End-of-life care in an acute care hospital: Linking policy and practice

Death Studies

Volumn 35, Issue 6, 2011, Pages 481-503

  Sorensen, Ros ^a   Iedema, Rick ^a  

^a UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; COOPERATION; DECISION MAKING; HEALTH CARE POLICY; HEALTH SERVICE; HUMAN; HUMAN RELATION; INSTITUTIONAL CARE; INTENSIVE CARE UNIT; INTERDISCIPLINARY COMMUNICATION; ORGANIZATION; ORGANIZATION AND MANAGEMENT; PATIENT CARE; TEACHING HOSPITAL; TERMINAL CARE; TOTAL QUALITY MANAGEMENT;

COOPERATIVE BEHAVIOR; DECISION MAKING; DECISION MAKING, ORGANIZATIONAL; HEALTH POLICY; HEALTH SERVICES NEEDS AND DEMAND; HOSPITALS, TEACHING; HUMANS; INSTITUTIONAL PRACTICE; INTENSIVE CARE UNITS; INTERDISCIPLINARY COMMUNICATION; NEW SOUTH WALES; PATIENT CARE TEAM; PATIENT-CENTERED CARE; PROFESSIONAL-FAMILY RELATIONS; QUALITY IMPROVEMENT; TERMINAL CARE;

EID: 79958717160     PISSN: 07481187     EISSN: 10917683     Source Type: Journal    
DOI: 10.1080/07481187.2011.553336     Document Type: Article

References (51)

1. Barton, E., Aldridge, M., Trimble, T., & Vidovic, J. (2005). Structure and variation in end-of-life discussions in the Surgical Intensive Care Unit. Communication & Medicine, 2, 3-20.
2. Beauchamp, T. O. M. (2006). The right to die as the triumph of autonomy. The Journal of Medicine and Philosophy, 31, 643-654.
3. Bowman, K. (2000). Communication, negotiation, and mediation: Dealing with conflict in end-of-life decisions. Journal of Palliative Care, 16, S17-S23.
4. Buckman, R. (1992). How to break bad news: A guide for health care professionals. Baltimore, MD: Johns Hopkins University.
5. Bunch, E. H. (2002). High technology and nursing: Ethical dilemmas nurses and physicians face on high-technology units in Norway. Nursing Inquiry, 9, 187-195.
6. Cassell, J. (2005). Life and death in intensive care. Philadelphia, PA: Temple University.
7. Chiarella, M. (2006). Policy in end-of-life care: Education, ethics, practice and research. London, UK: Quay Books.
8. Cohena, J., Bilsena, J., Hooftc, P., Deboosered, P., van der Wale, G., & Deliensa, L. (2006). Dying at home or in an institution: Using death certificates to explore the factors associated with place of death. Health Policy, 78, 319-329.
9. Coombs, M. (2003). Power and conflict in intensive care clinical decision making. Intensive and Critical Care Nursing, 19, 125-135.
10. Cullen, D. J., Sweitzer, B. J., Bates, D. W., Burdick, E., Edmondson, A., & Leape, L. (1997). Preventable adverse drug events in hospitalized patients: A comparative study of intensive care and general care units. Critical Care Medicine, 25, 1289-1297.
11. Curtis, J., Engelberg, R., Wenrich, M., Nielsen, E., Shannon, S., Treece, P., Rubenfeld, G. D. (2002). Studying communication about end-of-life care during the ICU Family Conference: Development of a framework. Journal of Critical Care, 17, 147-160.
12. Diringer, M. N. (2003). Evidence-based medicine: What do you do when there's no evidence? Critical Care Medicine, 31, 659-660.
13. Donchin, Y., Gopher, D., Olin, M., Badihi, Y., Biesky, M., Sprung, C. L., Cotev, S. (1995). A look into the nature and causes of human errors in the intensive care unit. Critical Care Medicine, 23, 294-300.
14. Eidelman, L. A., Jakobson, D. J., Worner, T. M., Pizov, R., Geber, D., & Sprung, C. L. (2003). End-of-life intensive care unit decisions, communication, and documentation: An evaluation of physician training. Journal of Critical Care, 18, 11-16.
15. Fins, J., & Solomon, M. (2001). Communication in intensive care settings: The challenge of futility disputes. Critical Care Medicine, 29, N10-N15.
16. Flyvbjerg, B. (2001). Making social science matter: Why social science fails and how it can succeed again. Cambridge, UK: Cambridge University.
17. Freidson, E. (1994). Professionalism reborn. Chicago, IL: University of Chicago.
18. Glaser, B., & Strauss, A. (1968). The discovery of grounded theory: Strategies for qualitative research. London, UK: Weidenfeld and Nicholson.
19. Goodman, K. W. (1998). End-of-life algorithms. Psychology, Public Policy, and Law, 4, 719-727.
20. Grace, P. (2001). Professional advocacy: Widening the scope of accountability. Nursing Philosophy, 2, 151-162.
21. Haddad, A. (2004). End-of-life decisions: The family's role. RN, 67, 25-28.
22. Hardy, J. R., Haberecht, J., Maresco-Pennisi, D., & Yates, P. (2007). Audit of the care of the dying in a network of hospitals and institutions in Queensland. Internal Medicine Journal, 37, 315-319.
23. Hochschild, A. R. (1983). The managed heart: Commercialisation of human feeling. Berkeley: University of California.
24. Iedema, R., Sorensen, R., Braithwaite, J., Flabouris, A., & Turnbull, E. (2005). The teleo-affective limits of end-of-life care in the intensive care unit. Social Science & Medicine, 60, 845-857.
25. James, N. (2004). Care=organization+physical labour+emotional labour. Oxford, UK: Blackwell Publishing.
26. Jordens, C. F. C., Little, M., Kerridge, I., & McPhee, J. (2005). From advance directives to advance care planning: Current legal status, ethical rationales and a new research agenda. Internal Medicine Journal, 35, 563-566.
27. Kaufman, S. R. (2005). And a time to die. How American hospitals shape the end of life. Chicago, IL: The University of Chicago.
28. Mann, S. (2005). A health-care model of emotional labour: An evaluation of the literature and development of a model. Journal of Health Organization and Management, 19, 304-317.
29. McKerron, L. C. (1991). Dealing with stress of caring for the dying in intensive care units: An overview. Intensive Care Nursing, 7, 219-222.
30. McQuillan, P., Pilkington, S., Allan, A., Taylor, B., Short, A., Mortan, G., Smith, G. (1998). Confidential inquiry into quality of care before admission to intensive care. British Medical Journal, 316, 1853-1858.
31. Meier, D., Back, A., & Morrison, R. (2001). The inner life of physicians and care of the seriously ill. Journal of the American Medical Association, 286, 3007-3014.
32. Nelson, E. C., Mohr, J. J., Batalden, P. B., & Plume, S. K. (1996). Improving health care, Part 1: The clinical value compass. Journal on Quality Improvement, 22, 243-258.
33. New South Wales Health Department. (2005). Guidelines for end-of-life care and decision-making. Sydney, Australia: Author.
34. New South Wales Health Department. (2006). Using advance care directives. Retrieved from http://www.health.nsw.gov.au/pubs/2004/pdf/adcare_directive.pdf
35. Obholzer, A. (2005). The impact of setting and agency. Journal of Health Organization and Management, 19, 297-303.
36. Reb, A. M. (2003). Palliative and end-of-life care: Policy analysis. Oncology Nursing Forum, 30, 35-50.
37. Saul, P., & McPhee, J. (2003). Must we save lives almost over? Newcastle, Australia: University of Newcastle.
38. Seymour, J. E. (2000). Negotiating natural death in intensive care. Social Science and Medicine, 51, 1241-1252.
39. Seymour, J. E. (2001). Critical moments: Death and dying in intensive care. Buckingham, UK: Open University.
40. Seymour, J. E., Gott, M., Bellamy, G., Ahmedzai, S. H., & Clark, D. (2004). Planning for the end of life: The views of older people about advance care statements. Social Science & Medicine, 59, 57-68.
41. Sorensen, R. (2006, June). Communication as a (re)organising practice in end-of-life care. Paper presented at the Communication, Medicine & Ethics Conference, Cardiff, Wales.
42. Sorensen, R., & Iedema, R. (2009). Emotional labour: Clinicians' attitudes to death and dying. Journal of Health Organization and Management, 23, 5-22.
43. Sorensen, R., Iedema, R., & Severinsson, E. (2008). Beyond profession: Nursing leadership in contemporary healthcare. Journal of Nursing Management, 16, 535-544.
44. Steinhauser, K., Christakis, N., Clipp, E., McNeilly, M., McIntyre, L., & Tulsky, J. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284, 2476-2482.
45. Strauss, A. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory. Thousand Oaks, CA: Sage.
46. Sullivan, M. (2003). The new subjective medicine: Taking the patient's point of view on health care and health. Social Science and Medicine, 56, 1595-1604.
47. Tucker, K. L., & Steele, F. B. (2007). Patient choice at the end of life: Getting the language right. Journal of Legal Medicine, 28, 305-325.
48. Vaartio, H., & Leino-Kilpi, H. (2004). Nursing advocacy: A review of the empirical research 1990-2003. International Journal of Nursing Studies, 42, 705-714.
49. van Kleffens, T., van Baarsen, B., & van Leeuwen, E. (2004). The medical practice of patient autonomy and cancer treatment refusals: A patient's and physician's perspective. Social Science & Medicine, 58, 2325-2336.
50. Way, J., Back, A. L., & Curtis, J. R. (2002). Withdrawing life support and resolution of conflict with families. British Medical Journal, 325, 1342-1345.
51. Workman, S., McKeever, P., Harvey, W., & Singer, P. (2003). Intensive care nurses' and physicians' experiences with demands for treatment: Some implications for clinical practice. Journal of Intensive Care, 18, 17-24.