Korean American adult children's beliefs about what their parents want at the end of life

Clinical Gerontologist

Volumn 34, Issue 4, 2011, Pages 305-318

  Kim, Minju ^a   Foreman, Marquis D ^b  

^a Inje University   (South Korea)

^b RUSH UNIVERSITY   (United States)

Author keywords

Advance care planning; End of life; Korean American; Life support; Substitute judgment

Indexed keywords

EID: 79958080491     PISSN: 07317115     EISSN: 15452301     Source Type: Journal    
DOI: 10.1080/07317115.2011.572538     Document Type: Article

References (42)

1. Aging with Dignity. (2010). Five wishes. Retrieved January 11, 2010, from http://www.agingwithdignity.org/five-wishes.php
2. Allen, R. S., Allen, J. Y., Hilgeman, M. M., & DeCoster, J. (2008). End-of-life decisionmaking, decisional conflict, and enhanced information: Race effects. Journal of the American Geriatrics Society, 56(10), 1904-1909.
3. Bardis, P. D. (1959). A familism scale. Marriage and Family Living, 21(4), 340-341.
4. Behling, O., & Law, K. S. (2000). Translating questionnaires and other research instruments: Problems and solutions. Thousand Oaks, CA: Sage Publications, Inc.
5. Bito, S., Matsumura, S., Singer, M. K., Meredith, L. S., Fukuhara, S., & Wenger, N. S. (2007). Acculturation and end-of-life decision making: Comparison of Japanese and Japanese-American focus groups. Bioethics, 21(5), 251-262.
6. Blackhall, L. J., Frank, G., Murphy, S., & Michel, V. (2001). Bioethics in a different tongue: The case of truth-telling. Journal of Urban Health: Bulletin of the New York Academy of Medicine, 78(1), 59-71.
7. Blackhall, L. J., Frank, G., Murphy, S., Michel, V., Palmer, J. M., & Azen, S. (1999). Ethnicity and attitudes towards life-sustaining technology. Social Science & Medicine, 48, 1779-1789.
8. Blackhall, L. J., Murphy, S., Frank, G., Michel, V., & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. JAMA, 274(10), 820-825.
9. Bookwala, J., Coppola, K. M., Fagerlin, A., Ditto, P. H., Danks, J. H., & Smucker, W. D. (2001). Gender differences in older adults' preferences for life-sustaining medical treatments and end-of-life values. Death Studies, 25, 127-149.
10. Cate, F. H., & Gill, B. A. (1991). The Patient Self-Determination Act: Implementation issues and opportunities. Washington, DC: The Annenberg Washington Program.
11. Choi, J. (2005). Acculturation and physical activity in Korean immigrant women. Unpublished Doctoral dissertation, University of Illinois at Chicago, Chicago, IL.
12. Coppola, K. M., Bookwala, J., Ditto, P. H., Lockhart, L. K., Danks, J. H., & Smucker, W. D. (1999). Elderly adults' preferences for life-sustaining treatments: the role of impairment, prognosis, and pain. Death Studies, 23, 617-634.
13. Degenholtz, H. B., Arnold, R. A., Meisel, A., & Lave, J. R. (2002). Persistence of racial disparities in advance care plan documents among nursing home residents. Journal of the American Geriatrics Society, 50, 378-381.
14. Ditto, P. H., Danks, J. H., Smucker, W. D., Bookwala, J., Coppola, K. M., Dresser, R.,... Zyzanski, S. (2001). Advance directives as acts of communication: A randomized controlled trial. Archives of Internal Medicine, 161, 421-430.
15. Earp, J. B. K. (2004). Korean Americans. In J. N. Giger & R. E. Davidhizar (Eds.), Transcultural nursing: Assessment & intervention (4th ed., pp. 571-589). Philadelphia, PA: Mosby.
16. Frank, G., Blackhall, L. J., Michel, V., Murphy, S. T., Azen, S. P., & Park, K. (1998). A discourse of relationships in bioethics: Patient autonomy and end-oflife decision making among elderly Korean Americans. Medical Anthropology Quarterly, 12, 403-423.
17. Harkness, J. A., Pennell, B.-E., & Schoua-Glusberg, A. (2004). Survey questionnaire translation and assessment. In S. Presser, J. M. Rothged, M. P. Couper, J. T. Lessler, E. Martin, J. Martin, & E. Singer (Eds.), Methods for testing and evaluating survey questionnaires (pp. 452-473). Hoboken, NJ: Wiley-Interscience.
18. Harkness, J. A., & Schoua-Glusberg, A. (1998). Questionnaires in translation. ZUMANachrichten Spezial, 3, 87-126.
19. Ishii-Kuntz, M. (1997). Intergenerational relationships among Chinese, Japanese, and Korean Americans. Family Relations, 46, 23-32.
20. Jang, Y., Kim, G., & Chiriboga, D. (2005). Acculturation and manifestation of depressive symptoms among Korean-American older adults. Aging & Mental Health, 9, 500-507.
21. Kauh, T. O. (1999). Changing status and roles of older Korean immigrants in the United States. International Journal of Aging and Human Development, 49, 213-229.
22. Kim, J. H., & Theis, S. L. (2000). Korean American caregivers: Who are they? Journal of Transcultural Nursing, 11, 264-273.
23. Ko, E. (2008). Advance care planning with Korean American and non-Hispanic White older adults. Unpublished Doctoral dissertation, University of Kansas Lawrence, KS.
24. Kong, E. H. (2007). The influence of culture on the experiences of Korean, Korean American, and Caucasian-American family caregivers of frail older adults: A literature review. Taehan Kanho Hakhoe Chi, 37, 213-220.
25. Kwak, J., & Haley, W. E. (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. Gerontologist, 45, 634-641.
26. Kwak, J., & Salmon, J. R. (2007). Attitudes and preferences of Korean-American older adults and caregivers on end-of-life care. Journal of the American Geriatrics Society, 55, 1867-1872.
27. Layde, P. M., Beam, C. A., Broste, S. K., Connors, A. F., Jr., Desbiens, N., Lynn, J.,... Wenger, N. (1995). Surrogates' predictions of seriously ill patients' resuscitation preferences. Archives of Family Medicine, 4, 518-523.
28. Marbella, A. M., Desbiens, N. A., Mueller-Rizner, N., & Layde, P. M. (1998). Surrogates' agreement with patients' resuscitation preferences: Effect of age, relationship, and SUPPORT intervention. Journal of Critical Care 13, 140-145.
29. Marks, M. A. Z., & Arkes, H. R. (2008). Patient and surrogate disagreement in end-oflife decisions: Can surrogates accurately predict patients' preferences? Medical Decision Making, 28, 524-531.
30. Matsumura, S., Bito, S., Liu, H., Kahn, K., Fukuhara, S., Kagawa-Singer, M., & Wenger, N. (2002). Acculturation of attitudes toward end-of-life care: A crosscultural survey of Japanese Americans and Japanese. Journal of General Internal Medicine, 17, 531-539.
31. McAdam, J. L., Stotts, N. A., Padilla, G., & Puntillo, K. (2005). Attitudes of critically ill Filipino patients and their families toward advance directives. American Journal of Critical Care, 14(1), 17-25.
32. National Center for Health Statistics. (2006). Health, United States, 2006, with chartbook on trends in the health of Americans. Retrieved February 10, 2009, from www.cdc.gov/nchs/data/hus/hus06.pdf
33. Oh, D. Y., Kim, J. H., Kim, D. W., Im, S. A., Kim, T. Y., Heo, D. S.,... Kim, N. K. (2006). CPR or DNR? End-of-life decision in Korean cancer patients: A single center's experience. Supportive Care in Cancer, 14, 103-108.
34. Phipps, E., True, G., Harris, D., Chong, U., Tester, W., Chavin, S. I., & Braitman, L. E. (2003). Approaching the end of life: Attitudes, preferences, and behaviors of African-American and White patients and their family caregivers. Journal of Clinical Oncology 21, 549-554.
35. Ryder, A. G., Alden, L. E., & Paulhus, D. L. (2000). Is acculturation unidimensional or bidimensional? A head-to-head comparison in the prediction of personality, self-identity, and adjustment. Journal of Personality and Social Psychology, 79, 49-65.
36. Shalowitz, D. I., Garrett-Mayer, E., & Wendler, D. (2006). The accuracy of surrogate decision makers: A systematic review. Archives of Internal Medicine, 166, 493-497.
37. Smucker, W. D., Houts, R. M., Danks, J. H., Ditto, P. H., Fagerlin, A., & Coppola, K. M. (2000). Modal preferences predict elderly patients' life-sustaining treatment choices as well as patients' chosen surrogates do. Medical Decision Making, 20(3), 271-280.
38. U.S. Census Bureau. (2007). The American Community-Asians: 2004. Retrieved April 5, 2009, from http://www.census.gov
39. Ulrich, L. P. (1999). The Patient Self-Determination Act: Meeting the challenges in patient care. Washington, DC: Georgetown University Press.
40. Youn, G., Knight, B. G., Jeong, H. S., & Benton, D. (1999). Differences in familism values and caregiving outcomes among Korean, Korean American, and White American dementia caregivers. Psychology and Aging, 14(3), 355-364.
41. Yun, Y., Lee, M., Chang, Y., You, C., Kim, S., Choi, J.,... Jeong, H. (2010). The lifesustaining treatments among cancer patients at end of life and the caregiver's experience and perspectives. Supportive Care in Cancer, 18, 189-196.
42. Yun, Y., You, C. H., Lee, J. S., Park, S. M., Lee, K. S., Lee, C. G., & Kim, S. (2006). Understanding disparities in aggressive care preferences between patients with terminal illness and their family members. Journal of Pain and Symptom Management, 31, 513-521.