Measuring quality of life in multiple sclerosis: Not as simple as it sounds

Multiple Sclerosis

Volumn 11, Issue 6, 2005, Pages 708-712

  Nicholl, L ^a   Hobart, J C ^b,d   Cramp, A F L ^c   Lowe Strong, Andrea S ^a  

^a UNIVERSITY OF ULSTER   (United Kingdom)

^b DERRIFORD HOSPITAL   (United Kingdom)

^c UNIVERSITY OF THE WEST OF ENGLAND   (United Kingdom)

^d UNIVERSITY COLLEGE LONDON   (United Kingdom)

Author keywords

Leeds MS Quality of Life scale; Multiple sclerosis; Outcome measurement; Psychometric evaluation; Quality of life; Validity testing

Indexed keywords

ADULT; AGED; ARTICLE; CORRELATION ANALYSIS; DATA ANALYSIS; EMOTION; FEMALE; HUMAN; INFORMATION PROCESSING; LOW BACK PAIN; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; PHYSICAL CAPACITY; PREDICTION; PSYCHOMETRY; QUALITY OF LIFE; RATING SCALE; RELIABILITY; VALIDATION PROCESS;

ADULT; AGED; FEMALE; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS, CHRONIC PROGRESSIVE; MULTIPLE SCLEROSIS, RELAPSING-REMITTING; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS;

EID: 28044460517     PISSN: 13524585     EISSN: None     Source Type: Journal    
DOI: 10.1191/1352458505ms1235oa     Document Type: Article

References (24)

1. Gruenewald DA, Higginson IJ, Vivat B, Edmonds P, Burman RE. Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review. Mult Scler 2004; 10: 690-725.
2. Freeman JA, Hobart JC, Thompson AJ. Does adding MS-specific items to a generic measure (the SF-36) improve measurement? Neurology 2001; 57: 68-74.
3. Thompson AJ. Developing clinical outcome measures in multiple sclerosis: an evolving process. Mult Scler 2002; 8: 357-58.
4. Ford HL, Gerry E, Tennant A, Whalley D, Haigh R, Johnson MH. Developing a disease specific quality of life measure for people with multiple sclerosis. Clin Rehabil 2001; 15: 247-58.
5. Vickrey BG, Hays RD, Harooni H, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Qual Life Res 1995; 4: 187-206.
6. Ware JE Jr, Snow KK, Kosinsky M, Gandek B. SF-36 health survey manual and interpretation guide. Boston: Nimrod Press, 1993.
7. Solari A, Filippini G, Mendozzi L, Ghezzi A, Cifani S, Barbieri E et al. Validation of the Italian Multiple Sclerosis Quality of Life-54 questionnaire. J Neurol Neurosurg Psychiatry 1999; 67: 158-62.
8. McHorney CA, Ware JE Jr, Lu JFR, Sherbourne CD. The MOS 36-Item Short Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions and reliability across diverse patient groups. Med Care 1994; 32: 40-66.
9. Nunnally JC, Bernstein IH. Psychometric theory, third edition. New York: McGraw-Hill, 1994.
10. Riazi A, Hobart JC, Lamping DL, Fitzpatrick R, Thompson AJ. Evidence-based measurement in multiple sclerosis: the psychometric properties of the physical and psychological dimensions of three quality of life rating scales. Mult Scler 2003; 9: 411-19.
11. McHorney CA, Tarlov AR. Individual patient monitoring in clinical practice: are available health status surveys adequate? Qual Life Res 1995; 4: 293-307.
12. Holmes WC, Bix B, Shea JA. SF-20 score and item distributions in a human immunodeficiency virus seropositive sample. Med Care 1996; 34: 562-69.
13. Hays RD, Anderson R, Revicki D. Psychometric considerations in evaluating health-related quality of life measures. Qual Life Res 1993; 2: 441-49.
14. Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika 1951; 16: 297-334.
15. Streiner DL, Norman GR. Health measurement scales. A practical guide to their development and use. Oxford: Oxford University Press, 1989.
16. Eisen M, Ware JE Jr, Donald CA, Brook RH. Measuring components of children's health status. Med Care 1979; 17: 902-21.
17. Deyo RA, Diehr P, Patrick DL. Reproducibility and responsiveness of health status measures. Control Clin Trials 1991; 12: 142S-58S.
18. Cohen J. Statistical power analysis for the behavioural sciences. New York: Academic Press, 1977.
19. Lohr KN, Aaronson NK, Alonso J, Burnam MA, Patrick DL, Perrin EB et al. Evaluating quality of life and health status instruments: development of scientific review criteria. Clin Ther 1996; 18: 979-92.
20. Hobart J, Freeman J, Lamping D, Fitzpatrick R, Thompson A. The SF-36 in multiple sclerosis: why basic assumptions must be tested. J Neurol Neurosurg Psychiatry 2001; 71: 363-70.
21. Nortvedt MW, Riise T, Mhyr KM, Hyland HI. Performance of the SF-36, SF-12, and RAND-36 summary scales in a multiple sclerosis population. Med Care 2000; 38: 1022-28.
22. Vickrey BG, Hays RD, Genovese BJ, Myers LW, Ellison GW. Comparison of a generic to disease-targeted health related quality of life measure for multiple sclerosis. J Clin Epidemiol 1997; 50: 557-69.
23. Hobart J. Rating scales for neurologists. J Neurol Neurosurg Psychiatry 2003; 74 (Suppl IV): iv22-26.
24. Massof RW. The measurement of vision disability. Optom Vis Sci 2002; 79: 516-52.