Narcolepsy in new zealand: Pathway to diagnosis and effect on quality of life

New Zealand Medical Journal

Volumn 124, Issue 1336, 2011, Pages

  Campbell, Angela J ^a   Leigh Signal, T ^b   O'Keeffe, Karyn M ^a   Bakker, Jessie P ^a  

^a UNIVERSITY OF OTAGO   (New Zealand)

^b MASSEY UNIVERSITY   (New Zealand)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CONTROLLED STUDY; DAYTIME SOMNOLENCE; EPWORTH SLEEPINESS SCALE; FEMALE; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL SPECIALIST; NARCOLEPSY; NEW ZEALAND; POPULATION; PRACTICE GUIDELINE; QUALITY OF LIFE; QUESTIONNAIRE; SHORT FORM 36; SYMPTOM; WELLBEING;

EID: 79958244717     PISSN: None     EISSN: 11758716     Source Type: Journal    
DOI: None     Document Type: Article

References (29)

1. Billiard M. Diagnosis of narcolepsy and idiopathic hypersomnia. An update based on theInternational classification of sleep disorders, 2nd edition. Sleep Med Rev. 2007;11:377-88.
2. Longstreth WT, Jr., Koepsell TD, Ton TG, et al. The epidemiology of narcolepsy. Sleep.2007;30:13-26.
3. Chabas D, Taheri S, Renier C, Mignot E. The genetics of narcolepsy. Annu Rev GenomicsHum Genet. 2003;4:459-83.
4. Nishino S, Okuro M, Kotorii N, et al. Hypocretin/orexin and narcolepsy: new basic andclinical insights. Acta Physiol. 2009;198:209-22.
5. Goswami M. The influence of clinical symptoms on quality of life in patients with narcolepsy.Neurology. 1998;50:S31-6.
6. Broughton R, Ghanem Q, Hishikawa Y, et al. Life effects of narcolepsy in 180 patients fromNorth America, Asia and Europe compared to matched controls. Can J Neurol Sci.1981;8:299-304.
7. Moldofsky H, Broughton RJ, Hill JD. A randomized trial of the long-term, continued efficacyand safety of modafinil in narcolepsy. Sleep Med. 2000;1:109-16.
8. Broughton RJ, Fleming JA, George CF, et al. Randomized, double-blind, placebo-controlledcrossover trial of modafinil in the treatment of excessive daytime sleepiness in narcolepsy.Neurology. 1997;49:444-51.
9. Morrish E, King MA, Smith IE, Shneerson JM. Factors associated with a delay in thediagnosis of narcolepsy. Sleep Med. 2004;5:37-41.
10. Kryger MH, Walid R, Manfreda J. Diagnoses received by narcolepsy patients in the year priorto diagnosis by a sleep specialist. Sleep. 2002;25:36-41.
11. Ohayon MM, Ferini-Strambi L, Plazzi G, et al. How age influences the expression ofnarcolepsy. J Psychosom Res. 2005;59:399-405.
12. Rosenthal LD, Merlotti L, Young DK, et al. Subjective and polysomnographic characteristicsof patients diagnosed with narcolepsy. Gen Hosp Psychiatry. 1990;12:191-7.
13. Kushida CA, Littner MR, Morgenthaler T, et al. Practice parameters for the indications forpolysomnography and related procedures: an update for 2005. Sleep. 2005;28:499-521.
14. Arand D, Bonnet M, Hurwitz T, et al. The clinical use of the MSLT and MWT. Sleep.2005;28:123-44.
15. Littner M, Johnson SF, McCall WV, et al. Practice parameters for the treatment of narcolepsy:an update for 2000. Sleep. 2001;24:451-66.
16. Morgenthaler TI, Kapur VK, Brown T, et al. Practice parameters for the treatment ofnarcolepsy and other hypersomnias of central origin. Sleep. 2007;30:1705-11.
17. Keam S, Walker MC. Therapies for narcolepsy with or without cataplexy: evidence-basedreview. Curr Opin Neurol. 2007;20:699-703.
18. Billiard M, Bassetti C, Dauvilliers Y, et al. EFNS guidelines on management of narcolepsy.Eur Respir J. 2006;13:1035-48.
19. Vignatelli L, D'Alessandro R, Candelise L. Antidepressant drugs for narcolepsy. CochraneDatabase Syst Rev. 2008:CD003724.
20. Auger RR, Goodman SH, Silber MH, et al. Risks of high-dose stimulants in the treatment ofdisorders of excessive somnolence: a case-control study. Sleep. 2005;28:667-72.
21. Scott KM, Tobias MI, Sarfati D, Haslett SJ. SF-36 health survey reliability, validity andnorms for New Zealand. Aust NZ J Public Health. 1999;23:401-6.
22. Gander PH, Marshall NS, Harris R, Reid P. The Epworth Sleepiness Scale: influence of age,ethnicity, and socioeconomic deprivation. Sleep. 2005;28:249-53.
23. Johns MW. A new method for measuring daytime sleepiness: the Epworth sleepiness scale.Sleep. 1991;14:540-5.
24. Ware JE, Jr., Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I.Conceptual framework and item selection. Med Care. 1992;30:473-83.
25. Anic-Labat S, Guilleminault C, Kraemer HC, et al. Validation of a cataplexy questionnaire in983 sleep-disorders patients. Sleep. 1999;22:77-87.
26. Johns M, Hocking B. Daytime sleepiness and sleep habits of Australian workers. Sleep.1997;20:844-9.
27. Green PM, Stillman MJ. Narcolepsy. Signs, symptoms, differential diagnosis, andmanagement. Arch Fam Med. 1998;7:472-8.
28. Parkes J, Clift S, Dahlitz M, et al. The narcoleptic syndrome. J Neurol Neurosurg Psychiatry.1995;59:221-24.
29. Dodel R, Peter H, Walbert T, et al. The socioeconomic impact of narcolepsy. Sleep.2004;27:1123-8.