippincott-Raven; 1996.
39. Turpin KV, Carroll LJ, Cassidy JD, Hader WJ. Deterioration in the health-related quality of life of persons with multiple sclerosis: the possible warning signs. Mult Scler 2007;13:1038-45. (Pubitemid 351541440)
40. Vernay D, Gerbaud L, Biolay S, Coste J, Debourse J, Aufauvre D, et al. Qualité de vie et sclérose en plaques: validation de la version francophone d'un auto-questionnaire, le SEP-59. Rev Neurol (Paris) 2000;156:247-63. (Pubitemid 30169556)
41. Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Qual Life Res 1995;4:187-206.
42. Ware JE, Harris WJ, Gandek B, Rogers BW, Reese PR. MAP-R for Windows: multitrait/multi-item analysis program - revised user's guide. Boston: Health Assessment Lab; 1997.
43. Yozbatiran N, Baskurt F, Baskurt Z, Ozakbas S, Idiman E. Motor assessment of upper extremity function and its relation with fatigue, cognitive function and quality of life in multiple sclerosis patients. J Neurol Sci 2006;246:117-22. (Pubitemid 43815351)